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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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mumseyh

Prometheus Lab Blood Work

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Has anyone had experience with this company? My doc has recommended a Celia Gene test to determine if there is a family history. My blood work is positve and the biopsy is negative. My GI doc does not recognize gluten intolerance, but family doc is up on the latest research. I am thinking of just going gluten free and skipping this $480 test that isn't covered by insurance. Family history: My mother has an ilieostomy from severe ulcerative colitis. Also has skin form of lupus. My father died from complications after 5 surgeries in a week for a severe intestinal blockage. His autopsy stated undiagnosed diverticulitis and ruptured diverticulum. I have been treated for IBS since high school (over 30 years) with minimal results. I also have GERD and Barrett's Esophagus. My sister has some suspicious problems, as well - mainly ulcers in her mouth that nobody can clear up and yeast infections. Any insight would be appreciated.

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Positive bloodwork is a positive diagnosis. A biopsy can only rule celiac in, not out, since damage can be patchy or further down the intestine than the scope can reach. I say go gluten-free and skip the expensive gene test unless you need it for peace of mind.

And welcome! :)

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Thanks! I am reading up on going gluten free and looking forward to it. My husband thinks it is a great idea, and said he will be supportive. I was worried he might think it was a crazy whim, but he really respects the family doc for turning us on to the research. I have just lost 12 pounds on weight watchers and I asked if they have info about adapting to gluten free. The teacher suggested the core program which is mainly meat, fruit and veggies. It sounds like it should work. Thanks for the encouragement. Glad to hear your test went well, too.

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Thanks! I am reading up on going gluten free and looking forward to it. My husband thinks it is a great idea, and said he will be supportive. I was worried he might think it was a crazy whim, but he really respects the family doc for turning us on to the research. I have just lost 12 pounds on weight watchers and I asked if they have info about adapting to gluten free. The teacher suggested the core program which is mainly meat, fruit and veggies. It sounds like it should work. Thanks for the encouragement. Glad to hear your test went well, too.

What a co-inkidink...I'm on WW, too! It's very easily adapted to gluten-free, and I eat flex, not core. It's really easy, actually. Core might be easier for you in the beginning of being gluten-free, while you're learning about what is and isn't gluten-free. I'd reccommend Tinkyada pasta, it's made from brown rice and has the same points value as normal pasta, it's tasty, and it's core!

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If you still want to have the gene test done, enterolab does a gene test plus the whole gluten panel for $369. It incluedes ttg and malabsorption and maybe still dairy. They probably offer the gene testing separate. Check out their website here.

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my son was tested by promethius because he is IgA deficient. we are enrolled in a celiac study and all of our family will be gene tested. i really want to know who has the genes----then i will know who needs to be tested on a regular basis to see if celiac has become activated.

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