• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Celiac And Dairy Products
0

Rate this topic

10 posts in this topic

Recommended Posts

I was diagnosed with Celiac Disease 2 1/2 years ago and have done pretty well with my diet since. Now it seems I'm having major problems with dairy. I am going to try to cut out the dairy for a while because I've heard that there may be a link between Celiac and Dairy intollerance. I was just wondering if anyone has had this problem and if the pills for lactaid intollerance work or not.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I was diagnosed with Celiac Disease 2 1/2 years ago and have done pretty well with my diet since. Now it seems I'm having major problems with dairy. I am going to try to cut out the dairy for a while because I've heard that there may be a link between Celiac and Dairy intollerance. I was just wondering if anyone has had this problem and if the pills for lactaid intollerance work or not.

The pills for lactose digestion might help if your problem is with the milk sugar lactose, but won't if your problem is with the protein casein. I definitely have an intolerance to the casein so can't have dairy in any instance. Years ago I tried lactaid milk and pills and they helped a little, but I still had problems and never knew why until I tested last year and found the casein intolerance.

Share this post


Link to post
Share on other sites

I'm also casein intolerant. It's much like gluten intolerance in both the symptoms and the fact that it's permanent.

Share this post


Link to post
Share on other sites
I'm also casein intolerant. It's much like gluten intolerance in both the symptoms and the fact that it's permanent.

I'm starting to consider an IV permanently hooked up to make my life easier... It's getting frustrating. Thanks for your help

Share this post


Link to post
Share on other sites

We can't tell you if lactase (the enzyme that is the main 'ingredient' in lactaid pills/drops) will help because we can't tell if the problem you have is with lactose (the milk sugar) and not producing enough of the enzyme internally to break it down, or if the problem is an intolerance to casein (the milk protein) and your immune system reacting to that protein. The only way to know is to test it. Try drinking some milk (you want something with both lactose and casein) AND taking lactaid (you could just test with the full strenght, store-bought lactaid milk; it's a little sweeter than regular milk), and seeing how you react, then comparing it to a regular glass of milk.

Share this post


Link to post
Share on other sites
Ads by Google:


you guys are all very helpful....I just joined this site figuring I'd try it out and it's great. I guess it's more trial and error. It just gets to the point that you start wondering if you're ever going to enjoy eating again.

Share this post


Link to post
Share on other sites

I just recently started this diet and already feel like a different person... maybe I'd feel even better if I get off dairy too... at least for a while and see what happens.

Damn, I could be perfectly healthy if I lived off steak and apples. Maybe that's what I'll do. Never worry about food allergies again! :lol:

Oh, and lots and lots of vitamin/mineral supplements.

Share this post


Link to post
Share on other sites


Ads by Google:


Guest laydirain

I'm lactose intolerant & have been for 17 years. Check this site out: http://www.dietitian.com/milk.html. From what I read, i you might be able to try the lactaid milk with lactaid pills too (to ensure its not the lactose) and if you still get sick, then I would think it was the casein. I don't know, but that's what i would do. Id also ask the casein people if the symptoms are the same: nausea, bloating, gas, diahrea.

If you are lactose intolerant there are so many great substitues you can eat!

Oh and if you are sensitive to lactose, you would probably be sensitive to whey too (i think it depends on HOW sensitive you are).

ttfn

Share this post


Link to post
Share on other sites
I'm lactose intolerant & have been for 17 years. Check this site out: http://www.dietitian.com/milk.html. From what I read, i you might be able to try the lactaid milk with lactaid pills too (to ensure its not the lactose) and if you still get sick, then I would think it was the casein. I don't know, but that's what i would do. Id also ask the casein people if the symptoms are the same: nausea, bloating, gas, diahrea.

If you are lactose intolerant there are so many great substitues you can eat!

Oh and if you are sensitive to lactose, you would probably be sensitive to whey too (i think it depends on HOW sensitive you are).

ttfn

When I was only lactose intolerant, the symptoms were bloating, gas, and diarrhea, but it wasn't too bad for me as long as I kept my consumption down and didn't consume milk on an empty stomach. After I became sensitive to casein, I started to get edema, and I just gave it up right then and there. No need to have old lady legs at my age.

Share this post


Link to post
Share on other sites

Many people end up developing numerous food intolerances. Count me in the group. You also might want to try doing it first thing in the morning (so you haven't eaten anything else and you know its the milk/lactose/casein that is causing the reaction). It might be multiple foods, or may only be one. Good luck, and let us know what we can do.

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,146
    • Total Posts
      939,919
  • Member Statistics

    • Total Members
      66,132
    • Most Online
      3,093

    Newest Member
    Whhyyy
    Joined
  • Popular Now

  • Topics

  • Posts

    • Yes I eliminated high glycemic foods. Eating only small amounts of carbs. No fruits, added sugars, starchy grains. Eating lots of fibrous veggies. Eating olive oil, as I don’t seem to tolerate the saturated fats or MCT oil. Allergic to nuts and seeds unfortunately.
    • Just wondering if you have an update at all? Going through the same thing at the the moment with my type 1 14 yr old. I would be interested to know what your gi said and how your daughters doing now? xx
    • Please check the date on post, you just responded and tried talking to a person from 7 years ago. On consideration to the subject Poatoes are a huge flare factor for my UC and cause my blood sugar to sky rocket...I am not even diabetic but for some reason potatoes (hash browns) that I tried a few months ago with some eggs shot it up over 400. not even a control test with table sugar managed that.
    • Have you tried eliminating high glycemic foods? Fruits, added sugars, starchy grains, potatoes. etc? Also adding in slow digesting fibers and fats can prevent insulin spikes, MCT oil is also known to help and protein. Many find consuming nuts and seeds higher in fiber early on in the meal or before a meal can slow down insulin responses and prevent spikes. I always tend to eat a hand full of whole shell pumpkin seeds, hemp seeds, cocoa nibs, etc. while fixing my food, this gets me starting to feel fuller sooner, and seems to help in over all down the road. I know I had some references somewhere to these. I know I read somewhere about the antioxidants in in whole shell seeds like pumpkin and hemp also helped the body regulate insulin levels.
    • Dear AWOL Cast Iron Stomach, Your husband is right bread is bad for you. Of course it's more than bread and gluten, until now it was amateur hour trying to self diagnose and tame this "lion". However they let you down. You slipped through the cracks over and over again it is not your fault your not the Dr. You made mistakes and errors acting like a celiac , not knowing for sure you were, and not feeling like you could fully claim to be or reach out for support . Now you know your husband was closer than any Dr. up until now to determine your illness. Now something is in your record, now hopefully you will be dismissed less,respected more, maybe they will realize its an actual condition going on- not all in your head. Will they? Who knows! Do you care? This is now official, now explained, you not only have to give up gluten, but milk, and corn. In fact give up 98% of processed anything. The cluster of lifetime symptoms were not  "just you", "in your head", "you are not a difficult patient", "when the Dr or nurse looks at you like a nut job you don't have to feel the dismissiveness and condescension. It's an illness and nothing to be shameful of  what is shameful is they and their colleagues missed you failed you. In fact being missed for 4 decades is unjust to you. You were missed time and time again from age 5 to 43, decade after decade after decade, symptom after symptom. It's not that you didn't try from the 5 year old begging to go to the Dr, to the 20 going to the hospital again for another bout of gastroenteritis hoping to get an IV, to the thirty year old saying something is wrong why is this happening, to the forty something a restaurant fed me gluten when I asked for gluten-free, I have been gluten free for 3 1/2 years ,  I have more symptoms and pain than before . I felt so good for those gluten-free years- please help me-make it stop. So many things explained it makes you experience a range of emotions. Grateful: Relief and gratefulness someone finally agreed to send you to someone to test you. She saw past the other diagnosis' and the albatross IBS diagnosis. All the ages and stages of symptoms are explained they all fit. Everyone of them! Someone else also has had them. You are not alone. Read the forum-you fit like a glove. Anger: Anger for the way you have been treated by the medical community, family, some ex boyfriends, friends and coworkers. Anger for the length of time you endured this. Hurt: Hurt for the times people said unkind things to you when you were symptomatic or flaring . you are experiencing symptoms that change your body people are rude to congratulate you on a "pregnancy" you didn't announce or ask why you are not slim when you hardly eat. you are not over emotional -  you are suffering from neuro symptoms, you are not making this up for attention Sad & Guilty: Can I work again? Do I want to work again? What kind of work can I do now? Can I find a job and work PT from home? You didn't envision this your husband having to be sole bread winner now what? I am overwhelmed thinking about this-stop? You now have closure and know how and why you lost your first pregnancy. You now know why you were high risk, complications,  with your children in Pregnancy & Delivery that they couldn't be explained back then It explains why in pregnancy you lost weight and why your morning sickness was extreme and seemed to last longer than anyone you knew,  that your Puppp rash was likely misdiagnosed DH It is not your fault none of it. Please forgive yourself for what you did not know. Your children forgive you. Believe them when they say its not your fault. You can cry, but you can no longer blame yourself. You are a good mother just one with an illness your children will learn to accept. Withdrawn: Why are you withdrawing from your husband? Should you ask him if he wants a divorce? Should you push him away? You didn't know before marriage what was happening you knew something autoimmune was brewing shortly after, but nothing showed on tests. Was this unfair to do to him? Doesn't he deserve someone better? Someone well? Now you can't retire and travel the world as society retirement cliché dictates. Can you afford this illness ? How will this financially impact your spouse, your family?. Why did you do this to this poor man? You are so selfish, you wanted marriage and kids, but was this fair to them? Don't your kids deserve a healthier mom? How will this impact them? Oh my gosh are they going to get this too? Will they grow to resent you? Your illness and diet has taken over their lives! Oh gosh no one say hi to me-please. I hate people and I am too sick to pretend and be fake friendly today. I don't want to tell you I am ill. I don't want to talk about this. I have to absorb this. I hate you people for being healthy. Don't tell me I don't look well. I will snap, I don't want to snap, I am irritable ,and don't feel well. Just keep giving off the unapproachable vibe keep them away.  Am I strong enough to do this? Acceptance: Calm down the inflammation, lack of nutrients, and GI damage is messing with your head. Your husband said for better for worse. Your kids have no choice you are their mother and you are a good mom -you have always been, always will be even on your worst day. If they get this they will be ok. You are strong enough to do this you are just ill and most importantly you must remain here in case they get this so you can guide them and be there for them. Got it? Go on the forum you are not alone it will be ok. You will get this lion back in the cage and manage it. It will be ok. If you can't travel in retirement one day you will find other hobbies or things to occupy your time. He's not going to leave you over this. If he does it will be ok. You'll manage-you always do. You have an answer, you knew it was coming, keep reading, learning, seeking support, and one day it will all work out. You will process all this and will be at peace-until then keep going and above all AVOID GLUTEN!    
  • Upcoming Events