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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Happycat

Blood Test Results?

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Hi Everyone, any input would be helpful. IGA serum 54, normal is 81-463 mg/dL, the doctor said he is IgA deficient. His IgG is 115 --Weak positive is 20-30, strong positive is >30. His biopsy on 7/26 was negative. I have sent all his results to Dr. Peter Green at Columbia University Hospital. His symptoms (4 1/2 years) are reflux with damage to his esophagus, gas, constant burping (Soooo embarrassed by this) vomiting occasionally. He also has horrible allergies!!! Allergic to everything. The gastro found his esophagus coated with a substance, we think is postnasal drip. He said he has never seen this before. He is now on new meds for allergies. The ENT he went to thinks it's a very good possibility he has Celiac. We did allergy shots when he was younger but after some time he just couldn't take them anymore. His arm would swell up in huge welts so we stopped them. He also has an essential hand tremor and has the antibodies for Hashimotos thyroid disease. I have 4 sons. Joe (19) is the oldest and I think it is very possible I have it and my other sons might as well. They have autoimmune diseases also like me. Vitiligo and hashimotos and I also had alopecea but that cleared 6 months after I started synthroid. I also have IBS and 2 of my other sons also have very sensitive stomachs. (The runs alot) I know I rambled, SORRY!

Thanks,

Lisa

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Hi Lisa, welcome to the forum!

Well, it certainly sounds like your son has a reaction to gluten taking place. You're doing the right thing by searching out answers. Have you been tested? Truly, I think that anyone who walks into a doctor's office with gastro-intestinal issues should be tested for celiac.... especially those with auto-immune pre-disposition. Sounds like you have a very supportive & knowledgeable doctor.

You'll find a lot of helpful information in past posts and through the Celiac.com Site Index & Question & Answer sections too.

Good luck with everything and keep us posted!

Gretchen

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Thank you Gretchen, I just want to get my son's results and I think we will all be tested. This message board is GREAT! I have learned so much and the people are so very kind and helpful!

Lisa

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    • Gemma......if you are ever in London, please check out this place.  It is a 100% gluten free bakery and the food is out of this world!  I can't get bread like this in the States and it certainly is worth a road trip for anyone living in the Uk, within reasonable distance from London.  It will easily satisfy all of your bakery cravings and I bet the bread freezes well. http://www.beyondbread.co.uk/
    • Celiac disease can be dormant for years til a strain/stress to the immune system makes it come out. Many of us have had this issues, your infection run in might have triggered the dormant genes for the disease if you had them. I would follow up with the testing, see about getting a full celiac blood panel if you can, you have to be eating gluten for 12 weeks daily prior to testing. http://www.cureceliacdisease.org/screening/

        If not celiac it could be another food intolerance/sensitivity I suggest keeping a food diary and tracking what you eat, seasonings, how it is cooked etc. And how you feel later. Change up our diet more and look for patterns.  Here is stuff to read up on. https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Yeah , i will look into getting tested - like you say there is no harm in it . What I found very interesting is the part where you say "Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflamed tissues pressing on nerves." - I also started to get chronic sciatic nerve pain on the right side over a similar time period and am wondering if its the same kind of thing. If I could solve both those things it would be life changing for me
    • Hi ,  i was thinking that an intolerance and allergy were about the same thing really but sorry if im wrong. I know celiac is an autoimmune disease but was thinking that is different again, more serious and was erring on the side of my possible issue not being that but more of the intolerance type. Clearly im just guessing though and dont know about this stuff , hence the posting for advice, The problem with trying to get tested is that in bolivia there are very limited tests and doctors are unreliable so you have to rely on yourself to certain degree. I have heard of a test here and was planning on looking into that but it made sense to try to get some opinions and advice online first so Im in a better position to understand if any tests here are actually reliable enough. I dont think there is an issue with travel parasites etc as I have already taken the medications thats would kill them like a course of albendazol and praziquantel and that was after a 2 week anti parasite cleanse. That did feel like it got rid of anything and the only issue I have been left with is this pain as described.
    • Karen's point about parasites etc is a good one. They can cause a lot of symptoms similar to celiac /ncgs as you probably know.  At 11 I had my appendix removed following pain in the lower right side of my torso. On waking up the surgeon told me that it was actually ok, when I asked what caused the pain I think they said it was probably glandular - they didn't know. Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflammed tissues pressing on nerves. I would ask the Bolivian doctors if they can get any celiac blood testing done. The standard ttg may not be beyond their labs. can't hurt to ask? Give your diet my guess is you've had a lot of gluten for a long time. If its an issue for you expect a bumpy ride when removing it.  Best of luck!  
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