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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Not a dumb question! I got very sick from something that seemed harmless on the label but wasn't. I am learning the hard way to ask and verify before I eat anything.

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    • Hello and welcome You've found a good site for advice and support.  Google suggests there is a link between EoE and Celiac, but at the moment that seems to be as much as anyone knows: https://www.emaxhealth.com/12410/celiac-disease-increases-risk-eosinophilic-esophagitis https://bmcgastroenterol.biomedcentral.com/articles/10.1186/1471-230X-13-96 Although it's not true that having one means you have the other.  You may want to read this thread for the experiences and ideas of others here who have experienced Burning Mouth Syndrome: https://www.celiac.com/gluten-free/topic/106704-burning-sensation-in-mouth/ There were lots more gluten and BMS articles, so if a direct link hasn't been made, there's food for thought there along with some interesting thoughts on B and Iron deficiencies and possible additional food intolerances. No please don't. If the biopsy is inconclusive they may want a second one or further blood tests (you don't mention if they already did these?). Once you eliminate gluten from your diet these tests are inaccurate. That's not to say you shouldn't trial the diet, just make sure with your doctor you only do so once tests are complete. I'd add that even if you test negative you have nothing to lose from trialling a gluten free diet and as someone who did test negative I highly recommend you do, but only once testing is done! In the meantime, start a food diary. Log what you eat, when, and how you feel. Just short notes but make it a habit and try to capture everything you put in your mouth.  Build a record that you can use to find patterns. Maybe a trigger for the BMS will become apparent over time. Best of luck    
    • Funny you should ask about Lectins because I am currently recovering from a recent run in with some pinto beans.  After reading soaking longer than overnight helps break down those Lectins, I soaked them for twenty-four hours  Then I cooked the spots off them!  And still, they have wreaked havoc in my tummy.  Ugh!   So while recuperating, I did some research.  While cooking can break down some of the lectins, the only way to get rid of them completely is to cook them in a pressure cooker.  I was surprised to find that Lectins are histamine releasers!  Lectins make Mast cells release all their histamine.  Aha!   The red wine and balsamic vinegars and the bottled lemon juice are all high in Sulfites.  Sulfites are histamine releasers, too.  Apple cider vinegar is lower in Sulfites.   Lectins stimulate the autoimmune system: https://www.ncbi.nlm.nih.gov/pubmed/25599185 More on Lectins and autoimmune diseases: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1115436/ And for Enis' affinity for chocolate nibs...(as well as my own)... Chocolate is a source of copper.  Copper deficiency causes neuropathy.   My neuropathy has gotten worse recently and my chocolate cravings have increased.  Hmmmm...... https://www.ncbi.nlm.nih.gov/pubmed/19901719 More info on copper http://lpi.oregonstate.edu/mic/minerals/copper So...I'm wondering if I've neglected taking copper along with my calcium and magnesium.  I'm starting supplementing this week. Is copper in any of your protein powders, Enis?   I hope this helps.
    • I have neuropathy. Mine is worse with cold. My hands and toes get so bad I cry. I don't know what to do to make it better but just wanted you to know you aren't alone. I hate feeling alone with this disease.
    • Just recently found this article about a woman suffering from neuropathy which was caused by copper deficiency caused by Celiac Disease. https://www.ncbi.nlm.nih.gov/pubmed/19901719 Copper deficiency myeloneuropathy due to occult celiac disease. "...the authors suggest that some cases of ataxia associated with celiac disease are likely due to copper deficiency myeloneuropathy."
    • Do EoE and celiac disease generally come in tandem?  Does having one necessarily mean having the other? Had an EGD today expecting to have an entirely different outcome.  A short history: Lap Band placed 10 yrs ago with a weight loss of 173-ish lbs. Am a 47 y/o F experiencing uncontrolled vomiting, several times a day, and abnormal, unwanted continued weight loss. Too thin IMO, at 133. Experience random and lengthy bouts of burning (scalding,  really)  mouth syndrome (which I believe is a diagnosis recognized only by those experiencing it, and has not an official diagnosis of anything... yet). At the urging of my children and my parents alike, all of whom see me wasting away before their very eyes, and concerned for my well-being (if not my life),  I began looking for answers. Assuming my answer would sound something like this... "let's remove your lap band immediately". Problem solved.  Not so.  Lap and in perfect condition and placement, and not the cause of any restriction whatsoever, as all fluid was removed 3 yrs ago. Food from over 12 hours previously ingested was still hanging out in the lower portion of my esophagus.  Dr. susoects a high concentration of eosinophils and EoE and/or celiac disease is also suspected.  4 samples have been sent for biopsy.  I knew nothing of either of these two diseases until 2 hours ago, and I am, at best, confused.  Lots of info to digest. Should I begin eliminating wheat, dairy, eggs... Etc. prior to biopsy results? Or wait for Dr. orders? History of Grave's (mom), and Hashimoto's (sister). I've had asthma and chronic bronchitis and pneumonia since childhood. Any  and all info/help/suggestions are more than welcome. Also, feel free to let me know if I'm way off base and prematurely/overly concerned.  I'd be ok with that too, as I tend to overthink things.    Thanks! 
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