• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Soy Intolerance?
0

11 posts in this topic

So, quick background. I've been doing an elimination diet and I just added soy back in two or three days ago. I chose soy because it's IN a lot of things, although I don't ever really eat a whole lot of it.

The last two days I ate tofu stirfry, as it's best to reintroduce an item using its purest form. And while soy is IN a lot of things, I wasn't really sure what else I could use.

Yesterday I felt fine after dinner. Today I had some Imagine or Pacific gluten-free CF cream of mushroom soup - which uses soy milk. After eating that I felt somewhat nauseous which then gave way to some mild gas and mild bloating. An hour or two later I made my tofu stirfry again and didn't feel nauseous, but had the same mild gas, mild bloating and also some mild heartburn.

I don't know if I felt sick simply because I was so hungry and had simply waited too long to eat, or if I do, in fact, have a soy intolerance. Or maybe because the soup was kinda ucky? I'm sorry..there's just no replacement for casein. :(

I guess I'm wondering how I can tell the severity of this soy thing. Because I never eat tofu and the only soy I normally would consume would be in small amounts in prepackaged items, do I need to be that worried about it?

I have been eating chocolate wiht soy lecitin in it for a few days now and it hasn't bothered me at all. Is this enough proof that I should avoid soy in the future? Should I continue to eat tofu for the next few days and see if the symptoms worsen or stay the same? Or can I please move on to something else...like tomatoes!

Thanks

Courtney

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Soy can cause minor digestive upset like you described. Soy lecithin doesn't cause me trouble at all, and I react badly to soy. What this might be telling you is that large amounts of soy protein upset your stomach, but small amounts don't. Sorry I'm not much help - it's been a long day.

0

Share this post


Link to post
Share on other sites

Thanks, Liz! That's what I'm hoping. I guess my big question is that I don't know is if small amounts can build up in your system and end up causing problems, or how any of that works.

I just finished eating a little bit more of my chocolate and about a half cup of soy milk, so we'll see what that does...

Anyone else out there with soy intolerances/sensitivity that could perhaps shed some more light on this?

Courtney

0

Share this post


Link to post
Share on other sites

I went off soy in February and found out later that I was intolerant to it. I haven't wanted to test it to see what reactions I would have.

Soy lecithin and soy oil are touted as being ok, but many people still react to them. It's really a personal choice. Probably wouldn't hurt for the occasional thing, I wouldn't worry about it....unless you start getting reactions.

0

Share this post


Link to post
Share on other sites

Cork-

I react to all of the things mentioned in your signature except caffine. I have found it helpful to avoid grain lectins, dairy lectins, and nightshade lectins. Try looking at classes of foods, it may save you time and illness.

Sometimes foods can be tolerated in small infrequent amounts. Glutens should be avoided 100% if you test positve for it.

I eliminated soy and corn recently, I still have some pain issues. I hope by cutting out the all the grain lectins (including rice) will help with the muscle pain.

You might want to read the Lectin Story.

Best of luck.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hi Cork -

I too am on the elimination diet - isn't it a pain??? I just found out I can tolerate corn, so I'm happy about that, but like you I can't tolerate casein. I just found that out yesterday after eating mozzerrela cheese and becoming tired, anxious and really crabby about two hours after eating it. My mood went from pretty good to terrible within hours - crazy! My symptoms aren't so much gastrointestinal as they are mood and headache.

I'd been gluten-free for years but still had trouble, so my doctor suggested I do this. I'm just hoping I can figure it all out. Next on my list is soy, so I'll let you know.

Kelley

0

Share this post


Link to post
Share on other sites

I recently talked to a notable scientist with a supplement company. He said that most allergies are actually due to the proteins in foods. So in that case soy protein isolate might be the worst and other parts of soy might be OK in moderation.

I showed a soybean allergy on an ELISA test. I really need to do the Enterolab test for soy to see if it's truly an inherited intolerance to the protein in the soy or just an acquired allergy that could eventually go away.

And it's true, there seems to be no substitute for casein. I'm still looking for a dynamite mayonnaise and even a good tasting cheese substitute when you can't have dairy, soy or eggs.

0

Share this post


Link to post
Share on other sites

I am starting to wonder whether I have a soy intolerance also. I've been vegetarian my whole life so it has always been a big part of my diet. I have been gluten free for four years and finally broke down and admitted casein problem and eliminated it completely two years ago. I have been wondering about soy....

I live in India where the diet is very starch based. I tend to have blood sugar disturbances as it seems many of us do.... So I always try to find protein sources. I may have gone overboard on the soy in the past week but I've had some major gastro disturbances. I have had soy nuts, soymilk, I made soy yogurt from kefir starter, and ate some gluten-free cookies with soy lecithin.

I thought maybe the yogurt was bothering me since perhaps the kefir starter was grown on dairy even though its dried and sterilized...

When i've had soy I get headaches, feel kind of "clogged" in my head and lethargic, and I tend to fall asleep right after eating it. Also heartburn, bloating, gas etc

It would be dissapointing not to be able to use soy as a protein source but important to know for sure.

Has anyone found a protein powder that is gluten free, casein free, and soy free? I"ve used hemp seed protein before but it was sort of unpleasant tasting.

Does anyone know if whey protein can be casein free?

0

Share this post


Link to post
Share on other sites
I am starting to wonder whether I have a soy intolerance also. I've been vegetarian my whole life so it has always been a big part of my diet. I have been gluten free for four years and finally broke down and admitted casein problem and eliminated it completely two years ago. I have been wondering about soy....

I live in India where the diet is very starch based. I tend to have blood sugar disturbances as it seems many of us do.... So I always try to find protein sources. I may have gone overboard on the soy in the past week but I've had some major gastro disturbances. I have had soy nuts, soymilk, I made soy yogurt from kefir starter, and ate some gluten-free cookies with soy lecithin.

I thought maybe the yogurt was bothering me since perhaps the kefir starter was grown on dairy even though its dried and sterilized...

When i've had soy I get headaches, feel kind of "clogged" in my head and lethargic, and I tend to fall asleep right after eating it. Also heartburn, bloating, gas etc

It would be dissapointing not to be able to use soy as a protein source but important to know for sure.

Has anyone found a protein powder that is gluten free, casein free, and soy free? I"ve used hemp seed protein before but it was sort of unpleasant tasting.

Does anyone know if whey protein can be casein free?

I, too have asked the whey question. I believe CarlaB answered me by saying that she doesn't trust it since how do you really separate the two proteins that make milk...

I use a protein powder called MediClear. You can find it on Naturallyempowered.com. It tastes very much like powdered cardboard, but you get used to it after a while.

0

Share this post


Link to post
Share on other sites

I started another food diary on the 22nd, Nov to see what else has been getting me. The other day i had refried beans and the contained soy and I felt sick. So here we go again. Milk in my cereal seems to be ok so far.

anyway i thought I would add my 2 cents. :)

rebecca

0

Share this post


Link to post
Share on other sites

I'm still on the elimination diet too ... :blink:

Sounds like you can handle small amounts of soy. But the negative reaction you had to the tofu and soy milk is not considered acceptable. Food should not make you uncomfortable.

I can eat a small amount of soy too in chocolate, but if I drink soy milk, I get tons of phlegm in my throat immediately.

To answer your question about it building up ...

My sister has a not so pleasant to look at reaction to chocolate, like Will Smith in the movie Hitch. Her face swells unevenly. But, she can eat a small amount every few days and be fine. She has been like this all of her life. And she is 50 ish.

If I were you, I'd move on to tomatoes and avoid large quantities of soy. :D Worst case scenario is that you check it again sometime down the road.

Marcia

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,783
    • Total Posts
      932,386
  • Member Statistics

    • Total Members
      64,258
    • Most Online
      3,093

    Newest Member
    Avril Perridge
    Joined
  • Popular Now

  • Topics

  • Posts

    • ironictruth, I think you are so early in your diagnosis that most test don't account for so early a diagnosis. see this thread started by you and GFinDC conclusion at the end of the thread not sure how to quote from multiple threads. Here is what GFinDC thought the study meant and I agree. Posted March 7 "It seems like another way to look at the positive DGP and negative biopsy is that DGP could be an early indicator of celiac disease.  Perhaps before much intestinal damage shows up." Here is another thread that talks about what is happening to you I believe with so many test's we often can't clearly make out what is happening often. see this link embedded in the the post as linked by squirmingitch https://www.ncbi.nlm.nih.gov/pubmed/27352981 on the topic of  "Seronegative celiac disease: Shedding light on an obscure clinical entity." and might be what you are experiencing from your test results. But I want to say why while you so want it to be "Celiac" and not the "C" word I think Pellagra should be considered as a differential diagnosis. I say this and repeat it to those who will listen.  Niacinamide helped me. This article on celiac.com explains why this might be so https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html and if taking a b-complex 2 to 3 a day (and Niacinamide) for a couple months greatly alleviates many of your GI problems then you also  have had pellagra co-morbid and the doctor's don't recognize it in a clinical setting today .  . .  mainly because they don't know to look for it any more today. I wrote about how to take niacinamide in my blog post about this topic so I wouldn't have to retype it several times. I want to quote from the discussions section the heart of most good research from the American Journal of Clinical Nutrition research article linked in my posterboy blog thread about how to take niacinamide and why you would want too Faq. poster here again for those who want to do the deep research from their discussion section. http://ajcn.nutrition.org/content/85/1/218.full "Random spot urine sampling, together with the measurement of 1-MN and 2-PYR concentrations, has been suggested as an alternative because it avoids these issues and would provide a guide to status (22). However, the ratio of these metabolites has been shown to vary according to the time after the last meal because they are sequential intermediates on the same catabolic pathway (21). This makes the ratio an intrinsically unstable variable for use in population surveys; in the present study we chose to use cutoffs previously established for the excretion of individual metabolites expressed relative to creatinine. The subjects whose excretion fell below the established cutoffs for either metabolite were considered to be deficient." A little technical but essentially we soo need b-vitamins that even if you have a test for low vitamin b-3 the amount of the b-3 in your meal (f you have not fasted before the test) can cause us to test in a low normal range thus making taking of the b-vitamin a self test of cause and effect. Did you get better after taking Niacinamide then if taking Niacinamide helped your GI problems you were low in Niacinamide. This is typically a 24 hour test and most people don't fast 24 hours before going to the doctor and will often fail this test since our body has absorbed enough from our food to help us pass the thresh hold set at the minimum level. Here is why it is good to take a b-complex with Niacin/niacinamide because it interacts with other nutrients. https://www.ncbi.nlm.nih.gov/pubmed/3804611/ including b-6 which is one of the metabolites measured to determine a pellagra diagnosis. see this mdguidelines link that summarizes this well. http://www.mdguidelines.com/pellagra where they say  quoting there treatment section "Treatment consists of high oral doses of niacinamide, a form of niacin. Usually, supplements of other B-vitamins are also given because many individuals with pellagra also have low levels of B1, B2, B6, and pantothenic acid." and possibly Zinc if the other research is correct. ***** this is not medical advice just my research on the topic and experience with taking Niacinamide to treat many of my GI problems. Prousky wrote about this 15+ years ago and still people are not aware of this fact that Niacinamide treats digestive problems. http://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm and if they are are aware of it are they are slow to accept that a vitamin could help with their GI problems. the gluten free works site also has a great article on this topic. http://glutenfreeworks.com/blog/2010/06/23/niacin-vitamin-b3-deficiency-in-celiac-disease/ while it is recognized that celiac's have many of these deficiency it is not well accepted/understood today low Niacinamide alone can treat many GI problems though the research is 15+ years old .  . . still people suffer. I don't want you to have pellagra or celiac but I want you to be aware there is a another valid differential diagnosis that can make sense for many people seeking to be diagnosed as a celaic disease patient. because people with pellagra often get better very quickly it is worth a try or least some of your time to research it some more. ***again this not medical advice.  Please check with your doctor about this possibility but don't be surprised if he doesn't know much about pellagra and probably less than he does about celiac disease. Dr. Heaney talks about why this is today on his blog about the 4 D's of Pellagra and why doctor's don't recognize it today in a clinical setting. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ good luck on your continued journey. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • You should probably have your doctor run a full blood panel for celiac if you want to be tested right, followed by a endoscope and biopsy. The blood test can give false negatives, and you have to be eating gluten for at least 12 weeks daily for the test. On the ferritin levels, mine was consistently 1-3 on every test even with 2x the normal dose of iron. I found I had to take it with vitamins C supplements to boost it a bit along with managing a few other nutrients that work in combination with it. Seems mine is in part due to constant intestinal inflammation caused by my UC and bleeding ulcers.
    • Hi, I am looking for a functional medicine doctor in the Chicago area?  Any recommendations?  I have never been to one.  I have celiac disease and ulcerative colitis.  What should I expect from a functional medicine doctor?
    • Omg just saw this again, but on Facebook. Wow there are 596 comments on it, most of which are completely crazy. I almost forgot that most people know nothing about celiac disease., yet they pretend they do and shame us.
    • I used to completely flip out on gluten. I would pick a fight with my loved ones. I would know I was doing it but be unable to stop. I think it was my first symptom something was wrong with me. Only way to deal with it for myself was to not ingest gluten, as even as an adult, I could not control it. That said, it was particular types of gluten, such as anything pepperidge farm brand and certain others. I sure don't miss that.
  • Upcoming Events