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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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ezrab12

Kind Of Gross But I'll Ask Anyway

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Hi All,

I have been having an oily discharge even when I'm not going to the bathroom. It seems to be more when I'm sleeping and it is gross, yuk. Is this or has it happened to anyone. Should I call the Gastro doc again and make an appointment.

I am diagnosed celiac as of March 2004 and gluten-free since then.

Thanks, Ezrab12

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Is it oil or more like mucus?

How long has it been happening, since you went gluten-free or more recent? Could you be eating something new that's causing it? I know some of the "fat substitutes" like.. errmm.. no clue how to spell it, but began with O, could cause problems like that.

And don't worry about gross, pretty sure most of us have delt with gross. =)

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hello,

It seems to be a light yellowish color, sticky and that foul smell so maybe mucous but this is something that started after I have been on the diet but seems to be getting worse. I can't think of anything out of the ordinary I have been eating and I only use equal for sugar sub and no olesta or anything like that. I seem to be going through a bad phase here, I have been gluten-free since march and in the beginning felt much better but now seem to be on that constipated and then the runs cycle again so somethings acting up. I don't think I have ingested any gluten as of late. Guess I'll call the doc soon.

Thank you for reply,

Ezrab12

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That does sound like mucus, at least to me. Though the foul smelling odor to it, isn't something I've encountered.

Maybe calling the doctor would be a good idea then. Another idea though, if no new foods, maybe you're using a new soap or hair care product, etc.. that contains gluten?

Oh well, good luck!

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I started with the same thing Sunday morning! Only no smell, but other than that, it seems the same. Wonder what it is?

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Terri, I'd say mucus likely.. if it the same as mentioned? Our bowel normally does produce mucus, but when it's not happy.. or upset for a reason, it can make extra.. lots, ugh, lol. Though what was upsetting you.. no idea.

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You mentioned using Equal for sugar. Our Gastro. said many Celiacs have problems with sugar substitutes, as well as dairy, etc. Don't know if this could have any bearing on your problem, but it is worth considering. Our grandson cannot use aspartame (is that in Equal?) and my husband cannot tolerate any type of cheese, because it causes cramping, diarrhea, etc. Seems like other food allergies or sensitivities often go hand-in-hand with Celiac.

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Our daughter was having this also, I know it all too well, b/c even though she is potty trained, she still needs help. I narrowed hers down to the suntan lotion/sunscreen we were using. It has gotten better since we switched, now we use Banana Boat. Maybe this will help.

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I would suggest getting checked by a gyno. It could be a yeast infection or something unrelated directly to a gluten-free lifestyle.

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OKay, back to the original 'rectal' discharge question ... I vote for mucous. ;) I've had steatorrhea (mucous covered 'floating' stools) off and on before I was diagnosed with celiac and began the gluten-free diet. I also passed some mucous when I passed gas occasionally. However both those symptoms disappeared after I abstained from BOTH gluten and casein. Nevertheless, with every major gluten OR casein accidental ingestion, the mucous came back. :o That's just part of my celiac symptoms. I suspect that's caused by either damaged villi not adequately digesting fats OR the same kind of mucous reaction I have with a sinus infection, but instead coming from my intestines. When you consider that celiac disease involves our antibodies attacking what our celiac bodies consider foreign substances (gluten and for me casein), that's similar to our antibodies attacking cold viruses. With colds, the healing process produces lots of mucous. Similarly mucous may be produced in our intestines as part of the celiac reaction to gluten. Perhaps, because I don't have diarrhea, I notice the mucous, in contrast to my normally firmer stools, more than someone with diarrhea would notice. :blink: Obviously, that's all just my speculation, but it seems logical.

BURDEE

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Hello All,

Thanks for all of your suggestions and I think the last one from Bergee sounds like

what's been happening. I also have massive post nasal drip and dry mucous in my sinuses, i just went to ear, nose, throat doc because I always feel that I am gongested in my sinuses but nothing ever comes out, etc. He said it was dry mucous. I am sure that is what's happening below and maybe I have been ingesting gluten by mistake, I must confess I still was using a shampoo from Kiels that had wheat protein in it but I guess I was being ignorant thinking that I wasn't and didn't ingest it so i will stop using that too, any idea's for a shampoo? Again, thank you all for your responses and I really am thankful for being able to share about the crazy things going on with my body. I am 36 and some days I feel much older but now I am a little bit wiser, thanks, Bill

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Hey Bill: No problem ... it is a strange nickname/login name. :lol: Blame my husband. ;)

Have you tried eliminating dairy as well as gluten? That reduced my constant sinus mucous (post nasal drip and allergic sinus reactions) to almost zip! Still have occasional mucous from the other end, when I have any kind of cramping intestinal twinges, most likely from gluten/dairy/soy 'slips'. In fact after going dairy free for 36 hours to test my milk sensitivity, before receiving my enterolab results of casein antibodies, I drank a tiny bit of lactose free milk and experienced a HUGE instanteous sinus mucous reaction and, of course, the cramping abdominal pain. :o That convinced me that dairy was a problem even before I received my Enterolab test results that said cow's milk intolerance.

BURDEE

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Hello,

I am still eating dairy. I will eliminate for a few days and see what happens. I think

it may have been the shampoo because I stopped using it on Friday and the issue has somewhat subsided but I will try the non dairy for a few days about the the sinuses. If dairy has to go I will be a bit crazy then because I do not like the soy alternatives, yuk.

Thanks, Bill

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Hey Bill:

I know about that craziness. :blink: I can't tolerate soy either--it gives me the same cramping/bloating as dairy does. Rice and almond milks are so low fat/low protein, it seems pointless to put them on high carb cereal. So I went from dairy all day long--cereal and milk, butter on anything, cheese sandwiches, cheese on salads and casseroles and yogurt or ice cream for dessert--to nothing that resembled any dairy products. :o It was was tricky at first, but relief from pain and other symptoms made it all worth it. :D Meanwhile I've discovered other favorites. Fortunately, I do well with peanut butter, eggs and many of the other usual 'allergens'. ;)

BURDEE

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