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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

People With Clinical Depression And Anxiety
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Has anyone seen the movie "What the Bleep Do we Know"? It is a part documentary part storyline. Below is a synopsis copied from the website http://www.whatthebleep.com/synopsis/

I was at first skeptical of watching because it deals with quantum physics, but the message delivered is inspiring and makes one think. The main character, a deaf actress which most of you may recoginize is addicted to her addiction (anxiety). I do not put this out here to say this is all in our heads, because I know have battled major depressive disorder since I was young. I put it out there to empower others to search for answers that our doctors can't seem to provide. It even interestingly discusses the peptides and the wiring in our brains, as was mentioned in earlier threads. enjoy.

"The protagonist, Amanda, played by Marlee Matlin, finds herself in a fantastic Alice in Wonderland experience when her daily, uninspired life literally begins to unravel, revealing the uncertain world of the quantum field hidden behind what we consider to be our normal, waking reality. She is literally plunged into a swirl of chaotic occurrences, while the characters she encounters on this odyssey reveal the deeper, hidden knowledge she doesn

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That's pretty interesting. Actually, I used to have horrible panic attacks and I had my first one driving over a bridge. After that I was bridge-phobic and couldn't drive over any bridge without having a full-blown anxiety attack. I had no choice but to conquer it (I would even have them while on medication) when I moved to San Francisco and had to drive over the huge Bay Bridge (I think it's about 5 miles long) to go to work. Now I don't even think twice when I drive over one.

I definitely think that anxiety and depression can be a vicious cycle. You get afraid you'll get anxious or depressed and it can be a self-fulfilling thing. My therapist and I "joke" that after my first episode I was so traumatized that I had a kind of PTSD about depression. Everytime I was in a bad mood, I would flip out that I was going to plunge back into the depths of my first depression (which was the scariest experience of my life).

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Hi all,

My 2 cents again, for what it's worth.

First of all, RE: The documetary "What the Bleep". Saw it, then bought it, and have watched it a zillion times since then. It's all about the possibilities. It also mentions peptides, cell receptors, proteins, and a million other things. I wanted to mention something about the documentary's comments on religion in the event that anyone rents the movie and gets a bad taste in their mouth about what they're saying and let you know: This movie doesn't deny the existence of God. It simply puts another spin on things and opens your mind up to the possibilities of life and existence, so don't let that close your mind off to it. It's a wonderful movie.

I suffered from depression and anxiety for at least 20 years. I was suicidal, I lost my mind because I couldn't sleep. I took every medication under the sun. Some worked for a while, some didn't. I got a pretty good grip on things a few years ago, but then, in Dec. of 2006 went gluten-free and MSG free. Don't discount the negative effects of MSG (and any "hydrolyzed protein" - back on my high horse about it). If you look into what it does to the neurotransmitter system, you'll realize that it will cause an excitement and anxiety quickly (for a lot of people - maybe not all). I always had this one problem in regards to anxiety. I bit my nails - until December of this year (I'm 39 years old). Since eliminating wheat, dairy, MSG, and a myriad of other things that I suspect may be problematic, I've lost the urge to bite my nails. For the first time in my life, they look great. It's so nice to free of that uncontrollable compulsion. I suspect a direct correlation between proteins that our body doesn't like and depression/anxiety.

Thanks for listening

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Hello

I also suffer from extreme depression, anxiety, agoraphobia, general mood swings, etc. I cannot live without my medications. My psychiatrist will never agree to take me off them. Even when we try to lower any doses, things get really bad. I dont think its related to my celiac. My family has a history of depression and major anxiety. While I was in rehab, the doctor there finally figured it out, that I am bipolar. If the meds werent going to work, ECT was the next step. When I had to go off all my meds when I got pregnant (was a surprise pregnancy), I had 20 weeks of complete hell. I never slept, I barely ate, I paced so much I swear I burned holes in the carpet. I kept Gary up all nite, every nite. and he always had to work the next day. The only sleep I would get was out of exhaustion. It was horrible. I never want to go back there again.

Now I am on a few different meds... I take Lamcital now (a bit safer than Depakote, if a pregnancy should occur), nortriptolyene, seroquel, and valium. I cant go without any of them. We tried to wean me off a bit, sent me right into a tail spin. About nothing. nothing in my life is wrong, per se, just couldnt handle showering everyday. So I can relate to all those types of feelings. It is hard to make the right decision for yourself. Every person is different. I can only recommmend that you talk to a doctor before stopping any script meds. Make sure its safe for you.

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Thanks for sharing TinkerbellSwt! That's a lot. I'm not planning on going off my meds. I'm the same as you (but unipolar) and I know that this is a chemical imbalance.

I just wonder sometimes if all this would have occured without gluten in my life.

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I do too. I wonder if they knew about my problem when I was 2 and my mom knew that something wasnt right and all kinds of docs told her she was crazy. endocrinogists and all, told her she was nuts there was nothing wrong with me. Even though I had a distended stomach and at the age of 2 I lost interest in all things. I wouldnt play anymore, I wouldnt go to the beach, I wouldnt go in the tree house, all the things kids should be doing when they are growing up. I wonder had they known back then, would my imbalance be as it is now? I know there is no way to figure it out, but sometimes I wonder!

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Just thought I'd throw my 2 cents in here. I've been on Lexapro for several years now. I also have Xanax, which I take at night as needed, to sleep.

I've noticed a VERY PROFOUND depressive/lethargic/anxious effect when I eat gluten. By 2.5 to 3 hours, I can always feel it. Abstaining from gluten has the effect of making me feel UP or good. Interestingly these are the exact symptoms that got me on an AD to begin with. I'm sure this isn't true for everyone, but I bet there are others like me. I strongly suspect that a good portion of my symptoms are actually caused or exacerbated by the consumption of gluten.

Does that mean I can stop my AD? Ask me this question again in six months.

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The more I read and study about what symptoms I've had and have had to live with the more upset I get. I've suffered from depression for four years and due to some 'strange phenomenon' I couldn't take anti-depressants because I've got a sensitivity to most over-the-counter meds. <_<

I havn't been doing this long but wow do I sink into my depression/anxiety when i get glutened :( it's almost my cue, when my mood swings, I know it's going downhill.

I'm not saying I'm glad you're all suffering from this too, but I am thankful you're all sharing so that us newbies can see we're not all alone- thanks!

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I'm so glad people feel comfortable talking about this. Depression is one of the clinical symptoms of celiac. Someone on another thread (I wish I could remember which one) said that gastroenterologists are starting to acknowledge the stomach as a 2nd brain :blink: which I think makes COMPLETE sense! It would be intersting to see as people heal if they can reduce their dosages etc. I know one former board member who was on over 20 prescriptions (not all psych meds) and is off ALL of them now.

I think that going gluten-free is the answer for some people, but not all.

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I agree Jerry, I know that my panic/anxiety was caused by gluten. The sicker I became, the more panic I encountered. I worried about everything, and the biggest thing I worried about was disappointing everyone else. A vicious cycle, the more I panicked, the more I worried, the more I worried, the more I panicked. I was taking 40mgs of Paxil and still panicking. There was a time when I was on Xanax, but I could not cope on it, still, if I take it, I get very jumpy and out of control the next day. I know my anxiety is caused by my celiac disease and other intolerance's.

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The main problem with anxiety is, it is such a horrible feeling, we fear it. Fearing it causes us to actively fight the anxiety. Fighting the anxious feelings is the ONE thing I did that makes it worse.

I found a lot of value in allowing myself to BE anxious, to SEEK being anxious, until anxiety no longer became something I feared. When you allow yourself to pass thru the anxiety...to get to the other side of it....something weird happens...it goes away.

This is so true and well said. If only those in the medical profession got this.

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I'm just wondering what other people think about gluten and their brains. It amazes me that one small protein can wreak such havoc on a body!
Gluten does mess with my brain for sure. When I am glutened I can get depressed, nervous, anxious, irritable, moody, anti-social, and paranoid... Let's just say that I'm not much fun to be around.

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Hi

In the past i was on anti-depressants for clinical depression and anxiety, i was on and of them for about 3/4 years maybe longer, but last november i was diagnosed as a celiac and after about 3 months i started to wean myself of the a/d's and since then i have struggled but according to my gp it can take up to a year for the stomach to heal properly and i hope that its the celiac symptons i'm suffering from not another bout of depression.

especially since i've accidently glutened myself a couple of times and firstly i suffered the anger and rage then i was so depressed, these symptons lasted about two weeks the first time, maybe 4/5 days the second time, and all the time i was going through it i didn't think it would ever end and i did consider going back on the a/d's but i found this site and found that other celiacs suffer emotionally the same as i and that helped me realise that it is just the gluten.

My doctor doesn't believe that there are mental health problems linked to celiacs, but its to much of a co-incident if you ask me, my mum is a celiac but years before she was diagnosed with that she was treated for schizophrenia and depression and my son and my nephew have autism.

It makes me wonder if we'd been diagnosed earlier would things have been different.

goodluck

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I have been fighting with depression for a while. When I realized I had celiac(with no help from doctors) I thought that would fix it. It did some. Then I had a ELISA blood test done for 128 food allergies. The problem I had was that after I went gluten-free, I was still eating foods that were dangerous to me. The hard part is that it is healthy foods that I can't eat. Lettuce, Tomatoes, Cucumber, beef, And several others. Since I have gotten off of the other foods, I feel much better. The doctor that helped me do the blood test said that celiacs have far more the just gluten allergies and in my case he was right. My suggestion is to find out all the food allergies that one has and then make the decision from there. For me personally, I have had bad experiences with the medication, but that doesn't mean that it won't work for others. Just make sure to either do the research yourself, or if you are lucky enough like me, have someone help you. Just remember one thing there is no shame in the decision that you make for yourself. I have been three years actively searching my solutions, and I am still not sure if I have found them all. Good luck to all who need it.

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Great topic Bev!

It breaks my heart to read everyone's personal stories, so much suffering.

I was diagnosed with depression when I was 14 or 15, I know I had it much earlier than that though. I remember feeling so supressed, trapped in a darkness, and didn't have much of a zest for life at a really really young age, which I don't think is typical for a child.

When I was diagnosed I did a lot of "talking" with different therapist which really didn't help me. I felt like my depression wasn't really situational but rather something was going on physically with my body. I had a lot of physical symptoms that were ignored by all the medical professionals I saw and therapy with psychiatrists, psychologists, and psychotherapists and medications were really pushed as the solution.

I was put on prozac when I was 18-19 and it just made me so much worse, my behavior was unrecognizable. This went on for a 2-3 years on and off prozac, at a higher dose, and then I tried effexor for a short time. I just couldn't take the drugs, they made me so much worse and I had a lot of side effects.

It wasn't until I dabbled in the alternative medicine world that the clouds parted for me. I learned about food allergies and intolerances, balancing my hormones, vitamin and mineral deficiencies, adrenal stress, heavy metal toxicity, bacterial/viral/fungal/yeast/parasite infections, and etc.. As my body became more balanced my moods and state of mind drastically improved. I know it isn't for everyone but it saved my life and now when I look back on my life it's hard to believe where I came from because I am in such a better even steady place.

Now I notice that everything I eat directly contributes to my depression. The longer I am off gluten the more noticeable my mood swings are when I accidentally ingest gluten. A couple months ago I unknowingly had some gluten and it wasn't too long after maybe a few hours I flew into a rage, it was not pretty. Sugar and dairy also tend to have the same effect on me, but to a much lesser degree.

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Great topic Bev!

It breaks my heart to read everyone's personal stories, so much suffering.

I was diagnosed with depression when I was 14 or 15, I know I had it much earlier than that though. I remember feeling so supressed, trapped in a darkness, and didn't have much of a zest for life at a really really young age, which I don't think is typical for a child.

When I was diagnosed I did a lot of "talking" with different therapist which really didn't help me. I felt like my depression wasn't really situational but rather something was going on physically with my body. I had a lot of physical symptoms that were ignored by all the medical professionals I saw and therapy with psychiatrists, psychologists, and psychotherapists and medications were really pushed as the solution.

I was put on prozac when I was 18-19 and it just made me so much worse, my behavior was unrecognizable. This went on for a 2-3 years on and off prozac, at a higher dose, and then I tried effexor for a short time. I just couldn't take the drugs, they made me so much worse and I had a lot of side effects.

It wasn't until I dabbled in the alternative medicine world that the clouds parted for me. I learned about food allergies and intolerances, balancing my hormones, vitamin and mineral deficiencies, adrenal stress, heavy metal toxicity, bacterial/viral/fungal/yeast/parasite infections, and etc.. As my body became more balanced my moods and state of mind drastically improved. I know it isn't for everyone but it saved my life and now when I look back on my life it's hard to believe where I came from because I am in such a better even steady place.

Now I notice that everything I eat directly contributes to my depression. The longer I am off gluten the more noticeable my mood swings are when I accidentally ingest gluten. A couple months ago I unknowingly had some gluten and it wasn't too long after maybe a few hours I flew into a rage, it was not pretty. Sugar and dairy also tend to have the same effect on me, but to a much lesser degree.

i also was diagnosed in my teens. my parents thought i was just experiencing "normal" teen-moodswings. <_<

i don't think a gluten intolerance caused my depression but i know both feed off each other. i get so emotional when i'm glutened, and when i get depressed, i succomb to eating gluten more easily.

i want to know how to get more into alternative medicines. one of the things i've been noticing lately is that i'm not very in tune w/ my body. i'm going to the dr tomorrow to have some more allergy tests done, cuz i've been off gluten for a year, but still get really sick sometimes. do you recommend any sites?

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i want to know how to get more into alternative medicines. one of the things i've been noticing lately is that i'm not very in tune w/ my body. i'm going to the dr tomorrow to have some more allergy tests done, cuz i've been off gluten for a year, but still get really sick sometimes. do you recommend any sites?

Hi Sweetfudge,

I don't personally know of any websites that I can vouch for all of the contents. As with anything, you have to be careful what kind of information is being put out there.

Everything I learned was through my experiences when I was under the care of naturopaths, osteopaths, acupuncturists, nutritionists, and the ocasional MD who swayed to the alternative side.

I think wanting to get more in tune with your body is a great idea! Many on this board have many issues due to additional food intolerances and allergies. Check out the category "Other Food Intolerance and Leaky Gut Issues". Lotsof good info.

Good luck to you!

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Guest maybe I have celiac

Yes, all my life I have had depression for unexplained reasons. I always thought that it was just the way that I was predisosed genetically. I grew up in a normal family, never been through anything too tramatic. Tried everything, dietary changes, vitamins, meds, doctors' visits, counseling.

I have had very positive dietary results. I cheated a couple of days ago to see what would happen and I noticed mild depression a couple hours after. Also I got a cystic acne breakout , loss of motivation, headaches, rashes and razor burns on my face when I shaved among other the symptoms that I may or may not be aware of.

This Celiac is still a new concept to me after two months plus, so I hope that I keep on keeping on. I guess I am a member of this board not only to help myself, but to possibly help someone out there who has had similar experiences as me.

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Similar to many I'm sure, I had nearly lifelong problems w/ depression and anxiety. Kinda figured that was just how it was, and self-medicated w/ just about anything & everything.

Spent a few yrs on a variety of anti-depressants, some of which seemed to work for 2-4 wks, then not at all.

BUT, for ~9 wks now, I've been truly happy, every day and all day. :)

The key was eliminating the FINAL food intolerance - in my case soy.

I've felt better, ALL 60-some days in a row, than I'd felt since a child in the early 70s.

I say skip the pills - find the rest of the diet issues. OK, so maybe everyone can't get as lucky as I feel. If the pills work, who am I to dismiss them?

I've come to believe that everyone has the capability to feel fantastic tho. And I NEVER could have believed that over the prev 30+ years.

Best Wishes to all . . .. :)

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laura- You didn't hijack the thread at all. I TOTALLY agree with you. It's NOT all about money. In fact, my doctor prefers to prescribe as little as possible. He told me the statistics after my second episode, not as a way to scare me, but to educate me. I know he was not trying to instill fear in me at all and yes, medication DID give me my life back.

Statistics are just that- statistics. Within a general population there is a 95% chance that something will occur, but individual anomalies are always present and this doesn't take into account other factors that may affect a predisposition towards depression or any other disease.

Just one of my 'alternative' scientific head views on this....

Drugs certainly work ... and I think a lot faster than a proper psychiatric treatment ...

Just my 2c but because their are SOME doctors who will just prescribe drugs this offers a quick fix... and because of the nature of the problem and almost catch-22 nature of being able to do anything positive in life when people are severely depressed then many patients who are either scared of the psychiatric sessions and/or do not have the will and energy to go through them this introduces a large leaning towards the generalist and anti-depression drug treatments.

In other words the statistics are biased in terms of what the question is (well stats always are)

In this case drug treatment offers an escape from dealing with a situation of getting longer term help and this is the choice most people with severe and chronic depression are going to find easiest...

Just my 2c ...

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Just one of my 'alternative' scientific head views on this....

Drugs certainly work ... and I think a lot faster than a proper psychiatric treatment ...

Just my 2c but because their are SOME doctors who will just prescribe drugs this offers a quick fix... and because of the nature of the problem and almost catch-22 nature of being able to do anything positive in life when people are severely depressed then many patients who are either scared of the psychiatric sessions and/or do not have the will and energy to go through them this introduces a large leaning towards the generalist and anti-depression drug treatments.

In other words the statistics are biased in terms of what the question is (well stats always are)

In this case drug treatment offers an escape from dealing with a situation of getting longer term help and this is the choice most people with severe and chronic depression are going to find easiest...

Just my 2c ...

Hey Steve!

You know around here your 2c are worth their weight in gold!!!!

Hugs

Karen

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