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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Marshall Protocol?
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I have visited a site recently where a poster asked if the Marshall protocol could cure celiac disease. Someone suggested it could. I am stunned. Is this a fact? I am having a difficult time understanding what exactly the marshall protocol is. How can it cure celiac disease?

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This protocol is used for treatment of Lyme Disease or conditions with similar symptoms.

No...it does not cure Celiac. There is no cure for Celiac Disease. The only effective treatment is a gluten-free diet.

WHAT IS THE MARSHALL PROTOCOL?

The Marshall Protocol was developed by Trevor Marshall, PhD, in 2002 to treat certain diseases that involve Th1 immune system dysfunction.

Dr. Marshall's papers describe how numerous Th1 diseases such as sarcoidosis, Lyme disease, chronic fatigue syndrome, fibromyalgia, lupus and rheumatoid arthritis (among others) are caused by cell wall deficient bacteria of various species.

These bacteris are able to hide safely inside phagocytes (large white blood cells in the body's immune system which are designed to engulf and digest foreign invaders) instead of being "digested" (killed) by the phagocytic cells that ingested them.

Detection of inflammation caused by these bacteria is accomplished with two basic blood tests....the D metabolites

1,25 dihydroxyvitamin-D and 25 hydroxyvitamin-D.

An essential part of the Marshall Protocol is avoidance foods and Vitamin supplements containing vitamin D to reduce the level of this hormone which suppresses the immune system.

It may be necessary for many people, but not all, to avoid exposure to sunlight and bright lights.

A key part of the protocol is the establishment of an inflammatory blockade of the hormone Angiotensin II with an Angiotensin Receptor Blocker (ARB), Benicar (olmesartan medoxomil).

The protocol also includes the introduction of carefully, selected low dose antibiotics in a pulsed schedule.

A "non-Celiac" gluten intolerance or other food intolerances *caused* by a bacteria infection such as Lyme and other infections related to Lyme may be resolved with treatment.

Even though Celiac may be *triggered* by an infection such as Lyme....once it is triggered....it cannot be reversed. A life-long gluten-free diet is the only answer.

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I am stunned. Are they suggesting that ra and lupus are symptoms of a bacterial infection!? Are they suggesting that lupus and ra and other rheumatic diseases can be cured by killing an infection? So, that would mean "auto immune" is not accurate. Like the hpylori bacteria for ulcers. I am so shocked. Is this right?

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there's long been a theory that RA requires an infectious trigger, though there seems to be a genetic component. I can't speak to the specifics of what's mentioned here, as I don't keep up on RA research (ought to, though... runs in the family), but many autoimmune conditions are thought to be cases where the immune systems attack on its host body (the autoimmune part) is triggered by an infection, though identifying the infection (as of the last time I looked into it years and years ago) had proved very elusive.

who's got some research links?! :)

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I am stunned. Are they suggesting that ra and lupus are symptoms of a bacterial infection!? Are they suggesting that lupus and ra and other rheumatic diseases can be cured by killing an infection? So, that would mean "auto immune" is not accurate. Like the hpylori bacteria for ulcers. I am so shocked. Is this right?

Yes, its true in many cases.....but not in EVERY case. I think there is still alot they dont know.

Alot of people are misdiagnosed with MS, RA, Fibromyalgia, Chronic Fatigue Syndrome, etc....when they actually have Lyme Disease. Lyme is a bacteria and the symptoms can mimick any one of these conditions.....it manifests itself differently in each patient.

I know of teenagers who are crippled with Fibro. symptoms or RA. It doesnt make sense to me that people this young just wake up one day with symptoms so severe and crippling. In my opinion it is Lyme Disease and these unfortunate individuals may suffer their entire lives with a condition they dont have to be living with.

Lyme was first identified in 1975 when a bunch of kids in Lyme Coneccticut came down with "Juvenile Rheumatoid Arthritis". This is when the bacteria was discovered to be the culprit.

Here is a link to some studies that were done on geographic similarities between MS and Lyme.

There are 2 maps...one map shows locations of deaths caused by MS...the other map shows locations of deaths caused by Lyme Disease. The maps are nearly identical.

http://www.canlyme.com/megan_geostatistical_analysis2.html

Some of those who worked with Steiner in the United States as well as other researchers hypothesize that MS and Lyme might be either: 1) the same disease; or 2) different diseases caused by two different spirochetes carried by the same arthropod vector
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there's long been a theory that RA requires an infectious trigger, though there seems to be a genetic component.

Yes, I think there is also a genetic component for sure. I will use Lyme as my example since its the bacteria I'm most familiar with. Lyme shows itself differently in each individual. Some have severe neurological symptoms...even showing white matter lesions on the brain. They get a diagnosis of MS and of course the Lyme goes undiagnosed. Some have severe joint pain and may get diagnosed with Fibro or RA. Some who have severe digestive problems will get the standard IBS diagnosis. Some may have debilitating fatigue and get diagnosed with CFS. The list goes on and on.

I think because of the fact that Lyme affects each person differently and can mimick so many diseases there has to be a genetic factor that determines where an individual will be most affected by the bacteria...and those symptoms will be more prominent.

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hawkfire,

like rachel and tiffany have said, yes, Lyme can be a part of 'some' autoimmune disorders. The oversimplified view of autoimmune disorders (in general) is that it takes (and it depends on the disorder, which steps are more 'important):

genes/genetic predisposition + trigger = (in some cases) an autoimmune disorder

For Celiac, it is:

genes (which are mainly identified, but not 100%) + ingestion of gluten + trigger = (in some cases, apparently 1 in 133!!) Celiac

The trigger isn't always "there" as some people are born with these conditions...unless it has something to do with development in the womb...versus others who "get" Celiac in their adult years.

The trigger for all autoimmune disorders has been hypothesized to be various things, including bacterial and viral infections, pregnancy, severe stress or trauma (not just run of the mill every day stress, although it *can* exacerbate symptoms), etc.

These infections can hypothetically include things like mono or Lyme, or a myriad of other infections, some of which we may never know we had because they don't present with strong symptoms.

At best, MP is a somewhat controversial treatment for Lyme (although, it has worked for some!) but it is not a cure for Celiac, as Rachel mentioned.

At this point, the only treatment for Celiac is a 100% gluten free diet. There is research related to closing the tight junctions in the small intestine (which in Celiacs, are believed to be not quite as "tight" as they should, which allows gluten to pass the barrier cells that it shouldn't, which then triggers antibodies and sets off the reaction)...but there is no cure.

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I am not understanding it the same way. It seems to me that a new idea about "auto immune diseases" has come about. That "diseases" such as ra, lupus, fibromyalgia, cfs and more are actually all the same disease presenting in a variety of ways. Sort of like Celiac with it's many, many, many possible symptoms. So, what you have is a "bug" that gets in due to a leaky gut, invades the body and presents with a myriad of symptoms. All are treatable with either MP or AP. A bug is the cause, not "auto immune" dysfunction. The doctors have been hiding behind this strange title for decades and now it is apparent that a bug is the cause of all this suffering. No remicade, no enbrel, no plaqueinel will "cure" this. Only mask symptoms becasue the bug continues to live on. I am convinced this is the right track. I have begun AP for my continuing joint pain. I will let you know if it finally resolves. I am sure it will be. This makes sense. This also shows how truely corrupt the drug companies are. I am sure my joint pain is caused by a bug.

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I'm not so sure that's the correct interpretation of this. It's more like: The bacterial (or viral) infection turns on a process. Once turned on, the process can't be turned off. Removing the infectious cause may help slow down the process (as in Lyme), or the infection may have already been cleared up, but the body is stuck with the new situation (the current hypothesis for SLE).

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I'm not so sure that's the correct interpretation of this. It's more like: The bacterial (or viral) infection turns on a process. Once turned on, the process can't be turned off. Removing the infectious cause may help slow down the process (as in lupus), or the infection may have already been cleared up, but the body is stuck with the new situation (the current hypothesis for SLE).

If that were true, the "turning on" of celiac disease would mean the atrophy would continue. What is so "auto immune" about your body not agreeing with a protein? That is not auto immune. The auto immune theory is so clearly not understood by the doctors who claim it is what is going on, that in the same breath, they deny all accountablity to the definition by declaring they know nothing about auto immune disease and cannot test for and identify nor rule out with testing... just subjectively declare an auto immune disease that has aspects of your complaints. It's all so muddled and not at all scientific. It's the big mystery... all "auto immune" diseases are the big mystery in the medical world. It's about time they actually did somthing more than creating a new pill that will kill millions before being pulled. I will let you know if my joint pains are finally relieved by taking this minocycline. I am convinced from what I've been reading that this is where the "cures" are for so called auto immune diseaess. Think of those in medicine before viruses and bacterias were discovered. The government would behead you for claiming that tiny invisiable bugs caused your sickness. The world laughed it off. Now, I believe some have figured it out. There are other types of bugs causing these auto immune diseases. A leaky gut, Celiac maybe, helps it along and you end up with lupus, ra, chrons, fibro, cfs... it is right there in front of us. But the drug companies do not want you to look at this. And they are scrambling now to keep it secret. I will keep you posted about my antibiotic protocol. I believe it is going to work.

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I'm not so sure that's the correct interpretation of this. It's more like: The bacterial (or viral) infection turns on a process. Once turned on, the process can't be turned off. Removing the infectious cause may help slow down the process (as in lupus), or the infection may have already been cleared up, but the body is stuck with the new situation (the current hypothesis for SLE).

Yes....this is more of a correct interpretation. The auto immune response is real and can be a direct consequence of the bacteria or viral infection. *Some* diseases are actually symptoms of the infection....as is often the case with undiagnosed Lyme. A misdiagnosis of RA or MS can occur because symptoms of Lyme mimick these diseases. In these cases symptoms would improve with a correct diagnosis and treatment of the infection.

Other diseases, such as Celiac, can be "triggered" by the bacteria infection but treatment of the infection will not halt the auto-immune response that has already been triggered.

I believe that "conditions" such as CFS or Fibro....are actually diagnoses that fall into the same category as IBS. They are symptoms of disease but the doctor doesnt know what is causing them and you get stuck with one of these labels.....for which there is no real cure.

MOST people with chronic or late stage Lyme Disease were initially incorrectly diagnosed with one or more of these conditions....Fibro, CFS, MS, RA, depression, etc. These were FALSE diagnoses.....meaning that the symptoms of these diseases or conditions were resolved with appropraite treatment of Lyme disease and/or other infections.

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MOST people with chronic or late stage Lyme Disease were initially incorrectly diagnosed with one or more of these conditions....Fibro, CFS, MS, RA, depression, etc. These were FALSE diagnoses.....meaning that the symptoms of these diseases or conditions were resolved with appropraite treatment of Lyme disease and/or other infections.

Maybe someday they'll figure out that these are symptoms for many things, not diseases in and of themselves.

And I meant "Lyme", not "lupus" in that first post.

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This is what I am trying to say. There is no lupus or ra or fibromyalgia or cfs. They are all symptoms. I believe they are all symptoms of an infection. Just like the hundreds of symptoms of celiac are not the disease. They are symptoms. I believe there is no ra. I believe there is no lupus or fibro or cfs or ibs or chrons. These are symptoms of an infection or chronic inflamation caused by an infection. I belive the minocycline/or the other tetracyclines act as slow destroyers of the bug. Has anyone read the book the new arthristis breakthrough? It is amazing. I also believe also that mp is the way to go as well. Take your choice of therapies. There is a new australian study that is shockingly pointed in showing that mp is a virtual cure for fibro and cfs. They say also it will cure ra. In the us, no one wants to hear it. No one wants to hear those annoying australians when they tell the US that there is a bug called hpylioi causing heartburn! IT's been more than two decades and still american docotrs do not have common knowledge of hyplori. Or they are so corrupt as to want to make money selling more prescription drugs for heartburn. It is a crime./ american medicine used to be the best. When there was a desire to cure. Now there is a desiere for money and to treat symptoms but never to cure. That would be the end of the money.

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I disagree. There are clearly defined antibodies, that the immune system generates, that are directed at the body. THAT is the definition of "autoimmune disease". The question is what causes the body's immune system to create seriologically identifiable, unique (such as tTg in the case of celiac) antibodies which attack itself (which is something that is usually prevented, chemically). In the case of celiac, it's gluten, but it's still an autoimmune condition. That level of it doesn't seem very mysterious to me.

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If doctors and pharmaceutical companies are so completely corrupt, how come I was diagnosed with an autoimmune condition that requires nothing more than avoiding gluten? No medications, no surgery. And going gluten-free took me from near death back to good health?

I wish you good luck in your quest and I hope you are cured, but I have my doubts. And I don't mind trying some thing myself, like the glucosamine I'm trying for osteo in my knees.

richard

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I disagree. There are clearly defined antibodies, that the immune system generates, that are directed at the body. THAT is the definition of "autoimmune disease". The question is what causes the body's immune system to create seriologically identifiable, unique (such as tTg in the case of celiac) antibodies which attack itself (which is something that is usually prevented, chemically). In the case of celiac, it's gluten, but it's still an autoimmune condition. That level of it doesn't seem very mysterious to me.

Do not forget the sero negative folks. And there is no test for these many auto immune diseases. It becomes a guessing game after all tests are run. Well, it looks mostly like Ra, or it looks more like fibro than ra, or it looks more like lupus, or it looks like whatever. And... "we don't understand why the immune system attacks itself...."" Blah blah blah. It's an infection that it's trying to kill!!! Look into antibiotic protocol and Marshall protocols. There are excellent bit of information out there. I was on a site called road back .org and it convinced me to use ap. I am not a poster there but I look and read. I am waiting to see if the medicine will work for my ongoing joint pain. No tests indicate a likely cause. It is a mystery to the doctors though they have called it evertying from ra to depression to fibromyalgia to chronic fatigue to stress and reactive arthritis and whatever. But I know what it feels like. It hurts and it is something alive in me. It is not simply my body attacking itself. It is an organism with an agenda to eat my joints alive. My body is trying to protect itself. I will let you know how the ap works. I am thinking it may take some months to see an improvement but it may be sooner since I am not as sick as some on the road back website and they had relief quickly.

If doctors and pharmaceutical companies are so completely corrupt, how come I was diagnosed with an autoimmune condition that requires nothing more than avoiding gluten? No medications, no surgery. And going gluten-free took me from near death back to good health?

I wish you good luck in your quest and I hope you are cured, but I have my doubts. And I don't mind trying some thing myself, like the glucosamine I'm trying for osteo in my knees.

richard

They are doing everthing to pitch their enzymes to the celiacs. They will have to do something when they loose all the revenue from the ibs, heartburn, etc pills. It is going to cost them as more are dxed with celiac disease. The cat is out of the bag. People are finally learning what should have been mainstream knowledge long ago. It is shameful that it takes so long in america. The worst medicine in the developed world.

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Please, please, please let us know how it goes! I stumbled across this information in my hours of research that seem to fill the time when I am feeling ill. I have seen this treatment being used - and successfully for RA, I am not sure which others.

Within the past month specialists have played with the diagnoses of Lupus, RA, IgG Immune Deficieny, Cystic Fibrosis, Celiac, etc.

I just think my immune system is trying to fight something. It builds up strength, I think, and tries to kill something and my joints just seem to get in the way - or my immune system gets confused about which tissues/cells are the enemy.

I wonder how it will impact celiac! It is good to be realistic, but with modern medicine and advances, why not be optimistic?

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I disagree. There are clearly defined antibodies, that the immune system generates, that are directed at the body. THAT is the definition of "autoimmune disease".

I agree with Tiffany. They CAN identify auto-immune reactions that are occurring within the body. Something has gone wrong somewhere to *cause* this type of response from the immune system but it doesnt change the fact that in the case of auto-immune disease....the immune sytem is attacking the body. Sometimes this auto-immune response may cease when the *cause* is found and treated but this is not always the case.....as is seen in Celiac Disease. The immune sytem will continue to produce anti-gliadin antibodies in the presence of gluten.

I do believe that auto-immune disease is caused by infection.

Hawkfire....there is no ONE protocol that works for everyone. I hope that the MP will help you.....but understand that there are MANY protocols out there and they dont work for everyone. Not all bacteria or infectious agents will respond to a certain treatment. If you dont know *what* you are trying to kill...the treatment or protocol you try may not be the correct one.

And... "we don't understand why the immune system attacks itself...."" Blah blah blah. It's an infection that it's trying to kill!!!

Hawkfire....I agree 100%.

I've been learning about Bb....the bacteria which causes lyme. It is a very "smart" bacteria. It can hide from the immune system and disguise itself to where it can evade the immune system and also antibiotic treatments.

Because this microbe can change it's form or shape, it is very adept at avoiding detection by the body's immune system and antibody testing.

The Lyme microbe can change its structure and can also cloak itself to hide from the immune system. Dr. Horowitz made it clear that very few "chronic" Lyme patients test positive on the Western Blot and in fact the actual percentage who test positive may only be 1%.

When there is an infection like Lyme present and the immune system is not actively fighting it...or even producing enough antibodies for the infection to be found through testing...there are going to be alot of things going on within the body. Not only will you have Lyme but your weakened immune system will not be able to fight off *other* pathogens. Those with chronic Lyme do not end up with only ONE infection. This is essentially what happened to me....

He spoke about the many factors which contribute to the whole chronic Lyme Disease scenario: environmental toxins, neurotoxins, poor diet and co-infections which all pile on top of each other to form the total chronic Lyme picture. He told us of the over 100 strains of Bb in the United States and the over 300 strains worldwide. Only several of these strains are currently being tested for, and this is one of the obvious explanations for the lack of proper treatment, or any treatment at all. It is becoming more and more apparent that many of these chronic or so called autoimmune diseases do have an infectious cause ...or several infectious causes.

I believe that with SO much going on....keeping the immune system busy and overwhelmed its no wonder that it will eventually become confused and over-active.....possibly leading to auto-immune responses. Its trying to PROTECT us. If there is a bacteria as tricky as Lyme wreaking havoc and deceiving the immune system day after day, month after month, year after year, .....its really no wonder.

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"There are other types of bugs causing these auto immune diseases. A leaky gut, Celiac maybe, helps it along and you end up with lupus, ra, chrons, fibro, cfs... it is right there in front of us.............''. I will keep you posted about my antibiotic protocol. I believe it is going to work."

And I hope it does work for you and not give you additonal problems.

However ...

I have to chime in here with my two cents on this. I was thought at one time to have MS, I had strong symptoms of chrons, I was diagnosed with fibro and thought to also have cfs, I had severe arthritis that they thought was osteo but had many features of RA but I was neg for those antibodies. I also had more damage on my right side than my left another reason they thought osteo. I was also thought to have gotten lyme and tested more than once. I used to be an outdoorsey woods walking woman. I was a walking autoimmune nightmare. Every single symptom and syndrome I had was directly attributed to gluten poisoning. They did not all go away quickly and some of the MS type symptoms most likely never will. The brain white matter lesions that were spoken of were also found on my MRI's. If you look at some of the European research they are diagnostic of the neuro form of celiac. They differ slightly from the type of demylanating lesions found with MS but they look very similar. I personally feel people should be on the paranoid side of gluten avoidance, give themselves time to heal and wait on taking large amounts of antibiotics UNLESS they have a positive lyme titer.

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They did not all go away quickly and some of the MS type symptoms most likely never will. The brain white matter lesions that were spoken of were also found on my MRI's. If you look at some of the European research they are diagnostic of the neuro form of celiac. They differ slightly from the type of demylanating lesions found with MS but they look very similar. I personally feel people should be on the paranoid side of gluten avoidance, give themselves time to heal and wait on taking large amounts of antibiotics UNLESS they have a positive lyme titer.

I hate to say....unless you were tested by Igenix lab in CA....the results you got were not reliable. This is why MANY MANY people are left with undiagnosed Lyme...they were not tested properly. ALOT of people on the Lyme message board were falsely diagnosed with MS. These white matter lesions that are seen in MRI's are seen in Lyme patients. I'm not saying this is the case with you but just stating what I know to be true about Lyme testing.

At this point I'm not even sure if MS and Lyme are two seperate diseases. :huh:

Also the BEST and most reliable test is the Western Blot....which most Dr.'s do not order. Most cases end up incorrectly diagnosed as CFS or Fibro or some type of autoimmune disease because the Lyme tests are inadequate and rarely pick up Lyme.....even when its there.

Again...unless you were tested through Igenix and had a Dr. who really knows how to review the results...you cant be 100% sure.

As far as waiting for a positive Lyme test before starting treatment...for people who have had Lyme for many years....this day may never come. Once a person is chronically ill with Lyme for a long period of time....the immune system produces less and less antibodies. The people who are MOST ill from Lyme usually test negative.

Usually these people will not get a positive test for Lyme UNTIL they've been administered antibiotics for a few weeks or more. Killing off some of the Lyme will reactivate the immune system to once again start producing antibodies and then when the test is repeated these people will have HIGH antibodies and HIGHLY positive tests.

Lyme is tricky and it can evade the immune system....which is one reason for negative antibody tests. The other reason is that once Lyme is established there are alot of things occurring within the body. Once the immune system is under this much stress from bacteria, candida, environmental toxins, food intolerances, etc...its just not agressively fighting Lyme anymore and the antibody production may be too low to show up positive. This can CHANGE dramatically with a round or 2 of antibiotics.

Of course...this should only be done when there is reason to believe Lyme may be the cause of illness. Because of the reasons previously mentioned Lyme is a CLINICAL diagnosis....the diagnosis should NEVER be based on test results alone.

So far I've had 2 positive tests for Lyme and two negative tests for Lyme. If I hadnt used Igenix lab I'm sure I would have had no positive results. My Dr. is thorough and pursued testing because of my clinical picture. This is after 4 years and quite a few Dr.'s telling me Lyme was NOT my problem.

I had an MRI when I first got sick...they were looking for MS...based on my symtpoms. I guess if I'd had white brain matter at that time I would have been diagnosed with MS??? :huh:

I think alot of symptoms can improve on a gluten free diet.....and obviously this would be the case for someone who has full-blown Celiac....but still....there could be an underlying factor that triggered the disease to begin with.

IMO....if someone is fanatically careful with the gluten-free diet and still having symptoms...instead of accepting them as "a part of Celiac"....why not dig deeper??

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IMO....if someone is fanatically careful with the gluten-free diet and still having symptoms...instead of accepting them as "a part of Celiac"....why not dig deeper??

Just a statement worth repeating.

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"There are other types of bugs causing these auto immune diseases. A leaky gut, Celiac maybe, helps it along and you end up with lupus, ra, chrons, fibro, cfs... it is right there in front of us.............''. I will keep you posted about my antibiotic protocol. I believe it is going to work."

And I hope it does work for you and not give you additonal problems.

AP is unlikely to give me additional problems. I had a doctor who warned me that I was going to cause drug resistant bugs to invade my body, but tetracyclines do not do that . AP is usually minocycline which is given to pimply faced teenagers at twice the dose that I need to take for joint pain. AP is safe. Read the book, the new arthritis breakthrough. Go to the road back .org site. It is going to educate you if you really want to know about ap. I cannot do that . But I doubt you and others really want to know if it works. You only want to question. AP is a miracle being kept secret by the drug companies.

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"They are doing everthing to pitch their enzymes to the celiacs. They will have to do something when they loose all the revenue from the ibs, heartburn, etc pills. It is going to cost them as more are dxed with celiac disease. The cat is out of the bag. People are finally learning what should have been mainstream knowledge long ago. It is shameful that it takes so long in america. The worst medicine in the developed world."

Which enzymes? Where? I've had none pitched at me.

BTW, my heartburn did NOT go away with going gluten-free. It started long after I went gluten-free and it went away when I started exercising and lost weight. Which is EXACTLY what my doctor told me to do. No pills, lose weight. Advice from my doctor.

richard

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"They are doing everthing to pitch their enzymes to the celiacs. They will have to do something when they loose all the revenue from the ibs, heartburn, etc pills. It is going to cost them as more are dxed with celiac disease. The cat is out of the bag. People are finally learning what should have been mainstream knowledge long ago. It is shameful that it takes so long in america. The worst medicine in the developed world."

Which enzymes? Where? I've had none pitched at me.

BTW, my heartburn did NOT go away with going gluten-free. It started long after I went gluten-free and it went away when I started exercising and lost weight. Which is EXACTLY what my doctor told me to do. No pills, lose weight. Advice from my doctor.

richard

Well, richard, you have the perfect doctor experience most miss out on. Your doctor must be amazing. I learned about the new enzyme pills for celiacs here at celiac.com. BTW, you don't have to try so hard to let me know I annoy you. I get it. I will assume all my posts rub you the wrong way. No need to continue to make snarky replies. As I said, I get it.

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I am thrilled to post that that my joint pain has nearly vanished on the minocin. I'm taking 100 mg mwf of the real brand of minocine, pelletized. I am beside myself. My brain fog has impoved to a quality I only barely recalled. I am so happy. If you have joint or rheumatic issues, please go to the roadback.org. The posters there will assist you wtih teh protocol for minocin. I am shocked. I am finally getting better. I understand this will not help you with gluten, but there are many posting with fms, or brain fog or joint issues. This was my miracle.

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    • Just wanted to pipe in that my hair started going gray at 19. Started coloring it immediately and decades later, still doing it. I had the guts to go completely without coloring in my late 40's. i was fully gray by then, I used a wig during the hair regrowth period. Then one day I started again. And I'm a bit hypo myself but I have no idea if that had anything to do with it. My mom didn't start going gray till she was 50 but my dad started when he got polio at age 20. He was fully gray in his 40's. there's this one beautiful black woman on a tv show in the morning I watch sometimes with the disabled woman I assist, who has partially gray hair, and it is gorgeous on her. It's a cooking show that has several chefs on it but I have no clue as to what anyone's name is cause the sound is always low and we are doing other stuff!
    • Thank you! That was the thread I already found and am reading my way through.
    • Thanks for replying! I actually got a blood test for everything and it all came back normal. However, I was slightly anaemic which my doctor said should go back to normal in a few months. I guess I'll go back and get another or speak to the doctor if I am unsure. When I first went gluten free I was still very hungry and my gluten free food also didn't fill me up. I got the same dizzy spells and had to have snacks with me! However, now on the 4th month its gone the complete other way. Anyway, thank you for your feedback and help.
    • You have a few options. If your in a restaurant or cafe and want a safe meal, just declare yourself celiac or alternatively say 'no gluten please, it's a medical requirement' if you're uncomfortable doing this. The objective is for them to treat your being gluten free seriously and distinguish yourself from hipster part time fad dieters.  With friends you can develop a shorthand answer: 'I worked out myself I had a problem with gluten and now sadly the tests won't work. I know I either have celiac or non celiac gluten sensitivity, either way I have to be gluten free for life from here on out. No exceptions, its just not worth it' and stick to that line till they're bored senseless by it and stop asking.  Consistency is the key to this and will help you immensely, whilst people think you can be persuaded they'll try to do so and you'll constantly find your willpower being tested. Once they realise that it's just not an option for you they'll stop and that will make it easier for you. Read up on NCGS here if you're interested: https://www.celiac.com/gluten-free/topic/117969-non-celiac-gluten-sensitivity-a-resource/   Best of luck      
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