Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

As Time Passes, Why So Many New Intolerances?


CantEvenEatRice

Recommended Posts

CantEvenEatRice Enthusiast

Hi Everyone,

I just do not understand how a person can continue to develop new intolerances as time passes. I was diagnosed with Celiac 3 years ago and now I feel like I can barely eat anything. I assume some of the intolerances were always there, but now I am getting direct reactions from all sorts of foods. I used to be able to just avoid gluten and everything was fine. Now I cannot eat rice, corn, soy, dairy, tomatoes, bananas, beans....It's driving me crazy! I am afraid that eventually I will be allergic to everything!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Canteveneatrice---

I feel like I am in the same boat with you...I am still determining my intolerances, but no matter what they are---it just doesn't make sense to me. I have been gluten-free/dx Celiac for 2 years now. In the past six months I began having troubles and now think that I have multiple food intolerances. I'm guessing it has something to do with leaky gut and the fact that our bodies went wrong somewhere with gluten and it is a downward spiral. I'm sorry that you are going through this. How did you determine your intolerances? Elimination diet or testing? It seems like there are a growing number of people on this board with more than one (and usually more than two) intolerances. We must be a special group.

So---my big question is...what do you eat?!

Link to comment
Share on other sites
RiceGuy Collaborator

I can also relate to your situation. I just found out I can't tolerate nightshade foods like potatoes and tomatoes. At first I thought it might be the rice, but now I'm hopeful that I can continue to eat rice. I have not yet tried though as I'm still recovering from the nightshades :(

Perhaps what happens is the immune system is recovering, but is still on high alert from the glutening it was addressing for so long, so reacts too much. Or maybe it's just the leaky gut, and the body was just too overloaded to react to the smaller stuff. I'm not any more certain than the rest of you I suppose :unsure:

The nightshade thing hit me out of the blue, and like a brick - after what must be a solid 2 years or more gluten-free.

Link to comment
Share on other sites
CarlaB Enthusiast

Really, Riceguy, what are the symptoms of nightshade intolerance? The only nightshade I eat anyway is potato.

Link to comment
Share on other sites
kabowman Explorer

Hey, your list is almost identical to mine, except I can still have rice and nightshades (tomatoes, white potatoes, peppers, eggplant). I can't have bananas either but it isn't in my sig.

I occasionally still have problems and continue to become more sensitive. I figured out why I cannot have most non-dairy milks (rice & nut) is because of the calcium they add - not sure what it is but it doesn't like me. I have the same problem with OJ with the calcium added. Along with some preservatives.

Hubby is a little concerned about what I will be able to eat in another few years if I keep eliminated foods. Well, I haven't really eliminated too many foods recently, just preservatives and additives - the foods have remained the same.

Link to comment
Share on other sites
key Contributor

I thought for awhile I was intolerant to all kinds of foods, but I found I was still getting gluten. These are some things I quit doing and it made me feel like a different person! I can't eat out at all. I end up getting sick eating out at least 80% of the time and so it isn't worth it to me. I am not saying I will never eat out, but if I want to feel well, I had to stop. Also, I am not sure, but I did give up my lipstick I was using. There were also some foods that said they were gluten free, but after months of them making me sick, I found out some must be cross contaminated from the plant. If I can eat beans from one can, but not another, that just doesn't make sense. I wish that we could trust companies more.

I do believe people have other intolerances, but for awhile I was thinking I couldn't eat any food without getting sick. Now when I am 100% gluten free, I am fine. It took me over a year to figure all this out and I am still a work in progress. I don't think I handle soy very well either, but I don't avoid it like gluten. I just don't eat large amounts of it.

The one thing I thought was messing me up was caffeine, but I am fine with that too, if I am gluten free.

I hope you start feeling better soon. There is nothing worse then feeling like everything makes you feel sick. It did get MUCH better for me, so there is hope. I was very depressed from being sick all the time. It can really mess with your mind!

Take care,

Monica

Link to comment
Share on other sites
gooddawg315 Newbie

hi guys. I have been "gluten-free" since July, and I too am finding out that non gluten foods I used eat all the time now do bother me. Especially bananas! I ate one and the pain was so bad I ended up in the ER! I was told bananas are the hardest fruit to digest by the doctor. Who knew! I also find that certain berries, pineapple,oranges can do it. I also am having a problem with brown rice (like in cereal such as Brown rice crisps or the "gluten free" granola). Is this common at first? I can eat cooked veggies meat etc. Could it be the fiber content? My friend (mom is severely celiac) told me this is your bodies way of ridding the toxins in your system and that eventually you will be able to slowly add these back into your diet. At least that's what happened with her mom. Does this sound realistic? Or once you are intolerant, do you usually stay intolerant? thanks for any input and good luck with your new found diets!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CantEvenEatRice Enthusiast
hi guys. I have been "gluten-free" since July, and I too am finding out that non gluten foods I used eat all the time now do bother me. Especially bananas! I ate one and the pain was so bad I ended up in the ER! I was told bananas are the hardest fruit to digest by the doctor. Who knew! I also find that certain berries, pineapple,oranges can do it. I also am having a problem with brown rice (like in cereal such as Brown rice crisps or the "gluten free" granola). Is this common at first? I can eat cooked veggies meat etc. Could it be the fiber content? My friend (mom is severely celiac) told me this is your bodies way of ridding the toxins in your system and that eventually you will be able to slowly add these back into your diet. At least that's what happened with her mom. Does this sound realistic? Or once you are intolerant, do you usually stay intolerant? thanks for any input and good luck with your new found diets!

Bananas make me so sick too! I have read that you can eventually re-tolerate foods in the future that you cannot tolerate now. I sure hope that is true because I feel like I can't eat anything anymore! I have a really hard time with brown rice too so I have cut out all rice. I have also cut out dairy. I am hoping that I just feel so lousy due to all the changes and detoxing. However, I haven't been able to tolerate rice for a long time and it actually seems like I can tolerate less and less as time goes on. I am hoping it is just a phase and I will be able to reintroduce foods in the future, but I am not so sure.

Link to comment
Share on other sites
RiceGuy Collaborator
Really, Riceguy, what are the symptoms of nightshade intolerance? The only nightshade I eat anyway is potato.

Well, for me it was basically what nightshades actually do, only heightened to an extreme. I found out that the poison in nightshades is poison to everyone, only most people don't notice the effects of the typical dose. Take a look Open Original Shared Link for the symptoms. That's what told me I was being poisoned by it. Muscle and joint pains, twitching, spasms, weakness, stiffness, etc. Not to mention the digestive difficulties :(

Link to comment
Share on other sites
kbtoyssni Contributor
(like in cereal such as Brown rice crisps or the "gluten free" granola)

Gluten free granola? Oats are usually contaiminated and I've never seen a granola without oats. Is this an oat-free granola that you've found? Anyhow, sorry if you already know about oats, just want to make sure you're not accidently eating gluten :)

Link to comment
Share on other sites
  • 3 weeks later...
LoriCF Newbie

I have the same questions for my son. He has multiple food intolerances already (the big 8 except for corn, plus artificial colors, chocolate, strawberries) and since going gluten-free 3 months ago he's becoming more intolerant--citric acid and tomatoes, maybe potatoes? are causing problems (behavioral) too. I'm glad he's not the only one. I feel like a crazy mom, being suspicious of every food he eats!

Lori

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,091
    • Most Online (within 30 mins)
      7,748

    Grammar B
    Newest Member
    Grammar B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...