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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Casein Intolerance Testing
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4 posts in this topic

I would like to get tested for casein intolerance. I know I can go through Enterolab and it's only $100 so I'd do that if I had to, but out of principle I think my health insurance should pay for this. I called them up and they will not pay for Enterolab. They said I need to go to an allergist or internist. The problem is that I can't find an alergist that will test for casein intolerance (probably because it's not an allergy!) I've explained this to my insurance and have called about five allergists in the area just to humor them. So the question is - are there any allergists that will test for this? Or do I need to call my insurance back and tell them they are incompetent? I'm in the Minneapolis area if that helps. Can they do a blood test for this or is it just the stool test?

I have been casein-free for a week now just to try it out and I'm still feeling yucky. I'm not sure that casein is the problem or if it's the only problem so I'd like the testing just to help me figure out faster what direction to take in trying to determine additional intolerances.

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I haven't seen a fully reputable mainstream place that will test for casein intolerance (not allergy) that insurance will cover. It's still not status quo, and I had to go with a dietary test. Eliminating dairy is only half of the test, however, after a while (of being totally casein free), you have to add it back in and see how you respond. That's the reason I did a hard core elimination diet (eat only like a dozen foods for a while, adding one in at a time) - to eliminate the other variables.

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That's kindof what I figured. Maybe I'll do enterlab on my own. The problem is that I've been casein-free for a week, but feeling worse than ever. It might be withdrawal, it might be other food issues. Because eliminating casein means that I'm eating slightly differently. Like I'm eating more meat because I need protein from somewhere. I know you read my other post about digesting meat and how I think that's making me sick so it's hard to know why I'm feeling so bad.

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the onlyy way i figured out mine was elimination then i felt sooo much better, but then i slowly added it in with a lactaid pill and i was fine so i just realized that i was lactose intolerant not casein, so elimination and then re-introducing is the best way to go.

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