• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Bony Tori
0

2 posts in this topic

Does anyone else have very large jaw bones? I have always had bony growths extending from my lower jaw. If you look uner my tongue they are quite large and bizarre looking, and according to my many dentists they are called bony tori. I don't notice them much, except when trying to get my teeth xrayed by the dentist or back when I was fitted for a retainer, but they have gotten so much bigger in the past year. Recently I was wondering if bony tori are related to celiac disease. I know there is a higher incidence of kidney stones. I have a theory I want to put out there and get feedback on: my body's tranglutaminase (from gluten exposure) was getting bound to calcium and then couldnt be excreted by the kidneys (like in the kidney stone theory) but instead of giving me a painful kidney stone, this brotein-bound calcium built up in my mouth. Now I have very large bumpy jaw bones under my tongue and also on the sides of my jaw.

If this is indeed why I have such remarkable bony tori (Ive been told by dentists I could be in dental textbooks) then I wonder if its permanent but just wont get bigger now that I'm gluten free, or if they will get smaller... Time will tell, I guess.

I am really hoping someone else out there knows what Im talking about...

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi. I had never heard of Bony Tori until now - after reading your email. I have what you describe under my tongue (and have just looked at some photos on the net to be sure). No dentist has ever mentioned them. I even had a bunch of dental x-rays taken recently (2 weeks ago) and no one said a thing. I had noticed them but figured they were normal. Since no mention had ever been made I haven't given them much thought. Until now. I've been doing quite a bit of research on diseases associated with gluten intolerance and have not noticed anything on bony tori...but then I wouldn't have because I didn't know what it was.

Fascinating!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,419
    • Total Posts
      930,448
  • Member Statistics

    • Total Members
      63,842
    • Most Online
      3,093

    Newest Member
    rachelliz
    Joined
  • Popular Now

  • Topics

  • Posts

    • this is a very common subject on here.  personally, most of my tests were negative, but i did the same thing you did (stopped eating gluten before the tests) my gi advised me to continue eating gluten free because i was so malnourished and when i stopped the gluten i actually began to gain weight.  in other words, i think she was afraid for me to do the challenge bc it might kill me lolz.  some people want a definite dx if they have kids that need to be tested in the future, some will not follow a strict g//f diet without a firm diagnosis (they think they can cheat just bc they were never formally diagnosed) what happened with my scope is the dr saw evidence of damage.  that and my response to the diet were enough for me.  she advised me to stay gluten-free and i agreed.  it's been tough sometimes, but i never purposely cheated (that's how near death i was - swore i was dying of the big 'c'.......what a relief to not have that and my 'chemo' is 'impasta'.  or fake bread. )  welcome to the forum and good luck with whatever you choose 
    • I'm already noticing a difference after five days on the gluten-free diet...acid reflux is gone and stomach pain is getting better. I am glad you're going to try the gluten-free diet, Vanillabean, and get copies of all your results. I hope you find some relief from the pain soon! I'm still waiting for my biopsy results. I did call my doctor's office today and found out the genetic test was positive for a celiac gene (DQ8). My doctor was hoping to rule out celiac with that test, but now it's still up in the air. Still waiting.
    • meeeeeee!!!!  i used to get pneumonia every single winter!!!!  and all the flus and colds, etc - i am surrounded by kids and germs, but when they all get the flu, i do not.  my husband (mr-play-through-the-pain) even got knocked down (spent 2-3 days in BED miserable) by the last round of virus, but not me.   not to mention no headaches, no migraines, etc.  hormones and the dreaded menopause, like hellodee2 said, is a whole 'nother ballgame lolz glad you are feeling better
    • Hello there! So I have been experiencing horrible digestion problems after consuming gluten for years and just last week I woke up with a severe headache with breathing problems following a day where I ate more gluten containing products than I normally do. I figured maybe it was an allergic reaction to wheat, so yesterday I went to my allergist for food allergy testing. She suggested I also get the celiac blood panel done, so she ordered it. This morning I received two results and I am extremely confused by them. I should also mention when Kaiser released test results they are always very confusing. IGA  my range: 109 mg/dL Normal range: 70 - 400 mg/dL TISSUE TRANSGLUTAMINASE IGA  my range: <1.23 U/mL  normal range: <=3.99 U/mL   My question is, is it normal for my IGA to be in that range. Would it affect the accuracy of the test results?
    • So, here goes...my visit with the GI specialist  is on Monday.  I had tested positive for the IGG antibody and all other bloodwork was negative.  I had numerous trips to emerg with stomach pain, lower back pain, tingly tummy, and diarrhea with alternating "c" (I had the word constipation).    One diagnosis of diverticulitis, another of IBS, and symptoms continued to get worse....Low B12 for 7 years and abnormal liver (something like hepatocellular disease with cirrhosis).  I only have a glass of wine on the weekends...I had been diagnosed in my early 30s with IBS and imodium helped.  I also had a rash on my elbows and back and that is when my new GP said maybe it is celiac and she sent me for bloodwork and 3 months later finally get to see the GI specialist.  I went gluten free and at first it was hard.  It is much easier now...I think at time I give myself contamination because I get some bouts of pain on occasion and I take buscopan and immodium and then I am fine....I am 100% convinced I have celiac but I guess I really do not understand how the rest of the panel would be negative... The rash, the GI symptoms, the B12, and the liver issue all paint a compelling picture...I never thought I would say this but I hope it is truly diagnosed because then I can move forward with a plan.  I am down 22 pounds and back at the gym very hard and feeling almost normal for the first time in many years....I also find is so strange that my "gluten" attack usuallys starts with a pins and needs tingly sensation in my back and tummy...I have written a full history and have copies of all my test results so the GI specialist takes me seriously...I read his reviews and they are not good....I understand I will have to do gluten before the endoscopy but that fine...just looking forward to this being partly over...Have a great day!  
  • Upcoming Events