Get email alerts Celiac.com E-Newsletter




Ads by Google:






   Get email alerts  Celiac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How About San Jose, California?
0

5 posts in this topic

I live in Santa Clara and would like to know of any support groups in my area.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hey, I just found a posting with the info I needed. Has anyone attended the group at Stanford? If so, would you recommend it? I could also check out the one in Morgan Hill. Any comments are appreciated.

0

Share this post


Link to post
Share on other sites

Let me know if you check out the one in Morgan Hill. I have family there and could possible arrange visits to be able to make it to a meeting. I don't know if you want to travel there, but there is also a support group in Santa Cruz, they meet once a month I think, at Dominican Hospital.

I have not had much luck with the support groups here. One is only 4 times a year and their last meeting was at, wait for it, Pizza Hut! They wanted to show us that we could have a safe "crustless" pizza. This is sauce, cheese, and toppings cooked in a hot wings dish. And they also eat the salad bar. This didn't work for us, since we are dairy free and my kids don't like sauce or any other topping than pepperoni. So this was a meal of just pepperoni, and the topic discussed was about dealing with schools in regards to the laws that make them have to provide your children with gluten-free foods and supplies, etc. Which doesn't apply to my kids, because in order to demand the school provide those things you have to have an actual diagnosis. The schools in my area are great with helping my kids, but I send their lunch and a snack box and don't hold the school responsible if my children accidently get gluten. I stay in close contact with the teachers and the school nurse. The leader of the group actually put a restaurant out of business by suing them after they fed her daughter fries that were cooked in with the chicken nuggets. Her daughter is super sensitive and ended up in the hospital over it. I personally wouldn't be taking my child out to eat if she was that sensitive...Sorry for the rant. I am frustrated to not have a good support group available to me. Although I am thinking of putting up notices around town looking for people interested in starting a group, because I keep running into people who tell me they have a friend in town who can't eat wheat/gluten either. So I know there are at least a dozen or more of us in my town of 10,000!

The other support group is an hour and a half drive (one way!) late at night once a month on Thursdays and I can't be taking my kids out of town on school nights. So we have never made it to that one.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Check out the calendar on this site. The Bay Area ROCK (raising our celiac kids) is having a picnic in Palo Alto on Sept. 26th. Sounds like fun. You bring your own food to BBQ along with outdoor toys. Someone is taking orders for pizza crusts and breads you can purchase that day.

The Santa Cruz Support Group is meeting at Dominican Hospital on Sept. 18th with a potluck meal and a speaker. He works (I believe) at the New Leaf Market in Felton and someone I work with who lives there raves about him and his wealth of knowledge.

DK :rolleyes:

0

Share this post


Link to post
Share on other sites

I'll definitely follow up with you. To be frank, the group at Stanford would be more convenient, as Morgan Hill is South of us - and if you know Bay Area traffic, well, 'nuff said.

I agree with you that there are more and more celiacs popping up every day. I met one just today when shopping at REI. The clerk was helping me locate an insulated backpack (I have a 21 our flight coming up and want to bring my own food on board) and when she asked me why, I told her I had celiac disease. She was extremely excited as she had just been diagnosed. I'm running into this scenario a lot lately.

Thanks for your reply. I'll let you know what I find out.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0