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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

8/4/04
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Guest ~wAvE WeT sAnD~

Hi all! It's 1:12 am here in western Pa. I just want to let everyone know I'm off to bed and getting ready to start a brand new day!

I guess, now, to adapt the expression to my liking, the calm AFTER the storm. The numbness after hours of screaming and crying to fight everything away.

I'd like to thank every person who has been supportive of and helpful to me throughout this journey. I'll keep you posted.

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Guest shar4

Hope all went well for you and let us all know how you are doing.

This is a great site for support.

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Hi Jill! I just wanted to let you know that I'm thinking of you and I hope everything went well. Keep us posted!

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Guest ~wAvE WeT sAnD~

Hey Everyone!!

I cannot thank you enough for the posts. Such support is priceless

It went well. I don't remember the doctor feeding the scope down my throat. Here's the whole story.

My endoscopy was scheduled for 2:00, but the hospital had me arrive at 12:30 to complete all the necessary paperwork (sign here, sign there, blah blah.) I was then hooked to the original rehydration IV, adn the nurse had me repeat my name, SS#, and procedure to him (even thought it was on my bracelet). I sat and talked to my mom until two kids dressed entirely in red (candy stripers, I think) walked in, stopped in fron of me, and stared. "Is it time?" I asked them. They simply reached over and pulled the bars up on either side of the bed and started to wheel me away. My mother stopped them so I could take my glasses off( I usually wear contacts, but I figured it would be smart to leave them out). So then the two teen-aged red blurry things led me to the operating room. What was funny is that my vision is horrendous--nurses kept walking by me, smiling and saying hello. I couldn't see them, and I bet they wondered why I was "glaring" at people (mostly staring off in space because I'm as blind as a bat in a cardboard box). Finally, I went in. One nurse ran over another nurse's foot with my bed (haha!). Then they parked me next to the monitor, and my GI started asking me questions (did I know what celiac disease is, etc.) I told him I'd researched the disease online. He then said, "Well, young lady, tell us what it is you know and I'll grade you." He's such a nut! So I told him the whole wheat-sticking-to-villi crap, he gave me a "A" (haha!), and then began telling me of the risks involved with the procedure (intestinal tearing, hemorraging, etc.) What a time to tell a person! :lol: Then, a nurse in yellow (she's important--I remember her later ;) ), says "Have you had this procedure done before?" I say no, of course. She picked up an aerosol can with a bulb on the other end and told me to hold my breath and open my mouth as wide as I could. She sprayed this banana/paint thinner tasting Novocain into the back of my throat, and I swallowed (with what muscles in my esophagus could still move). She explained the whole scope business ( I couldn't even SEE the scope!!! The black blurry hissing snake on the little table thingy), to me, told me to turn on my left side, and said, "Jill, are you starting to feel sleepy yet?" I said, "I don't know, is the thing in my arm?" (the IV drip) "Yes," she answered. I then remember her saying, "Here's your mouth guard." (the tan plastic thing with the hole in the middle for the scope). Then, at some point, she held my head up and said something to me. I was so drugged up that I don't remember anything else until I saw people moving. I remembered that nurse's yellow shirt and had watched her moved further to the left when I "woke up". She walked over to me to push me out, and I said, "Are we done yet?" She said, "Yes," and pushed me back to the room I was in before the procedure. My GI came in and ten minutes later and showed me the pictures of my duodenum (lower portion of the stomach/beginning of the small intestine) and part of the small intestine. He said that portion was healed, but the intestine is often "patchy" (I may have damaged cells further down where the scope cannot reach). I thought, "they actually got those?" Since I didn't remember them getting the scope in, I was amazed they had for some reason :lol: My mom drove me home, and I reclined in the passenger seat. I came home at 4:00, ate scrambled eggs with cheese and had a bowl of Cream of Rice with butter, cinnamon, sugar, and Hershey's syrup (it sounds gross, but's it's delicious!! ) I went to bed at 7:00 pm.

The hospital called me today to ask if I was ok. I told the lady on the phone I was ok, but a little tired. Whatever is in that sedative, it makes you energetic the next day, because I spent two hours pulling weeds out of our flower beds, cleaned my bathroom, and swept grass off the driveway!!! And I was EXCITED about it! (how sad. I know I it's wrong to start a sentence with a preposition, but oh well!)

My GI said that even if my biopsy is negative, if I have the antibodies in my blood, I still have celiac disease. My parents and my brother are getting tested next Friday, and while they get bloodwork done, I'm getting my Thyroid checked!! Woo hoo! (I could live at the hospital!) He also said that I'm prone to Arthritis. Is that prevalent in young people with celiac disease!!

Take care and thank you VERY much for your support, :wub::wub::wub:

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My GI said that even if my biopsy is negative, if I have the antibodies in my blood, I still have celiac disease.

Jill,

Good for you! :D I'm glad it went so well and that your family members will be tested.

I am not surprised that your intestine showed that it has healed quite a bit in the three weeks being gluten-free.

I am so glad that your doctor is openminded about the negative biopsy, and it still being celiac disease! :) I wish mine was that open-minded!

God bless,

Mariann

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Jill,

I'm glad that your procedure went well! I must say, your recount of the endoscopy was quite humorous and I quite enjoyed reading it... perhaps because it brings back those foggy memories of my own! Did they use that "V" drug? Good that you got it in writing because the amnesia will take whatever memories you have left. I hope that they find no damage, but it's also great to hear that your doc would still consider you celiac based on your blood results.

Gretchen

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LOL.. after they were done with my endoscopy, I kept asking them for more drugs! Guess I was enjoying it, I was a bit out of it at the time. (=

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A detailed and at times, humorous story :D .

I'm getting my Thyroid checked!! Woo hoo! (I could live at the hospital!)

I know -- I feel the same way sometimes -- I've had the scope, sonogram, urine, stool, bone density, and nearly ten bloodtests.......it's crazy! :D.....I'm not sure if I have had my thyroid checked -- my new doc. is going to want it checked if I haven't done so already, but my old GI has to send the info. over to him....that might be why I'm not gaining a lot of weight. My mom has a slow thyroid (hypothyroidism?).......yet another reason to think she has celiac disease (bloating after lots of bread, hypothyroid thing, unexplained stomach pains as a youngster....hmm).

Thanks for filling us in--glad it went well :)

LOL.. after they were done with my endoscopy, I kept asking them for more drugs! Guess I was enjoying it, I was a bit out of it at the time. (=

:lol: lol...

-celiac3270

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Guest ~wAvE WeT sAnD~

Thanks again, everyone!!!

I don't know if it was Vicodin or not (the "V" drug.) Everyone just said, "sedative." celiac3270, hypothyroidism is the correct term. :) The opposite is hyperthyroidism. ;)

Hahaha :lol: I was too dazed to ask for more drugs. I wanted FOOD!!! I was hungry before the procedure, and starving afterward. I'm sure at that point, sawdust would have tasted like gourmet cuisine.

My GI is the best doctor I've seen. Granted, he is a specialist, so he doesn't remember my previous visit (for bloodwork), or that my father is also a patient of his. He calls all men "buddy" and me "the young lady", but he knows what he's dong and is extremely knowledgable about, in my opinion, one of the world's hardest diseases to diagnose. :ph34r: <--*Dr. Smith in his surgery mask* Speaking of which, I heard him tell one of the nurses how many cc's to give me of the drug ("Let's give this young lady 250."). He said it right before Yellow Shirt Nurse asked me if I was sleepy yet.

I'll post my biopsy results and keep everyone updated. I'll put my family members' results as well.

Thank you,

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I was too dazed to ask for more drugs.

LOL, I was really really dazed too. I barely remember asking for more drugs, but was told later I kept asking and asking, when they had finished.

Before my procedure when I was talking to the nurses, I saw the TV screen that would show my insides, and I was like, "Oh, I get to watch!" And a nurse replied, "Yeah, but you won't remember." And she was basically right. I do fately remember watching, but way too much of a blur, lol.

The last thing I clearly remember, was them telling me to open my mouth and bite down on that thingy.

Hopefully your biopsies shows you are messed up and have celiac disease! Normally a mean thing to hope, but a good thing for someone with celiac disease. =)

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Hahaha  I was too dazed to ask for more drugs. I wanted FOOD!!! I was hungry before the procedure, and starving afterward. I'm sure at that point, sawdust would have tasted like gourmet cuisine.

I didn't ask for drugs, either, but was really hungry after.....then again, breakfast is my largest meal by far and I had to skip breakfast, and it was already lunch time when they were done. :)

  :ph34r: <--*Dr. Smith in his surgery mask*

LOL.... :lol: this is one of those rare occasions when you can use that "smiley"

Hopefully your biopsies shows you are messed up and have celiac disease! Normally a mean thing to hope, but a good thing for someone with celiac disease. =)

Indeed.......

Once again, glad all went well. Please share the results with us :D

-celiac3270

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teehee, after my 4th biopsy 12 years after the diagnosis, my throat hurt a lot, (not nearly as much as it did after i got my tonsils out, then i kept asking for more drugs :)) but they wouldn't give me anymore. I was already checked into the hospital because I was haveing way thyroid problems, so I woke up and they wheeled me right to my room.

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Guest ~wAvE WeT sAnD~

Hey, hey, what can I say? I LOVE MY GLUTEN FREE FRIENDS!!!!

I actually thought my "Dr. Smith" mask was a ninja. I figured I'd be creative with that one. I'm sure my passion for writing came alive to readers when I posted my endoscopy experience. :)

I hope my intestines are more screwed up than they look...hahahaa...they're pink, and Dr. Smith says that's a good sign. Oh well.

If I had to guess, I'd say the family member who's the biggest candidate for celiac disease is my older brother. He has constant diarrhea, and is WAY more fatigued that I am now. What bothered me was that he said he wouldn't follow the diet if he was diagnosed. That was before Dr. Smith told the rest of my family to get bloodwork done, and now my brother is scared.

My parents are asymptomatic if they have celiac disease--they are disgustingly healthy ;) (that is, of course, in comparison to me).

Family updates will follow.

Thank you all for your kindness,

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my throat hurt a lot, (not nearly as much as it did after i got my tonsils out, then i kept asking for more drugs ) but they wouldn't give me anymore.

Ouch Molly! Though my throat felt fine. I just wanted more drugs! LOL

Wow, so your family is getting tested Jill? Mentioned to mine it'd be good if they got tested, but no one else has any symptons.. and knowing what the diet involves, they'd rather not know if they should get tested, lol.. oh well. Least if they start to develop symptons, it won't take them 10 years to figure out what's causing them.

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