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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Hi All pretty new here. I got the results of my biopsy today and everything came back normal, I haven't had any blood testing for celiac but small intestine biopsy came back normal. I feel like I'm getting the run around, I have been sick so much since 1997 to start I was having utering hemmoraging which resulted in an emergency hysterectomy so I would not bleed to death I has lost so much blood and was so anemia, my hemaglobin was 7 but they never gave me blood and after the hysterectomy , it took me a year on iron medicine 3 times daily before my iron was back to normal but my whole body iron count has never returned to normal. They couln't find any reason why I was bleeding, my uterus was healthy looking, no cancer. Then 3 months later I get hepatitis virus of my liver and my liver is inflamed in and out of hospital 3 times off work for 6 weeks, not to mention all the work i missed from the bleeding off and on for over a year , I hemmoraged 4 times over alittle over ayear. Ok irecover from hepatitis virus then 7 months later I get mono (the kissing disease) ha ha I hadn't kissed any body with it. Took me about 6 months to recover from that completely, off work for 6 weeks with that also. Then I am tired all the time and diagnosed with hypothyroidism, ok still tired all the time, get every virus that seems to come around. Have essential thrombytosis, can't find ou the reason why but elevated platelett count between 500 and 700 thousand, not to mention that now I bruise so easily that if my 15 pound dog clims on my lap I get a bruise where every step he takes, I look like somebody beat me up. Ok I just wanted to vent and ask for everybodsy help, my own gp tells me ther is nothing wrong with me and she claims that she can't find what is causing all of these problems, I don't have diarrhea but constipation instead and acid reflux problems for several months plus neausea and sometime vomiting in the morning. I am taking prevacid twice daily but still nautious. Please help somebody I know im not crazy and no body seems to want to get to the bottom of this problem.

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DEMAND to have a routine blood culture performed. This would most likely identify any active virus, fungus, bacteria present in the system.

Also, try to insist on having a C-reactive protein test run, along with the CBC, ANA, and Sed Rate, if these tests haven't been performed in the last 6 months. Have an A1C test performed to rule out Diabetes.

Odds are one of them will at least point the way to the path of the active problem which is at work, meaning that you will have the doctor's attention.

Thankfully for you, the endoscopy is the most precise test available for the detection of Celiac disease. If he said your test was normal, that means you have no damage to the villa. It may not rule out the possibility that you are in the birth stages of the disease, but even that is unlikely.

Evaluate any and all prescriptions and over the counter prescription medications you may have begun taking within 6-9 months of the onset of your new symptoms. As is the case with any and all medications, new side effects can always appear in individual people, regardless of whether or not they are known side effects.

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Also check the ingredients of the medicines...they sometimes contain starches etc as fillers or binders ...good luck!

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Your digestive problems may be caused by the Prevacid. Ask your doctor to prescribe another medication. Or better yet, tell them to fix the cause, not the effect!

As for your biopsy, find out how many samples were taken and from what parts of the small intestine. This is crucial to getting accurate samples. Also, several so called "normal" biopsies came back positive for celiac disease when given to a pathologist experienced in Celiac for a second opinion.

You may also wish to consider a new doctor. Much of the complaining on this and other boards about doctors is partially the fault of the patients for not changing doctors. Let's face it, just like not every auto mechanic is equally competent, not every doctor is equally competent.

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    • There was a study where they checked 2 weeks on a gluten-free diet , and antibodies were still going up .  The study wasn't about that, so I think that is why they didn't go any further.   So... looks like 2 months gluten free?  If we think that antibodies are still being made at least two weeks gluten free.... account for the fact that most people need a few weeks to actually figure out and eat gluten-free...I would say it was a bit soon to re- test antibodies.     Edit it to add- if you were tested sept 12 and ate gluten for 6 more weeks before going gluten-free - who knows how high it got.  Shame on your doctor for doing the re- test so soon and discouraging you!  
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