This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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this is a very common subject on here. personally, most of my tests were negative, but i did the same thing you did (stopped eating gluten before the tests) my gi advised me to continue eating gluten free because i was so malnourished and when i stopped the gluten i actually began to gain weight. in other words, i think she was afraid for me to do the challenge bc it might kill me lolz. some people want a definite dx if they have kids that need to be tested in the future, some will not follow a strict g//f diet without a firm diagnosis (they think they can cheat just bc they were never formally diagnosed) what happened with my scope is the dr saw evidence of damage. that and my response to the diet were enough for me. she advised me to stay gluten-free and i agreed. it's been tough sometimes, but i never purposely cheated (that's how near death i was - swore i was dying of the big 'c'.......what a relief to not have that and my 'chemo' is 'impasta'. or fake bread. )
welcome to the forum and good luck with whatever you choose
I'm already noticing a difference after five days on the gluten-free diet...acid reflux is gone and stomach pain is getting better. I am glad you're going to try the gluten-free diet, Vanillabean, and get copies of all your results. I hope you find some relief from the pain soon!
I'm still waiting for my biopsy results. I did call my doctor's office today and found out the genetic test was positive for a celiac gene (DQ8). My doctor was hoping to rule out celiac with that test, but now it's still up in the air. Still waiting.
meeeeeee!!!! i used to get pneumonia every single winter!!!! and all the flus and colds, etc - i am surrounded by kids and germs, but when they all get the flu, i do not. my husband (mr-play-through-the-pain) even got knocked down (spent 2-3 days in BED miserable) by the last round of virus, but not me. not to mention no headaches, no migraines, etc. hormones and the dreaded menopause, like hellodee2 said, is a whole 'nother ballgame lolz
glad you are feeling better
Hello there! So I have been experiencing horrible digestion problems after consuming gluten for years and just last week I woke up with a severe headache with breathing problems following a day where I ate more gluten containing products than I normally do. I figured maybe it was an allergic reaction to wheat, so yesterday I went to my allergist for food allergy testing. She suggested I also get the celiac blood panel done, so she ordered it. This morning I received two results and I am extremely confused by them.
I should also mention when Kaiser released test results they are always very confusing.
IGA my range: 109 mg/dL Normal range: 70 - 400 mg/dL
TISSUE TRANSGLUTAMINASE IGA my range: <1.23 U/mL normal range: <=3.99 U/mL
My question is, is it normal for my IGA to be in that range. Would it affect the accuracy of the test results?
So, here goes...my visit with the GI specialist is on Monday. I had tested positive for the IGG antibody and all other bloodwork was negative. I had numerous trips to emerg with stomach pain, lower back pain, tingly tummy, and diarrhea with alternating "c" (I had the word constipation). One diagnosis of diverticulitis, another of IBS, and symptoms continued to get worse....Low B12 for 7 years and abnormal liver (something like hepatocellular disease with cirrhosis). I only have a glass of wine on the weekends...I had been diagnosed in my early 30s with IBS and imodium helped. I also had a rash on my elbows and back and that is when my new GP said maybe it is celiac and she sent me for bloodwork and 3 months later finally get to see the GI specialist. I went gluten free and at first it was hard. It is much easier now...I think at time I give myself contamination because I get some bouts of pain on occasion and I take buscopan and immodium and then I am fine....I am 100% convinced I have celiac but I guess I really do not understand how the rest of the panel would be negative... The rash, the GI symptoms, the B12, and the liver issue all paint a compelling picture...I never thought I would say this but I hope it is truly diagnosed because then I can move forward with a plan. I am down 22 pounds and back at the gym very hard and feeling almost normal for the first time in many years....I also find is so strange that my "gluten" attack usuallys starts with a pins and needs tingly sensation in my back and tummy...I have written a full history and have copies of all my test results so the GI specialist takes me seriously...I read his reviews and they are not good....I understand I will have to do gluten before the endoscopy but that fine...just looking forward to this being partly over...Have a great day!