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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Anxieties/depression

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I too experience so many emotional troubles with gluten. I was a fairly bright talented kid and changed overnight. Of course my family hasnt liked me much since ,they think Im crazy. I developed an eating disorder got pregnant at 17......not to blame it all on gluten and allergies but my experience is that coping skills for already excisting problems are virtually not there when gluten is injested. Gastero intestinal issues came out 10 years ago, first as weight loss and d, then the opposite. I am also short at 5 feet and the rest of my family is tall. So many years of doctor hopping marriage issues and antideprssants later(which never worked) I found a doctor that listened. She took my history height and did blood work and diagnosed me celiac. Mainly on how much the diet improved me. My gastero appointment is not for another 6 months so she advised me to go gluten free anyways and forget about the biopsy, Im going anyways cause my grandma who was the only other short stature in my family died of lymphoma(interestingly enough she got sick on wheat)I can definatly tell the difference!!! It was so bad that I started to get seizure symptoms from vitamin deficiencies. I had already been low gluten and thought It was wheat that triggered the symptoms,now realize that it was gluten and casien. Has any of your family been understanding? Mine arent, I have to stay clear of most. I see that some of you are christians have you made your church your home? I have three sons,one of which is autistic and the other two my doctor is shure they have celiac, I will always try to support my kids, feeling alone is the wost part of this illness. My hubby tries his best!!! This forum is probably an excellent way to get support everyone is going through some of the same things!!EXCELLANT!!!

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someone on this thread mentioned "cheating", i am sorry, if you are really a celiac, you should NOT be cheating, it is so dangerous for you, it is like you aren't gluten-free at all, it is a big step back, and you should take care of yourself and really never "cheat" on purpose! Its like intentionally hurting your body. I'm sure someone on here could find a yummy gluten-free wing recipe for you. I didn't mean that to sound mean, I'm just worreid for you and hope your ealize how dangerous that is!!!That being said, i'm the most anxious person about gluten alive, its very hard being in college and dating and not being able to eat anything, like i'm sure you can all relate to.

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Anxiety, brain fog and depression are my first indicators that I have been glutened. I was days away from going on anti-depressants when I figured out my gluten intolerance.

St. John's Wort needs time - usually a couple of weeks - to build up in the bloodstream before it is really effective.

I've used it since before I was diagnosed, and still use it now (a lesser dose).

I also use a custom herb tincture, from a local herbalist, that includes kava kava and motherwort. I am able to use it daily as needed, and in case of an anxiety attack. I haven't had any anxiety (except for the rare glutening) since I went gluten-free.

Always check w/ your doc before adding any herbs or supplements, including SJW. And if you use SJW, check for contraindications for use with any mood/pain drugs.

I agree that a significant number of people with anxiety (and possibly depression) probably have gluten issues. Not to mention those w/ IBS, Crohn's/Colitis, chronic fatigue and fibromyalgia...

Oh yeah...and don't cheat, people. We are living gluten-free for a lot of good reasons. :)

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I ate Turkey at Thanksgiving and even though it said it was gluten free and didn't look like it had any soy I got sick from it. I tried twice to make sure. ;) I meant to call the company, but never got to it.

I am gonna try fresh Turkey next year instead. Thanks for the tip.

I have problems with anxiety when glutened/eating anything I am intolerant to. I am currently trying out egg..seems my stomach is okay with it, but I have felt "off" since I started with it. Not sure yet what I'll do.

I have had problems with anxiety and depression in my past. As I got sicker it got worse. I am sure it is related to the food.

I felt the menatl part of this has sometimes made me into some one else. I almost felt like I lost myself in all the symptoms and the fear. I felt I just feared everything in the end. I still have a long way to go to get back to my old self I feel.

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I understand the losing yourself. I have been low carb for a long time to alleviate the symptoms, didnt realize it was the gluten though low carb is low gluten. My anxiety and depression gets really bad with gluten, but at the time I thought it was candida and atributed it to too many carbs. Now that I realize the problem, wow much better. Of course when you are pregnant you deffinatly cant go low carb! So svere symptoms come back. I thought it was the pregnancy, then breast feeding you cant go low carb and I breastfed for a year, not prgnant anymore hmmm. My new doctor figured it out right away. Attempted to do a gluten challenge, wow big disaster. Never again, the depression and anxiety got so bad !!! Then I took away all gluten wow!! By that time I was so scared of food ! THe other symptoms fatigue, muscle pain tummy probs in my opinion pale in comparison to the emotional. Isnt it amazing that taking away a couple of things in your diet can make such a difference?Life is good( I also reccomend doing an food intolerance test, its cost about 400 dollars fro 100 foods, Im in canada so I sent it out.Ususally your insurance company will reimburse. I known the pain for so long and figured out the reliefe. I will never injest gluten on purpose again!!!!

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I am one who gets anxiety and, to a lesser degree, depression from gluten.

Before I was gluten-free, (I was sick, but undiagnosed for 20 years) I would get panic attacks out of nowhere. These almost always occured at restaruants.(!)

It's gotten somewhat better--I've been gluten-free for a year and a half. I still get anxiety and feel very sad and even paranoid when glutened.

I did try an antidepressant, but the side effects were too much. I'm holding off on trying another--I may try St. John's Wort first.

Try Wellbutrin XL 300mg per day. Works like a charm for the depression and anxiety. Tricylics and other antidepresants will cause you to gain weight and will quite working in about 3 months so you have to keep getting more and more and more. so not use St John's Wort if you have other autoimmune conditions as this supplement may interact. do your research carefully. Hope this helps!

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I know the turkey question is an old one, but wanted to add something... We use a baking bag when we cook turkey or sometimes big chicken. It cuts down on the time. When you do this, or even if you don't, it is customary for us to put a couple of tbls. of flour in the bag. Also, some may add flour wtih salt and pepper to skin. So, when eating out, you'd have to worry about the injected stuff or if flour was used. Just occurred to me I made a delicious soup with Turkey frozen from my pre DX days (DX only one month). Just realized, I can't eat the darn thing. :( . Thanks for all the info. on anxiety, I will keep reading this forum, just started but it is helpful, all these things that you experienced but didn't tell or just thought it was me and I was crazy. Feel better all ready, although need to lose weight. Will follow some advice, more pure food. I find I am eating more lactose free milk, and my pizza is good, but this is probably why weight is up not down. Thanks. Maeve

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I too experience so many emotional troubles with gluten. I was a fairly bright talented kid and changed overnight. Of course my family hasnt liked me much since ,they think Im crazy. I developed an eating disorder got pregnant at 17......not to blame it all on gluten and allergies but my experience is that coping skills for already excisting problems are virtually not there when gluten is injested. Gastero intestinal issues came out 10 years ago, first as weight loss and d, then the opposite. I am also short at 5 feet and the rest of my family is tall. So many years of doctor hopping marriage issues and antideprssants later(which never worked) I found a doctor that listened. She took my history height and did blood work and diagnosed me celiac. Mainly on how much the diet improved me. My gastero appointment is not for another 6 months so she advised me to go gluten free anyways and forget about the biopsy, Im going anyways cause my grandma who was the only other short stature in my family died of lymphoma(interestingly enough she got sick on wheat)I can definatly tell the difference!!! It was so bad that I started to get seizure symptoms from vitamin deficiencies. I had already been low gluten and thought It was wheat that triggered the symptoms,now realize that it was gluten and casien. Has any of your family been understanding? Mine arent, I have to stay clear of most. I see that some of you are christians have you made your church your home? I have three sons,one of which is autistic and the other two my doctor is shure they have celiac, I will always try to support my kids, feeling alone is the wost part of this illness. My hubby tries his best!!! This forum is probably an excellent way to get support everyone is going through some of the same things!!EXCELLANT!!!

Hi Natural Momma! I've been learning alot about celiac in the past few months and finding that I feel much better off of gluten as well. I know have more energy and don't seem as depressive as before. I've also got nut, milk and egg allergy... so learning to cook properly has been a lot of fun... actually. Very creative! :D Naturalmomma, do you know of a support group, or Celiac Association in Chilliwack? Please let me know Miki S

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    • Apologies for my over-reaction.  As the shampoo exposure was only for a couple week or so, I doubt any lab tests would have indicated exposure. Unfortunately, since I didn't have the antibodies, I can only rely on my symptoms to tell me if I've been exposed. I'm fortunate enough that eliminating gluten (and dairy) from my diet completely fixed my problems. I have had no lingering systems, and now that I have been gluten free for a while, when I do get gluten I have a very clear reaction (and a distinct reaction to dairy) that follows a fairly predictable timeline. This has accidentally been tested a couple of times. For example, early on before I was better at reading labels I grabbed some cookies at the grocery store that I thought were gluten free (the company produces both a normal and gluten-free version, and this was before I learned to avoid shared facilities). I had grabbed the wrong bag but I didn't figure it out until about a week of feeling crappy had passed and I went searching for a culprit. Things like this have happened a couple of times, where I accidentally did a blinded experiment on myself. The symptoms are consistent, and resolve once I remove the offending item. So when I recognized my symptoms as the result of gluten, I went looking for a culprit and I found the shampoo and conditioner. I removed them and then I got better.  My problems are largely systemic. I wouldn't be surprised if I don't actually have celiac but some other immune mediated reaction that hasn't been defined, but calling it celiac is the best way to get people to take my needs seriously (which I'm sure you understand). Unfortunately, my problems don't seem to fit into any particular diagnostic bucket, so I've learned not to rely on the official medical terms and just go with what works. I'm lucky to have had doctors who think the same way, else they might have told me that I didn't need to go gluten free once I failed to show clear-cut celiac. Maybe I'm pre-celiac, maybe it's the much maligned NCGS, or it's all related to leaky gut (I am eagerly awaiting the FDA approval of larazotide so that I can get a doctor to give me some, I think it might do me a lot of good). All I know is that when I went gluten and dairy free it literally changed my life.  In general it seems that gluten exposure causes a generalized inflammatory response. I get some inflammation in my gut that manifests as reflux, acid indigestion (what I call "fake hunger"), and a little bit of urgency and unpredictability with regards to bathroom needs, but if that were the only problem, I think I could live with it. I also get headaches, brain fog, my depression/anxiety gets triggered to a scary degree, arthritis, muscle aches, and then, the clincher, muscles spasms in my upper back and neck that have been known to lay me out for a couple of days while I wait for the muscle relaxants to help me heal. The muscle spasms, arthritis and brain fog are the most recognizable and are usually what cue me in that I got glutened, especially the spasms.  Again, sorry for being oversensitive. I should have known better, since this is such a supportive community.  
    • I appreciate your point. However, constancy of my celiac symptoms indicates that I have had the disease for at least three years - while I have never experienced any food allergies in that time. Although I will keep an eye on any emerging allergies, I believe my current fatigue is due to nutritional deficiency, because the only exogenous change in my life style has been the transition to gluten free diet.   Yes, I certainly need to keep a food diary. Thanks again for the advice.
    • In many cases no.....I consume heavy magnesium foods like pumpkin seeds, cocoa nibs etc....and still need 2-3x the dose of magnesium recommendations. Going on more of what poster boy said. You dose magnesium to tolerance with citrate like Natural Vitality Calm you start off small partial doses and slow ramp up....it can hit you hard causing gas and D if you go to quick into it. You dose citrate to tolerance meaning you slowly up your dose til you get loose stools...then back down a bit. You should have vivid dreams with a good dosing....also if it becomes to harsh or you can not handle citrate there is Doctors Best Glycinate...it does not have the gut effects at all...but the dreams and how much it makes you relax is more more felt.   ...with this disease you can have a food intolerance or allergy crop up out of the blue....like no where. You have a autoimmune disease....celiac it effects your immune system and can make it really wonky. Like it seems to always be on guard like a sleep deprived sentry on stim packs...jumps at everything and shoots it. If you get sick, eat something odd or harsh you system might red flag it as a issue for awhile and go bonkers....keep a food diary and try a food rotation in the mean time...OH as a example to this, I was fine with chia seeds last week...I got a cold over the weekend....same bag, same brand same way....withing 30mins I now puke if I eat them...new intolerance.....I also am finding jalapenos/paprika making it sleepy tired....so I am removing them both for a few months from my diet and changing to other sources for fats/fiber and vitamin A/C til I get over that issue.....these things just happen. https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Hi Isabel, Your body needs nutrients to grow.  Nutrients not absorbed well when we have celiac disease damage in our guts.   But, if you do a good job of avoiding gluten, the gut damage should heal and you will be able to absorb nutrients again. The thing to remember is celiac disease is an immune system reaction.  Immune reactions are very sensitive and just a tiny amount of gluten can get them going.   And they can last for months.  So it;s very important to avoid all gluten all the time, to keep the immune reaction down.  Keeping the immune reaction down keeps the damage down, and the healing can keep up. You may start to grow more if you can absorb nutrients better.  Some extra vitamin pills might be a good idea.  Your doctor should know.  
    • Thank you Gail for your response. Of course one should be mindful of the possibility of food allergies but I don't think that's the case with my current situations. Save for gluten containing product, everything I eat now I used to eat before with no reaction whatsoever. I think my issue is more likely to be deficiency in minerals and such.
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