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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Any Help Please - Daughter 19 Months Old
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6 posts in this topic

Hello all,

I initially posted this on the main forum by mistake, this is where I think it should be.

I have found this site and it is far better organised than the one we have over here in England. My daughter 19 months (Molly) was diagnosed some 3 months ago with Coeliacs, but was only diagnosed as Milk and Soya intolerant in the last couple of weeks after a few more weeks in hospital. Molly when she was 17 months old weighed less than when she was 9 months old. Thanksfully the change has been almost instant, she is more bubbly and outgoing now and less tired.

I have seen on your site links to the t-shirts etc which we cannot get in England and also a list of contacts. Does anyone know of a distributor who can supply the t-shirts to England as I only want a couple for my wife, Daugther and myself.

Does anyone have any help or advice they can offer at this stage for us. Particularly with cross-contamination issues as we are ever learning about this issue and do not know what degree to that this to.

thanks for your anticipated help.

Great site and forum.

Mark Wootton (England)

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At home I do a lot of things to prevent cross-contamination from gluten. I am very sensitive so I have to be extra careful. Here are some things that I do at home to avoid cross contamination.

1. Wipe down counter tops well before preparing food.

2. Check "clean" utensils, plates, and cookware for crumbs before using and wash again if necessary.

3. Buy new cookware if old cookware if scratched. If old cookware must be used just be very careful.

4. Use a separate toaster/toaster oven

5. Use separate deep fryer

6. Use separate butter/peanut butter/jam and label as Gluten-free if people can't remember.

7. Be careful when using the BBQ

Hope this helps! :)

-Carrie

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Hi Mark:

I don't have cross-contamination advice, but I am also gluten/dairy/soy intolerant. I learned about the dairy after being gluten-free almost 3 months and then the soy when I tried to substitute soy products for dairy. I would HIGHLY recommend that you look at www.gfcfdiet.com. That's a website for parents of autistic syndrome children who must keep their kids on a gluten and dairy free diet in order to control their symptoms. They publish a mainstream products shopping guide (which might not help in England), but it has a handy list of gluten and dairy containing ingredients to avoid. Their website also has lots of gluten-free/DF information. I would also recommend the cookbook by Connie Sarros entitled "Recipes for Special Diets" available through this website. Each recipe shows which of 12 dietary restricted foods are excluded or how to substitute for ingredients, when necessary. Keeping your kitchen gluten/dairy/soy free is tricky but doable. ;)

BURDEE

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Hi Mark,

I found this website and inquired for you and they will ship to England. The website is http://www.sansgluten.com/index.htm. I hop this helps for you. :)

Here's the email they sent me:

Dear Linda,

Yes, Sans Gluten does offer International shipping to England. Just add any

desired items to the shopping cart. On the checkout page type in your

shipping and payment options. Here is the current pricing on shipping:

International DHL Worldwide Europe: 9-12 business days

$7.00 for the first item + $4.00 for each additional item

There is also currently a coupon you can use at checkout for $3.00 off a

$30.00 purchase, just use code: BACK2SCHL

If you have any further questions please contact me anytime.

Sincerely,

Sunni Mullis

www.specialdiets.org

www.sansgluten.com

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linda, thanks very much for that you have been a great help.

take care

mark

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Hi,

My son had allergy tests at 2 with all neg. results . Most drs. don't mention delayed Rast tests because they are not covered by insurance. They are worth it as my SON WAS allergic (highly) to soy and dairy.

In looking at the test results the nurse almost missed the celiacs marker in his tests because it was a standard test done but overlooked in her focus on the allergy tests.

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    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
    • See: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Take a copy of that with you or mail it to the doc. How many endoscopic biopsies did they take? Those with dh tend to have patchier damage than "normal" celiacs.
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