• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Feeling Worse On The Elimination Diet
0

18 posts in this topic

I felt great on a gluten-free/cf diet for 3.5 months, but lately I haven't been feeling normal anymore. Not nearly as bad as I used to feel, but not great, either. So I decided to start an elimination diet to hopefully figure out what else I'm intolerant to.

It's only been 2 days, but I actually feel a little worse. Am I just detoxing and it will get better in a few days or is it something else?

Thanks. :)

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Elizabeth:

It is very normal to have many ups and down. It took a long time for your body to react to that damage, as well it will take time to heal.

In the beginning it is almost impossible to go cold turkey from Gluten and be informed about all the things you need to avoid. It takes time to educate yourself. Gluten is everywhere.

It also takes time for you to heal enough to know that you have been glutened. Does that make sense? It took me about 7 months to feel better, to feel the effects of being glutened. It took me that long to heal

Be patient and you may need to re-check you shampoos, suppliments, lipsticks or anything that may come into contact with you mouth.

Sometimes, when you feel better, you tend to get a little lax in your diligence. You always want to keep that in check.

Hope you feel better.

Lisa

0

Share this post


Link to post
Share on other sites

Hi Elizabeth

How are you going about your elimination diet? When I did mine, I began by just eating the basics--nothing processed and very little sugar.

Each week or so, I would add something back in to see how or if I'd react.

I'm thinking that if you are at the point where you're down to basics (meat, veggies, fruit, water), you may be experiencing some withdrawl--especially if you were eating sugar and caffeine.

Have you added anything back in yet?

Let me know more about where you're at, and maybe I can be of more help.

0

Share this post


Link to post
Share on other sites

I'm doing the elimination diet right now too. For the last four days all I have been eating is lean meat, fruit, vegetables, and water. And I have been eating smaller meals too. My stomach feels a lot better, but the rest of my body is very tired...I have no energy and feel really shaky. I figured my body needs some time to adjust. I plan on giving it at least two weeks and see how it goes.

Good luck :)

0

Share this post


Link to post
Share on other sites

I did a few foods diet awhile ago---my allergist put me on it. But he didn't give me very much direction or info. So I bought this book by Janice Vickerstaff Joneja, PhD, RDN. (_Dealing with Food Allergies_) She explains everything! (she deals with intolerances + allergies) + gives lots of tips on what to eat on the diet + recipes for the diet. I highly recommend this book.

One of the things she explains----if you have allergies/food sensitivities you might actually feel worse at first. she calls this "serum sickness"---flu-like symptoms can be expected.

hope this helps!

0

Share this post


Link to post
Share on other sites
Ads by Google:


If you're only eating a few things, you may find that you're not getting:

1) enough calories

2) the right protein/carb/fat balance to keep your blood sugar steady

3) enough vitamins/minerals

0

Share this post


Link to post
Share on other sites

Hi everyone! Thanks so much for the replies!

I've only been on the elimination diet for 2 days - not long at all. I'm only eating fruits, vegetables and lean meats, which is really hard - I'm craving carbs of any kind! I haven't had anything processed, with the exception of canned in water albacore tuna, and the sugar I'm getting is coming from fruit.

I'm probably jumping the gun and not waiting long enough to see my symptoms disappear.

Thanks for all the support. I've been somewhat depressed because I was very, very bloated and had a lot of stomach pain for years before going gluten-free and now I'm worried that the relief I've felt for the last several months won't be permanant. I know that's just paranoia talking, but it's scary nonetheless.

:)

0

Share this post


Link to post
Share on other sites




I'm feeling so dumb right now...I made it through six rough days of the elimination diet and felt like crap for most of it...and I just ate a ton of peanut butter. I feel like my stomach is going to explode. Ugh...I'm going to go throw away the rest of the peanut butter in the house. I'm so bloated right now. No food is worth this...I don't care how good it tastes. I think it will be easier to stick to the diet now. <_<

0

Share this post


Link to post
Share on other sites
I'm feeling so dumb right now...I made it through six rough days of the elimination diet and felt like crap for most of it...and I just ate a ton of peanut butter. I feel like my stomach is going to explode. Ugh...I'm going to go throw away the rest of the peanut butter in the house. I'm so bloated right now. No food is worth this...I don't care how good it tastes. I think it will be easier to stick to the diet now. <_<

I'm so sorry sweetie! It's so hard to stick to this diet - I've had moments of temptation where I wanted to have a gluten-free english muffin or make some rice, but I'm sticking it out.

If you ever want to chat, PM me. I'm going through this as well!

0

Share this post


Link to post
Share on other sites
I'm so sorry sweetie! It's so hard to stick to this diet - I've had moments of temptation where I wanted to have a gluten-free english muffin or make some rice, but I'm sticking it out.

If you ever want to chat, PM me. I'm going through this as well!

It's been a pretty tough week. My stomach felt sooo much better, but I had no energy at all and was cranky all the time and last night I broke down and had a bite of peanut butter and I could feel it immediately. So I figured if I already felt sick I might as well eat as much as I wanted. So I have eaten two small jars in less than a day :o Maybe I needed this to make it easier to stick to my diet...I'm starting over right now.

Thanks for your help...email or IM me anytime if you need some too B)

0

Share this post


Link to post
Share on other sites




I felt great on a gluten-free/cf diet for 3.5 months, but lately I haven't been feeling normal anymore. Not nearly as bad as I used to feel, but not great, either. So I decided to start an elimination diet to hopefully figure out what else I'm intolerant to.

It's only been 2 days, but I actually feel a little worse. Am I just detoxing and it will get better in a few days or is it something else?

Thanks. :)

I felt horrible on the elimination diet too! Now I think I know why. I got my IgG food intolerance test results which showed a major reaction to almonds. I was probably eating more almonds than usual on the elimination diet because it was something I thought was ok. I kept eliminating stuff but hadn't made it to almonds yet. Erg.

S

0

Share this post


Link to post
Share on other sites

Here's another reason why folks might feel crappy when doing an elimination diet.

Ok, I've heard of Peptides before, but being curious I looked it up on wikipedia.

http://en.wikipedia.org/wiki/Polypeptide

While reading it I came across this bit of info:

Opioid peptides, now that sounds interesting what is that?

http://en.wikipedia.org/wiki/Opioid_peptides

Wow, no wonder it's so hard for some folks to give up breads and dairy. Since a lot of us have issues with gluten, lets take a look at one.

http://en.wikipedia.org/wiki/Gluten_exorphin

Wow.

Looking into a few of those opioid peptieds led me into some interesting areas as well.

How in the world can Doctors still believe that food plays no role in a lot of our problems? The evidence out there is pretty substantial that it does.

Mike

0

Share this post


Link to post
Share on other sites

I really want to do the elmination diet but I crave stuff like rice and corn tortillas. I probably eat rice cakes almost every day! I tend to have a lot of difficulty with roughage type stuff (veggies like carrots, spinach, heck all veggies really) and I am a VEGETARIAN (who consumes some tuna). I feel like the rice and corn tortillas "settle" my often upset stomach.

So I have some questions re: the elmination diet.

1. What on earth would I eat (remember I am a vegetarian)?

2. How do you stick to it!?

Any ideas/suggestions would be great. I am so tired of being bloated and having an upset stomach all the time. The only time I feel "good" is right when I wake up in the morning w/nothing in my stomach.

0

Share this post


Link to post
Share on other sites
I really want to do the elmination diet but I crave stuff like rice and corn tortillas. I probably eat rice cakes almost every day! I tend to have a lot of difficulty with roughage type stuff (veggies like carrots, spinach, heck all veggies really) and I am a VEGETARIAN (who consumes some tuna). I feel like the rice and corn tortillas "settle" my often upset stomach.

So I have some questions re: the elmination diet.

1. What on earth would I eat (remember I am a vegetarian)?

2. How do you stick to it!?

Any ideas/suggestions would be great. I am so tired of being bloated and having an upset stomach all the time. The only time I feel "good" is right when I wake up in the morning w/nothing in my stomach.

I'm going to leave the big answer up to the experts (if no one answers, PM jerseyangel or Ursula), but here's my $0.02:

If you have trouble with roughage, you might try cooking it really well and pureeing it. That breaks down the fiber into a more managable form for your intestines to digest.

As a vegetarian, you might try eating only well cooked and pureed fruits and veggies until your symptoms disappear and then adding eggs, if you eat them. Eggs are excellent sources of protein.

Another thing it might be, since it sounds like your entire gut is sensitive, is an intolerance to high levels of fat. You might try eating a very low-fat diet for a few days and see if your symptoms improve - I cannot eat more than 25% of my calories from fat in any given meal or I bloat up like a balloon. It seems that a good number of celiacs have fat intolerance problems as well.

Good luck!

0

Share this post


Link to post
Share on other sites

Just want to explain something. If you go from a high carb, starchy or high sugar diet to one of meats and veggies you're going to have a couple of weeks of adjustment. Your body is shifting from a high glucose/insulin mode to doing things like converting proteins to glucose and burning dietary fat and body fat. After the conversion process you'll feel better. In fact, you might feel massively better. Stay the course! :D

If you can't handle it, add in a bit of fruit.

0

Share this post


Link to post
Share on other sites

Thank you both (emcmaster and Nancym). I think I am going to really give a full effort. My DH might think I am nuts since I *want* to restrict even more from my diet but I think it might help.

I will try cooking the veggies really really well. That does seem to make some what a difference because I notice when I eat cooked broccoli vs raw broccoli . . . I get less gassy. Still gassy, but a lot less. I like the idea of adding eggs in first for protein. I am a runner and I know I will need some carbs/protein at some point but figuring out what really bothers me first is important.

So I will try fruits for breakfast (I read apples and citrus are out right?). Veggies for lunch and veggies and perhaps yams/sweet potato for dinner? I read that sweet potatos were allowed . . . just not white potatos.

Still will be hard to go w/o my morning tea though. :-)

I take it that BEANO is also out huh? I tend to use that when I eat veggies.

One thing I have noticed, and maybe this is just me, but have you seen those HANNS bags called Broccoli Salad where it's basically shredded broccoli, carrots and red cabbage? I love those but for some reason, my digestive system really doesn't handle it well and I think it is because it is shredded. Does that sound weird? I mean it goes "in" and "out" exactly the same . . . sorry for TMI.

I don't post on here much, more of a lurker, but I am really trying to stick to this diet because my DH and I are considering kids in the near future and I want to be healthy for the process.

Thanks again for the tips.

0

Share this post


Link to post
Share on other sites
Thank you both (emcmaster and Nancym). I think I am going to really give a full effort. My DH might think I am nuts since I *want* to restrict even more from my diet but I think it might help.

I will try cooking the veggies really really well. That does seem to make some what a difference because I notice when I eat cooked broccoli vs raw broccoli . . . I get less gassy. Still gassy, but a lot less. I like the idea of adding eggs in first for protein. I am a runner and I know I will need some carbs/protein at some point but figuring out what really bothers me first is important.

So I will try fruits for breakfast (I read apples and citrus are out right?). Veggies for lunch and veggies and perhaps yams/sweet potato for dinner? I read that sweet potatos were allowed . . . just not white potatos.

Still will be hard to go w/o my morning tea though. :-)

I take it that BEANO is also out huh? I tend to use that when I eat veggies.

One thing I have noticed, and maybe this is just me, but have you seen those HANNS bags called Broccoli Salad where it's basically shredded broccoli, carrots and red cabbage? I love those but for some reason, my digestive system really doesn't handle it well and I think it is because it is shredded. Does that sound weird? I mean it goes "in" and "out" exactly the same . . . sorry for TMI.

I don't post on here much, more of a lurker, but I am really trying to stick to this diet because my DH and I are considering kids in the near future and I want to be healthy for the process.

Thanks again for the tips.

Broccoli is a very gas-producing vegetable and I believe cabbage is, too. This sounds funny, but you might try cooking that broccoli salad a bit to make it easier to digest.

I think your idea sounds good for the e. diet, however, you will most likely need to eat every 2 or 3 hours if you're only eating fruits and veggies. I can't go much longer than that without getting extremely hungry.

If you can handle it, you can have nuts (except for peanuts) and oils. That will help to satiate you.

Good luck!

0

Share this post


Link to post
Share on other sites
I really want to do the elmination diet but I crave stuff like rice and corn tortillas. I probably eat rice cakes almost every day! I tend to have a lot of difficulty with roughage type stuff (veggies like carrots, spinach, heck all veggies really) and I am a VEGETARIAN (who consumes some tuna). I feel like the rice and corn tortillas "settle" my often upset stomach.

So I have some questions re: the elmination diet.

1. What on earth would I eat (remember I am a vegetarian)?

2. How do you stick to it!?

Any ideas/suggestions would be great. I am so tired of being bloated and having an upset stomach all the time. The only time I feel "good" is right when I wake up in the morning w/nothing in my stomach.

Id hate to say it but you could possibly have an allergy or intolerance to rice and corn. When you notice that you have strong cravings for something that can be a sign in and of itself that your allergic. I know from my own experience having major cravings for cheese or bread and indulging and feeling like hell afterwards. Any food that triggers heavy cravings are suspect. I guess the only way to know is to eliminate it for a few weeks, notice how you feel without it, then add it back in and see how you feel again.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,328
    • Total Posts
      935,514
  • Member Statistics

    • Total Members
      64,989
    • Most Online
      3,093

    Newest Member
    Jaf
    Joined
  • Popular Now

  • Topics

  • Posts

    • First degree relatives of celiacs should be tested every 2 years in the absence of symptoms & immediately if symptoms present since celiac can present at any age. Celiac affects every cell in the body & inflammation is common. My inflammation began in my lower back and the bend of my leg (on the back side of the knees). It progressed to literally everywhere. You name it, back, neck, arms, legs, ankles, hips, wrists, fingers. Excruciating pain as well as swelling. So excruciating that opiates didn't even phase it. I just had to bear it. I would take ice packs & use them until the area was pure D numb. You're never supposed to leave ice on that long but if I hadn't then I would have shot myself. I can not begin to describe the intensity of the pain. The last year before diagnosis, I was sure that within a year, I would be confined to a wheelchair for the remainder of my life. Now, 5.5 years gluten free, I can't tell you the last time I took a Tylenol or any other anti inflammatory. In fact, I'm not on any meds at all. Nothing.
    • Thanks for all that info and the links.  It would be such a relief if I could know what is causing the fever, and that maybe it will go away as I stay gluten-free.  Both my gastro dr and rheum dr said to still stay gluten-free even though I apparently don't have celiac.  They are saying to give it 2-3 months to see how I feel then.  My fever has been down to around 99.9 the past two days, instead of over 100 and 101 like it's been since February.  That is the most exciting thing so far.  My stomach is not as severe or bad, but certainly not great, and I don't feel out of the woods at all concerning that yet.  I still hope to feel a lot better as more time goes by without gluten....I hope.  I seem to get bloat and also discomfort in my ribs more in the evening, even if I ate the same thing at lunch.   I started a food journal.  I guess I need to keep being patient. My rheum dr wants to see the journal in October when I see her again. She said she loves detective work.  It sounds like we all need to become food and symptom detectives when dealing with this.  Now if we could only get an NCIS episode where they investigate how gluten can "murder" our stomachs, and figure out a cure for gluten issues, besides going gluten-free.  It actually hasn't been too bad so far, other than foods that you are iffy or unsure about with all sorts of weird ingredients listed in it.  The internet and this site here helps a lot with some of that.  Luckily there is a whole lot we can still eat, but corn and corn products are an iffy for me too at the moment, and my dr suggested trying to avoid soy, and that xanthan gum, and a few things like that. Only thing that has shown in my bloodwork so far is chronic inflammation that may mean an underlying autoimmune disease.  Ya, I've been hearing "it seems like something autoimmune" for the past few decades.  It'd kind of be helpful to figure out exactly what.  I'm so tired of being tired.  I am sure you all can relate to that.  You just want to wake up and feel good.  
    • HEB organics does not bother me at all. Their plain one has to be boiled before I can drink it so I tend to use it in moderation in cooking...it also has xantham gum which explained that issue. MALK gives me no issues (Local Only Brand I think). Used to drink something called Mooala but could not find it unsweetened after my UC dia.  Almond Breeze is next up but I can only drink about a cup of it before I start getting burping issues, silk bothers me the least but still causes some issues. Silk cashew is alright and I use it all the time with NO issues at all...but I use it in cooking and do not think I have ever used it without boiling it first either in a icecream base or mixing it in a soup, cheese sauce, or adding a bit to eggs for fluff.   Hmm there is one other brand of macadamia milk that dose not bother me and Good Karma Flax milk I have NO issues with....been a good 6 months since I had any though. http://malkorganics.com/products/   https://www.heb.com/product-detail/h-e-b-organics-unsweet-vanilla-almond-milk/1741526 ^ Two that give me the least issues  
    • Oh goodness me so do you guys bother to get histamine level diagnosed or do you just treat it as you did the food diary ? taking note of high histamine time of year/ season and diet into your seasonal food diet? I'm pretty good at rotating foods I've done that longer than I've known about my issues from a nutritional standpoint I rotated which is why until the gluten challenge derailed my immune system entirely. it was challenging enough to do that gluten challenge I am not really up for more testing. I have symptoms of IC, POTS, fibromyalgia, and now you reveal that yes histamine threshold are part of the celiac autoimmune party bag too. how do all branches of medicine not find this group the most intriguing group of people ever? Really?Or Do you just all avoid them and go on your merry way? Ennis - what almond milk can you drink ? the almond milk 3 we tried/ bought prior to making my own (had unlabeled ingredient  fortified and thickeners corn derived added. ) I was shocked to call and discover it had it in (not labeled as it was corn not top 8) it finally explained why the right elbow joint hurt but it was a small enough derived amount of derived  corn not to trigger the Full blast corn intolerance symptoms. For this reason and now the orange juice incident I'm really leery of unidentified corn or corn derivatives or highly processed any additive for they are prevalent in processed land.  
    • Yeah I have 2 stationary pedal bikes. I use one on the desk sometimes while watching a show and work out my arms. I keep one under the desk and pedal on it for hours a day, really helps with my restless leg issues and stress (just gotta keep moving or I start feeling like a panic attack is coming on trapped by life like a rat in a cage. If you need to know were to find the ground cocoa nibs look up crio bru, they sell it as a coffee replacement for $23 for 1.5lbs they have different origin and different roast levels so you can get different flavored cocoa nibs I get several and mix them up.
  • Upcoming Events