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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Guest AutumnE

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Guest AutumnE

I always thought paleo diet was a choice :angry:

I know I have to just get over this and suck it up but it stinks!

Now Im having problems with dairy and corn for sure and now rice or all grains possibly, tonight after a little testing. *Sorry if tmi* but Im bleeding and that cant be good! My sciatica with the big *D* has come back fully. My legs and back are killing me tonight and havent hurt since march. It was only gluten that did that before but apparently I cant tolerate much at all right now.

I'm so depressed right now, I hate the thought of plain meat, veggies and fruit for the rest of my life. I had a super crappy day today everything went wrong. I even started a kitchen fire! I forgot my pyrex plastic lid was in the oven and turned up the temperature. I smell something and look in the kitchen and the lid is on fire in the stove. Plastic melted everywhere. I let it cool and picked it out and tonight I need to spray oven cleaner in there so I can use it again. I have had a brain fog all day and cant think clearly and Im sure its do to all the stupid testing I have done.

Im crying right now and sitting on a pillow, I dont have hemorroids but its so sore I cant sit normally. Thankfully my daughter is gluten free so when she is older she doesnt have to deal with this.

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Babe, the best thing I can tell you is to just shut it down tonight. Tomorrow is another day. I am sorry that your's was so crappy. Life sucks sometimes.

Get a good nights sleep, and get back with us in the morning.

Lisa

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Autumn.....many hugs to you on this crappy day. Hopefully this is the worst of it and things will start looking up.

Maybe don't think of Paleo diet for the rest of your life....but just for a time. I *think* most people can introduce foods back in after a while, and let's hope this is the case with you. I would work on creativity and variety with the veggies and get an interesting vegetarian cookbook. Can you use spices? gluten-free vinegars? just a thought. And getting creative with salads.

Hang in there..... :)

blessings.

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Some times some one, esply adluts with celiac disease has secondary intolerences (esply milk!) because of the damage done to thier body by the gluten response. And in those cases, most of the time, after the body has healed they can SLOWLY reintorduce the foods and be okay with them. Only time will tell for sure...

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Guest AutumnE

Thanks :) Im heading off to bed in a minute.

I dont know of any spices or salad dressings without some kind of corn derivative, dairy, soy and gluten free. If anyone on here does I would love a name or recipe. My only savior has been my pop, I know pitiful but it kept me going and now I know why I have been having problems lately. I guess its back to plain water.

I cant eat soy because of my thyroid issues.

Im hoping I can reintroduce them again, man this is such a major life change I hope it doesnt stay.

Good night all :)

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Good, off to bed for you!

There is a really tasty-smelling spice mix I just got at the Celiac conference at Stanford a few weeks ago. It's the BBQ mix by a company called Cali, and they make others, all gluten/dairy/soy and corn-free. Try this:

www.califinefoods.com

at least it's something to spice up your meats. It's at Whole Foods and probably other health food stores.

See you -

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I use shallots, onion, salt, pepper, cumin seeds, lemon, cilantro (fresh), raw sauerkraut. I actually love the paleo diet for the most part. Meat rollups are great - meat, mustard, avocado, pepper, piece of salad?, raw sauerkraut?...yum. I eat these a lot, and like them very much. They don't seem plain.

Also, I cook a whole chicken now and again. You can make squash soup by baking a squash and an apple, also carmelizing an onion or two, then putting in food processor with salt, pepper, and some veggie or chicken broth. Yum. You can add cardomom here (you can get spices that say 100% cardomom, no preserv. no additives, etc...but cardomom also comes in pods you can use fresh, like nutmeg sortof).

I make my own trail mix, and it has interesting ingrediets: dried cherries, dried cranberries, walnuts, sunflower seeds, cut up prunes, raisins, cut up figs, and if you want, dried berries like blueberries, raspberriese, and strawberries, but if you add those, don't seal them up in ziplocks or they get all rehydrated and strange.

For lattes and the like there is almond milk, if you're not allergic, and today I found hazlenut (haven't tasted it yet). I get Pacific brand because it is soy free as well as gluten free - others have soy lecithin.

I had cashew encrusted halibut the other day that I play to replicate.

Spaghetti squash is good for putting meat/fish on top of and then using a sauce. It soaks up the sauce a bit like potato or rice, not the same, but works really well, especially with salmon and halibut.

Protein (fish or steak or chicken) on salad is really good. Think of dried fruits in your salad - yummy.

I know it's hard; it really is, I admit to that. But I find it to be worth it if it makes me feel better. Living life under the yoke of physical discomfort is no way to live...I feel so much better that now if I get goofy intestines or something, I am a real baby about it - how did I live life like this every day for 35 years?

Take care.

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Bully4You - I am copying and pasting that entire page you just wrote - such good ideas and I'm not on paleolithic diet but plan to lean more that way (uh, potato chips and Hershey's chocolate aside :ph34r: )...any more good ideas? And...what kind of meat do you use in those rollups? I'm definitely going to try that. Oh, and what is raw saurkraut? is that just cabbage? I'm a bit clue-less on that...

thanks! great ideas.

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aww. :( Hang in there, and have some chicken soup. Treat your tummy as though it's had the flu--eat thte things that you know will be easy on it for a week or two, and then, if you are feeling a lot better, introduce ONE new thing and see if your tummy's ready.

Do you have Costco near you? They have gluten-free roast chickens that are really yummy and gluten-free.

After you eat the meat, put the bones in your crock-pot on high for several hours, along with a couple of chopped onions, carrots, sweet potatoes (if you can eat them), a parsnip, dill, and parsley, ad water to cover.

Drain, refgrigerate, skim the fat (save it in the freezer to make gluten-free matzoh balls using potato buds), add noodles and some frozen peas and carrots, and sliced green onions, and your tummy will be very happy.

Is dark chocolate on the paleo diet?

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Thanks :) Im heading off to bed in a minute.

I dont know of any spices or salad dressings without some kind of corn derivative, dairy, soy and gluten free. If anyone on here does I would love a name or recipe. My only savior has been my pop, I know pitiful but it kept me going and now I know why I have been having problems lately. I guess its back to plain water.

I cant eat soy because of my thyroid issues.

Im hoping I can reintroduce them again, man this is such a major life change I hope it doesnt stay.

Good night all :)

Buy your spices individually, not blended. They are pure that way. And make your salads with oil and vinegar or lemon juice, salt and pepper.

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Some times some one, esply adluts with celiac disease has secondary intolerences (esply milk!) because of the damage done to thier body by the gluten response. And in those cases, most of the time, after the body has healed they can SLOWLY reintorduce the foods and be okay with them. Only time will tell for sure...

YEP...i agree with this. Just try to hang in there with plain soft cooked meats (like boiled chicken), soft cooked veggies and fruit, and then when things are all healed you should be able to re-introduce the others slowly back in, i'm going through this with you right now, and yes, IT SUCKS!! But, if we all hang in there together, we will all be able to eat normally for the most part again ;)

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^_^ This is my favorite simple dressing. I hope it follows your diet.

1/2 c oil

1/3 c honey

1/4 lime or lemon juice (Lime blends much better with the honey flavor, I think)

1 tbsp mustard, dijon or otherwise.

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Just a note about CaliFineFoods. I ordered from them right before I realized I was corn intolerant. I wrote her asking about the fructose listed in the ingredients.

She was extremely helpful and I have corresponded with her multiple times. However, fructose IS corn derived. In Canada, her products are listed as corn free, in America, they are not. I chose not to try them because I am extremely sensitive to corn now. It is corn syrup turned to corn starch, then the fructose is extracted.

the Salt listed in her packages is corn free though. It is sea salt which is corn free. Iodized salt (all table salt) have corn derivatives in them.

Autumn-I'm sorry to hear you are having such a bad time. Hugs. I have multiple intolerances and am struggling as well. Let me know what I can do. I would highly recommend the corn forum on delphi...it is similar to this board here and they are EXTREMELY knowledgable. Also, cornallergens.com is a good starting point.

LKelly: I'm not sure if that would work for corn avoiding people. Mustards have vinegars, many of which are not safe for corn-free people. There is a brand on the allergygrocer.com that is supposed to be corn free. Also, honey (because of cross-pollination and other theories) can have traces of corn in them.

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LKelly: I'm not sure if that would work for corn avoiding people. Mustards have vinegars, many of which are not safe for corn-free people. There is a brand on the allergygrocer.com that is supposed to be corn free. Also, honey (because of cross-pollination and other theories) can have traces of corn in them.

Orphee Mustard at allergygrocer.com is corn-free and probably gluten-free as well since its made with apple cider vinegar.

Imported honey's are often corn-free, especially honey's which state where they are made. Such as Orange Blossom honey, Lemon honey, etc. Read labels, most imported honeys will tell you where they are made and what is around for pollen. I've had good luck with honey from Spain and France. I have not hand any luck with any american made honey.

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I always thought paleo diet was a choice :angry:

I know I have to just get over this and suck it up but it stinks!

Now Im having problems with dairy and corn for sure and now rice or all grains possibly, tonight after a little testing. *Sorry if tmi* but Im bleeding and that cant be good! My sciatica with the big *D* has come back fully. My legs and back are killing me tonight and havent hurt since march. It was only gluten that did that before but apparently I cant tolerate much at all right now.

I'm so depressed right now, I hate the thought of plain meat, veggies and fruit for the rest of my life. I had a super crappy day today everything went wrong. I even started a kitchen fire! I forgot my pyrex plastic lid was in the oven and turned up the temperature. I smell something and look in the kitchen and the lid is on fire in the stove. Plastic melted everywhere. I let it cool and picked it out and tonight I need to spray oven cleaner in there so I can use it again. I have had a brain fog all day and cant think clearly and Im sure its do to all the stupid testing I have done.

Im crying right now and sitting on a pillow, I dont have hemorroids but its so sore I cant sit normally. Thankfully my daughter is gluten free so when she is older she doesnt have to deal with this.

Autumn have you gotten your results from Enterolab? Do you for certain (lab results) have problems with gluten?

I'm asking because many corn-allergic (testing often misses this) people originally think they have gluten problems since corn is often in many gluten products. When they cut out gluten, they also cut out a lot of corn. These problems with corn & rice could be the original problem. A lot of corn allergy/intolerance symptoms are the same as those of gluten intolerance.

Corn is everywhere, and extremely difficult to avoid. As Laura advised. Check out the Delphi forums site: Avoiding Corn. http://forums.delphiforums.com/AvoidingCorn

also no-corn.blogspot.com has good information and links to other reliable corn-free sources.

I've also been where you are.. crying and hurting and thinking of how futile this is. There is relief. Its just finding the source of the problem that is the most difficult.

Please message me if you want more information or to talk.

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^_^ This is my favorite simple dressing. I hope it follows your diet.

1/2 c oil

1/3 c honey

1/4 lime or lemon juice (Lime blends much better with the honey flavor, I think)

1 tbsp mustard, dijon or otherwise.

Just wanted to let you know I tried this and it was good. Honey Mustard isn't my favorite so I altered it a bit.

I made 1/2 recipe using Lundberg Rice Syrup instead of honey, and orphee dijon. Then I added 1/4 c. Pomi tomatoes, a dash of garlic powder, and a dash of ground celery. Blended it til smooth. It was fabulous!

Thanks for posting the "stater" recipe. I'm probably going to use it and alter it into various "flavors".

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Guest AutumnE

Thanks everyone :) for the tips info and recipes, I appreciate them alot.

We had sort of a family crisis lately hence me not being online, it seems like there is always something anymore. I have been better at avoiding corn, its still hard not to go back. I did have a small glass of diet sprite the other night and woke up with an aching stomach again.

I havent had my test results back yet from enterolab. Im sure I have gluten problems though because its very different with corn than with gluten. My sister, niece, and nephew were tested and all have it. Im not following the paleo diet for the health benefits of it so much right now just out of necessity. I have lost weight this week due to it which has been nice :)

My oven is officially out of commission. It was really old anyways. I didnt want to replace it with us having our house up for sale but I cleaned and cleaned and cleaned it. It still stinks when I heat it up so I dont feel its safe for us to use. For now Im using my toaster/convection oven which thankfully works well. Im looking around for a new stove also or a good used one in the paper.

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We had sort of a family crisis lately hence me not being online, it seems like there is always something anymore. I have been better at avoiding corn, its still hard not to go back. I did have a small glass of diet sprite the other night and woke up with an aching stomach again.

I havent had my test results back yet from enterolab. Im sure I have gluten problems though because its very different with corn than with gluten. My sister, niece, and nephew were tested and all have it. Im not following the paleo diet for the health benefits of it so much right now just out of necessity. I have lost weight this week due to it which has been nice :)

Sorry to hear about your crisis. Hope everything is ok.

I know what you mean about its hard not to go back to corn. When I first discovered my corn allergy, I was suffering from corn allergy addiction. I was so used to that surge of adrenaline when I ate, that things just didn't taste the same to me. Honestly I was an adrenaline junkie.

I still have bouts of it, if I happen into some minor amount of corn (not large enough to get me sick, but just enough to set off adrenaline). I get a kind of high. I'm told its comparable to smoking pot. When the high starts to wear off, I get insane cravings. It took me a few weeks initially to figure out why suddenly I was craving wierd things like canned goods, honey, certain veggies/fruits. Then I learned all the different names for corn and different places it could be. Turns out my wierd cravings were for foods that my subconscious and my body knew had corn in it, even though I didn't know it. I would eat and eat til I found just the right amount of corn to satisfy the withdrawl. As I eliminated corn from my cupboards, my cravings changed to suit. It actually helped me pinpoint hidden sources of corn in my diet. Now when I get this binge eating hunger, I recognize it for what it is and start looking for the source.

Btw, fake sugars are evil. They're all corn, and they just perpetuate sweet cravings. There isn't a one of the major brands that doesn't make me sick. (cept some brands of liquid Stevia, and allergygrocer.com 's xylitol which is from birch). Mostly I just stick to real sugar as my body likes it better.

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Guest AutumnE

V- Thanks :) Yes I agree they are evil. Im getting headaches all the time now and have resorted a few times to drinking mountain dew just to get rid of them only to feel a tummy ache last for about 24 hours.

I was/am addicted to soda. Diet or regular it didnt matter. I need to be like my daughter and I am trying to stick to water only. She rarely drinks milk so she gets calcium supplements and she gets loads of cheese to make up for it. Im cutting out all sugar, caffiene,limiting grains and potatoes due to my insulin resistance, no dairy and no corn. Yes very bland, dh and my daughter definitely do not follow what I do so I stick veggies and meat in the crockpot and eat salads with fruit. The bonus weight loss is coming off nicely; perfect for the holidays :) I have loads of clothes in smaller sizes that I cant wait to wear again!

My crisis was related to me mostly a few problems with my eyes and our car in the shop two times last week. Plus dh is laid off and money is tight. Things are slowly becoming normal again.

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V- Thanks :) Yes I agree they are evil. Im getting headaches all the time now and have resorted a few times to drinking mountain dew just to get rid of them only to feel a tummy ache last for about 24 hours.

I was/am addicted to soda. Diet or regular it didnt matter.

It sounds like withdrawl. If drinking something with corn (diet or regular soda) stop the headaches, then probably all you're doing is staving off the detox/withdrawl. Much like an alcoholic taking a sip of alcohol every time they get the shakes.

Work tword getting off them completely.

As for suppliments, many manufacturers of suppliments put corn in the fillers. Its either labeled clearly corn starch or hidden among the various names of corn derivatives. Phytopharmica is the brand I use. They make a few things that aren't corn-free. However if they say its corn-free, it is. Other companies will state corn-free, but often that just means "highly processed corn derivatives", not actually free of corn derivatives. Or thats my experience.

Im cutting out all sugar, caffiene,limiting grains and potatoes due to my insulin resistance, no dairy and no corn. Yes very bland, dh and my daughter definitely do not follow what I do so I stick veggies and meat in the crockpot and eat salads with fruit. The bonus weight loss is coming off nicely; perfect for the holidays :) I have loads of clothes in smaller sizes that I cant wait to wear again!

My crisis was related to me mostly a few problems with my eyes and our car in the shop two times last week. Plus dh is laid off and money is tight. Things are slowly becoming normal again.

I was "diagnosed" with PCOS a couple years ago as well, about the same time I found the corn allergy. I've found that all my PCOS symptoms have gone away by completely (and anally) removing corn from my diet. Cutting out extra sugars, moderating grains/starches.. will help some. But I think you'll find that cutting out all corn will also decrease your need or want for such things anyway.

I was 290 lbs before all this, and am now at 240 and still losing. However if I eat corn in any amount, I will gain weight. Its actually an alarm bell for me that I'm getting into something bad.

I currently eat whatever I want (juices, potatoes, grains, candy, etc) as long as it is corn-free (plus milk, egg, & bean-free), and my A1C last checked went down .2, my cholesterol stablized (not elevating like it was), and I feel great.

Btw if you get a soda craving, Virgil's makes corn-free Rootbeer and Cream Soda. I believe they're both gluten-free as well.

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Guest AutumnE

Thanks so much :)

When I was gluten free by atkins diet years ago I started ovulating and became pregnant twice in three months. I fully believe it was my diet, I also was avoiding corn of course.

Are you on Glucophage? I am on it but hate the stomach upset that comes with it. Im hoping to come off of it when my weight goes down more. I am due to see my ob/gyn soon and will have her run a fasting insulin to see if she wants to try and pull me off it.

I feel like crud right now, I cheated and had a swig of mountain dew and have a stomach ache let alone the big D. I need to just quit it and deal with the withdrawal symptoms. I am just dragging it on.

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Thanks so much :)

When I was gluten free by atkins diet years ago I started ovulating and became pregnant twice in three months. I fully believe it was my diet, I also was avoiding corn of course.

Are you on Glucophage? I am on it but hate the stomach upset that comes with it. Im hoping to come off of it when my weight goes down more. I am due to see my ob/gyn soon and will have her run a fasting insulin to see if she wants to try and pull me off it.

I feel like crud right now, I cheated and had a swig of mountain dew and have a stomach ache let alone the big D. I need to just quit it and deal with the withdrawal symptoms. I am just dragging it on.

Yeah you do need to just stop it. I know its hard.

I'm not on any meds for PCOS. I was diagnosed with it just as I started corn-free. Doc wanted to do diet change first (South Beach) and see if my results stablized or went down. South Beach itself didn't do much good, but my test results didn't get worse so Doc wanted to try it longer. It took a while for me to really get the hang of corn-free so by the next test I'd been corn-free for quite a while. My results improved. The Doc wanted me to take a cholesterol med, but I haven't found one that is really corn-free and if my results aren't better by my next test I'll look more into it.

As for the stomache upset with Glucophage. Could you be reacting to other ingredients in it?

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I always thought paleo diet was a choice
My body is trying to force me on the paleo diet as well (read my signature). Out of my allergies, I still eat blueberries and regular potatoes (sweet potatoes seem to be the problem). I get depressed about it, but I always find ways to make things that I want using safe ingredients. I have a list of recipes in the recipe section.

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Guest AutumnE

v- I think its the medicine and not what I eat necessarily, I visit a pcos suppourt website and its a common problem. I do notice I have to be sooo careful to pay attention to eating right now. With hardly any carbs due to only potatoes and rice available I get weak fast if I dont continually replenish with my medicine lowering my insulin. So far my cholesterol is fine thank goodness but who knows about the near future unless I pull this weight off fast. So far Im looking at about 3 lbs a week loss but I have over 100 lbs to go.

Carrie- Sorry your dealing with it too, Im not looking forward to the holidays and plan on cooking for my family all the things I wont be able to eat so my daughter will have the normal holiday treats everyone else has. As a matter of fact we are skipping two dinners in the next few months, a christmas party dinner and just arriving afterwards and a wedding reception and just going to the wedding. How do I get to the recipes section? I would love to look up some.

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Carrie- Sorry your dealing with it too, Im not looking forward to the holidays and plan on cooking for my family all the things I wont be able to eat so my daughter will have the normal holiday treats everyone else has. As a matter of fact we are skipping two dinners in the next few months, a christmas party dinner and just arriving afterwards and a wedding reception and just going to the wedding. How do I get to the recipes section? I would love to look up some.

Cooking for holidays can be a stressful and busy procedure. Last week-end, I cooked for thanksgiving dinner here in Canada. Over the weekend I cooked two chickens, a pot roast, two apple crisps, and lots of vegetables! Here is a link to some of my recipes:

http://www.glutenfreeforum.com/index.php?showtopic=13319

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    • LexieA, I agree with Plumbago. The symptom's of low stomach acid and high stomach acid are similar so it is easy to confuse the symptom's of one as the other. Dr. Myatt explains this well in her online article about stomach acid. http://healthbeatnews.com/whats-burning-you/ quoting "But My Symptoms Feel Like Too Much Acid…" Strong stomach acid and pepsin quickly "emulsify" fats and proteins, making them ready for the next step of digestion, passage into the small intestine. When these digestive factors are weak, food remains in the stomach for longer and it begins to ferment. Gas pressure from the fermentation can cause bloating and discomfort and can can also cause the esophageal sphincter to open, allowing stomach contents to "backwash" into the esophagus. Even though weak stomach acid is the central cause of this, even this weak stomach acid, which has no place in the esophagus, will "burn." This burning sensation confuses many people, including doctors, who then "ASSuME" that excess acid is to blame. Too little acid, resulting in slowed digestion, and gas which creates back-pressure into the esophagus is the real cause of almost all "heartburn" and GERD." so  you can see how they can easily be confused for each other. you no doubt are having stomach acid issues but it is because it is too little or too much? Timeline helps us determine which it is. If it happens when we eat something it is already to low to  digest the food we are eating. if eating something cause the heartburn/gerd to improve (especially meat) then your stomach acid is really too high especially if this happens between meals. because eating something will naturally dilute/lower the stomach acid pH. I wrote about my stomach acid being misdiagnosed on my celiac.com posterboy blog. ( have summarized most of what you need to know in this reply but the post is still there if you want to study it more for yourself. if your not taking an antacid now then taking BetaineHCL should improve digestion. If it does then raising your stomach acid by lowering you pH should improve your digestion. study on the best way to take powdered stomach acid before trying this. but I found taking 3 to 4 capsules in the beginning was easier than taking only 1 or 2 in the beginning .. .  until I could back it down to only needing one per meal or now none per meal to aid digestion. which is what we are shooting for.  The place where our body is now producing our stomach acid naturally at a healthy level. if you feel a "warm sensation" in your stomach you have reached a good level. I hope this is helpful. I only know it helped me. *** this is not medical advice but I hope you have as a good experience with it as I did. Usually peopledon't  have a trouble taking BetaineHCL unless they have an ulcer or already taking PPI's which are actually lowering  their stomach acid contributing to a viscous cycle of being locked into taking PPI's long term. if PPIs are taken for more than 6 months they can be almost impossible to stop/quit because of the acid rebound people experience when trying to stop taking them cold turkey and why they recommend stepping back doses by 1/2 gradually so they don't get overwhelmed by the stomach acid your stomach is  able to produce again naturally itself (hopefully). . . if taking betaineHCL jump started your ability to produce stomach acid again. . . if not taking betaineHCL (Powdered Stomach Acid) can replace what the body is missing much like taking a hormone. chris kresser has a good online article on this subject as well. https://chriskresser.com/what-everybody-ought-to-know-but-doesnt-about-heartburn-gerd/ he says it well. quoting chris kresser. "If heartburn were caused by too much stomach acid, we’d have a bunch of teenagers popping Rolaids instead of elderly folks. But of course that’s the opposite of what we see." **** this is not medical advice but I hope it is is helpful. posterboy by the grace of God, 2 Timothy 2:7 "Consider what I say; and the Lord give thee understanding in all things".  
    • Lex_ I agree with Ennis_Tx. You need to take some Magnesium.  It works best as a Magnesium Citrate or Magnesium Glycinate. Magnesium Citrate are easiest to find. Take it 2/day for the first couple weeks to see how much more energy you have. Then you can take it with each meal or 2/day and one hour before bedtime if it is not convenient to take it at work. If it is working you (right form of as a Magnesium Citrate or Glycinate) you will will experience vivid dreams. And wake up with enough energy to take on the day. **** this is not medical advice but it really helped my chronic fatigue symptom's. It is good for leg cramps too also known as charley horse's. posterboy,
    • I am sorry that I was not clear.    I only mentioned  your diagnostic background, not to discredit you, but because without any lab results (other than a positive gene test), how can you be sure that gluten (shampoo containing wheat protein) was the actual culprit (not a guess) of your symptoms?  It is common for celiacs to receive follow-up antibodies to monitor their dietary compliance.  This is not perfect, but it is the only tool in the toolbox for now.   My husband has been gluten free 12 years prior to my diagnosis.  He went gluten free per the poor advice of his GP and my allergist.  So, I am not trying to discount your diagnosis at all.  I am just trying to see if other lab tests (e.g. liver tests that were elevated previously for you when you were still consuming gluten) were measured after your shampoo exposure.   I am curious because I have had issues over the last year.  I was glutened last January, had the flu, a tooth infection, a cold and a tooth extraction, three rounds of antibiotics (verified to be gluten free) within a month or so.  Like, you, I am very careful.  I have no idea as to how I was exposed.   The last time I ate out was a year ago and even then it was at at 100% gluten free restaurant.   My hubby did not have any symptoms at this time.  He is like my canary.    I went to my GI and my DGP IgA was off the charts even some three months later.   My celiac-related symptoms diminished in three months, but I struggled with autoimmune hives for six.  My GI offered to do an endoscopy in the summer.  Instead I chose to follow the Fasano diet.  I still was not feeling well.  In December, my antibodies were 80.  They were either on a decline or they were increasing again.  I opted for the endoscopy.  My biopsies revealed a healed small intestine (you could see the villi on the scope too).  But I was diagnosed with chronic gastritis and had a polyp removed.   So, all this time I thought my celiac disease was active, but it was NOT the source of my current gut issues.   Again, my apologies.  I just wanted to know how you know for SURE that hydrologized wheat protein from someone else’s shampoo and conditioner could reach your small intestine to trigger an autoimmune reaction.  Maybe, like me, Gluten was not the actual culprit.    
    • The reason I think it was the shampoo? Process of elimination. Our house is almost entirely gluten free (except for this shampoo which slipped through the cracks until I read the ingredient label). My husband has bread that he eats at lunch, but he practices something that resembles aseptic technique from the lab when he's making his sandwiches. He's been doing this for years now and I've never been glutened from within my home. The previous week I hadn't eaten out, I cooked all my food, I don't eat processed food and I never eat something from a shared facility.  Usually if I get glutened it's a single dose sort of thing and it follows a very predictable course, to the point where I can estimate when I got glutened within 24 hours of when it happened. However, this time, I was feeling achy and arthritic and moody for about a week before it got bad enough for me to recognize it as the result of gluten exposure, at which point we went searching and found the shampoo (and conditioner, which does leave more of a residue than shampoo), which he immediately stopped using. Within three days I was feeling back to normal (which is the usual course for me).  Sure, it could have been something else, but I know how sensitive I am, and, as silly as it sounds, it was the only thing that made sense. The other thing you said: You're correct, mine was not a rock solid celiac diagnosis, but I have no doubt that gluten is the problem. I was SICK. I went through two different gluten challenges in an effort to get a more straightforward diagnosis during which I was a barely functioning human being. Consuming gluten may not have given me blunted villi or elevated antibodies, but it did inflame my gut, and actually started to damage my liver. If you look at my diagnosis thread, I had elevated liver enzymes, which have been correlated with celiac disease in the past. There was no alternative explanation for the liver enzymes, he checked EVERYTHING.  I too am a scientist and I have spent a lot of time with the literature trying to make sense of my condition.  https://www.ncbi.nlm.nih.gov/pubmed/26150087 I also have no doubt that gluten was damaging my intestines in some way, as any prolonged gluten exposure in the past has inevitably been followed by a severe FODMAP intolerance that goes away once I've eliminated the gluten and given myself a month or so to heal.  I also had a very fast diagnosis following the onset of symptoms (~1 year) so it's possible that the disease never had a chance to manifest as full celiac. I wasn't willing to eat gluten long enough to find out. As a result of my diagnosis, hazy as it was, I am *meticulously* gluten free. It is not a fad for me. I don't occasionally cheat. It is my life, for better or worse. All of that being said, I'm not sure what my diagnosis has to do with your question. You say you're not trying to be rude, but when you bring up my diagnosis in a thread that has nothing to do with diagnostics, it seems like you're trying to undermine the validity of my disease or the validity of my input in this forum. If I'm being hypersensitive, I apologize, but that's how you came across on my end. I'll admit that the fact that my diagnosis wasn't more straight forward does make me a bit defensive, but I promise that even if I didn't have a solid diagnosis, I interact with the world as though I did, and I'm not out there giving people the wrong idea about celiac disease by not taking it seriously. If there was a connection between your question and my diagnostics that I missed I would appreciate you giving me the chance to better understand what you were asking. 
    • I am just curious.  As a scientist (and I am not trying to be rude), how can you determine if hydrologized wheat protein from your husband’s shampoo was actually the culprit?  If I recall at your diagnosis, you were seronegative, Marsh Stage I, gene positive,  but your doctor still  suspected celiac disease.  You improved on a gluten diet.  Other than observation, how do you really know?  Could it not be something else that triggered your symptoms?   I firmly believe that even trace amounts of gluten (under 20 ppm), can impact sensitive celiacs.  But traces of a protein within a shampoo from someone else’s hair that was rinsed?    
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