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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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If anyone can say a prayer for my son I would greatly appreciate it. Tomorrow we head back to CHOP to see his cardiologist. He has a dialted aorta and we are hoping that he is growing into it. If he isnt he either will get put on medication, he will get a beta blocker, or if its too bad he will have to have the surgery.

My poor baby has gone thru so much already. I am praying that he doesnt need medication or surgery.

Thank you in advance to all of you who can include him in your prayers.

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Of course I will put your son into my daily prayers. Good Luck with the doctor appt.

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Stephanie--

I will pray. That's a lot for a little guy to handle...

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I'll say a prayer for your son--sending good thoughts and a hug your way :)

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Your son and family will be in my prayers. I believe in prayer.

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You, him, and the rest of your family will be in my prayers. I really do understand. Feel free to PM me if I can help in ANY way. My daughter just had her 2nd open heart surgery, so I'm here if you have any questions or anything.

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my prayers are with you and your family! May God's blessing be upon you.

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You got it Stephanie.

judy

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If anyone can say a prayer for my son I would greatly appreciate it. Tomorrow we head back to CHOP to see his cardiologist. He has a dialted aorta and we are hoping that he is growing into it. If he isnt he either will get put on medication, he will get a beta blocker, or if its too bad he will have to have the surgery.

My poor baby has gone thru so much already. I am praying that he doesnt need medication or surgery.

Thank you in advance to all of you who can include him in your prayers.

I will put him on our church prayer network, there are dozens of people praying every evening for the intentions that come through. I will also includ him in my prayers also.

Bernadette

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If anyone can say a prayer for my son I would greatly appreciate it. Tomorrow we head back to CHOP to see his cardiologist. He has a dialted aorta and we are hoping that he is growing into it. If he isnt he either will get put on medication, he will get a beta blocker, or if its too bad he will have to have the surgery.

My poor baby has gone thru so much already. I am praying that he doesnt need medication or surgery.

Thank you in advance to all of you who can include him in your prayers.

Stephanie, you and your son will definitely be in my thoughts :) I am hoping the appointment goes well tomorrow, please keep us posted.

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Stephanie, I will keep you all in my prayers. LL

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[stephanie; I am sorry you are all going tru such a rough time, include my prayers for you, son and the Dr. tomorrow. Hope all works out smoothly/ not too much more anxiety. I will pm/ you if you like. :) 'God is good' evie

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Guest Robbin

:) I will be happy to pray for you and your son. The little guy has had enough, that is for sure. Little Megan is living proof of the power of prayer-bless her.

Please, everyone pray for our evie too . God bless her too.

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Stephanie,

Of course....I'll be praying for that adorable little boy of yours.

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Prayer said!

If it helps any, we were told this year that our son (who had open-heart surgery at 9 years ago) that he now has a dilated aorta and mitral valve prolapse. This was told to us by the doctor who replaced the cardiologist who had taken care of him since he was 7 weeks old.

We went back to the old cardiologist (who had moved 2 hours away), who disagreed with the new cardiologist. He said that since DS had had open-heart surgery through the aorta, it was expected that it appear slightly dilated, but that even so, he wouldn't call it a dilated aorta. He also went over measurements and definitions and explained in great detail why he didn't think DS had mitral valve prolapse, either.

Perhaps your cardiologist is being ultra-cautious? It might not hurt to get a second opinion. Our DS's cardiologist is in Danville,PA--pm me if you'd like his name--we've always thought he was wonderful. Good luck!

:) I will be happy to pray for you and your son. The little guy has had enough, that is for sure. Little Megan is living proof of the power of prayer-bless her.

Please, everyone pray for our evie too . God bless her too.

COuld you update me on evie? I'm a little out of the loop, I'm afraid...

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The power of prayer is an amazing thing . . . consider me on the prayer list -- may your family be blessed with the healing of your son.

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OK.. we are back from the doctors. Took a long time. The cardiologist said he is fine. The dialated aorta is still there, but on the Z scale ( um not quite sure what that is ) Colin is at a 3. A dangerous level is a 6 or more. He has been hanging on a 3 for a while now.

He had a rough time with the ultrasound. He was great in the beginning. Just watching the tech and seeing the screen, watching his heart beat. Then all of a sudden he started to cry out, such a heart wrenching cry, I almost started to cry. I just wanted to pick him up and comfort him. I am sure all you mothers out there know how I felt. Even though there is no pain in the procedure. He was scared and it ripped me to shreds.

But its all over. We dont have to go back to the cardiologist for 6 months this time! The first time was 3 months, the second 4 months, now 6!! moving right along!

Fiddle- I dont know how you did it with your child. I give you such great credit for going thru what you did.

I know how a sick child can make you feel and its a tough thing to go thru.

Thank you to everyone who said a prayer for Colin. Obviously they all helped!!! :)

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You're doing pretty much the same things I did--go to the doctor, get nervous, fall apart when the baby cries, etc.

Did you ever find out why he cried?

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No, he just got upset. He didnt like being held there I imagine. When he was just a baby, 3 months early, he was a lot more cooperative with all their procedures. Now that he is getting older he realizes what is going on around him. And he just plain old doesnt like it!!!

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Now that he is getting older he realizes what is going on around him. And he just plain old doesnt like it!!!

HI Setef...smart kid i'd say. glad the apt is over and it went well esp with the Chillies.

judy

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OK.. we are back from the doctors. Took a long time. The cardiologist said he is fine. The dialated aorta is still there, but on the Z scale ( um not quite sure what that is ) Colin is at a 3. A dangerous level is a 6 or more. He has been hanging on a 3 for a while now.

He had a rough time with the ultrasound. He was great in the beginning. Just watching the tech and seeing the screen, watching his heart beat. Then all of a sudden he started to cry out, such a heart wrenching cry, I almost started to cry. I just wanted to pick him up and comfort him. I am sure all you mothers out there know how I felt. Even though there is no pain in the procedure. He was scared and it ripped me to shreds.

But its all over. We dont have to go back to the cardiologist for 6 months this time! The first time was 3 months, the second 4 months, now 6!! moving right along!

Fiddle- I dont know how you did it with your child. I give you such great credit for going thru what you did.

I know how a sick child can make you feel and its a tough thing to go thru.

Thank you to everyone who said a prayer for Colin. Obviously they all helped!!! :)

So glad your appt went as well as did. Colin just did not like the looks of that place, old enoigh now to notice

things like that. Did you know we have a way here of sending out prayers that really help?? :o Hope you are OK too!! evie

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