• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How To Rule Out Other Sensitivities?
0

5 posts in this topic

i'm sure people have discussed this on the boards before but i didn't know how to search it, i apologize.. anyone who has time to give me a quick tip would be much appreciated.

my question is this: i had a pos. blood test and neg. biopsy and i'm ready to start a gluten free diet just to see how i feel... but suppose i start the diet and still feel sick, how do i know if i'm gluten sensitive AND sensitive to corn/soy/etc? i have gastro problems seemingly all the time... everything seems to make me bloated and gassy -- soy, broccoli, sugar, olives, peanuts, salsa -- and i have lactose prob.s that only developed when all these other symptoms came along, about three years ago. i also had an egg allergy when i was a baby that disappeared (as far as i can tell). do i have to pay $300 for one of those blood tests to know what's causing what? i feel like i can't pinpoint my symptoms to any food in particular (not even wheat) and that's part of why my dr. keeps insisting i have IBS and nothing more. i've kept food diaries up the wazoo. nothing seems to make any sense whatsoever. i spent a year with hives every single day. my nails are weak and peely and gross. i feel tired a lot even though i exercise regularly. i have neither gained nor lost a significant amount of weight. and i have NO idea what i'm doing right now because all I've been told is that there's nothing I can do to help myself... by two gastros and a nutritionalist.

any advice on how to sort out the culprits would be appreciated.

thanks endlessly!

monica

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


A food diary won't do much good if you can't narrow things down, so one option is what I'm doing - a strict elimination diet. A strict, forward elimination diet means you cut out just about everything from your diet, aside from a handful of items that you know don't bother you and have low allergenic potential. After a week of eating nothing but that, you add in items, one at a time, for a few days, and see how your body reacts. It takes time, can be hard on your body, and is more emotionally challenging than you can imagine until you try it. And technically, you shouldn't do it without talking to your doctor first. But it is a valid method that doctors use after other tests don't work.

To give some more specifics:

The first week, I'll be ingesting nothing other than quinoa and buckwheat (neither are grains, which I'm not including in this first week (so no rice!)), sweet potatoes and white potatoes, beef and lamb and turkey and chicken, spinach and carrots and beets (but I may need to take these out after a bad case of diahreah last night) and onions, grapes and apples and pears and watermelon (which also may be coming out due to last night's experience), olive oil and avocado and salt, and water. Period. No juices, no milks, no vitamins or pills, no spices, no candy, no nothing else. Literally ONLY those 19 items.

After a week of that, I will have milk (I may go with lactose free milk to specifically test caesin) for two days, and then go back to those 19 foods for the next day. Next, I will be adding soy in (probably soy milk, soy nuts, and soy sauce, I don't use much other soy) for two days, and go back to the original 19 foods for day after that. Then trying corn for two days (corn tortillas, corn flakes, other stricky corn items), and back to the original 19 foods for the day after that. And then another three days for testing peanuts and legumes.

Since those are the foods I'm most concerned about, I'm taking those tests very slow and simply. After that, I'll be testing shellfish, fish, eggs, tree nuts, strawberries, citrus, and tomatoes in two day shifts. (One day with plenty of the food, the next with none.)

All told, this is going to take four weeks. And I'm day three and already don't like it. I don't know if my body was "detoxing" or whatever, but last nights episode sucked, I've been hungry, and wanting foods (like citrus) that I can't have, and know that it's going to be a while before I can eat the things I want. But I've had a skin allergy test before, and it didn't show much of any response. (I could be dealing with an intolerance, not an allergy here.)

At the end of this, I may finally test out oats as well, we'll see how my patience is holding up.

0

Share this post


Link to post
Share on other sites

Wow, Tiffany.. that is amazing!! Good luck through your trial and error!! I'll be thinking about you.

Gretchen

0

Share this post


Link to post
Share on other sites

Interesting idea...........I've thought of reducing my diet to nothing and building slowly to look for problems..........that's a good idea for you to do that...........I'm going to give it a few more months, though, and if I still feel bad and the doctor doesn't know what to do, I might try that. Good luck and good idea :) .

-celiac3270

0

Share this post


Link to post
Share on other sites

Good Luck, Tiffany. :D Eliminating whatever bothered me by loosely following the chart of possible allergens, after my gluten/casein intolerance diagnosis and horrible experience with trying to substitute soy for dairy, has certainly helped me experience more and more painfree (symptom free) days. Whatever our 'diagnoses', we still have to individually assess which foods bother us, because we all have varying amounts of celiac damage to our systems as well as different kinds of symptoms. I applaud your logical approach to eliminating whatever foods give you reactions. ;)

BURDEE

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,466
    • Total Posts
      930,723
  • Member Statistics

    • Total Members
      63,897
    • Most Online
      3,093

    Newest Member
    Lou Anne
    Joined
  • Popular Now

  • Topics

  • Posts

    • JaneWhoLovesRain, what is odder to me than that there is an older disease that Doctor's have forgotten that explains many of the same symptom's and doctor's do not even think about it today since the "War on Pellagra" was declared over a 100 years and why doctor's don't (at least in the West) think about it any more. Dr. Heaney wrote a nice online article about this topic. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ Here is fairly recent article about how Pellagra can present in patients and the title says' it all from the International Journal of Dermatology. https://www.researchgate.net/publication/227807440_Pellagra_Dermatitis_dementia_and_diarrhea Dermatitis, dementia and Diarrhea are the 3 D's (4th D is death) of Pellagra. Typically it is only diagnosed today if you are in a subset of the population like an alcoholic for example or you have a gastric bypass. See this article from the New England Journal of Medicine http://www.nejm.org/doi/full/10.1056/NEJMicm050641 and despite all the signs of Pellagra (skin issues etc.) . . .. Pellagra in it native tongue (Italian) where it was first diagnosed was called "rough/sour skin" who knows that today??????? Very few I would venture to guess. The NEJM can only say they have "Pellagra-like dermatitis" it has been so long since any doctor's seen it they can't (with confidence) diagnose it clinically. But taking Niacinamide 3/day for 6 months can help alleviate your symptom's if indeed the DH of Celiac is the dermatitis of Pellagra being medically misdiagnosed. Here is a an article featured on celiac.com about why/how Pellagra can be confused for Celiac disease. https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html Because they haven't seen Pellagra in 75+ years no one recognizes it anymore. ****this is not medical advice. I hope this is helpful. Knitty Kitty and I are the Niacin warriors on this board. See this thread where Knitty Kitty says Niacin helped the itching of DH. If that is so then it might help your DH (if you have it) and your GI problems too if they are caused by co-morbid Pellagra. see my blog post about where I say "I had Celiac Disease and Developed Pellagra" that talks about this in more detail. Again good luck and your continued journey and I hope this is helpful. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • I should say I am confused about how to interpret---   Does this mean celiac or no celiac?   Thank you all---I greatly appreciate it.
    • KathleenH, I swear by MatteosPizza and they make National Delivery. I have been known to buy them by the dozen. https://www.matteospizza.com/ BellaMonica's is not a bad corn based crust.  By not bad I mean "suprisingly good" that can be bought at most grocery stores. Here is there ZIP locator page to see if they are carried in your local area. http://glutenfreepizza.typepad.com/gluten-free-pizza/where-to-find-bella-monica.html I hope this is helpful. posterboy,  
    • Hey all--have Hashimoto's and am being worked up for epigastric discomfort and IBS like symptoms---   My blood work had an IgA within the lower end of normal range, negative TTG, but weakly positive DGP.   My endoscopy showed a "nodular" duodenum with the biopsy stating there was "reactive lymphoid hyperplasia"...   I have a follow-up with the GI in 3 weeks.   Wondering about any help?
    • DH wasn't linked to celiacs until 1967 from my research...
  • Upcoming Events