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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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CBL

I Have A Terrible Rash--is It Cd?

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I just discovered celiac disease and have not yet restricted gluten from my diet. I suspect it might be a cause of my rash, though.

My rash lies dormant, usually in the winter; hot humid weather seems to encourage it.

It starts looking like a small red insect bite; it is extremely itchy. It gets bigger over the course of ~10 days and it turns into an oozing blister. Sometimes multiple rash "spots" will spread and blister and then merge together and become one large open sore (this mostly happens on my palms). The pain and itching is unbearable.

The rashes can appear on my arms. legs, neck. The mostly come in clusters.

My rash first appeared in my mid twenties. No one (MD, dermo) one could tell me what it was. I thought it was a form of excema.

I've been treated with pregnizone (cortizone shot) and topical steroid cremes; this dries it out temporarily.

Regarding other symptons of celiac disease: I also have some gastrointestinal issues, although I've always just assumed that I had a "spastic colon". I have leg cramping. I'm having trouble with depression. I can't gain weight.

Please help! Any advice or information would be appreciated. I don't have insurance, so I need all the help i can get!

Thanks!

Carter

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This does sound a lot like dermatitis herpetiformis, or DH. You need to find a dermatologist who's familiar with it. Dapsone controls the outbreaks but what you really need to do is go gluten free, because if you have DH, you do or will have celiac.

If you simply don't have the money for testing then your only choice is to go ahead and try the diet and see if you improve. For the DH you'll also need to avoid iodine for a little while. Improvement will not be immediate, although if you don't get outbreaks in the winter, your DH might be fairly mild.

richard

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