• Ads by Google:

    Get email alerts Celiac.com E-Newsletter

    Ads by Google:

       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

Support Buddy In Albany Ny Area?

4 posts in this topic

Hello everyone. I am very new to this as I just found out yesterday that I have celiac disease. I'm interested in finding someone in the area or maybe not in the area to talk to. It's a very scary thing to have and I am very confused. Any help would be wonderful! Hope to talk to someone soon!



Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:

Hello Dawn and welcome to the forum! Sorry, I'm way down here in VA, but here are some support groups in NY that might be of some (local) help to you. We're pretty fun here and can perhaps offer you much help, so feel free to share and ask any questions you might have.

Good luck to you!


New York

Central NY Celiac Support Group (Syracuse)

R. Wyman, President


Mailing Address: 263 Roxbury Rd, Syracuse, NY 13206


Gluten Free in WNY (Buffalo)

M. Lodico, Manager


Mailing Address: PO Box 24, North Tonawanda, NY 14120


Suffolk County Celiacs (Long Island)

L. Doti, Manager


Mailing Address: 18 Sesame St, Kings Park, NY 11754


New York

Westchester Celiac Sprue Support Group (Montrose)

M & C Spreitzer, Contacts




Share this post

Link to post
Share on other sites

I live in NY, also............but a few hours away from you; in NYC.........I find that the board is enough support for me........I also talk to a few people here off the boards via e-mail or instant message. It doesn't really matter where they live, as long as they're someone else to talk to


Share this post

Link to post
Share on other sites

Also in NY here. But I'm to your west over near Syracuse.

Ditto to what Coutler said. I don't know anyone in real life, actually really haven't talked to anyone by IM or email either.. but found this board to be very very helpful with the confusion and such. Just look around, use the search function to find things. And if you can't find something, start a new post asking about it. =)


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Popular Now


  • Topics

  • Posts

    • There is also a celiac center at UCLA - Dr Weiss
    • mnburis, I'm concerned about your symptoms, especially the diarrhea being so frequent.  I experienced pellagra after prolonged diarrhea.   The symptoms are diarrhea, dermatitis, dementia and death.  Pellagra is a deficiency of niacin (B 3).  With your vitamin D and B 12 already diagnosed as low, you're very likely to be low in all the other vitamins and minerals as well.  The eight B vitamins are water soluble and need to be replenished every day.  The B vitamins all work together.  All should be supplemented if one is low.  Large doses of B 12 by itself can cause folate deficiency anemia if you're low in folate (B 9) already.  Ask your doctor about other vitamin deficiencies.  The easy ones to test for are D and B12.  Tell your doctor how severe your diarrhea is.  Ask about pellagra.  Here's some more information. https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html https://www.dermnetnz.org/topics/pellagra/ I really hope this helps.  
    • thats so exciting! let me know if you need any help with finding gluten-free products or brands when you move here
    • I have had NO breath tests done. Just  blood, stool, colonoscopy and endoscopy. I'm sorry. I'm feeling so discouraged. I just know its going to be put down to IBS. And I personally feel  that IBS is a throw away diagnosis when no one wants to investigate further. 
    • Also, have you been tested for H. Pylori infection?  I think I have seen that many ulcers can be attributed to that. It is also diagnosed with a breath test.  Hang in there. Many people have been in your shoes.  I wish it were easier.  
  • Upcoming Events