• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Guest ~wAvE WeT sAnD~

Sleep Patterns

Rate this topic

Recommended Posts

Guest ~wAvE WeT sAnD~

Hey everyone!!!

I was wondering, has keeping a consistent sleep pattern made a significant impact on your health after you were diagnosed? Staying up late is practically a lifestyle for college students :lol: (I must sound like I'm making a justification for myself!).

I have heard that as people get older, they need less sleep. It probably varies from person to person, but are sleep patterns essential to overall sleeping health?

I'm a bit of a night owl (it's 12:18 and I'm wide awake--a quality of mine when I'm healthy).

Thanks a lot!!!!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Not an expert.. but I like increasing my post count! =D

I do know, if you don't get enough sleep.. it weakens your immune system. I don't know if it matters when you go to bed though. I think it's more important to just try to get to bed around the same time, and get enough of it! 8 hours seems to be the magic number I hear.. could be wrong there.

So.. getting enough sleep, is important to health. Though not entirely sure about sleep patterns.. or what you mean by that, lol sorry.

Share this post


Link to post
Share on other sites

Hey Jill:

I've discovered a different fact about older people and sleep: As they get older their sleep quality is often disturbed by pain, stress and snoring mates. So although they need the same 8 hours as younger people, they don't get as much sleep. Then they try to use caffeine (which can cause headaches if you decrease your daily dose :o ) or sugary foods (which can cause weight gain when you eat for fatigue rather than hunger) or bright lights late in the evening (which really mess up your melatonin and sleep/wake cycles) to keep themselves alert when they are exhausted. So not only are older people more tired due to lack of sleep, but they have all those other pesky symptoms like headaches, overweight and more insomnia which doctors explain by "you're just getting older". Please remind me again why we depend so much on doctors' opinions. <_<

BURDEE

Share this post


Link to post
Share on other sites

Personally my sleep patterns changed significantly once I was gluten free for about a year. I went from sleeping 14 or more hours a day to needing 7-9, with a significantly more active lifestyle nowadays. Whenever your body reacts to gluten, I see it-and feel like it-as though your immune system is fighting it just like a cold or the flu. That's why I slept so darn much, and why one of my only symptoms of accidental gluten ingestion anymore is feeling sleepy!

Nadia

Share this post


Link to post
Share on other sites

I'm 21 and I used to stay up until 3 or 4 in the morning and get up at 7 am for work. This was normal I never needed sleep I was always energetic. I was diagnosed 2 years ago, and up until about 8 months ago I barely ever slept. But now I sleep 7 to 10 hours a day and still feel exhausted a lot of the time. But I'm totally gluten free and except for a few gluttened mishaps I haven't had any gluten issues. Can't explain it...

Share this post


Link to post
Share on other sites
Ads by Google:


Guest ~wAvE WeT sAnD~

JenDenise--

I'm 21 too, and tired 24 hours a day. Thanks for replying!! It's 2:16 am in Pennsylvania and I'm still typing a paper! Tomorrow I will feel like a truck hit me.

Share this post


Link to post
Share on other sites

WOW, I'm surprised you were able to make it to 2:00am, I was up until 10:00 last night and felt exhausted! Do you think it could be a deficiency type thing? I'm going to have my iron levels checked on Monday to see if I'm still anemic, I figure that could explain my never ending exhaustion, but if not then what? Glad to see I'm not alone, but then again I wish others didn't feel like I do.

Share this post


Link to post
Share on other sites

I felt tired for years and then I got really exhausted but thought I was just stressed. I then lost weight and eventually tested low iron and was definitely anemic. I tried iron pills but they gave me diarrhea. 2 months ago I found out I had celiac disease and am on the gluten-free diet. i still can't sleep without a sleeping pill and I'm still bloating/constipated and then I have diarrhea in the morning. But, hey, it was way worse a few months ago. I am only working mornings and I'm trying to rest pm's but I still have insomnia. Melatonin doesn't do it for me..neither does valarian. Jendenise, good luck!

Share this post


Link to post
Share on other sites
Guest ~wAvE WeT sAnD~

jendenise,

I'm not sure...I just had my iron checked, and it's 12.5 I have no idea what's going on, but I've found that if I regulate my sleep patterns more closely, it works. I admire you for being able to go to bed at 10 pm---I'm actually more awake at night and exhausted during the day! Any thoughts?

Sleep tight,

Share this post


Link to post
Share on other sites

:blink: I'm Sleepless in Florida :blink:

~ Hi all my celiac cyberspace friends!

Since I was a kid I was up late, I was born at 1:00 am if that matters. My body clock seems to be set much different than most people.

I alway had a problem getting out of bed in the morning. I remember as a kid, and teen years, my dad would pull the covers off me, grab me by the ankles and pull me out of bed on to the floor to wake me up early mornings. :o As a teen, 20's, 30's and into my 40's now I'm up all night. I generally wake up around 10:00 a.m to 11:00 a.m. It seemed I would wake up and get a second wind around 10 or 11:00 p.m. I would go out dancing all night :D and come home around 3:00 am. Or when I had a hubby I would go to bed when he did but would get up when he fell asleep and would go out to my home/studio. I'm an artist, and all and all creative soul that does my best work at night. Some times I'm up until 4.

I don't know if it was insomnia, because I would get 7 or 8 hours of sleep and I feel rested for the most part. I slept sound. I was just living on the USA east coast but my body clock was on west coast time. (giggle)

Even now with this illness I have tried to reset my body clock. It's so so so hard...

I have lived with celiac disease gluten-dairy free for 4-years and been okay until a major flare up and stress with my thyroid problem. Now sleep is a major issue. I have so many symptoms now and insomnia IS a problem.

I find that what does help me fall asleep. I take my little Italian dog GOOMBA for a walk for a mile or so in the evening around 11:00 pm. (The weather here is always beautiful.) I force myself to go to bed no later then 1 to 1:30 a.m. Then with dim lights or candles aromatherapy in the room or aromatherapy spray on the pillow bed sheets. I take a shower or bath with aromatherapy oils and read my Bible or a book if I'm not relaxed enough. I will relax with no outside stimulation. NO TV it makes me wired, a radio wakes me up and not even a alarm clock in the room. If I don't fall asleep after 15 minutes then I take something. Only since I've had this thyroid flare up on occasion have I had too, when I feel racy, my heart goes into palpitations or etc. I feel better in the morning and though out the day when I get deep sleep uninterrupted.

As I look back I wonder if when I break this routine (I started a few weeks ago) its the reason I feel really bad... Now as my thyroid is swinging between hyper to hypo I'm sleeping in the late afternoon early evening and feel like that cartoon where I'm dragging myself around by my collar. :blink:

I have always been an UP positive person alway on the go, I hate feeling depressed :angry:

My question is there any common thread between my sleep patterns and feeling so bad? Is it just my thyroid is killing me? Or I'm not getting better because of my thyroid problem and sleep?

Anyone out there on Celiac-cyberspace have any answers I welcome them?

Thanx and sleep well my friends! :blink:

Share this post


Link to post
Share on other sites


Ads by Google:


I was just diagnosed with fibromyalgia. It seems that no matter how much sleep I get, I feel like I got ran over by a truck. I am also quite the night owl, always have been. The Dr, gave me some pills to help me sleep, so hopefully this will help.

Share this post


Link to post
Share on other sites

I am not sure if our sleep disturbances have anything to do with being celiac--I think our lifestyles make the difference---although, many of us have pain from other ailments that celiacs may have caused--I have neuropathy, I also have tinnitus, which I have had all my life but is in a serious flare up condition for now--there is a field of crickets in my head most nights now :angry: they wont go away---at any rate----I made a huge change in my life and my sleep patterns have much improved with this change----I moved 800 miles away from most of my stress, I now live near my sweetheart, I have a full time job that is regular hours--for years I worked jobs that had me working early in the morning or late at night, never the same days off, rarely a weekend--now i never start work before 9am and I am always done by 7pm and I have the same days off every week---all these changes have done good things for me---I'm eating better now, sleeping better, and enjoying my life-----just my thoughts on the subject :lol: Deb

Share this post


Link to post
Share on other sites

darlindeb25 - Glad you moved away from your stressors. Wonderful to hear about your :wub: sweetheart. Being in a loving enviroment can heal a lot. I also believe the power of loving touch does wonders as well. I noticed I became sicker (this time I had a flare up) when I called of my engagment. Plus it stressed me out in addition to several other things.

My late-mom had the crickets in here ears. I remember as a kid she told me she had virtigo.

Have you tried a SOUND MACHINE to sleep with? You know it has sounds of the ocean, or city noise, or whatever soft noise in your comfort zone. I have a girlfriend that uses one to put her twin babies to sleep. My 84-year old daddyO sleeps with the radio playing. Sometimes it so loud I can hear it on the otherside of my home. He said for the same reason.

So.... thank you for remindiing me.... I've just added it to the Walmart shopping list, I'm going to check into it, and price them out. I'll get back to you on what I find.

Sleep Well!

Share this post


Link to post
Share on other sites

I used to be chronically tired but could only sleep a few hours at a time. I never felt rested. After I went gluten-free I was able to sleep normally. Regular exercise helps a great deal. If I am not able to exercise then I start having trouble sleeping. I used to have ringing in my ears but that too has gone away.

Share this post


Link to post
Share on other sites

darlindeb25 - I went to Walmart yesterday and I priced the Sound Machines. I found one in the candle and aromatherapy isle where they have some mood music celiac disease's and cassette tapes. The one I found is called SOUND SCAPES it sells for about $19.00 and it looks good. It has about half a dozen types of sounds to choose from. I don't know if it would help drown-out the crickets you hear...???

Sleep well my friend!

Share this post


Link to post
Share on other sites
Guest ~wAvE WeT sAnD~

I used to have Soundscapes :) It wasn't too bad, but now I've upgraded to Dan Gibson's "Solitudes" collection. It is fantastic!!!

Share this post


Link to post
Share on other sites

I also have sleeplessness. (For about 20 years or so) I had no problem sleeping as a child or teenager. But starting in my 20's (a few years after the celiac symptoms started) I began having sleep problems. (which go worse as the celiac problemas got worse.) I sometimes get as little as 1 or 2 hours a night several nights in a row.

I have recently been diagnosed with fibromyalgia, (restless leg syndrome, chronic fatigue, all kind of go hand in hand). I also have peripheral neuropothy. Tingling pain in my hands and feet, with shooting pains going down the arms and legs. The hands and feet will then fall asleep. It's basically nerve damage. I also have Osteomalasia (caused by malabsorbtion of calcium when the bones are developing.) Nothing you can see, just constant pain for me, mainly in the lower back and hips. It makes it difficult to sleep when you are constantly tossing and turning from pain. I realize now that I have had these problems all along the same time I suffered from Celiacs, but it all went undiagnosed.

Sometimes a person may not know that they are not sleeping. You may wake in the morning thinking that you got 8 or 9 hours but the reality is that you never fell into the deep REM kind of sleep, the restfull kind that we all need for body healing. When you toss and turn from pain or jerking muscles or tight muscles that never relax, you are obviously not going to fall into that deep sleep.

all of my problems are much better since I discovered that I have Celiacs and went gluten-free over a year ago. But I still suffer quite a bit from the pain and lack of sleep. I'm guessing that since it took my body many years to create all the damamge, it may take many years to undo it.

My doctor has put me on an antidepressant for the fibromyalgia. 25 mg. dose. It isn't a high enough dose to work for depression, but it helps with the pain by releasing endorfins, and also helps you sleep, which in turn helps with the pain. I also have Lidocaine patches that you place on the really sore muscles while you sleep. I have only been on these for about 2 weeks. At first I saw no difference, but I've noticed in the last few days that for the first time in years I am getting about 5 or 6 straight hours. :D:D:D WOW!!! I do feel better!! Pain is the same but I'm betting that will change too.

Definately regular excersise helps a ton. I try to run every day. It feels great when I do, but if I miss a day I really feel it.

P.S. I have 2 sound machines :lol::rolleyes::lol:

Good luck with the sleep, Wendy

Share this post


Link to post
Share on other sites

If I don't get exercise of any kind for at least a 1/2 hour a day I have a rough time getting to sleep.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,911
    • Total Posts
      943,463
  • Member Statistics

    • Total Members
      67,063
    • Most Online
      3,093

    Newest Member
    M. Ramirez
    Joined
  • Popular Now

  • Topics

  • Posts

    • LexieA, I agree with Plumbago. The symptom's of low stomach acid and high stomach acid are similar so it is easy to confuse the symptom's of one as the other. Dr. Myatt explains this well in her online article about stomach acid. http://healthbeatnews.com/whats-burning-you/ quoting "But My Symptoms Feel Like Too Much Acid…" Strong stomach acid and pepsin quickly "emulsify" fats and proteins, making them ready for the next step of digestion, passage into the small intestine. When these digestive factors are weak, food remains in the stomach for longer and it begins to ferment. Gas pressure from the fermentation can cause bloating and discomfort and can can also cause the esophageal sphincter to open, allowing stomach contents to "backwash" into the esophagus. Even though weak stomach acid is the central cause of this, even this weak stomach acid, which has no place in the esophagus, will "burn." This burning sensation confuses many people, including doctors, who then "ASSuME" that excess acid is to blame. Too little acid, resulting in slowed digestion, and gas which creates back-pressure into the esophagus is the real cause of almost all "heartburn" and GERD." so  you can see how they can easily be confused for each other. you no doubt are having stomach acid issues but it is because it is too little or too much? Timeline helps us determine which it is. If it happens when we eat something it is already to low to  digest the food we are eating. if eating something cause the heartburn/gerd to improve (especially meat) then your stomach acid is really too high especially if this happens between meals. because eating something will naturally dilute/lower the stomach acid pH. I wrote about my stomach acid being misdiagnosed on my celiac.com posterboy blog. ( have summarized most of what you need to know in this reply but the post is still there if you want to study it more for yourself. if your not taking an antacid now then taking BetaineHCL should improve digestion. If it does then raising your stomach acid by lowering you pH should improve your digestion. study on the best way to take powdered stomach acid before trying this. but I found taking 3 to 4 capsules in the beginning was easier than taking only 1 or 2 in the beginning .. .  until I could back it down to only needing one per meal or now none per meal to aid digestion. which is what we are shooting for.  The place where our body is now producing our stomach acid naturally at a healthy level. if you feel a "warm sensation" in your stomach you have reached a good level. I hope this is helpful. I only know it helped me. *** this is not medical advice but I hope you have as a good experience with it as I did. Usually peopledon't  have a trouble taking BetaineHCL unless they have an ulcer or already taking PPI's which are actually lowering  their stomach acid contributing to a viscous cycle of being locked into taking PPI's long term. if PPIs are taken for more than 6 months they can be almost impossible to stop/quit because of the acid rebound people experience when trying to stop taking them cold turkey and why they recommend stepping back doses by 1/2 gradually so they don't get overwhelmed by the stomach acid your stomach is  able to produce again naturally itself (hopefully). . . if taking betaineHCL jump started your ability to produce stomach acid again. . . if not taking betaineHCL (Powdered Stomach Acid) can replace what the body is missing much like taking a hormone. chris kresser has a good online article on this subject as well. https://chriskresser.com/what-everybody-ought-to-know-but-doesnt-about-heartburn-gerd/ he says it well. quoting chris kresser. "If heartburn were caused by too much stomach acid, we’d have a bunch of teenagers popping Rolaids instead of elderly folks. But of course that’s the opposite of what we see." **** this is not medical advice but I hope it is is helpful. posterboy by the grace of God, 2 Timothy 2:7 "Consider what I say; and the Lord give thee understanding in all things".  
    • Lex_ I agree with Ennis_Tx. You need to take some Magnesium.  It works best as a Magnesium Citrate or Magnesium Glycinate. Magnesium Citrate are easiest to find. Take it 2/day for the first couple weeks to see how much more energy you have. Then you can take it with each meal or 2/day and one hour before bedtime if it is not convenient to take it at work. If it is working you (right form of as a Magnesium Citrate or Glycinate) you will will experience vivid dreams. And wake up with enough energy to take on the day. **** this is not medical advice but it really helped my chronic fatigue symptom's. It is good for leg cramps too also known as charley horse's. posterboy,
    • I am sorry that I was not clear.    I only mentioned  your diagnostic background, not to discredit you, but because without any lab results (other than a positive gene test), how can you be sure that gluten (shampoo containing wheat protein) was the actual culprit (not a guess) of your symptoms?  It is common for celiacs to receive follow-up antibodies to monitor their dietary compliance.  This is not perfect, but it is the only tool in the toolbox for now.   My husband has been gluten free 12 years prior to my diagnosis.  He went gluten free per the poor advice of his GP and my allergist.  So, I am not trying to discount your diagnosis at all.  I am just trying to see if other lab tests (e.g. liver tests that were elevated previously for you when you were still consuming gluten) were measured after your shampoo exposure.   I am curious because I have had issues over the last year.  I was glutened last January, had the flu, a tooth infection, a cold and a tooth extraction, three rounds of antibiotics (verified to be gluten free) within a month or so.  Like, you, I am very careful.  I have no idea as to how I was exposed.   The last time I ate out was a year ago and even then it was at at 100% gluten free restaurant.   My hubby did not have any symptoms at this time.  He is like my canary.    I went to my GI and my DGP IgA was off the charts even some three months later.   My celiac-related symptoms diminished in three months, but I struggled with autoimmune hives for six.  My GI offered to do an endoscopy in the summer.  Instead I chose to follow the Fasano diet.  I still was not feeling well.  In December, my antibodies were 80.  They were either on a decline or they were increasing again.  I opted for the endoscopy.  My biopsies revealed a healed small intestine (you could see the villi on the scope too).  But I was diagnosed with chronic gastritis and had a polyp removed.   So, all this time I thought my celiac disease was active, but it was NOT the source of my current gut issues.   Again, my apologies.  I just wanted to know how you know for SURE that hydrologized wheat protein from someone else’s shampoo and conditioner could reach your small intestine to trigger an autoimmune reaction.  Maybe, like me, Gluten was not the actual culprit.    
    • The reason I think it was the shampoo? Process of elimination. Our house is almost entirely gluten free (except for this shampoo which slipped through the cracks until I read the ingredient label). My husband has bread that he eats at lunch, but he practices something that resembles aseptic technique from the lab when he's making his sandwiches. He's been doing this for years now and I've never been glutened from within my home. The previous week I hadn't eaten out, I cooked all my food, I don't eat processed food and I never eat something from a shared facility.  Usually if I get glutened it's a single dose sort of thing and it follows a very predictable course, to the point where I can estimate when I got glutened within 24 hours of when it happened. However, this time, I was feeling achy and arthritic and moody for about a week before it got bad enough for me to recognize it as the result of gluten exposure, at which point we went searching and found the shampoo (and conditioner, which does leave more of a residue than shampoo), which he immediately stopped using. Within three days I was feeling back to normal (which is the usual course for me).  Sure, it could have been something else, but I know how sensitive I am, and, as silly as it sounds, it was the only thing that made sense. The other thing you said: You're correct, mine was not a rock solid celiac diagnosis, but I have no doubt that gluten is the problem. I was SICK. I went through two different gluten challenges in an effort to get a more straightforward diagnosis during which I was a barely functioning human being. Consuming gluten may not have given me blunted villi or elevated antibodies, but it did inflame my gut, and actually started to damage my liver. If you look at my diagnosis thread, I had elevated liver enzymes, which have been correlated with celiac disease in the past. There was no alternative explanation for the liver enzymes, he checked EVERYTHING.  I too am a scientist and I have spent a lot of time with the literature trying to make sense of my condition.  https://www.ncbi.nlm.nih.gov/pubmed/26150087 I also have no doubt that gluten was damaging my intestines in some way, as any prolonged gluten exposure in the past has inevitably been followed by a severe FODMAP intolerance that goes away once I've eliminated the gluten and given myself a month or so to heal.  I also had a very fast diagnosis following the onset of symptoms (~1 year) so it's possible that the disease never had a chance to manifest as full celiac. I wasn't willing to eat gluten long enough to find out. As a result of my diagnosis, hazy as it was, I am *meticulously* gluten free. It is not a fad for me. I don't occasionally cheat. It is my life, for better or worse. All of that being said, I'm not sure what my diagnosis has to do with your question. You say you're not trying to be rude, but when you bring up my diagnosis in a thread that has nothing to do with diagnostics, it seems like you're trying to undermine the validity of my disease or the validity of my input in this forum. If I'm being hypersensitive, I apologize, but that's how you came across on my end. I'll admit that the fact that my diagnosis wasn't more straight forward does make me a bit defensive, but I promise that even if I didn't have a solid diagnosis, I interact with the world as though I did, and I'm not out there giving people the wrong idea about celiac disease by not taking it seriously. If there was a connection between your question and my diagnostics that I missed I would appreciate you giving me the chance to better understand what you were asking. 
    • I am just curious.  As a scientist (and I am not trying to be rude), how can you determine if hydrologized wheat protein from your husband’s shampoo was actually the culprit?  If I recall at your diagnosis, you were seronegative, Marsh Stage I, gene positive,  but your doctor still  suspected celiac disease.  You improved on a gluten diet.  Other than observation, how do you really know?  Could it not be something else that triggered your symptoms?   I firmly believe that even trace amounts of gluten (under 20 ppm), can impact sensitive celiacs.  But traces of a protein within a shampoo from someone else’s hair that was rinsed?    
  • Upcoming Events