• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac And Dairy Products
0

10 posts in this topic

I was diagnosed with Celiac Disease 2 1/2 years ago and have done pretty well with my diet since. Now it seems I'm having major problems with dairy. I am going to try to cut out the dairy for a while because I've heard that there may be a link between Celiac and Dairy intollerance. I was just wondering if anyone has had this problem and if the pills for lactaid intollerance work or not.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I was diagnosed with Celiac Disease 2 1/2 years ago and have done pretty well with my diet since. Now it seems I'm having major problems with dairy. I am going to try to cut out the dairy for a while because I've heard that there may be a link between Celiac and Dairy intollerance. I was just wondering if anyone has had this problem and if the pills for lactaid intollerance work or not.

The pills for lactose digestion might help if your problem is with the milk sugar lactose, but won't if your problem is with the protein casein. I definitely have an intolerance to the casein so can't have dairy in any instance. Years ago I tried lactaid milk and pills and they helped a little, but I still had problems and never knew why until I tested last year and found the casein intolerance.

0

Share this post


Link to post
Share on other sites

I'm also casein intolerant. It's much like gluten intolerance in both the symptoms and the fact that it's permanent.

0

Share this post


Link to post
Share on other sites
I'm also casein intolerant. It's much like gluten intolerance in both the symptoms and the fact that it's permanent.

I'm starting to consider an IV permanently hooked up to make my life easier... It's getting frustrating. Thanks for your help

0

Share this post


Link to post
Share on other sites

We can't tell you if lactase (the enzyme that is the main 'ingredient' in lactaid pills/drops) will help because we can't tell if the problem you have is with lactose (the milk sugar) and not producing enough of the enzyme internally to break it down, or if the problem is an intolerance to casein (the milk protein) and your immune system reacting to that protein. The only way to know is to test it. Try drinking some milk (you want something with both lactose and casein) AND taking lactaid (you could just test with the full strenght, store-bought lactaid milk; it's a little sweeter than regular milk), and seeing how you react, then comparing it to a regular glass of milk.

0

Share this post


Link to post
Share on other sites
Ads by Google:


you guys are all very helpful....I just joined this site figuring I'd try it out and it's great. I guess it's more trial and error. It just gets to the point that you start wondering if you're ever going to enjoy eating again.

0

Share this post


Link to post
Share on other sites

I just recently started this diet and already feel like a different person... maybe I'd feel even better if I get off dairy too... at least for a while and see what happens.

Damn, I could be perfectly healthy if I lived off steak and apples. Maybe that's what I'll do. Never worry about food allergies again! :lol:

Oh, and lots and lots of vitamin/mineral supplements.

0

Share this post


Link to post
Share on other sites

I'm lactose intolerant & have been for 17 years. Check this site out: http://www.dietitian.com/milk.html. From what I read, i you might be able to try the lactaid milk with lactaid pills too (to ensure its not the lactose) and if you still get sick, then I would think it was the casein. I don't know, but that's what i would do. Id also ask the casein people if the symptoms are the same: nausea, bloating, gas, diahrea.

If you are lactose intolerant there are so many great substitues you can eat!

Oh and if you are sensitive to lactose, you would probably be sensitive to whey too (i think it depends on HOW sensitive you are).

ttfn

0

Share this post


Link to post
Share on other sites
I'm lactose intolerant & have been for 17 years. Check this site out: http://www.dietitian.com/milk.html. From what I read, i you might be able to try the lactaid milk with lactaid pills too (to ensure its not the lactose) and if you still get sick, then I would think it was the casein. I don't know, but that's what i would do. Id also ask the casein people if the symptoms are the same: nausea, bloating, gas, diahrea.

If you are lactose intolerant there are so many great substitues you can eat!

Oh and if you are sensitive to lactose, you would probably be sensitive to whey too (i think it depends on HOW sensitive you are).

ttfn

When I was only lactose intolerant, the symptoms were bloating, gas, and diarrhea, but it wasn't too bad for me as long as I kept my consumption down and didn't consume milk on an empty stomach. After I became sensitive to casein, I started to get edema, and I just gave it up right then and there. No need to have old lady legs at my age.

0

Share this post


Link to post
Share on other sites

Many people end up developing numerous food intolerances. Count me in the group. You also might want to try doing it first thing in the morning (so you haven't eaten anything else and you know its the milk/lactose/casein that is causing the reaction). It might be multiple foods, or may only be one. Good luck, and let us know what we can do.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,808
    • Total Posts
      932,595
  • Member Statistics

    • Total Members
      64,302
    • Most Online
      3,093

    Newest Member
    AnLi
    Joined
  • Popular Now

  • Topics

  • Posts

    • Update: for most accurate results, I am eating one piece of white wheat bread a day and am hating the symptoms. Less than two weeks until the endoscopy so I'm hanging in there.
    • Gaerty, I am glad to hear that you've ruled out the worst stuff. That at least helps clear any anxiety or worry you might have. I know that would clear up mine. I have good news! About three days ago my splinter hemorrhages cleared up 100%! The one that was on my right thumb was long and was there for about 2 to 3 months. I started taking this Vitamin C supplement 1000 mg once a day about 3 weeks ago. Whats crazy is that on the day I started the Vitamin C I noticed a small hemorrhage cropping up on my left thumb. It was very small. By day 7 of taking the vitamin C the one on the left thumb started growing out. By the second week I noticed the one on the right thumb shrunk drastically and by the end of week 3 they were all gone. By day 10 I also started taking 25mg of iron because all my muscles keep twitching. My B's and Magnesium came back good 5 months ago. I heard low iron can cause that symptom as well. So thought I'd give it a try.  I am not sure if it was a combo of the C and Iron or just the C that helped clear the splinter hemorrhages but for sure it was one of those things because they are the only things I have changed recently with supplements in the past 30 days.  
    • The nasal spray is safe, per the 2017 gluten-free drug list, but check the list as there are a few different manufacturers.   http://www.glutenfreedrugs.com/newlist.htm Claritin is fine.   Get a Nedi pot.  Helps tremendously.  It is safe.....100% gluten free.  Just use pre-boiled and the cooled water.  
    • Thanks Ravenswood. I need the strength and encouragement to keep going. The last sessions fall out was 4 days of my body revolting on a nervous system level.  I'll look into your acupressure book suggestion. I have done sinus acupressure for myself and my daughter for years but did not explore more.  In the past when gluten-free my fibromyalgia symptoms improved but since they come back the concern is it might be actual fibromyalgia.  After 2016 I found out I have Barrett s esophagus, fibromyalgia, additional food intolerance plus the gluten. I had in my head I was ncgs and it was all related to  that and leaky gut that occurred after my challenge., So I wasn't prepared to digest all the above. Pun intended. Thanks for the encouragement Awol
    • So I'll try to keep this short and sweet.  I'm a 25yo male and have had GI issues for about 7 years. Through many years and many doctors visits, I've gotten potential diagnoses of IBS, post-infectious IBS (d/t a Giardia infection in 2014), small intestine bacterial overgrowth, GERD, and even a strong suspicion of inflammatory bowel disease (Crohn's/Ulcerative Colitis). I've had two colonoscopies (no biopsies taken) and one EGD (biopsies only taken of STOMACH which showed chronic gastritis, not small intestine). Pretty much all of my tests have come back "normal."  I'll start by saying that back in 2014ish my blood results for Celiac were negative. My GI symptoms vary and fluctuate greatly... When I'm really struggling, I'll have chronic diarrhea, debilitating reflux, hours of burping after eating anything, epigastric and lower right quadrant abdominal pain, severe fatigue (nearly passing out), migraines, awful brain fog / depression, unilateral eye pain and photophobia, mouth ulcers, glossitis (tongue inflammation), and occasional bloody mucus in my stool if I'm extremely flared.   So my GP recommended I try a gluten-free diet after my IBD panel came back as negative. I reluctantly gave it a shot. I was gluten-free for about 2 months - slowly but surely, my chronic diarrhea relented, fatigue lifted, and my reflux nearly disappeared (to the point of considering stopping my omeprazole). Since eating gluten-free is so difficult, I decided to try a 3-day gluten challenge to see if gluten truly was the culprit. I ate gluten products 2-3 times/day for 3 days. It made my reflux a bit worse and gave me some pain, but nothing severe. My tongue however started progressively burning/stinging that week.  The BAD symptoms came about 2 weeks after my first gluten exposure... My acid reflux became MUCH MUCH worse, despite medication. I lost about 7 pounds over 3 weeks from not wanting to eat. I had much more abdominal pain. My tongue became very inflamed and sensitive to eating/drinking. I got mouth ulcers. I became very depressed, irritable, and brain-fogged out of NOWHERE. I was nauseous and having headaches. It was NOT fun. That's when I thought, "Ok, I am definitely more sensitive to gluten than I thought." That was about 6 weeks ago and my stomach is still feeling the effects of those 3 days. So, my questions: Has anyone experienced a similar story? Has anyone had lower GI bleeding with celiac? For those who have Celiac, are your symptoms typically delayed like that (2-3 weeks)? I know NCGS is supposed to have much more immediate symptom-onset. Has anyone tested negative to blood work, but positive on small intestine biopsies?   
  • Upcoming Events