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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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susanD

Supplements For Celiacs

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Are people using supplements of any kind in addition to the diet? What supplements have you found helpful? I am using quite a few: mulitvitamin, B complex, selenium, iron, vitamin E, fish oil, CoQ10 but do not know whether I need them with the diet. I have been gluten free about 6 months and it has improved things tremendously, much more energy, more normal bowel movements. Prior to the diet I think the supplements saved me from much more severe symptoms. I was 55 before figuring out that I might have inherited my mother's "non-tropical sprue". Have not had a positive confirmation with intestinal biopsy. The IgA test was negative

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I think I should be taking a vityamin/mineral supplement, but they don't agree with me for some reason. As far as supplements go, the only ones I haven't reacted to are: KAL brand Cal-Citrate + with Vitamin D & Magnesium or Nature's Plus CAL/MAG mineral supplement amino acid chelate/complex. I prefer the KAL brand, as it dissolves in vinegar within 30 minutes. Nature's Plus brand does not, but I've been told by a health food store owner that chelated minerals are easily absorbed. I also take one Nature's Bounty Probiotic Acidophilus with breakfast. My genetic test shows I got 1 HLA-DQ8 gene from each parent. Blood tests came back negative. No intestinal biopsy. Feel WONDERFUL when gluten-free...feel AWFUL if I eat even a small amount of gluten. I've been Gluten-free for 3 years, diagnosed just before I turned 50. I also just became extremely sensitive to fructose. Sugar agrees with me, but fructose does not, so I'm also eliminating fruits from my diet. I'm very active, work out, ski, bike, etc. so I know it doesn't hurt me.

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Guest TESTinME

I think when just starting the diet, certain supplements like acidopholous, glutamine, and aloe may help to repair the colon faster.

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R. Jared sent this e-amil to me which I think has important info for us:

"Earlier this month I responded about Nature's Plus CAL/MAG. My health food store owner told me it is Gluten-Free. But, it's not!!! It took me a while to figure out that my reaction was from the CAL/MAG. Verified 1-9-2004 from the Nature's Plus company that it is NOT GLUTEN FREE. Pharmaceutical glaze contains gluten. I hope you haven't tried it. If so, please throw it away or give to someone who can use it. "

Does anyone know if capsules are gluten free?

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Susan

I think most capsules are not gluten free. As far as I've read, capsules use like a gelatin base that contains gluten. I always still to tablets, preferably uncoated at that.

Let me know if you find out different.

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that's interesting, because I've got two items (quercertin and omega-3) which are capsule, and both claim to be gluten-free. I'll see about calling the companies and checking out what they say on the label....

(I've never reacted to them., but I've been taking them for longer than I've been gluten-free)

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I just want to issue my heartfelt thanks to all of you who have helped me

since going gluten-free on Nov 1 2003, due to an allergy to wheat, which

I learned of by a blood test done by my gastro doc. I have been coming to this

board almost every night, but didn't feel like communicating. I have a lot of trouble

due to gerd, and IBS, which seems to be triggered by ingestion of fat. To make a

long story short,as a nurse I didn't believe that dietary supplements would make

much difference, but the meds prescribed by my GD weren't working to reduce

the bloating so a few days ago I bought some L-Glutamine and Acidolphus and

wonder of wonders I can actully say that I am actually feeling better and I just

want to thank all of you and I hope I can help others as I have been helped.

Judy :rolleyes:

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Does anyone take supplements, in addition to vitamins and minerals,

especially food enzymes to help the digestion of food? How about HCL to increase stomach acid for digestion?

Initally, a year ago after diagnosis I seemed to be fine on the gluten free diet. Now, I'm not so sure. I don't think I have any food allergies but I continue to have a lot of gas some days, even when I am sure I have eaten as I should. At first, it was only dry beans and I took Beano. Then, broccoli and now a lot of other vegetables produce gas. I eat very little red meat, sugar, no soft drinks, lots of various green teas, some black tea and once a week I have some coffee. I stay away from milk except for yogurt.

I do a lot of reading but have no one to really talk to about enzymes. What do you take?

Otherwise I take vitamins and minerals, copper, manganese, boron in addition to calcium and magnesium. I take Glutamine, Horsetail, Oil of Primrose, MSM, CoQ10, Ginko Biloba, and have just started SAMe and Taurine. I notice that my fingernails are improving.

I know that I have have Celiac at least 14 years and maybe as much as 25.

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I take digestive enzymes before every meal and they have helped with my gas problems quite a bit. They take away the full feeling after eating. I use AbsorbAid which I get from my health food store (I'm sure you can get them off the Internet, also). I still have some upper digestive tract gas, but the enzymes have definately helped. In fact, my husband now takes them.

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I was so excited when I went to Costco this evening I found kirkland brand multivitamins and Vitamin C gluten free as well as ferrous fumarate gluten free but I can't remember the brand name.

Karen

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Was Beano declared as gluten free? I seem to recall it wasn't......

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I take a B6 Supplement with a highly bioavailable whey protein and it has done wonders for me. It really helped improve my mood and ensure that I get my protein requirements for the day.

I also take a multivitamin, b12 and omega's.

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I take a multi-vitamin, iron, calcium/magnesium, glucosamine plus other meds for depression and hypothyroid.

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    • Apologies for my over-reaction.  As the shampoo exposure was only for a couple week or so, I doubt any lab tests would have indicated exposure. Unfortunately, since I didn't have the antibodies, I can only rely on my symptoms to tell me if I've been exposed. I'm fortunate enough that eliminating gluten (and dairy) from my diet completely fixed my problems. I have had no lingering systems, and now that I have been gluten free for a while, when I do get gluten I have a very clear reaction (and a distinct reaction to dairy) that follows a fairly predictable timeline. This has accidentally been tested a couple of times. For example, early on before I was better at reading labels I grabbed some cookies at the grocery store that I thought were gluten free (the company produces both a normal and gluten-free version, and this was before I learned to avoid shared facilities). I had grabbed the wrong bag but I didn't figure it out until about a week of feeling crappy had passed and I went searching for a culprit. Things like this have happened a couple of times, where I accidentally did a blinded experiment on myself. The symptoms are consistent, and resolve once I remove the offending item. So when I recognized my symptoms as the result of gluten, I went looking for a culprit and I found the shampoo and conditioner. I removed them and then I got better.  My problems are largely systemic. I wouldn't be surprised if I don't actually have celiac but some other immune mediated reaction that hasn't been defined, but calling it celiac is the best way to get people to take my needs seriously (which I'm sure you understand). Unfortunately, my problems don't seem to fit into any particular diagnostic bucket, so I've learned not to rely on the official medical terms and just go with what works. I'm lucky to have had doctors who think the same way, else they might have told me that I didn't need to go gluten free once I failed to show clear-cut celiac. Maybe I'm pre-celiac, maybe it's the much maligned NCGS, or it's all related to leaky gut (I am eagerly awaiting the FDA approval of larazotide so that I can get a doctor to give me some, I think it might do me a lot of good). All I know is that when I went gluten and dairy free it literally changed my life.  In general it seems that gluten exposure causes a generalized inflammatory response. I get some inflammation in my gut that manifests as reflux, acid indigestion (what I call "fake hunger"), and a little bit of urgency and unpredictability with regards to bathroom needs, but if that were the only problem, I think I could live with it. I also get headaches, brain fog, my depression/anxiety gets triggered to a scary degree, arthritis, muscle aches, and then, the clincher, muscles spasms in my upper back and neck that have been known to lay me out for a couple of days while I wait for the muscle relaxants to help me heal. The muscle spasms, arthritis and brain fog are the most recognizable and are usually what cue me in that I got glutened, especially the spasms.  Again, sorry for being oversensitive. I should have known better, since this is such a supportive community.  
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