• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Problems In Pregnancy With Cd
0

Rate this topic

12 posts in this topic

Recommended Posts

My husband and I are planning on starting a family soon and I was curious if anyone knows about additional complications related to my celiac disease diagnosis. Is there anthing I should plan for?

:huh:

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi, laelfin!

I have two kids, ages 3.5 and 1.5, but I just found out I have celiac disease a few months ago (and so do they!). Well, my body is just now starting to get interested in maybe having another one, so I have to consider my options....

First of all, it is not uncommon for a woman with (undiagnosed) celiac disease to experience repeated miscarriages. It might be a good idea to hold off on conceiving until you have a good grasp of the gluten-free diet and a repertoire of meals that you know you can eat safely, so your body doesn't end up deciding that it can't support a pregnancy after all!

Another consideration is, can you maintain the gluten-free diet EVEN IF YOU HAVE TERRIBLE MORNING SICKNESS? I had serious trouble with food aversions with both of my pregnancies--I couldn't even LOOK at fresh vegetables without starting to gag, and I just about lived on Pop Tarts and Pizza Hut! Even so, I LOST weight (10 and 6 pounds, respectively) during the first trimester of each pregnancy. I also COULD NOT force myself to cook for the duration of the pregnancies; it made me feel too ill, and I would rather have gone hungry. If I were to conceive again, I would HAVE to cook and eat gluten-free meals regardless of my cravings and aversions, and I'm not sure I could do it! I just read that morning sickness may be attributable to vitamin deficiencies (which are, of course, almost guaranteed to be a problem if you have celiac disease), so here again is another reason to consider postponing conception until your body is well on its way toward healing.

I did just read here at celiac.com that birth outcomes are no worse for mothers with celiac disease than for "healthy" mothers, which is certainly reassuring. The baby, of course, may turn out to have celiac disease as well, but that is a different can of worms! Breastfeeding is an excellent way to get your baby off to a good start and support his or her developing immune system, which would be especially important if he or she were to turn out to have celiac disease. These are just the things I have thought of, being in a position similar to yours right now. I don't mean to scare you off of having a family, but pregnancy is a roller coaster under the best of circumstances, and celiac disease may make day-to-day coping a real challenge! I wish you and your husband the best of luck as you start your family!

Share this post


Link to post
Share on other sites

laelfin,

Yes, there is a higher incidence of miscarriages with celiac disease....

I experienced more than I wanted! --even being gluten-free for 5 years, and taking vitamins!

My doctor noticed that my progesterone was to low to "hold" a pregnancy, so my advice would be to have your progesterone levels checked very early on--like as soon as you get pregnant! I ususally miscarried at 3-4 weeks, so well before that window!

Don't let being celiac deter you from trying to have a family, just work a little more closely with your doctor. :)

Good luck!

Connie

--32 weeks pregnant with boy #2 ! :wub:

Share this post


Link to post
Share on other sites
Guest Blackheartedwolf
My husband and I are planning on starting a family soon and I was curious if anyone knows about additional complications related to my celiac disease diagnosis. Is there anthing I should plan for?

:huh:

This is the boat I am in. I found out I have celiac disease last Thursday. I have had 2 children when I was younger, and as far as I know, have never miscarried.

My husband and I were married this past Halloween, and we want to have a baby. I am worried now that I know I have celiac disease.

I read that doctors usually prescribe 1 baby aspirin a day to pregnant Celiacs, to help prevent miscarriages.

I hope that will work! I never had a problem getting pregnant before.

Share this post


Link to post
Share on other sites

I am not sure if this has anything to do with celiac disease - But it probably has something to do with malabsorption -

I had a miscarriage and a pregnancy where there was a problem. I do however have two great kids. With each of them I gained a tremendous amount of weight and they were big babies - very healthy. So I guess it all depends upon your nutritional status at the time of the pregnancy. I would take vitamins and make sure that the foods I ate where gluten-free.

Share this post


Link to post
Share on other sites
Ads by Google:


I'm in a similar position to all of you. I started dropping weight and then got pregnant before I knew I was in trouble with undiagnosed Celiacs. I had a text book pregnancy except for the fact that I was skin and bones. The baby gained enough weight and was fine. So far she has tested negative to Celiacs, but she does have some serious poop issues that are beginning to make me wonder about her (She is three now). I am now ready to have another child and I am terribfied that the Celics will cause problems during the pregnancy or to the baby. I'm at the point of thinking about eating absolutely nothing that is processed and nothing that I did not make myself. I think it is overreaction, but I am scared for the baby.

The second issue is what do you do once the baby is born? I breast fed my daugther for the first year, she got everything according to the schedules and recommendations and she ended up with a peanut allergy, slight hearing loss due to the numerous ear infections, two ear tubes, and a poop problem that has me concerned. And that was following the text book rules about when to introduce all of the foods etc.

Do Celiac Mom's have trouble breast feeding? If formula is used, should it be gluten free?

Should Gluten be introduced later than most "normal" babies?

Just think these are my question before I am pregnant! :P

Share this post


Link to post
Share on other sites

Hapi, Overreacting? Not on your life! No processed foods and only what you prepare is pretty much the only guarantee a celiac has of uncontaminated food. I think (IMHO) that you should at least have the gene test done on your child, since celiac disease is genetic. I don't think there would be any problem with breastfeeding, as long as the mom is getting enough to eat.

Share this post


Link to post
Share on other sites


Ads by Google:


I'm a celiac -- eight weeks pregnant -- and the only problem i've run into is food aversions. many of the gluten-free foods disgust me right now (especially rice bran and rice flour). And, as of this week, I'm totally grossing out on flax. the biggest bummer is that i'm actually craving many forbidden foods -- mcdonalds cheeseburgers, pizza, etc. -- and i, of course, can't satisfy these cravings. i'm just doing the best i can, but it can be tough. other than that, i've been ok.

Share this post


Link to post
Share on other sites

Congratulations, scribble! :D

"...i'm actually craving many forbidden foods -- mcdonalds cheeseburgers, pizza, etc..."

Maybe you just need more fat in your diet!! I used to crave bacon!

It was the only fatty food I ate...

Good luck!

Connie

~ 9 months and 5 days...and still waiting!

Share this post


Link to post
Share on other sites

Pizza cravings? I just made a rice pizza last week (got the recipe on this site) I thought it was really good. I don't know if you could tolerate rice but if you can it is worth a try.

good luck

Share this post


Link to post
Share on other sites


Ads by Google:


Cany anyone suggest a prenatel viatamin that does not contain gluten? Is there one over the counter or do I need to ask the doctor. I just found out I am pregnant with my 6th child and want to get viatamins asap.

Thanks for your help.

Judi

Share this post


Link to post
Share on other sites

I use Nature Made Vitamins. It does not require a prescription and states gluten-free on the bottle. I bought mine at BJs (warehouse store).

So far I am 5 months along, had several gluten accidents last month, but the baby is just fine.

FYI: You may want to look into the sonogram schedule at least as far as your OB is concerned. I go to a great OB but she could careless about Celiacs. The High resolution sonogram meant I went to a Specialist. She recommends seeing her Celiacs pregnant Mamas at 28 and 34 weeks in addition to the normal 20 week check up. I don't know if she would have preferred that I came in before 20 weeks.

Good luck!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,156
    • Total Posts
      939,972
  • Member Statistics

    • Total Members
      66,141
    • Most Online
      3,093

    Newest Member
    Victoria Zoey
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you all for your great suggestions! Will take all of it on board
    • Dairy is a major issue with celiac, due to the enzymes to break it down being produced by the villi tips being mostly destroyed or damaged first. Eliminating for a few months may be critical. I might suggest digestive enzymes, I am taking Jarrow Enzymes at 2x the dose, Jarrow Bromelain, and sometimes some extra papaya enzymes. I have issues breaking down the large amounts of foods I consume otherwise (I am trying to body build bulk). I also would look at some protein powders if I was you. Vegan protein powders are easy to digest most times an can be great. Pumpkin Seed protein is the easiest on the stomach, being a balanced PH, high in zinc, iron, magnesium, it is very good for recovery and putting on weight in addition to others. Might also consider blends, try not to get anything with too much gums in it. I like NutraKey V-Pro and MRM Veggie Elite. I also buy a whole list of others. On her food, veggies, and meats should be cooked to almost mush, try using a crockpot and stewing them. This will make them easier to digest and break down.
      Is she having any other issues? Like Bowl issues? I find I can loose hunger if I back up, and I have to take magnesium like crazy and eat a whole lot of fiber to keep it moving. Take it you already read the newbie 101 section about getting all new cookware, and deconing the house? Bit of a extra tip I swear by to everyone, Freezer Paper/Butcher Paper. Makes a nice clean prep surface and easy clean up.
    • Hi Kirsty, Gluten messes me up in a lot of different ways, some of which I recognise in your first list. You can find a massive list of symptoms associated with celiac here: https://glutenfreeworks.com/gluten-disorders/symptom-guide/ and it may be that some of your other symptoms can be found there. It's also worth searching this forum as it's been going for a long time, in internet years at least.  It certainly messed with my blood sugar and like you I'd take tests which didn't reach the extreme values, but that didn't stop the symptoms. The only way I realised this was when I removed it from my diet, for other reasons and found that a load of different other symptoms also resolved.  After this happened I then went back on to gluten for a test, a gluten challenge. My symptoms came back, but my blood test and endoscopy were negative for celiac. My consultant told me to avoid gluten for life.  In your case you need to decide whether to push for more celiac testing or not. If not, please consider fully excluding gluten. My own experience is that it's not something that you can have a little of and get a health benefit, you are still engaging your auto immune system. Obviously if you're experiencing extreme symptoms when you remove it you should do it in consultation with your doctor, but maybe if you could just get through those difficult first few days you may experience relief from some of your symptoms? Best of luck matt    
    • So... his gp did a genetic test - positive - and has referred him to a gi. His paed and diabetes educator have ordered the genetic test and another coeliac screen for 3 months and then they will decide if he needs to see a specialist because they're still convinced its most likely a false positive. Why test at diagnosis of diabetes if they don't believe the results anyway? Why is this disease so confusing for the medical world?  Anyway we're sticking with the gp and hopefully it won't be too long before he gets into a gi.  It seems that blood tests don't matter in any situation. If they can find any excuse to invalidate them they jump at it.  Makes me so infuriated I just laugh about how I already seem to know more. 
    • Thank you! I have been considering lactose, though I'm reluctant to remove more things from her diet. She has not had the classic lactose intolerance symptoms of diarrhea, gas, or bloating, though I know she could still have trouble with it. She's been on the medication for less than a week, so it's not the cause of her symptoms. I did not call the manufacturer but it is listed as safe on glutenfreedrugs.com (under the brand name periactin). It was prescribed by a pediatric GI who specializes in celiac. The first question my daughter had for the doctor was whether the medication is gluten-free, and she told us it was.   
  • Upcoming Events