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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Australians And New Zealanders Hellooooooo :)
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Have today found a bunch of gluten-free stuff- Oh so helpfully in the bread and bakery aisle, ( not the fresh bakerey section). I found a box of individual brownies from Cakemark and biscuits and fruit bites from Jon Jon. The fruit bites look the mince pies they put out at Christmas except that they came in apricot or berry. I guess the good thing about them been in the normal section means people might buy them by accident. All them seemed to be around the $5 mark, still a bit more expensive the no gluten-free but reasonable compared to some of the ones you buy at health places. You can buy brownie mix and get more but sometimes you don't have time to cook. Also I think other people find it less daunting to buy something for you if they don't have to venture into the health food aisle, wheater not it's just telling to buy a specific brand or something with gluten free written on.

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For those who live in Melbourne (particularly in the south eastern suburbs) there is a great gluten free bakery in Moorabbin called Glutenfree4you. They have the usual breads, pies, sausage rolls, cakes etc. PLUS gluten free donuts, jam donuts, canoli and other amazing gluten free goodies. My daughter had her first gluten free jam donut on the weekend and last week she had a yummy canoli.

Here is a link to their website. Check before visting for opening hours.

http://glutenfree4u.com.au/

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My local coles have bellyhoo pies back in - yay!

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My local coles have bellyhoo pies back in - yay!

I noticed some in one near me the other day, thought it must have been the last of the stock but maybe it was new. Have been saving the ones I had. Not sure what happened but a shame they went out of stock in the cooler months- perfect pie weather.

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Just tried the new improved (according to packaging) Country Life bread. It seems slightly larger and thicker than before, also a slightly different taste/texture- not sure if I prefer it yet.

Either I haven't paid attention the last few times I've bought it or the price has also gone up to $6.70. I know it's only about $1 more but part of the reason I'd previously bought was for cheapness, and it's now about the same as some other nicer brands. At least for my taste.

What does everyone else think?

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I came on to mention the new Country life as well Saz!

I Think it is 100 times better than it was before. It doesn't smell like the ocean when toasting and tastes like real bread. It is more expensive, but still cheaper than shar and those other brands. I am well impressed with it. I basically have only eaten this bakery bread (so I went a year without bread) until now. I just couldn't get past how bad country life was. I think the new one is so much better, I had it for breakfast and lunch already. haha!

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I came on to mention the new Country life as well Saz!

I Think it is 100 times better than it was before. It doesn't smell like the ocean when toasting and tastes like real bread. It is more expensive, but still cheaper than shar and those other brands. I am well impressed with it. I basically have only eaten this bakery bread (so I went a year without bread) until now. I just couldn't get past how bad country life was. I think the new one is so much better, I had it for breakfast and lunch already. haha!

Yea. Had some for toast this morning and am impressed at how well it came out. It toasted all the way through and the crust didn't go hard. Have also tried it just as a sandwich again, still not sure if I like it better just as bread. Looking foward to trying the fruit loaf though, should make a tasty breakfast if it toasts as well as the multigrain.

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Also, yay about the new country life bread! I saw it and it looked sooooooo much better than the evil old stuff. Good for them. I don't really eat bread but glad there's a good one easily available. I was on teaching prac awhile back and I noticed a child's sandwich disintegrating into a pile of crumbs and thought, yep, that kid's gluten free :-)

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Those in cyclone and flood prone areas, are you prepared for the cyclone/wet season? What sort of things do you have in your pantry? It's probably in here somewhere, but the thread is so long and my eyes are so sore lol.

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In case anyone is super organised, woolworths have started seling gluten-free fruit mince bites and Christmas puddings. The puddings come in a largeish version or two mini ones. they are hiding in amongst all the regular Christmas stuff, which most stores already seem to have shelves of. I found one store which had spread it around, maybe they think we won't notice if try to hide it?

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I was considering boycotting all stores that try to hide their gluten-free stuff, but then, if they don't sell any it just means one less place that carries it. What to do? What to do?

(I've tried threatening them, told them I drive past their market to shop somewhere else. Any other ideas on how to get them to have a dedicated gluten free section? Telling them I just get angry foraging around amongst all the gluten stuff that I will never buy just does not seem to cut the mustard.)

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The new country life bakery loaves are great. 'Tis a shame they had to add soy and maize as it seems lots of people do badly with these.

Also to all Australians and New Zealanders who have a relative with TYPE 1 DIABETES: An opportunity awaits.

The people conducting a trial for preventing type 1 diabetes are in desperate need for people to have a blood screening test to see whether they are at risk for IDDM by measuring antibody responses.

I think everyone here should be screened (esp. if celiac), even if purely for peace of mind: http://www.stopdiabetes.com.au/

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I found a new brand of bread in coles. It's called Pure-bred and is made in Ireland. It only comes in a small loaf but I think the slices are slighty bigger than other brands. It costs about $5

Straight out of the packet it has that plasticy look, but once you heat it is nice and soft and doen't crumble. I rekon you could almost moosh it like normal bread. The taste is good as well.

Know I should proberly support the Aussie companies but that's hard when the imported products taste so much better.

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Hi all,

Was just wondering if anyone has a list of naturally gluten free foods in Aus, I know there are lists about health foods, but I would love to have a list with foods that do not state that they are gluten free, but they actually are.

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Hi all,

Was just wondering if anyone has a list of naturally gluten free foods in Aus, I know there are lists about health foods, but I would love to have a list with foods that do not state that they are gluten free, but they actually are.

Unfortunetly apart from palin fruit and vegetable it is a case of always needing to read a label. There isn't a catagory of food that is always gluten-free, even plain rice should be checked just in case it has been processed on the same line as pasta.

There a lot of youghurts that are ok but not labeled. Not sure how new you are to this but even if you find something not labeled gluten-free, it is a good to check ingredients regulary as companies often change ingredients.

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EbonyJade, like Saz says, read the label, there are tonnes that are fine but no easy list. Is there any product in particuar that you're wondering about? We could let you know what we eat. There are quite a few that are in the regular parts of the supermarket. I'm in Coles practically every day and I'd be happy to check anything you were curious about.

Shroomie, I know, it's very annoying! I emailed Coles to say that we weren't going to find the crumpets and english muffins if they buried them in amongst the regular ones but did they listen? Nope. I still haven't bought them because when I look at the packets right next to the regular ones I remember how much I loved the regular ones and why bother paying so much more for something that won't taste as good? Yet my attitude when I saw them in England amongst a bunch of other gluten free products was YAY!!! because I was so excited to see so many options. They just don't get it but you think they'd take our free advice!

And I saw woolworths stock gluten free flour (the macro brand) on the shelves with the regular flour, those bags of dust!!!! Insane, there's no way I'd touch anything from near there, it'd be all over my hands and I'd for sure touch my mouth without thinking.

Yum, bread, thanks for the heads up Saz! I've been on a bit of a Dovedale bender latety. Tooooasssssst!

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I found a new brand of bread in coles. It's called Pure-bred and is made in Ireland. It only comes in a small loaf but I think the slices are slighty bigger than other brands. It costs about $5

Straight out of the packet it has that plasticy look, but once you heat it is nice and soft and doen't crumble. I rekon you could almost moosh it like normal bread. The taste is good as well.

Know I should proberly support the Aussie companies but that's hard when the imported products taste so much better.

Pure Bred is really good, I much prefer it over Country Life. Nicer packaging and less nasty ingredients.

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Still no vegan bread on the market.

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Pure Bred is really good, I much prefer it over Country Life. Nicer packaging and less nasty ingredients.

I tried the multigrain pure-bred this week- just as nice as the white. Planning on trying the rolls next - if I can find them. Not sure if everyone is trying them or if they aren't getting a lot of stock but I keep seeing the price tag and a empty shelf in a lot of places. I hope it's because everyone is buying it up.

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Still no vegan bread on the market.

Orgran bread mix can be made as vegan bread. I've tried it that way and it is quite nice. But it does taste better when you add the egg and milk powder.

I think that Silly Yaks bread is vegan but you need to check that because I'm not certain.

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For anyone interested, I have noticed a few Coles stores have started selling Garlic and corriander naan breads from the livwell range. .

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I think it is about time that Coles moved over here!! We have little/no competition between Woolies dba Countdown, and Foodstuffs, dba New World and their budget line Pak 'n Save. And the prices are outrageous -- for everything!

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Over here Woolies and Coles are the main two.

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Over here Woolies and Coles are the main two.

You mean another basically non-competitive environment??? Ye Gods, I hate it when everyone buys everyone else up and then they do what they durned well please. And then when your banks come over here and buy up all our banks, and then buy each other up :ph34r: - well, now I'm looking for another bank again!! (third time) :lol:

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    • Feeneyja and Captain NCGS, and Ironictruth It could be SIBO or it could be NCGS as Captain NCGS pointed out. see this research that matches your 84% of SIBO patients. https://www.celiac.com/articles/24058/1/Large-Number-of-Irritable-Bowel-Syndrome-Patients-Sensitive-to-Gluten/Page1.html Below I summarize their findings I quote “nearly 84% of the gluten- free placebo group showed a significant improvement in symptoms compared to just under 26% for the gluten consuming group.  This study confirms that a large number of patients diagnosed with irritable bowel syndrome are sensitive to gluten.  The team (of doctors) suggest that the term of IBS might be misleading (you think) and may change or delay an “effective and well-targeted treatment strategy in gluten sensitive patients”. “ This is in IBS patients already who fulfilled Rome III (lesion) criteria.  They should at least be considered Non-Celiac Gluten Sensitivity (NCGS) but that would be to admit NCGS is a real condition. If you are having NCGS symptom’s (Marsh Lesion) aka Rome III lesions then why is the diagnosis not NCGS instead of IBS?  The problem is most NCGS (apparently 84%) is misdiagnosed as IBS in a large number of cases or possibly SIBO in your case Feeneyja. Even when 84 % of those with IBS show sensitivity to gluten the diagnosis of Non-Celiac Gluten Sensitivity is not confirmed by a simple gluten antibody test and people  consider Non-Celiac Gluten Sensitive (NCGS at least in the medical community apparently) a myth rather they diagnosis someone’s digestive problems with IBS of an unknown cause instead of admitting gluten is the trigger thus allowing them to avoid what is considered a mythical diagnosis to some in the medical community. By all means if  you have been given an IBS or SIBO diagnosis insist at the least on a gluten antibody test and you may save yourself many years’ of suffering before the doctor’s figure out that Gluten is the trigger then you have hope for recovery if you get the right disease. And I don't mean NCGS. Because even this too is confusing low stomach acid I believe with IBS, NCGS and even SIBO. See my posterboy blog post about why  I think this is. JMG aka Captain NCGS I referenced the Columbia University Medical Center (CUMC)  research on NCGS that I think proves your point and mine. here is the care2 article that I think summarizes it well. http://www.care2.com/causes/new-study-confirms-existence-of-non-celiac-gluten-sensitivity.html NCGS is on the "Celiac Spectrum". quoting dr. hyman from the huffpost 5+ years ago and still people seem them as different diseases (or at least deny the existence of the one over the other) http://www.huffingtonpost.com/dr-mark-hyman/gluten-what-you-dont-know_b_379089.html "When you get these tests, there are a few things to keep in mind. In light of the new research on the dangers of gluten sensitivity without full blown celiac disease, I consider any elevation of antibodies significant and worthy of a trial of gluten elimination. Many doctors consider elevated anti-gliadin antibodies in the absence of a positive intestinal biopsy showing damage to be “false positives.” That means the test looks positive but really isn’t significant. We can no longer say that. Positive is positive and, as with all illness, there is a continuum of disease, from mild gluten sensitivity to full-blown celiac disease. If your antibodies are elevated, you should go off gluten and test to see if it is leading to your health problems." and the columbia research bears this out. ironictruth you want to catch it at the NCGS stage before it becomes full blown (villi burned to the ground) Celiac disease. You are right to run from the burning house (antibodies) causing you a weak but "positive" diagnosis. This concept of the biopsy "proven" diagnosis is archaic at best and barbaric at worse in this age of serology proven diagnosis of NCGS before the villi burns to the ground so to speak. see this online article by dr. rodney ford that discusses why this is today. http://drrodneyford.com/extra/documents/236-no-gold-standard.html and he too (though in minority) is forward enough thinking to diagnose his patients with serology alone. Why would we use a standard 60+ years old when modern medicine can diagnose the disease much better and much, much sooner than what till there is stage 3 marsh lesions. The dgp test you had can diagnose it the intraepithelial lymphocytes (IEL)  stage. That is good news.  The villi are already smoking (using my analogy) of a burning house from antibodies attacking the body. Problem is and I mean this as a complement to SIBO girl and Captain NCGS (I was this in an article about the ZIKA outbreak patients talking how much more they (those affected by the disease) knew than their doctor's who where treating them at the time) we (us) have become doctor's without diplomas'. One of us each has become an expert at recognizing SIBO, NCGS and Pellagra. The question is which one is right??? Maybe we are all right by degrees. I believe NCGS can be confused for SIBO. But I also believe and the research confirms it in my mind that low stomach acid mimics many of the symptom's of both SIBO and NCGS. So that tells me there is still a disease not yet correctly identified. To me the disease that answer's the most questions in my mind is Pellagra. Ironictruth, Freneyja, JMG taking a b-complex can disprove or prove this theory. here is the full paper by Prousky. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml decide for yourself but people routinely get better in 3 months time of taking  niacinamide 2 to 3 times daily or a b-complex and niacinamide 3/day for 3 months. The dosage does not matter.  It is the frequency. And a month will be enough to see improvement (100 count bottle).  I used to recommend to my friends a 100 count bottle because it was the most common way to find either Niacin/Niacinamide or a b-complex but when I found out your body could store 3 months worth in the liver and my experience with b-2 (riboflavin) and angular cheilitis (look it up on google images if you don't know what it is) for years probably 5+ I could not get rid of it for nothing. And I took b-2 (for a 100 count round) once before but learned b-vitamins needed to be taken frequently for best effect. So I bought a 300 count bottle (3 months worth) and took them (b-2/riboflavin) 2 to 3 day and the angular cheiliitis (leaking lips, cracked fissures at the side of the mouth) and it was nice and crusty went away and they have never come back since. but this was after I took the B-3 Niacinamide for a couple months firsts then I was able to absorb the b-2 (riboflavin) now and I put this condition in remission (i did not say cure) because if I get low again it might come back but remission. The same thing happened to my GI problems associated with NCGS (serology positive celiac diagnosis) without a biopsy proven (thank God) diagnosis. And that is my story. I would suggest jmg, feeneyja and you too too ironictruth buy a b-complex and see if a couple three months regimen might help put your GI symptom's in remission. we already know from research 5+ years ago that b-vitamins help celiac's with their well being. https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html quoting "For 6 months, patients received daily doses of either a placebo, or of B vitamins in the amount of 0.8 mg folic acid, 0.5 mg cyanocobalamin and 3 mg pyridoxine." They summarize quoting "These improvements, the normalization of tHcy levels, together with the substantial increase in well-being, led the research team to conclude that people living gluten-free with long-term celiac disease do indeed benefit from daily supplemental doses of vitamin B, and that doctors should consider advising the use of B vitamins supplements for these patients." So I am just saying what the doctor's recommend when recommending Niacinamide for your GI problems that Pellagra could be mimicking (masking the true cause) hence the 58% of celiac also have pellagra (that a majority) of Celiac's also are known to have. I am not a doctor.  But You can be a professor though with a masters so while I do preach Pellagra as a co-morbid condition of NCGS/Celiac disease it is only because the doctor's with diploma's research bears this out. So I try and make more people aware of this fact. (no I do not have  a master's either though a friend once said who has a masters said my research would qualify me if I had taken the courses) (And yes I know B-3 was not studied in this paper) but maybe now is the time to point out it should bee! Or SIBO girl, and Captain NCGS you can try it (B-3) for yourselves and see if it helps you the way it did the Pellagra kid/posterboy. If you want to study this topic more I summarized many of thoughts in this posterboy post https://www.celiac.com/gluten-free/blogs/entry/2103-why-and-how-pellagra-is-often-confused-with-celiac-disease-andor-other-gidigestive-problems-the-science-of-pellagra-a-hidden-epidemic-in-the-21st-century-presentingrevealing-as-ncgs-andor-possbily-celiac-disease/ I wrote a blog post that also said "I had Celiac disease but developed Pellagra" but I really think it is the other way around. (it is linked in the above post) if you want to read it there so I won't post it again. I was a pellagrain who was diagnosed first as a celiac.  The same way a SIBO might first be diagnoses as a IBS or NCGS patient.  Or the way a NCGS is first diagnosed as a IBS patient 84% of the time. Remission is possible I believe if and when you find the right/correct disease. And any of these GI conditions can be confused for the other and SIBO girl and Captain NCGS makes good points. But it seems to me Pellagra can be confused for not only the SIBO, NCGS, but if the research is right 58% (the majority) of Celiac's and it is easily reversible in 3 months time. You will not know if you are not willing to try it. **** this is not medical advice just deep research and my own experience with taking Niacinamide. But I will say  I am not the only one who has been helped on this board taking Vitamin B-3. I want you Iroinctruth, Feeneyja, Jmg to be the next ones. I know this post is way too long as usual but I had a lot of ground to cover. quoting a friend 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • After my crash and burn gluten challenge of 2016, I wander off yet again Into the land of eastern and alternative medicine to heal. While I am grateful to many (not all) western medicine  Dr s of the past , for the past 2 decades the ones who give me relief for my lifetime ails are the alternative/eastern practitioners. I'm not starting a debate as both branches have their strengths, often the shame is they are seperated in healthcare, for likely humanity and public health imo would be best served by their encouraged collaboration/mutual recognition,but alas not my problem to solve. Much bigger then me and quite frankly, I'm too busy healing to tackle that mountain. Regardless, I now have "shoes that fit my carpet bag " of decades of multiple misdiagnosis /undiagnosis collection. They can be combined and labeled celiac and fibromyalgia. I was shocked at first at the news, I consider those really serious. Is AWOL really that ill? I've read up more  on both disciplines descriptons etc for these conditions, I'm in shock for the "shoes" fit perfectly . I know based on western test results I'm far from textbook/ gold standard celiac (but I failed to get past day 6 of my gluten challenge -likely speaks for itself) and fibromyalgia is quite demeaned/dismissed from my past knowledge amongst the western medicine world and greater society. (Friends /family in western medical fields) Is this still the case? My lifetime gi issues, the 30 plus years multiple chemical sensitivities ( go back to childhood-I keep very close to the vest), 20 plus years symptoms of muscle issues / myalgia, now have the names of celiac & fibromyalgia. Mixture of feelings of relief to be recognized, but also knowing my named illnesses are likely not recognized or are minimised by my western medicine trained family and friends and greater society. Can anyone offer some encouragement to help me cope at this time of healing? My accupuncture visits have been truly helpful, but my last visit is giving me a lot to process chemically, biologically, and spiritually. It's like someone unleashed the flood gates of all the symptoms of both illnesses at once in a combined package for me to experience in a one transparent package.  Very enlightening and to be blunt I feel like crap. So it's time to accept the package names and all, the curtain was lifted and the waxing and waning symptoms of fibromyalgia we're released. Please share any positive support or stories you have on coping with celiac recovery, celiac/fibromyalgia, and  healing by accupuncture. It will be much appreciated. As it is abundantly clear AWOL is here to stay on the celiac.com forums. Thanks  
    • https://www.celiac.com/gluten-free/topic/116482-supplement-and-foods-you-take/ ^ I did this a while back where some of us have posted what we take and eat to get our nutrients. Mines changed a bit since then since I can not eat any grains, sugars or fruits.
    • I take 2 Slice of Life gummy multivitamins and drink 2 Ensure high protein per day. Both are gluten free.
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