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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Questions About Celiac Disease

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I am a celiac patient. I've known that I had Dermititus Herpediformus (sp?) for about 20 years. Recently I had the gut-scope done to me and found I have Celiac Sprue. Since being diagnosed with D.H. long ago, I have taken Dapsone every day and kept eating whatever I wanted. Upon learning of this new development, I have decided to try to go 100% gluten free and see if it affects how I feel. But I have some questions that I need answers for:

1. Does the amount of gluten ingested affect the amount of villi damage done? In other words, is one little particle of gluten like a duodenal atomic bomb - flattening villi in all directions - or is it dependant on how much gluten you have eaten in determing the amount of damage done?

2. They told me if I went gluten-free that my villi damage was not permanent and they would begin growing back normally. What is the time period for this rejuvenation?

3. Is Dapsone bad for you?

4. Is "Ezekial" brand bread really Gluten Free? Dr. Phil's wife said it was.

5. What about 1-a-day vitamins for men and Tums?

Thanks in adavance for any information you can give me.

And when will Bard'sTale Beer be available? It's supposed to be the only Gluten-free beer available.

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If you have DH andd celiac you don't need to just "try" going gluten-free, you NEED to go gluten-free. While one crumb of gluten will not flatten all your villi, continued exposure to gluten can slowly make you sicker and sicker. You also remain more likely to develop certain cancers and other autoimmune diseases. It's possible you could go along for years with no problems, or things could slowly pile up until you end up in the hospital, like I did.

Dapsone can have severe side effects in some people, but thsoe side effects are rare and can be montiored with regular visits to the doctor. I took it for more than 20 years but wasn't aware of the connection with celiac.

Ezekiel bread is not gluten-free. Some claim sprouted wheat is OK but I wouldn't take the chance. Spelt is also off-limits. We all keep our fingers crossed for Bard's beer. They're trying to find ways and places to distribute it now.

richard

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Just thought I'd mention, my mum used to sprout wheat regularly, but tests revieled the sprouts were not gluten-free.

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please make sure you stay gluten Free.........it gets easier as you go along and everyone is here For you.

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