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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Medical Alert- Shoud We Have This?
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6 posts in this topic

I've been trying to deside if I shoud have a medical alert.Alot of books and web sites talk about the importans of haveing one,but would a doctor look at it with-out thinking ''its just an alergy''.

How many ware a medical alert?

My biggest fear is having meds with gluten give'n to me and not being abel to talk.I've had doctors tell me to my face that celiac was a food alergy and not in meds.The thing is I was in the ER when this happend getting 5 stiches back in Feburary of this year.Got told of by the doctor because I didn't take a pill that a nurse handed me.

Gluten Free is and always will be the way to stay healthy for us all. BEING sick suck!

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I have been thinking about getting the medical bracelet. I have been giving a couple of different meds that the Pharmacist says it's okay to take, but when you call the manufacturer, they say it's not gluten free. I would hate to be in the hospital and they end up giving you something that makes you more sick!

The more I write about it, the better it sounds.

Linda

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I don't use one, but probably should...I just haven't thought about it in awhile. Even if a doctor did look at it and think "it's just an allergy", they would have to take it seriously. What if this wheat "allergy" caused a severe and potentially deadly reaction? They wouldn't know the severity of the reaction it would cause, but if you're wearing a bracelet about it, they'd have to take it serioiusly.

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I've personally never seen the use of a bracelet for celiac. If I'm being treated for an illness or accident that's so severe I can't communicate, I want them to do whatever they need to do to save my life, even if it involves gluten. And in that situation they aren't going to be forcing pills down your throat, they'll be putting in IVs or giving you shots, none of which contain gluten.

richard

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Yeah.........i was thinking about that and i'd rather get sick from gluten than die or have something really bad happen to me just because teh doc. couldn't give me gluten

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I'm not really concerned with one for myself, since I feel pretty much how Richard does.

But I have considered getting one for my son who is gluten intolerant, plus has other things going on, but the bracelets just won't hold all of the info, so I've been looking into the new electronic ones that allow you to record as much medical info as you feel necessary. My son is allergic to penicillin and cephalosporin antibiotics, and quite possibly asprin (he is being checked for something called Asprin Triad Disease, since he has asthma and nasal polyps that grow back after surgery to remove them), as well as he takes three kinds of meds daily for asthma, migraines and most importantly Familial Meditteranean Fever (a periodic fever disease). I'm just concerned that if he is hospitalized and I am not available then they would be clueless as to his medicine allergies and medications he should be taking. Then of course he would end up with some sort of gluten, which I wouldn't care about if it saved his life. But if his injuries weren't life threatening, then the other medication allergies could end up making them that way. If he doesn't get the fever meds then he will end up with a fever in excess of 105 and they wouldn't know why, then they might try to treat a non-existing infection with penicillin and he would end up covered with hives and might have some breathing difficulty. And if they give him asprin without the asthma medicine in his system he could end up having an asthma attack. Right now we have everything in balance and his symptoms are kept under control, but it has taken us 7 years to figure it all out and I'd hate to have it messed with. The only thing not under control is the nasal polyps and he is due for another surgery soon...

Anyhow, sorry for the rambling. I was just wondering if anyone had tried the electronic medic-alert gadget. Is it worth the money? I have only seen it once and don't know how common they are, but am certainly checking into it.

God bless,

Mariann

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    • Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have!  As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably in gluten free food/drink. Is it possible you have a problem with corn, particularly high fructose corn syrup that is in a lot of alcoholic drinks? This was a big problem for me and the only alcoholic drinks I can tolerate are William Chase vodka and gin. I contacted the company last year and all their drinks are 100% gluten and corn free, made the old fashioned way with no additives, so maybe try their products if you like the occasional drink and see how you get on. If you drink out, not many pubs sell their products but I know Wetherspoons do and smaller wine bars may too. l was never a spirit drinker but I must say their products are absolutely lovely! Very easy on a compromised gut too considering it's alcohol. I second the suggestion on seeing a natural health practitioner. I've recently started seeing a medical herbalist, as I've got nowhere with my now many food intolerances since going gluten free last year and I've noticed a difference in my health already. 
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