• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
2 2
Willow5

Encopresis And Celiac

Rate this topic

Recommended Posts

My son has encopresis. He started out with the clay colored stools and then with a cycle of constipation for about 4 days followed by a large bm followed by a couple of days of diahrea. Up to a couple of times daily he soils his underwear. We have battled with this for a long time - he is now 10. He is being treated with miralax and scheduled sits on the toilet. My daughter who is 2 started up with the same symptoms - that is when I thought of celiac.

We got son tested and he came in low equivical results for Anti Gliadin AgG, I then got husband tested, he came in low equivical on Anti Gliadin AgA, then I got tested and came in about 3 times higher than normal on the Anti Gliadin AgG. Since then my mother came in positive with the Tissue Transglut Antibody.

So somehow there seems to be a leaning to possible Celiac. I am wondering if anyone else has kids with encopresis.

Nan

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


My son has struggled with it off an on... we just figured out that it is related to 2 things - lactose and consitipation. Our daughter just started going lactose free and as an experiment we had son go lactose free..he decided he didnt have to worry so he went back on regular milk etc. Lo and behold but his "wet toots" [as he calls them] returned withing 6 hours of lactose in his diet, after a few days of having no problem (when lactose free)

The cause varies but it seems to be -for our son - related to lactose (he is also celaic/diabetic).

Now I am wondering if the dairy is also behind the constipation too.......

  • Like 1

Share this post


Link to post
Share on other sites

thanks for the input, my son does drink dairy, have tried no dairy before but not combined with gluten free... always a new twist! thanks again, Nan

Share this post


Link to post
Share on other sites

I don't know if this relates but when I was about 8 I had encoperesis and constipation issues throughout all of childhood.

I was diagnosed by my doc with Celiac last year. (They wondered if all those years of constipation were really undiagnosed celiac)...

  • Like 1

Share this post


Link to post
Share on other sites
I don't know if this relates but when I was about 8 I had encoperesis and constipation issues throughout all of childhood.

I was diagnosed by my doc with Celiac last year. (They wondered if all those years of constipation were really undiagnosed celiac)...

How did you overcome encopresis? Do you remember soiling? Was it concious or an uncontroled situation? I often wonder if my son does it because he doesn't care, is too busy or truely can't control it! I notice with my 2 yr old daughter that her constipation clears up on gluten-free. My son age 10 eats too much Gluten too often to notice if there could be any improvement.

Share this post


Link to post
Share on other sites
Ads by Google:


My son had this until going gluten-free. He wasn't constipated, just couldn't control his bowels at all. After a month gluten-free he was completely potty trained, but still has accidents if he gets gluten unintentionally. We had a foster son who had MAJOR problems with this. It turned out that he had an impaction the size of a grapefruit. Once that was cleared out, the problem went away. He's no longer here, but with his ADHD issues I now wonder if gluten may be an issue for him.

Share this post


Link to post
Share on other sites
How did you overcome encopresis? Do you remember soiling? Was it concious or an uncontroled situation? I often wonder if my son does it because he doesn't care, is too busy or truely can't control it! I notice with my 2 yr old daughter that her constipation clears up on gluten-free. My son age 10 eats too much Gluten too often to notice if there could be any improvement.

I was so young I barely remember, except that I wouldn't go to the bathroom for days and days. Then the doc started having me do mineral oil and orange juice drinks and eventually it wasn't so bad...but I had some issues basically until I turned 30 which is when my GI did the bloodwork and found out I had celiac.

Share this post


Link to post
Share on other sites


Ads by Google:


Hi my son is 6 and always has had encopresis ( i thought he was always straining who new he was holding it in ) He has also always broke out into different rashes that have never been diagnosed clearly???? He's always sick with cold& cough?? I have to say his stools are not always hard he just tries to hold them in! He is going to get tested for Celiacs this week as our doctor seems to think its all connected in some way. I will post results.

Share this post


Link to post
Share on other sites

Hi my son is 6 and always has had encopresis ( i thought he was always straining who new he was holding it in ) He has also always broke out into different rashes that have never been diagnosed clearly???? He's always sick with cold& cough?? I have to say his stools are not always hard he just tries to hold them in! He is going to get tested for Celiacs this week as our doctor seems to think its all connected in some way. I will post results.

Just to let you know - this thread is 6 years old. Most or all of the posters are no longer active on the forum.

Share this post


Link to post
Share on other sites
On 22/10/2006 at 0:03 PM, Willow5 said:

My son has encopresis. He started out with the clay colored stools and then with a cycle of constipation for about 4 days followed by a large bm followed by a couple of days of diahrea. Up to a couple of times daily he soils his underwear. We have battled with this for a long time - he is now 10. He is being treated with miralax and scheduled sits on the toilet. My daughter who is 2 started up with the same symptoms - that is when I thought of celiac.

 

We got son tested and he came in low equivical results for Anti Gliadin AgG, I then got husband tested, he came in low equivical on Anti Gliadin AgA, then I got tested and came in about 3 times higher than normal on the Anti Gliadin AgG. Since then my mother came in positive with the Tissue Transglut Antibody.

 

So somehow there seems to be a leaning to possible Celiac. I am wondering if anyone else has kids with encopresis.

 

Nan

Hi, my 5 Year old daughter had just been diagnosed with both celiac disease and encopresis.  I'm trying to find out if they both go hand in hand, but I know celiac is an auto immune disease.  I'm still trying to learn all this and try and get my head around it. Her other siblings don't have it and she's had issues ever since she was born, only reason it took 5 years to get her diagnosed was by taking her to a different Dr, our old Dr kept turning us away and told told to use movicol 😡😡 I was so so so angry with that Dr 

Share this post


Link to post
Share on other sites


Ads by Google:


1 minute ago, Mumofzoey said:

Hi, my 5 Year old daughter had just been diagnosed with both celiac disease and encopresis.  I'm trying to find out if they both go hand in hand, but I know celiac is an auto immune disease.  I'm still trying to learn all this and try and get my head around it. Her other siblings don't have it and she's had issues ever since she was born, only reason it took 5 years to get her diagnosed was by taking her to a different Dr, our old Dr kept turning us away and told told to use movicol 😡😡 I was so so so angry with that Dr 

Maybe when zthe Celiac damage is healed , the other  problem will dissipate?

Share this post


Link to post
Share on other sites
2 hours ago, Mumofzoey said:

Hi, my 5 Year old daughter had just been diagnosed with both celiac disease and encopresis.  I'm trying to find out if they both go hand in hand, but I know celiac is an auto immune disease.  I'm still trying to learn all this and try and get my head around it. Her other siblings don't have it and she's had issues ever since she was born, only reason it took 5 years to get her diagnosed was by taking her to a different Dr, our old Dr kept turning us away and told told to use movicol 😡😡 I was so so so angry with that Dr 

Hi!  

This is going to sound weird, but I am happy you have a diagnosis.  I hope, like Karen, that your daughter's other issue will resolve on a gluten free diet.  Your best defense is to research, research and research.  Learn all that you can about the gluten-free diet.  You can check out our Newbie 101 thread located under the Coping section of the forum.  

I assume you meant that the rest of your family was tested for celiac disease  when you stated that the siblings do not have it.  All first degree relatives should be tested even if asymptomatic.  

We are here to help!  

Share this post


Link to post
Share on other sites

I know this started out as an old post, but I wanted to comment that an encopresis diagnosis is what led us to finding celiac in our 4 year old.  What helped us to beat the encopresis is Dr. Collins method- Soiling Solutions.  (plus I'm sure the gluten-free diet helped!)

  • Upvote 1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

2 2

  • Forum Statistics

    • Total Topics
      108,908
    • Total Posts
      943,439
  • Member Statistics

    • Total Members
      67,036
    • Most Online
      3,093

    Newest Member
    Danico
    Joined
  • Popular Now

  • Topics

  • Posts

    • My suspicion is dehydration caused by too much fiber. Combined with your cold, fever and perhaps any medications, loss of appetite and the high fiber content of the chia, slowing down the passage of the post nasal drip thereby giving it more time to irritate. I had a similar experience with Graviola during a phase of anorexia, when I would take it without food. By the way, Cold-Eze does work.
    • Welcome!   Let me put your mind at ease.  While is true that some celiacs have fertility issues, it is usually because they are undiagnosed and not being treated.   I think your approach of focusing on your health for the next six months to a year prior to conception is an excellent idea.  Not only will it help insure a healthy pregnancy, but you will be able to handle and care for that baby for the next few decades!   I was in a dedicated gluten free bakery and saw a young family with a six month old baby boy.  I love babies and struck up a conversation.  They said that the wife had been sick with odd issues  and finally got diagnosed with celiac disease.  Six months  this later, she got pregnant after they had been trying for three years.   So, learn the gluten free diet.  Choose healthy foods and try to avoid processed junk foods (not good for anybody), excercise gently, reduce the stress in your life, and I bet you will be fine!   Green stools can be a sight of rapid transit. It could be gluten, a virus, or food poisoning.  Stay hydrated and you will be fine.  Celiacs have leaky guts, so you might have developed an intolerance.  How long have you been gluten free?  Try reading our Newbie 101 thread located at the top of the “Coping” section of the forum.   Take care.  
    • I have granuloma on both of my feet and got them after I had my daughter. She's now 2!! Not eating gluten has not effected it in the least.  I had a major flair up after my colonoscopy and an exploratory surgery, neither had anything to do with my feet . 
    • I have had rolling food intolerance issues and stuff crop up for years....but this time it was seemly triggered by a cold.  I got a cold this weekend standard fever, stuffy nose, coughing gunk up, head pressure, random dizzy spells etc. Anyway I was eating on my chia seed rotation before getting it just fine...but about halfway into my cold I started having vomiting issues after eating. I assumed this was the cold perhaps it was instead a flu. But I got over it now with just a bit of congestion and sore throat left BUT I noticed a pattern in my food diary and confirmed it yesterday...within 30-60mins of eating anything with chia seeds I am puking ....... it seems I got a new intolerance to them? I found this odd that it was seemly triggered by the cold. I guess it could have happened with the compromised system and fever. Has anyone else had a new food intolerance crop up after a cold?
    • Thinking I saw this earlier on another post....anyway I do have a thought on this. I get little blood blisters and sores in my mouth, and on my tongue from things I ended with allergies to. With celiac being a autoimmune disease it can sometimes effect your immune system, like make you more prone to random food allergies, histamine issues, food intolerance issues, and sensitivities. You might want to keep a food diary and mix up what you eating avoiding foods you have been eating for up to a week changing out sauces, oils, spices completely and see if you notice anything. If I eat anything with corn I get blood blisters in my mouth by example, a high PH food like if I use a undiluted vinegar on something had in the past giving me little sores...not had this happen in awhile. In the food diary keep track of the sores, body temperature, stool habits, how you feel, etc. Every little detail and see if you find some connection with foods you eat. Try a lower histamine diet perhaps if it is related to that.
  • Upcoming Events