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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Cornhusker

Casein Intolerance

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1) Can anyone point me to a study/paper that talks about casein intolerance and damage to intestinal villi? Is it an autoimmune reaction or a food sensitivity?

2) For those that have determined they are casein intolerant, do/did you get a reaction every time you ingested dairy?

I've been on the gluten-free diet for 7 weeks. I've consumed some dairy most every day. I've been having a few bad days interspersed with my mostly good days. If casein (or lactose) was a problem, wouldn't I have a reaction everytime/everyday?

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1) Can anyone point me to a study/paper that talks about casein intolerance and damage to intestinal villi? Is it an autoimmune reaction or a food sensitivity?

2) For those that have determined they are casein intolerant, do/did you get a reaction every time you ingested dairy?

I've been on the gluten-free diet for 7 weeks. I've consumed some dairy most every day. I've been having a few bad days interspersed with my mostly good days. If casein (or lactose) was a problem, wouldn't I have a reaction everytime/everyday?

Well, I think there should be some good info on casein or at least dairy right on the celiac.com site. Just click "Site Index" on the left hand side menu for a bunch of good info on all sorts of stuff.

My casein reactions didn't become noticeable for probably a year or so I guess. Once it did, I had to avoid it awhile to see the improvement.

As for having a reaction every time or every day, I think that can only happen if the reaction quickly passes, so that you can see the highs and lows. Again, for me it was more of a constant until I got the stuff out of my system.

So, I'd think the best way to get the definitive answers you seek is to try avoiding all dairy for a few weeks and see how you feel. Then if you still aren't sure, try having it and see if you notice the difference.

Incidentally, I didn't see much change from the gluten-free diet until about six months had passed. So it can take awhile depending on your particulars. Other people report a very quick change from adding/eliminating a food.

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1) Can anyone point me to a study/paper that talks about casein intolerance and damage to intestinal villi? Is it an autoimmune reaction or a food sensitivity?

2) For those that have determined they are casein intolerant, do/did you get a reaction every time you ingested dairy?

I've been on the gluten-free diet for 7 weeks. I've consumed some dairy most every day. I've been having a few bad days interspersed with my mostly good days. If casein (or lactose) was a problem, wouldn't I have a reaction everytime/everyday?

1. No, sorry. You can go to www.enterolab.com, but there's only a little info there.

2. Well, it's like gluten (or smoking for those who used to), once I got off it, yes, but when I was eating it all the time, no.

3. You can give it a try by getting off it for a couple weeks. It's not easy, but it's really worth it if it has the possibility of making you feel better. Then when you're off it and you've tried it again to see if you're sensitive, you can determine whether it's the casein or the lactose by trying it with lactaid. If it's the lactose, it shouldn't bother you if you take lactaid, but if it's the casein, it will.

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Then when you're off it and you've tried it again to see if you're sensitive, you can determine whether it's the casein or the lactose by trying it with lactaid. If it's the lactose, it shouldn't bother you if you take lactaid, but if it's the casein, it will.

That's an interesting idea. I found out by having some soy cheese that had casein in it. I have no idea what the point of that soy cheese is if it's essentially still a dairy product :huh: But without the lactose that does help narrow it down some I guess.

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That's an interesting idea. I found out by having some soy cheese that had casein in it. I have no idea what the point of that soy cheese is if it's essentially still a dairy product :huh: But without the lactose that does help narrow it down some I guess.

Yea, I guess you could do that kind of test with a non-dairy creamer, too. I just don't see how they get away with saying they're non-dairy, then milk is on the back listed as an allergen!!

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Mostly at this point, I'm just curious. I find the autoimmune reaction interesting.

As far as my diet goes, I think 7 weeks gluten-free is too soon to start tinkering with other things. I do feel better. It's just the bad days seem to happen without a cause. Which because of my personality drives me a little batty.

If I'm not damaging my insides, I'm willing to give gluten-free at least 6 months to stabilize.

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Yea G F when lower case, next to each other comes out gluten-free. Only causes a problem if someone is talking about their girlfriend. Same thing with C D and celiac disease.

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cornhusker---

if you are still damaged from celiac/gluten, then you could potentially 'just' be temporarily lactose intolerant. have you heard the description about where lactase is located and why unhealed celiacs are temporarily lactose intolerant?

if not-i'll write back.

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