• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

Questions About Celiac Disease
0

5 posts in this topic

I am a celiac patient. I've known that I had Dermititus Herpediformus (sp?) for about 20 years. Recently I had the gut-scope done to me and found I have Celiac Sprue. Since being diagnosed with D.H. long ago, I have taken Dapsone every day and kept eating whatever I wanted. Upon learning of this new development, I have decided to try to go 100% gluten free and see if it affects how I feel. But I have some questions that I need answers for:

1. Does the amount of gluten ingested affect the amount of villi damage done? In other words, is one little particle of gluten like a duodenal atomic bomb - flattening villi in all directions - or is it dependant on how much gluten you have eaten in determing the amount of damage done?

2. They told me if I went gluten-free that my villi damage was not permanent and they would begin growing back normally. What is the time period for this rejuvenation?

3. Is Dapsone bad for you?

4. Is "Ezekial" brand bread really Gluten Free? Dr. Phil's wife said it was.

5. What about 1-a-day vitamins for men and Tums?

Thanks in adavance for any information you can give me.

And when will Bard'sTale Beer be available? It's supposed to be the only Gluten-free beer available.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


If you have DH andd celiac you don't need to just "try" going gluten-free, you NEED to go gluten-free. While one crumb of gluten will not flatten all your villi, continued exposure to gluten can slowly make you sicker and sicker. You also remain more likely to develop certain cancers and other autoimmune diseases. It's possible you could go along for years with no problems, or things could slowly pile up until you end up in the hospital, like I did.

Dapsone can have severe side effects in some people, but thsoe side effects are rare and can be montiored with regular visits to the doctor. I took it for more than 20 years but wasn't aware of the connection with celiac.

Ezekiel bread is not gluten-free. Some claim sprouted wheat is OK but I wouldn't take the chance. Spelt is also off-limits. We all keep our fingers crossed for Bard's beer. They're trying to find ways and places to distribute it now.

richard

0

Share this post


Link to post
Share on other sites

Just thought I'd mention, my mum used to sprout wheat regularly, but tests revieled the sprouts were not gluten-free.

0

Share this post


Link to post
Share on other sites

please make sure you stay gluten Free.........it gets easier as you go along and everyone is here For you.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,034
    • Total Posts
      933,928
  • Member Statistics

    • Total Members
      64,603
    • Most Online
      3,093

    Newest Member
    kay ward
    Joined
  • Popular Now

  •  

  • Topics

  • Posts

    • I think that's the answer. You can see plenty of others experiencing the same: My own experience is that my neuro symptoms took longer to go. The exception to this would be brain fog which happily lifted pretty quickly. I get occasional POTS on standing or a kind of sensation from in my head sometimes which is really difficult to describe which I think may relate to cross contamination but I don't neccesarily get any GI. I think its those symptoms which are maybe last to go, first to show...
    • There are some nutritional issues to watch out for in a vegan diet.  Personally I don't think it's great idea when the person has a chronic digestive disease that is responsible for causing mal-absorption of nutrients.  Vegan in a celiac seems kind of like pouring gas on a fire.  The vegan diet makes getting some important nutrients harder, and celiac disease does the same thing.  I don't know of any studies on it, but my guess is a vegan celiac may take longer to recover their health.  And since it can take 5 years or more to recover from celiac damage, it seems to me that is not a good thing. http://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/in-depth/vegetarian-diet/art-20046446?pg=2
    • What language are they speaking in the video? Is there a version with subtitles? 
    • So, if I were to make this with white sugar, how much would you recommend?  Can you substitute the almond butter from peanut butter? what cereal do you recommend? A regular style that would be at a standard grocery store I mean, not something I'd have to order  I'm lazy like that.  Sorry to massacre your recipe. Wish you were in NC and my neighbor so I could just buy your stuff.
    • There was a thread on here some time ago from someone struggling to be gluten free on a vegan diet that got some good responses from vegan celiacs. Maybe worth a search, this forum has had so many members over the years who have been through similar.  
  • Upcoming Events