• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Coffee?
0

19 posts in this topic

Anyone ever have a problem after drinking the occasional cup of maxwell house coffee? I know that coffee is gluten-free, but it still pisses off my DH. And yes , it's plain old coffee with 2% milk and 100% organic sugar. And no, I am not lactose intollerent , dairy, or caissein (sp?) intollerent

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Anyone ever have a problem after drinking the occasional cup of maxwell house coffee? I know that coffee is gluten-free, but it still pisses off my DH. And yes , it's plain old coffee with 2% milk and 100% organic sugar. And no, I am not lactose intollerent , dairy, or caissein (sp?) intollerent

You may be intolerant to coffee, I am.

0

Share this post


Link to post
Share on other sites

I've never noticed that coffee bothered my skin, but it sure does a number on my stomach. I haven't been able to drink it in years.

0

Share this post


Link to post
Share on other sites

I drink Maxwell House with no trouble. I don't have DH tho.

Hmm, is your coffee maker contaminated? :huh:

0

Share this post


Link to post
Share on other sites
Ads by Google:


Coffee makes me reeeeeally sick

0

Share this post


Link to post
Share on other sites

Oh gawd....

I was on vacation in Florida...at my aunts. I had some Dunkin Donuts...coffee.....

I was in the loo for over 2 hrs on and off...stomach cramps....etc etc.

Yesterday when I went to my big GI appt she said until your intestines have healed....coffee can do a number on celiacs...only because its so rough on your system....and just goes right through.

So....as much as I would looooooove to drink it....I just can't anymore....so I stick with tea with milk...liek Chai.....or green....or Jasmine....

0

Share this post


Link to post
Share on other sites

what about that new folgers smooth stomach stuff??? would it be better??

0

Share this post


Link to post
Share on other sites

Most coffees don't bother me (drink it black), but everytime I've tried those Folger's flavored coffee grounds in the plastic tub I have something that seems like a mild gluten reaction within a couple of days. Since I'm new at gluten free, I'm not absolutely certain it is the folgers, but it's seemed like it enough I gave my folger's chocolate and French vanilla tubs to someone at work...now I just sit and inhale how good it smells when they are brewing it, and stick with my plain old Maxwellhouse, which never seems to bother me.

Maybe one day in the future I'll try a little of those folgers again. I wonder sometimes what-all is in ground coffee...it might be better to just grind your own beans. But it's true what the others have said: I know lots of people (celiac or not) who just cannnot drink coffee without it tearing up their stomachs.

0

Share this post


Link to post
Share on other sites

I've never been able to drink coffee. It smells so good, though :(

0

Share this post


Link to post
Share on other sites

I've switched to organic coffees, but used to have trouble with certain brands of coffee... some companies actually dust their lines with flour to keep the beans moving along... (was told this after calling one company after being in the bathroom for two days straight after trying their coffee)

0

Share this post


Link to post
Share on other sites

Wonder if it would be a good idea to just buy coffee beans, rinse them off and grind them as necessary????

Maybe I sound really paranoid...maybe I just AM, but the longer I go at this, the better I feel, and I'm not into tempting fate with any possible down days...I like feeling GOOD.

0

Share this post


Link to post
Share on other sites
Maybe one day in the future I'll try a little of those folgers again. I wonder sometimes what-all is in ground coffee...it might be better to just grind your own beans. But it's true what the others have said: I know lots of people (celiac or not) who just cannnot drink coffee without it tearing up their stomachs.

Coffee can just be hard on your system...it's quite acidic. It's one of the items doctors recommend cutting out of the diet when someone experiences stomach/GI or bladder ailments.

You could try a milder roast to see if it is any better.

Michelle :)

I've switched to organic coffees, but used to have trouble with certain brands of coffee... some companies actually dust their lines with flour to keep the beans moving along... (was told this after calling one company after being in the bathroom for two days straight after trying their coffee)

If a company dusted with flour, wouldn't it need to be on the ingredients list? I doubt many coffee companies do that anyway...coffee beans don't have a tendency to clump together anyway, and flour would negatively affect the end product.

Michelle

0

Share this post


Link to post
Share on other sites

Yes, I too tend to stick with one cup of hot tea in the morning. Even people without a gluten problem have coffee issues...if you start to ask around others who can tolerate gluten, you will see that a majority of them cannot handle coffee very well. If my father-in-law (who pretty much has an iron stomach) even smells coffee brewing it send him off to the bathroom...but he drinks it every morning. My friend has to go every morning as soon as she takes her first sip of coffee. My mother always told me that coffee is what keeps her regular evryday, because that's when she uses the bathroom. Coffee is definitely a natural form of a kind of "laxative" if you ask me!

0

Share this post


Link to post
Share on other sites

brizzo, since you're having issues with your skin, have you done any allergy testing to see if there are other allergy triggers? What about patch testing for chemical sensitivities/allergies?

One of my major symptoms is skin itchiness & sensitivity...I get hives, eczema and what the dermatologist thinks may be psoriasis (have to go back during a flare up to confirm). I know I'm allergic to a number of things and just confirmed with patch testing that I'm allergic to nickel, chromium and cobalt. Those things are in all sorts of products we use daily, including vitamin supplements and foods. For the nickel allergy I was given info about which foods I need to eliminate if my skin isn't improving from avoiding obvious nickel products...that includes foods stored in metal cans, jars, etc (coffee is on the safe list in terms of natural nickel content, but pre-ground coffee is often stored in metal cans.)

Michelle

0

Share this post


Link to post
Share on other sites

Yea, I've done the whole skin allergy test for contact allergy.....Believe it or not, I had no allergies at all. My coffee reaction isn't GI, it's DH. I will try organic coffee and filters, seems like the next best approach..

0

Share this post


Link to post
Share on other sites
Wonder if it would be a good idea to just buy coffee beans, rinse them off and grind them as necessary????

Actually, it's a great idea to buy a coffee roaster and roast your own. You'll save tons of money doing it, and it will be the best coffee you ever had. I have no idea about gluten that might be in coffee, though. I had to give it up, but my roaster was about ready to be replaced anyway.

Sweet Maria's

0

Share this post


Link to post
Share on other sites

hi. i just wanted to let you know that i also had an allergic reaction to maxwellhouse master blend coffee. i have been a cofee drinker for many years often drinking eight to ten cups a day, although i have never really drank that much maxwellhouse. I recently bought some because it was on sale and we loved the taste of it, so i continued to buy it for the next two weeks. my hands were swelling and turning bright red, itching horribly. i thought i had a blood sugar problem until it occurred to me that the syptoms coincided with the coffee brand switch. i changed back and no more syptoms. i wonder what is in that brand because i have no other known allergies other than mild seasonal and to natural hair lightener products, however i should mention that my 17 month old son is allergic to everything but air.

0

Share this post


Link to post
Share on other sites

With all my intolerance's, coffee has never been a problem and I am so thankful for that. It and my peanut butter, they are like the 2 comfort foods that have not been taken away. Maxwell House though, I must say, is the least favorite of all, I just found that out. It was on sale a few weeks ago and I bought it just for that reason. I have been drinking Folgers and I like the Folgers so much better. I love 7/11 coffee and do stop for Dunkin Donuts (coffee) sometimes and never have problems. Flavored coffee's can be a problem, they sometimes do contain gluten, just as flavored teas do. I was glutened by hazelnut coffee at a Hess station about 5 yrs ago and I will never try a flavored coffee again, I don't like flavored coffee anyways, the hazelnut I got was made in the wrong pot and I got it by accident. Within 20 minutes of drinking it, I had terrible cramps.

I love my coffee!!! :D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,421
    • Total Posts
      930,467
  • Member Statistics

    • Total Members
      63,848
    • Most Online
      3,093

    Newest Member
    glutenfreekiddo
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi! I've just been recently diagnosed as Celiac through the whole biopsy-shebang, and I have a little bit of insight on the whole diagnosis thing and how I was eventually diagnosed, and my advice for you. Brace yourself, this might be a bit long, but it might be worth the read and I promise I will eventually get to the point. If you don't want the huge story, skip to the long line of capital As: I first saw my doctor when I had a few problems swallowing. I've compared it to when you're nervous and you feel like you have a lump in your throat - but after I eat and (sometimes) drink. I just mentioned briefly it to my family doctor when I was addressing another issue, but right away he referred me to a gastroenterologist and ordered a barium swallow x-ray test. The x-ray came back completely normal, and so the g.e. then suspected GERD, put me on acid blockers to see if they would work, no harm done sort of thing. The only thing I got out of the acid blockers were the side effects, so it was back to square 1. The g.e. said that the next test he could do was an upper endoscopy with biopsies. (hint: the celiac test!) Wanting to find a solution to my problems, the endoscopy was scheduled. Pretty painless, I was in and out in a day, but the results took much much longer. Biopsies, or the little pieces of my esophagus, stomach, and small intestine, were sent to the lab, and they came back clean. I didn't really go back to the g.e. for a whole year after that because life became busy, I wasn't prompted to follow up, and I just dismissed the swallowing problems the best I could and went on my way. Now, I've never been huge on the gluten, big bread-y sandwiches or croissants or pies were never foods that I super "enjoyed". I wouldn't feel bad after eating them, I just didn't like the taste of bread so much, but I loved cookies, cake and a lot of other things that do have gluten in them. I lead a lowish gluten life but I wasn't really monitoring it that way. Everything changed when I got really nasty (systemic) poison ivy. My eyes were swollen shut, and the rash was everywhere. I almost went to the hospital, but cooped out at the family doctor's place and got a script for prednisone (a steroid). But, I found that after I had tapered off the steroids, I had magically become lactose intolerant. So back to the family doctor again probably because I broke my toe or something, but we also got to talk about this magical lactose intolerance business (because I love anything dairy and it was indeed devastating). He was surprised as there is literally no correlation between steroids and becoming lactose intolerant. He asked me if I still had the swallowing problems, which I did, and so it was back to the g.e. for round 3. because my family doctor "does not believe in coincidences". Meeting with the G.E., he mainly addressed the swallowing problems telling me that he had done what he could to diagnose with the technology that we had at the highly specialized hospital that we were at, and I would have to travel about 3 hours away to see a different doctor who would do some tests involving the muscles in the esophagus. But right before I was about to leave, we started talking about lactose intolerance. He brought up other foods that I was avoiding (if any), and then the conversation went to gluten. I mentioned that I had an aunt that was gluten-sensitive. He advised that I do the blood test that can show an indication of celiac whenever in the future. I decided to do it that day. At this point in time, I was not eating much gluten because of the fact that it was personal preference. The normal range for values in this test is from 0 to 20. A few weeks later, I learned that I scored a 35. A second upper endoscopy with biopsies was scheduled, but this time I was told to eat a moderate amount of gluten everyday before the procedure. I ate about two slices of bread per day, which is more than I normally would. I was normal for the first two-three weeks of the gluten plus diet, but then I became really sick. I started getting the normal celiac symptoms, like diarrhea and extreme tiredness. Near the end, I had debilitating stomach pain and I was 2 times more asleep than awake each day. I couldn't do the 2 pieces of bread a day some days, but the pain was still there. I knew that I wouldn't ever have to force myself to eat bread for a test ever again. I was called a few days before my endoscopy telling me that a kid in a worse state than me had to take the OR during my time. I forced myself to eat more bread for another month and a half. The day finally came. I was diagnosed celiac, which I have concluded to be initiated by (1) the steroids/poison ivy and (2) the gluten binge fest.  AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA Celiac Disease isn't completely understood yet. Most of the time if you weren't showing symptoms when you were a baby (so your case) it means that celiac was/could be triggered by an event in your life that causes stress on the body (like stress, physical injury, etc.).  The positive result that you got from the blood test doesn't automatically mean celiac, but it could. Here's some options: Talk to your doctor (or a different doctor) or even a specialist gastroenterologist (you can get a referral from a family doctor (general physician)) and see if you can do the blood test again, you have to have some kind of gluten for this to work in advance, so if you don't want to break your gluten-free streak, than don't really invest in this option. If you feel comfortable, you could even ask to do this test under a few scenarios (no gluten (now) and after a gluten binge, compare results). If you do this test and your indication is low off gluten and then high after gluten, I'd probably skip the biopsy. That's a strong enough sign that you don't need to put yourself through the painful-gluten binge. Maybe this is what that first doctor just assumed. But having that test when you haven't had any gluten could make the difference - it acts as a control. Go straight to the biopsy. You could do this, but I'd probably do the blood test first. I went through a lot of stress with the gluten-binge that you have to do to get an accurate result, you would also be breaking your gluten-free diet that may/may not be helping you right now. Do nothing, stay on your gluten free diet hoping that it is helping you. But if you are not celiac or gluten-sensitive (celiac before it starts to wreck your small intestine), going gluten free isn't healthy - you can do some research on this if it interests you. If you feel bad/unhealthy after going gluten free it's probably a sign. Good luck, also know that you might come to a point of stress in your life that can start celiac's destructive path. Ultimately, it is your body, and you should not feel forced or hesitate to act on health issues that impact you.
    • I'm sorry that life is so hard right now. Really.  I can't imagine working 3 jobs and trying to manage this terrible illness.  I think about American society and their obsession with food often.  Whenever you look at the internet, there are all these fabulous gluten-free recipes, but when you don't have time or money to cook these things, a simple gluten-free lifestyle is just that - simple. There isn't a lot of variety, so it's kind of boring. But, I guess I have gotten used to being boring. I just eat corn chex and fruit or yogurt for breakfast. I eat a lot of eggs, beans, rice, corn tortillas, nuts, chicken, fruit and veggies.  A loaf of gluten-free bread will last me 4-6 months in the freezer.  I buy a bag of dried beans for $1.29, I soak them overnight, and put them in the crockpot the next day. I add different spices, sometimes chicken and Voila! - dinner is ready when I get home from a long day. Family gatherings are miserable and I haven't quite figured out the best way to deal yet. If my grandmother were still alive, I imagine she would be a lot like yours - well-meaning but not really able to understand the nitty-gritty.   I just reassure my family that I am fine and that they really shouldn't do anything special for me. I bring a bag of Hershey's kisses or other gluten-free candy I can nibble on along with my meal and then I try to treat myself to a nicer home cooked meal later in the week when I have time to cook - because who has time to cook during Christmas???? And, I agree with knitty knitty. If someone else in your family/friends were gluten-free for medical reasons, it would make socializing a bit easier. One of my husband's good friends is NCGS. When we get together as a group, we can make each other special dishes and it helps to feel less isolated.  Good luck!  
    • Hi!  Um, please forgive my quirky sense of humor..... Celiac Disease is genetic... All first degree relatives of people diagnosed with Celiac Disease should be tested for the disease, too.  Gall bladder problems are often associated with Celiac Disease.  Your diagnosis might save your whole family from further medical problems as they age and the disease progresses... You need to set a good example if relatives are similarly diagnosed.... and then everybody will have to eat gluten free at family gatherings....  
    • That's what I thought!  My father has gluten sensitivity and I almost regret telling the doctor that because I feel that made her jump to conclusions because of that.  He never had the biopsy either.  I feel like doctors think it's just easier to say it's celiac when they show a gluten sensitivity to avoid additional testing, even if that diagnosis doesn't make any sense at all.  My doctor didn't even offer the biopsy, and said the blood work was enough.  Should I seek a third opinion?  I mean, I've been gluten free for 9 months...
    • It will prolong your life....celiac is a autoimmune disease that  causes your own immune system to attack you. The longer your eating gluten the worse it gets, I mean all kinds of other autoimmune disease, food allergies, food intolances. One day you could lose the ablity to eat carbs, or sugars, or become randomly allergic to tomatoes or corn all cause you decided not to be on road to healing I am not kidding here. I am allergic to corn, can not process meats, have another autoimmune disease that makes it so I can not eat dairy or CARBS/SUGARS.   I wish I could go back in time and go on a gluten-free diet a decade ago. Worse that could happen you could develop cancer or other complications and yes we have had this happen to a member before on our forums. Think of it like this your just changing brand here I will give you some links to some gluten-free foods, and how to order them, You can even order alot of them online this should help simplify it for you. I suggest thrive, amazon, or one of hte other links from there, Many you can order from the manufacture. https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/  
  • Upcoming Events