• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Supplements For Celiacs
0

13 posts in this topic

Are people using supplements of any kind in addition to the diet? What supplements have you found helpful? I am using quite a few: mulitvitamin, B complex, selenium, iron, vitamin E, fish oil, CoQ10 but do not know whether I need them with the diet. I have been gluten free about 6 months and it has improved things tremendously, much more energy, more normal bowel movements. Prior to the diet I think the supplements saved me from much more severe symptoms. I was 55 before figuring out that I might have inherited my mother's "non-tropical sprue". Have not had a positive confirmation with intestinal biopsy. The IgA test was negative

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I think I should be taking a vityamin/mineral supplement, but they don't agree with me for some reason. As far as supplements go, the only ones I haven't reacted to are: KAL brand Cal-Citrate + with Vitamin D & Magnesium or Nature's Plus CAL/MAG mineral supplement amino acid chelate/complex. I prefer the KAL brand, as it dissolves in vinegar within 30 minutes. Nature's Plus brand does not, but I've been told by a health food store owner that chelated minerals are easily absorbed. I also take one Nature's Bounty Probiotic Acidophilus with breakfast. My genetic test shows I got 1 HLA-DQ8 gene from each parent. Blood tests came back negative. No intestinal biopsy. Feel WONDERFUL when gluten-free...feel AWFUL if I eat even a small amount of gluten. I've been Gluten-free for 3 years, diagnosed just before I turned 50. I also just became extremely sensitive to fructose. Sugar agrees with me, but fructose does not, so I'm also eliminating fruits from my diet. I'm very active, work out, ski, bike, etc. so I know it doesn't hurt me.

0

Share this post


Link to post
Share on other sites

I think when just starting the diet, certain supplements like acidopholous, glutamine, and aloe may help to repair the colon faster.

0

Share this post


Link to post
Share on other sites

R. Jared sent this e-amil to me which I think has important info for us:

"Earlier this month I responded about Nature's Plus CAL/MAG. My health food store owner told me it is Gluten-Free. But, it's not!!! It took me a while to figure out that my reaction was from the CAL/MAG. Verified 1-9-2004 from the Nature's Plus company that it is NOT GLUTEN FREE. Pharmaceutical glaze contains gluten. I hope you haven't tried it. If so, please throw it away or give to someone who can use it. "

Does anyone know if capsules are gluten free?

0

Share this post


Link to post
Share on other sites

Susan

I think most capsules are not gluten free. As far as I've read, capsules use like a gelatin base that contains gluten. I always still to tablets, preferably uncoated at that.

Let me know if you find out different.

0

Share this post


Link to post
Share on other sites
Ads by Google:


that's interesting, because I've got two items (quercertin and omega-3) which are capsule, and both claim to be gluten-free. I'll see about calling the companies and checking out what they say on the label....

(I've never reacted to them., but I've been taking them for longer than I've been gluten-free)

0

Share this post


Link to post
Share on other sites

I just want to issue my heartfelt thanks to all of you who have helped me

since going gluten-free on Nov 1 2003, due to an allergy to wheat, which

I learned of by a blood test done by my gastro doc. I have been coming to this

board almost every night, but didn't feel like communicating. I have a lot of trouble

due to gerd, and IBS, which seems to be triggered by ingestion of fat. To make a

long story short,as a nurse I didn't believe that dietary supplements would make

much difference, but the meds prescribed by my GD weren't working to reduce

the bloating so a few days ago I bought some L-Glutamine and Acidolphus and

wonder of wonders I can actully say that I am actually feeling better and I just

want to thank all of you and I hope I can help others as I have been helped.

Judy :rolleyes:

0

Share this post


Link to post
Share on other sites




Does anyone take supplements, in addition to vitamins and minerals,

especially food enzymes to help the digestion of food? How about HCL to increase stomach acid for digestion?

Initally, a year ago after diagnosis I seemed to be fine on the gluten free diet. Now, I'm not so sure. I don't think I have any food allergies but I continue to have a lot of gas some days, even when I am sure I have eaten as I should. At first, it was only dry beans and I took Beano. Then, broccoli and now a lot of other vegetables produce gas. I eat very little red meat, sugar, no soft drinks, lots of various green teas, some black tea and once a week I have some coffee. I stay away from milk except for yogurt.

I do a lot of reading but have no one to really talk to about enzymes. What do you take?

Otherwise I take vitamins and minerals, copper, manganese, boron in addition to calcium and magnesium. I take Glutamine, Horsetail, Oil of Primrose, MSM, CoQ10, Ginko Biloba, and have just started SAMe and Taurine. I notice that my fingernails are improving.

I know that I have have Celiac at least 14 years and maybe as much as 25.

0

Share this post


Link to post
Share on other sites

I take digestive enzymes before every meal and they have helped with my gas problems quite a bit. They take away the full feeling after eating. I use AbsorbAid which I get from my health food store (I'm sure you can get them off the Internet, also). I still have some upper digestive tract gas, but the enzymes have definately helped. In fact, my husband now takes them.

0

Share this post


Link to post
Share on other sites

I was so excited when I went to Costco this evening I found kirkland brand multivitamins and Vitamin C gluten free as well as ferrous fumarate gluten free but I can't remember the brand name.

Karen

0

Share this post


Link to post
Share on other sites




Was Beano declared as gluten free? I seem to recall it wasn't......

0

Share this post


Link to post
Share on other sites

I take a B6 Supplement with a highly bioavailable whey protein and it has done wonders for me. It really helped improve my mood and ensure that I get my protein requirements for the day.

I also take a multivitamin, b12 and omega's.

0

Share this post


Link to post
Share on other sites

I take a multi-vitamin, iron, calcium/magnesium, glucosamine plus other meds for depression and hypothyroid.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,378
    • Total Posts
      935,769
  • Member Statistics

    • Total Members
      65,070
    • Most Online
      3,093

    Newest Member
    Catseyez
    Joined
  • Popular Now

  • Topics

  • Posts

    • The full celiac panel includes: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA   You can either have a gastroenterologist order the full celiac panel plus whatever else they typically test for, or you can order your own test at a site like walkinlab.com. At walkinlab.com it's called the celiac comprehensive test and costs $298.00 (not covered by insurance). Then if any one test comes up high you can give it to your gastroenterologist so they can do an endoscopy. The blood draw is done at your nearest Labcorp. Personally I'd make an appointment at the gastro so they can order their other blood tests and just insist on the full celiac panel also. There's any number of things it could be, not just celiac. If you don't get diagnosed you probably won't stick with a 100 percent gluten free diet for the many months required to see if it works. Good luck in your search.
    • You could certainly try.  Just remember that, if the mix doesn't have xanthum gum, you may need a little.  
    • Maybe the 20 mg. was too strong for you and increasing symptoms?   I have a very low threshold for most meds, and do better on child sized doses.   If you tolerate the 10 mg., that may be the way to go just to get symptoms under control and get stabilized.  Or maybe 10 mg. every other day, if that works. I read that food intolerance symptoms can take 24 to 48 hours to show up.   Can you think of what you were eating in the week before all this started?   I have always used dairy to settle my stomach, so until I figured out the dairy intolerance I was using a small glass of warm milk whenever my stomach was upset.   It provided immediate relief, but caught up with me hours later.   It was kind of hard to believe that milk was the cause when it was so effective in immediate symptom management.    I had also increased chocolate, coffee, and peanut butter right around the same time.  They don't seem to be intolerances (or maybe they are in huge quantities!), but they were irritants, so I needed to avoid them to get things to settle down.  Now that I'm approaching the 3 month point and starting to do better, I have been able to drink coffee with soy milk to buffer, have a little chocolate, and sample some peanuts without much distress.  Perhaps the hardest part of all of this is the time it takes (why forever?!), and how limited one's diet must be for so long in order to stabilize.  I was so sick of eating the same thing for so many weeks, that I started dreading the next meal.  I agree that symptoms and recovery become a blur.  I started making notes on a calendar so I could be more objective and accurate in looking back to assess my symptoms, what I'd tried, and progress.  Otherwise, I just couldn't tell what really did and didn't work.   What seemed like a week ago was really 2 or 3 ... I know you know what I mean! Do follow up with your doctor as need be.  I find that GI docs aren't that helpful for this sort of thing as it's minor in the general scheme of GI things.  My PCP basically told me it was trial and error, as it's different for each one of us.  He could only guide me in meds.   
    • I am sorry that you are all having to go through this. I know all too well the neuro issues she is going through. The world seems so hopeless under that gluten cloud. But it does lift.  There isn't much a neurologist is going to be able to do except to encourage her to be as strict as possible.  It would be a good idea to have your GP or GI do a vitamin and mineral panel if that hasn't already been done. We do sometimes need supplementation while healing as some nutrients do have an impact on the nervous system function. What I find helps me the most is knowing that it is the gluten and it will pass. It is a horrible feeling when it is happening and is hard on ones loved ones.  All you really can do to help her is to remind her that it is the gluten that is making her feel so bad. Try to provide distractions and understanding. If you haven't already do read the Newbie 101 thread at the top of the Coping section it has a lot of good info for you.  These episodes will come less often as accidental glutenings become less frequent. Ask any questions you need and feel free to vent on the tough days.
    • Reviving this thread as I am in search of better care for my child, diagnosed this spring with off the charts antibodies. She experiences significant mood effects from gluten and all I get from her GI and ped are blank looks - they aren't familiar with the idea that it can affect one's mental or emotional equilibrium or brain. (I would bet that if we scanned her brain, there would definitely be some evidence of damage.)  Obvs we have her 100% gluten-free and are very cautious, but given that even the slightest glutening sends her into despair and suicidal ideation, I am looking for a doctor that *does* understand the connection and can give us better guidance so I can feel more confident that she'll stay safe until her gut heals. Any recommendations (in SF bay area, or anywhere really) would be welcomed! 
  • Upcoming Events