• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

"gluten Challenge"
0

12 posts in this topic

Has anyone heard of a "gluten challenge"? Where you have to be eating gluten for a certain amout of time before the biopsy for the biopsy to be correct. I had a blood test about 6 years ago and one of the antibodies was positive so I went on a gluten free diet and I also had a biopsy done 4 years ago and it came back inconclusive, but now I'm finding out that you have to have the gluten in your sytem to determine if you're really celiac or not. Is this correct?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


To have any chance at an accurate test you have to eat gluten every day for up to three months. Why are you considering this? Do you doubt that you have celiac?

richard

0

Share this post


Link to post
Share on other sites

I'm considering getting another endoscopy b/c it's not 100% sure that I have celiac. 6 years ago I went to an allergist and found out that I'm allergic to wheat, then I got a blood test and one of the antibodies was positive, but they said that only way to be 100% sure is to get an endoscopy. I didn't want to do that at the time, so I went on the gluten free diet and then I wound up getting the endoscopy 2 years later and the results came back inconclusive, and I'm wondering if that's b/c I wasn't eating gluten before the test (well, I may have been eating trace amounts in modified food starch, etc) So, I guess I would just like some concrete answers as to if I have celiac disease or not. I just made an appt. w/ a GI, but the earliest appt. isn't until Oct. 4th, so I'm not sure if I should try to get gluten in my system before the dr. appt. or just wait to see what he has to say.

0

Share this post


Link to post
Share on other sites

Did you have some sort of health problems that went away after you went gluten-free? If so, in some circles your postive blood test plus improvement on the diet would be considered proof.

Anyway, eating gluten from now until Oct. 4 might or might not be long enough. Everybody is different, but I think the top experts say you need to eat it for three months.

richard

0

Share this post


Link to post
Share on other sites

If you feel better on the gluten-free diet then you don't need to have the biopsy but if you have had no imporovement then you may want to have the biopsy to make sure this is actually what you have.

0

Share this post


Link to post
Share on other sites
Ads by Google:


What does anyone else know about how long you have to be eating gluten before a correct biopsy can be done?

Thanks

0

Share this post


Link to post
Share on other sites

Most experts seem to agree you need to eat gluten for at least two months, preferably three. And even then damage depends on the individual.

richard

0

Share this post


Link to post
Share on other sites

I just got the results from my bloodwork that was taken in 1998 while I was still eating gluten and the IGG antibody was 17.1 and the normal range was <7

I sent this to my dr. to see what he has to say. I'm hoping that I might not have to have another endoscopy done.

0

Share this post


Link to post
Share on other sites

Just my two cents: If you've got the antibodies for sure, skip the endoscopy. Let that be proof-I don't believe anyone should suffer the "Gluten Challenge"--that just prolongs your symptoms.

Thanks for listening,

0

Share this post


Link to post
Share on other sites

After 6 years of being 100% gluten free (or as close to it as possible!) it might take longer than 3 months back on gluten to cause enough damage to be seen with the endoscopy. Chances of your biopsy showing positive damage by October are pretty slim.

I did a gluten challenge this last winter and was back on gluten for two months. (I had only been gluten free off and on for a total of about two months over a two year period) My biopsy still came back negative, since most doctor will only look for complete damage. I am considering having my biopsy slides reevaluated for signs of early stages of damage, but not sure I can afford the expense.

You could try a few days back on gluten and see if it makes you feel sick. I personally wouldn't risk it, but I can understand your need for a concrete answer. That is why I had the Enterolab tests done, since the conventional tests kept coming back inconclusive and I could not commit myself to a lifelong diet if I didn't really have a problem with gluten. Well, I got so sick during that two month gluten challenge that I would never purposefully go back on gluten EVER!

Let us know what you decide to do. We'll all be here to support you no matter what you decide! :)

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Another thing on top of the fact that I was positive for the IGg antibodies back in 1998, I also went to an allergist then and they told me that I'm allergic to wheat. I'm just confused as what I should do.

0

Share this post


Link to post
Share on other sites

Well, this past weekend I did my own "gluten challenge", I ate some stuff like pizza and wheat bread and I got my answer b/c both Sat. and Sunday I had gas and integestion/acid reflux, basically I felt the way I did before I went on the gluten free diet. So my husband and I just decided that I'll stay on the gluten free diet and forget about doing the endoscopy again. If I felt this bad eating gluten for 2 days I don't want to have to eat it for 3 months before the endoscopy!

So...on with the gluten-free diet!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,463
    • Total Posts
      930,698
  • Member Statistics

    • Total Members
      63,887
    • Most Online
      3,093

    Newest Member
    GenieBelle
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi Rachel and welcome I think you've found the single best site on the web for help and advice. Hope it's of use to you. I tested negative for celiac so no referral. My experience with NHS however suggests it could be worth phoning your Gastro's office and asking the admin staff there to check on this. Things get overlooked... I would avoid anything with those warnings on. It's a pain in the arse because, for example, it recently appeared on a brand of nuts I like. However having some experience of production and marketing environments that warning will only be going on the pack if someone in the company thinks there's a chance of contamination. There's always other products to choose from so I don't take the chance.  Walkers crisps have given me a reaction, yes even the sodding ready salted ones  It's something to do with their production processes. I think Gary Lineker may dance through the factory each week spreading handfuls of flour for good luck. Whatever, I now avoid them.  My energy levels improved over a few months after the diet. It took longer the second time after my challenge. I was still noticing improvements / weird resolutions of odd symptoms up to 9 months to a year later... Lots of good advice here: All the best! Matt  
    • Ah.... Settles back, dons funny hat, smokes pipe, plays violin, injects heroin etc... I think you need to treat yourself as your own science experiment. If you're ok at home with all of the drinks then you can almost certainly rule out alcohol intolerance and thank your bodies burgeoning super coeliac powers of gluten detection for the reaction. Clearly your powers have grown in the past five years young jedi... In which case maybe there's a drink you can order which would reduce this risk, maybe asking for the bottle and a clean glass, forgoing ice, straws etc, anything to simplify matters and reduce the number of contaminant variables.  One thing I'd avoid would be 'mixers' from the shared line. Not because there's gluten filled drinks going through them, typically its just coke, lemonade and soda water, but because the nozzle sometimes dips into the drink that's being filled. Paranoid? Maybe, but I avoid them now and pay the extra for a bottle.  A word on glasses. Most bars have a dedicated glass washer and they're good, to a point. I've worked behind a bar in the past and the washers are only on for a very short time, they can run up to 35 times an hour... I've seen lipstick on glasses from them and whilst the chances of contamination are probably slight... Now if you're out for a night at different places, it will be very hard to work out where its happening. So my suggestion is to go out to one bar only and pick a decent one. Speak to a bartender or manager, explain to them just what a special snowflake you are   and get one definitely clean glass at the outset then keep it for the evening and just get it refilled. Pick one drink only and stick to it. I'd suggest wine as maybe its easier on the stomach than the bubbly prosecco and you can get the little bottles without any chance of contamination but that may be nonsense See what happens... If you're ok, then you have an answer. You've become more sensitive and your reacting to trace gluten. *removes funny hat, discards pipe, hides syringe...      
    • This seems odd.  No SIGNIFICANT villous blunting.  Was there mild villous blunting?  Increased intraepithelial lymphocytes?
    • Ugg, tell me about I thought I had bad gut bacteria for years. Carbs would just make be bloat and distend, sugars, rice, any kind of grain. Figured out in Feb, it was UC and that the sugars in carbs caused flare ups....I realize I am blessed I can nuts, I eat nut based breads, muffins, cakes etc, using stevia, monk fruit, and xylitol for sweeteners since they do not trigger the flare ups. >.> I am also addicted eating sugar free jams made with extracts, and a universal pectin that reacts with calcium water instead of sugar so I can use monk fruit to sweeten. (Cheaper to make this for my fruit cravings to buying sugar free jams)    I also found a noodle by miracle noodles that is carb free they also make a rice sub...I use them in recreating dishes I used to eat all the time. NOTE the fiber in them is not tolerable to some people. But might look into it as a alternative. I think I did a post not to long ago about different forms of noodles and how to make them or get them for those with similar issues one of hte more intiruging ones is using eggs or egg whites mixed up and cooked on low eat in a pan into a thin sheet then cutting into noodles or using nordic wear microwave plates to make them. .....I recently found you can mix konjac flour, eggwhites, and hemp protein, up pour into one of those plates and cook into a tortilla. check my profile for my food issues lol list is huge, at least you can eat meats?
    • Hi guys,

      I am newly diagnosed celiac. I found out about a week and a half ago, and have been gluten free for 5 weeks (I stopped after the biopsy was taken). I never really suspected celiac, so it was quite a surprise, but when I started reading about it it made a lot of sense in terms of symptoms etc. 

      I am 34 yr old female, my main symptom was lack of energy for as long as I can remember, blood tests only ever showed low iron (not quite anaemic) but supplements never made a difference (now I know why!). For the last 5 years I have also had constipation, bloating and gas, but I put it down to stress or bad diet and if I am honest because it was a bit of an embarrassing issue to talk about I became complacent. 

      As this is all very new to me, I feel like I have so many questions so thought I would put some here and if anyone has any input or advice from their experience that would be great! I will probably also post more in depth questions in the relevant sub-forums - For those in the UK, how long did it take you to speak with a dietician. The letter with my diagnosis was sent on 12 April and said I had been referred but I haven't heard anything - I am interested to know whether other celiacs/strict GFers ever eat foods which say "may contain traces of..." or "made in a factory which processes...." etc. So far I have avoided anything which says "may contain" or "not suitable for celiacs due to..." but I did eat something which said "made in a factory" (Walkers crisps) as they were the only option but then I felt guilty after! -  What procedures do you take when eating out, i.e. do you only go to places which are certified by Coeliac UK  (if you're in the UK), do you find speaking with the waiter etc actually helps? I have eaten out a few times since being gluten-free and feel like I am being a bit difficult when I bring it up and that they don't really understand. I am lucky to be in London so there are lots of certified restaurants, but even in Pizza Express I didn't think that the waiter really understood. 

      - For those who had energy/tiredness problems before, how long did it take you to notice a difference? The only difference I have so far noticed is I am now more regular toilet wise and have had very little bloating/gas.

      - I have always had low iron which is most likely due to celiac but also as I don't eat meat (I do eat fish), I am hoping now that iron supplements will help now so have been taking the gluten-free Floradix for the last week. Anyone noticed a difference in this after stopping gluten?

      Thanks anyone for taking the time to read, and feel free to put any general advice you have

      Rachel 
       
  • Upcoming Events