• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Disease And Ulcerative Colitis
0

8 posts in this topic

I was diagnosed with UC 13 yrs ago. Since then I have been hospitalized more times then I can count, often for conditions not directly related to UC.

I started reading up about celiac disease recently and decided to try a gluten free diet. Many of my worst symptoms have subsided drastically.

Anybody else see a drastic improvement in their UC on a gluten free diet? Makes me wonder why in all these years I was NEVER tested for celiac disease.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I was diagnosed with UC 13 yrs ago. Since then I have been hospitalized more times then I can count, often for conditions not directly related to UC.

I started reading up about celiac disease recently and decided to try a gluten free diet. Many of my worst symptoms have subsided drastically.

Anybody else see a drastic improvement in their UC on a gluten free diet? Makes me wonder why in all these years I was NEVER tested for celiac disease.

Hi Bumblebby - I don't know if what I will have to say will help you but you sure have me questioning a link between celiac and UC as well. When my son was born in 1993 he cried constantly and his doctor said it was colic. As time went by (weeks) he continued to cry nonstop and could not keep his formula down. A few tests were done but did not get a diagnosis soon enough to avoid the tragedy soon to come. My husband (at the time) shook my son and damaged his brain very badly. He was left severely brain damaged, blind, cerebral palsy, seizures.... After this his crying and inability to keep food down was thought to be related to his brain damage. He had surgery so his food would go directly to his stomach and a fundo. to keep the food down. A few years after that he was diagnosed with UC and based on the symptoms I believe it was diagnosed correctly. He got a colostomy bag and had constant D which I thought was because of the shortening of the length of intestine he had. My Jordie passed away last year due to RSV and pneumonia.

A few months ago I saw an episode of "House" with the outcome being the mother had celiac and her baby also had it. I now question whether or not my Jordie had celiac and that was the start of our"new lives". My friends say not to think about it as it doesn't change anything but I wonder if that was the problem.

So yes, if I was told there was a link between celiac disease and UC I would believe it.

0

Share this post


Link to post
Share on other sites

Sorry to hear about your son. That is just horrible.

It would be interesting to see if there are more people who have had experiences that they believe relate UC and celiac disease.

0

Share this post


Link to post
Share on other sites

i have a feeling it might be related too b/c i ended up with uc and celiacs as well. I know UC is a very common misdiagnoses of celiacs. i'm planning on doing more research on it online.

0

Share this post


Link to post
Share on other sites

I am so sorry Noel for the hardship that you and your son had to go through. I am sending you many Hugs.

I was diagnosed about 40 years ago with UC. Over the next couple of years it went away. Before it disappeared, I was in the ER several times and put on so many drugs to control the pain. Which leads me to believe that it was not UC but probably my undiagnosed Celiac Disease.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I am so sorry Noel for the hardship that you and your son had to go through. I am sending you many Hugs.

I was diagnosed about 40 years ago with UC. Over the next couple of years it went away. Before it disappeared, I was in the ER several times and put on so many drugs to control the pain. Which leads me to believe that it was not UC but probably my undiagnosed Celiac Disease.

Thanks for the hugs mouse.....unfortunately I am still needing them. So based on the responses so far it does look like there could be a connection. It just angers me so much if celiac disease was what my son had to start and the doctors missed it and the death of my son and the pain for all of us could have been avoided! Sorry for ranting just so much pain

0

Share this post


Link to post
Share on other sites

Noel, please accapt a hug from me, too. I don't know much about UC, but it does seem like there could be a link. I know that a lot of UC patients do better on a gluten-free diet.

I'm so sorry about what happened to your Jordie. Your story made me so sad. I also don't blame you for still trying to get answers for him. Not being able to change what happened is no reason to tell you to move on and not think about it. It's quite possible that the poor little thing had Celiac--of course you'll never know for sure but it's clear that there was something else going on with him.

Take care :)

0

Share this post


Link to post
Share on other sites




I'm sorry for your pain, Noel. Doctors seem to be of no help in these things and much suffering comes because of their inadequacy, many times.

I've read of a curious link between nicotine and ulcerative colitis. Some people with ulcerative colitis get sick of the awful, often ineffective drugs, and use either a nicotine patch, or real tobacco in the equivalent of around 4 cigarettes' worth per day to control uc symptoms.

I've run across another study that says celiac disease doesn't happen as much in smokers as in nonsmokers, same as uc. Sometimes when people stop smoking they get smacked with sudden onset of celiac or uc.

I've read another study that says canker sores are a common complaint in people who stop smoking...canker sores can sometimes be a symptom of celiac disease.

I think if doctors had as much brain power as they want us to believe, research would be ongoing to find a safe way to deliver nicotine to people who could benefit from it medicinally, not to mention just learn to accurately diagnose people so that they can fight a disease before it destroys life and health.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,393
    • Total Posts
      935,840
  • Member Statistics

    • Total Members
      65,077
    • Most Online
      3,093

    Newest Member
    MayonnaisePlease
    Joined
  • Popular Now

  • Topics

  • Posts

    • I bought Spicely Organics Chili powder from Whole Foods in Bellevue, WA.  I got very sick after eating it, so I tested it with three separate gluten tests.  They all came up positive for >10ppm, which is what their "certification" says they test below.   I just wanted to warn everyone away from them.  They clearly have quality control problems and are not safe for celiacs.
    • It's no secret that nearly all traditionally brewed beers contain barley. The flavor and body barley imparts on traditional beers is partly responsible for their rich, full taste. Finding alternatives to barley that are suitable for brewing gluten-free beer has been a challenge. One solution has been to brew beers with traditional barley ingredients, and then use a combination of enzyme action and filtration to render a final product that test below 20ppm gluten required for gluten-free products. View the full article
    • First have you been tested for celiac disease? Any doctor can do the blood test but you have to be eating gluten on a daily basis for the test to work, nut much just a half slice of bread a day. You should get this tested, the high constipation, coughing stuff up was very common for me before diagnosis. The coughing stuff up for me was from a allergy that developed I did not know of, the mucus was draining down my throat and choking me at times, and was constantly running a fever and night sweats. I was constipated for 4-10 days average back then and drinking plenty of liquids did not help in the least. Your gut rumbling could be many things, celiac is one, SIBO is another especially with the bad breath. in your case it could be related to constipation causing rotting, fermenting, and bacterial overgrowth of the waste in your system. Now to deal with the immediate symptoms, your constipation is also a sign of magnesium deficiency, I imagine you might have noticed some other symptoms from these. Now normally I would suggest either the Natural Vitality Calm or Doctors Best which is easier on the stomach. In your case I straight up suggest the Natural Vitality Calm it is a Magnesium Citrate and works a bit like a laxative. Start with 1/4 tsp twice a day in a beverage, I like the orange or the cherry in a hot green tea or you can try it in a juice. Up the dose slowly over a periods of a week to the full dose or perhaps a little more til you get a bit looser stool.     You mentioned the mucus in the stool 2 things cause this normally. Undigested fats, and inflammation/irritation causing the body to produce the mucus to help defend itself and purge the irritants. A doctor can probably tell you more but I might suggest a digestive enzyme in the mean time. I like to use a super papaya enzyme before and after a meal, find them on amazon. Jarrow also makes full enzyme complex that can help. Other thoughts if your on dairy, stop, with the constipation, and other issues this is a equation for trouble and you can reintroduce it in a few months when you clear up and see if it bothers you then. The bad breath can be a sign of lactose intolerance/digestive issues with dairy also. If it comes you you have celiac then you would have your explanation here as the villi which produce the enzymes to break down lactose are damaged/destroyed first causing most to develop a temporary lactose intolerance which for some goes away after a few months of healing. B-vitamin folic acid, and niacin will be a huge help also with some things. but will we get into that a bit later feel free to look up Liquid Health Stress & Energy if you thing it might be relevant at this point it is what I use 3 times a day with another blend they have.
    • Some of your symptoms sound like my ulcers.  I take carafate before every meal now and they are much better.  I have 3 ulcers possibly caused by taking iron supplements.  They are worse when I eat spicy food and dairy. I might be wrong but for your sake I hope it's just ulcers.  They were found by endoscopy.
    • The yellow is probably fat you are not absorbing.  The pain could be from your intestines being inflamed.  Go see the gastroenterologist.  The ER did not help me with any of those symptoms.  Good thing it's clear so you know it's not your appendix or any other vital organ.  It takes time but probiotics, bone broth and  vitamin D and b 12 help. My pain was mainly my muscles giving out from the malabsorption.
  • Upcoming Events