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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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kimberleyshort

Foot Numbness

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I was dx'd several years ago but I have a new symptom that might be related? Does anyone ever get any numbness or tingling in their feet? I read that some celiacs do get neuropathy.

Thanks!

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All the time. I have been checked for MS twice. They are now checking for rhuematoid arthritis and myositis.

Any more I don't know what to think. I know I have nerve damage other than that, who knows. Sorry I can't be more help.

-Laurie

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All the time. I have been checked for MS twice. They are now checking for rhuematoid arthritis and myositis.

Any more I don't know what to think. I know I have nerve damage other than that, who knows. Sorry I can't be more help.

-Laurie

thanks! It does help to know that others have the same symptoms.

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There is a condition associated with autoimmune diseases call Raynaud's Syndrome. (not sure of the correct spelling) and it the numbing of feet, toes and finger tips. They get numb and cold and when the circulation begins again there is a burning feeling.

Many people here on the forum suffer from this. I am sure that they will contribute soon.

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Raynauds is different, I have both. Raynauds generally deals with the cold, your fingers or toes get very cold, then change colors, mine get white on the tips, then they start to burn--you must be careful to keep your feet warm enough and gloves n your hands when in the cold.....Now numbness in your feet and/or tingling, burning--that may be neuropathy. Many celiacs get this after years of being ill--generally a B12 deficiency caused by our malabsorption problems. In the beginning, mine started out in my hands and wrist--the doctor diagnosed carpal tunnel, then my toes started going numb and he told me the toes and the fingers have the same nerve running through the body. Now my feet buzz or just ache. My shoulders and neck get this pinched nerve feeling quite often. The last few days I have had this cold spot in my left knee. Just all of a sudden, I feel like there is a draft on my knee, yet the only place I feel the draft is that one spot on one knee. Checkout this: http://brain.hastypastry.net/forums/forumd...rune=&f=219 and read about neuropathy, many new people will post their feelings and maybe you will read how you feel too. Hope this helps! Feel free to email me with more questions.

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Deb, thanks for posting....I knew a little, but not much. :)

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Hello Everyone,

I'm new here. I just found out on Tuesday that my blood test was positive for Celiac disease. I have what I'd call "dulled sensations" on my right side of my body. Arm, leg, torso and even my face all have spots that I cannot feel sensations like I should. I also drag my right leg behind me sometimes, because it is hard to walk. But that comes and goes.

I have had 3 MRIs, an EMG (I think that is what it is called), tons of blood work, a muscle test, gone to two neurologists and one spinal cord specialist. All of them said that there was no explaination for my symptoms and that I was "a healthy, young woman." It was only after getting my test results that it could be linked to Celiac. I'm so happy that I'm not crazy.

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i had one finger that would go numb for no apparent reason, but it hasn't happened since i have been gluten free. don't know that i can attribute it to full blown neuropathy, but it might be the beginning stages.

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Hello Leann

Just found out 3 weeks ago that my 10 year old daughter has celiac disease. She often complained of tingling in her legs before she found out she had celiac disease now she is on a gluten free diet and have not herd her complain. Hang in there and good luck.

Lynn21

Hello Everyone,

I'm new here. I just found out on Tuesday that my blood test was positive for Celiac disease. I have what I'd call "dulled sensations" on my right side of my body. Arm, leg, torso and even my face all have spots that I cannot feel sensations like I should. I also drag my right leg behind me sometimes, because it is hard to walk. But that comes and goes.

I have had 3 MRIs, an EMG (I think that is what it is called), tons of blood work, a muscle test, gone to two neurologists and one spinal cord specialist. All of them said that there was no explaination for my symptoms and that I was "a healthy, young woman." It was only after getting my test results that it could be linked to Celiac. I'm so happy that I'm not crazy.

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I notice that the more wheat products I eat in one meal, the more my limbs tingle.

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Hey! I'm not sure if it's related but I got a "no way" moment out of this thread. I'm getting used to that feeling around here, though.

When my intolerance got so bad that my body wasn't fighting off infections and I was hospitalized after I had surgery to remove an abscess my body had walled off I got the strangest sensation. My right foot felt kind of numb and when I would get upset or surprised, even mentally, even at the smallest level, it would feel hot. It persisted like this for a few weeks after I was released and then slowly faded away. At the time I assumed the surgeon had hit a nerve and it was being repaired. But the phrase "Stop it, you're making my foot hot!" has persisted in my group of friends as an inside joke. Very, very occasionally I get a milder, similar sensation again. I haven't had it for months and I assume it's gone. But that's interesting. I wonder if it's related?

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Husband got this several months after going gluten-free and still has it. It encompasses the leg too and neurologist can't find cause (diabetes ruled out).....apparently he just has to live with it.

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I was dx'd several years ago but I have a new symptom that might be related? Does anyone ever get any numbness or tingling in their feet? I read that some celiacs do get neuropathy.

Thanks!

It’s strange this should come up, although it might not be related to Celiac, I have had a problem with my feet.

I get a burning pain in my feet when I am not feeling well or if under stress, it was also a joke with my family and friends, because my kids would tell me when ever I spend over $5.00 for something my feet hurt. And that’s when I realized that it did happen when I was under some sort of stress. I went to the doctor and they did tests and called it unexplained pain. I don’t notice it as much being Gluten free, also if I am constipated it starts to be more noticeable.

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I had a lot of these things prior to diagnosis. I had an altered feeling in my left arm--somewhere between numb and asleep. Also, numbness in my face and tingling pins and needles feelings in my lower legs. I would get a burning sensation on the bottoms of my feet and in my mouth. Sometimes, my whole face would get hot, and my skin would be beet red.

A lot of this improved post gluten-free. Some of it, like the facial numbness, and occasional foot dragging I'm afraid is permanent. :(

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Oh yah I have not been officially diagnosed yet, but I guarantee I have this disease. I have had B12 deficiancy FOREVER and have even had monthy shots that did nothing to help it. I also have had all the tests and MRI's and they all come back normal. The numbness, coldness and tingling in my lower foot and leg have gotten so bad lately that I threatened to have my leg amputated because a prosthesis would be so much easier to live with!! I know that sounds harsh but if you've ever had a full blown attack of this you would know that ANYTHING is better then that cold, numb, constant ache and pain!! I just can NOT believe I stumbled onto this disease while I was looking up my other "misdiagnosed" intestinal disease and realized that my daughter also has it!! When I stop eating for a few days (which I have done for years because I just feel better when I don't eat) then all of my symptoms disappear!! I have also been on the low carb diet before (but I always chose completely NO CARB) and I feel better on that diet then any other diet I've ever been on. Now that I know I have this disease I know exactly why I feel so good on the low carb diet!! I hear they have meds to help with the cold, numb pain in your legs and arms that comes with Celiac Disease, so I'm definitely going to be looking that up if the gluten free diet doesn't completely cure it!! Good Luck!!

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