• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
malosp

Elevated Lipase

Rate this topic

Recommended Posts

Hi there,

I am new to this forum but not to celiac disease. I have been pretty good with my diet for the last 13 years and was very healthy.

Just recently I have been experiencing some of my old gluten symptoms. Nausea, stinging in my intestinal track, weight loss, headaches, a hung over feeling etc.

The only lab that was elevated was a slightly elevated lipase.

Does anyone else have an elevated lipase with gluten intolerance. I think I may have inadvertently gotten gluten from some meds I was taking.

Any take?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I did a the time of my diagnosis, I have not had it drawn since, but it was elevated. I don't have the labs on me now, but I can get them tomorrow and see because I think there was another lab which was elevated.

Share this post


Link to post
Share on other sites

i had elevated lipase and amalayse when i had pancreatitis which the dr said was caused by the undiagnosed celiac.....

Jess

Share this post


Link to post
Share on other sites
Guest cassidy

Someone posted about this a few months ago and several people responded but I don't remember much more about it. You might try searching here to see what you find.

When I had my celiac panel the only thing that came back high was lipase. I never got an explanation and I get gluten-free that very day so I didn't persue it. I'm pregnant and they have practically taken 1/2 my blood out in the last few months and all the tests have been normal, so I would think that my gluten-free diet got it under control because that is the only change I made.

Share this post


Link to post
Share on other sites

Thanks everyone for the replies,

At first I thought it was pancreatitis but when I went to my doctor he didn't think it was...just the lipase mildly elevated. But...I have stinging abdominal pain and I assume that I inadvertently got gluten through some medication I was taking that I didn't check out well enough.

Well now I am off the medication and I feel like I am starting at square one again in regard to getting well again from the gluten damage to my intestinal tract. I guess I will stay on clear liquids for a few days and then slowly add back food.

It is interesting to find out so many people with gluten intolerance have elevated lipases. It scares you though when the doctors tell you that.

So thanks again..I will keep everyone informed. I am holding off on CT scans and ultrasounds for now and see how I feel.

Share this post


Link to post
Share on other sites
Ads by Google:


Thanks everyone for the replies,

At first I thought it was pancreatitis but when I went to my doctor he didn't think it was...just the lipase mildly elevated. But...I have stinging abdominal pain and I assume that I inadvertently got gluten through some medication I was taking that I didn't check out well enough.

Well now I am off the medication and I feel like I am starting at square one again in regard to getting well again from the gluten damage to my intestinal tract. I guess I will stay on clear liquids for a few days and then slowly add back food.

It is interesting to find out so many people with gluten intolerance have elevated lipases. It scares you though when the doctors tell you that.

So thanks again..I will keep everyone informed. I am holding off on CT scans and ultrasounds for now and see how I feel.

Share this post


Link to post
Share on other sites

Hi

I fairly new to your site. Did you do the CT scan? My doctors insisted on a CT scan last week when my amylase and lipase came back elevated, I should have my results on Monday.

My lab reading were as follows:

Amylase 131 U/L normal 30 - 110

Lipase 435 IU/L normal 23 - 300

I mentioned to the doctor that I have read a Pub Med article of a small study in Italy that identified about 20% of celiacs had elevated lipase/amylase. This study was done with only about 55 people so I don't know if that is considered a big enough study to be conclusive, but I doubt it.

Did anyone else have a CT scan, if so, what were your results.

Share this post


Link to post
Share on other sites
Hi

I fairly new to your site. Did you do the CT scan? My doctors insisted on a CT scan last week when my amylase and lipase came back elevated, I should have my results on Monday.

My lab reading were as follows:

Amylase 131 U/L normal 30 - 110

Lipase 435 IU/L normal 23 - 300

I mentioned to the doctor that I have read a Pub Med article of a small study in Italy that identified about 20% of celiacs had elevated lipase/amylase. This study was done with only about 55 people so I don't know if that is considered a big enough study to be conclusive, but I doubt it.

Did anyone else have a CT scan, if so, what were your results.

I think I was the origial person who inquired about this months ago, I was told I was having Pancreatis, However after months of being sick and having the same ranges as you with elevated lipse, once I found out I had Celiac Disease, and starte watching my diet, things went to normal.

From my understanding Lipase is produced in a fw places and us with celiacs can have problems with our pancreas if we dont watch our diet, however ours is coming from Leakage in the GUT, its standard to happen but more in celiac disease so Its not too worry about, I did have a CT scan and ultra sound and all was normal but my lipase was up and down for months,

Share this post


Link to post
Share on other sites

I had elevated lipase around the time I was diagnosed

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,915
    • Total Posts
      943,489
  • Member Statistics

    • Total Members
      67,085
    • Most Online
      3,093

    Newest Member
    Pamelas
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you Gail for your response. Of course one should be mindful of the possibility of food allergies but I don't think that's the case with my current situations. Save for gluten containing product, everything I eat now I used to eat before with no reaction whatsoever. I think my issue is more likely to be deficiency in minerals and such.
    • Posterboy, thank you for your response!    Regarding magnesium, do you think relying on food sources like fruits, bananas in particular, is not enough? Just out of curiosity, when you started taking Magnesiums Citrate supplements, did you already consume enough fruits?
    • I fix meal packs in a food prep kit I got online called a jax pack I can fix enough for 1-3 days depending on which pack I fill. I find fixing full on meals in advance...think something that looks great bento style and smells amazing to make others jealous and make it look pretty so you can smile when you pull it out and brag about it.....I had to go the ego route with it sometimes to comfort myself. This allows me to go out and eat sometimes with others. I learned to cook and offer to cook for others...perhaps you can practice and amaze your friends by fixing up some gluten-free dish like crock pot roast, or chicken shred it and have a nacho party? Think of something easy, naturally gluten-free and can bring everyone together and amaze them with your cooking skills. 

      I have comprehensive list of gluten free foods, while we do normally suggest a whole foods only diet, there are options now days for instant meals, and all those standard kids quick foods like hot pockets, cheese sticks, nuggets, tots, corn dogs, etc now from other companies so you can also look the part and not feel that different.

      You are indeed very lucky to have medical services...I have not been able to see a actual doctor since last fall when I lost insurance....I have some friends who are doctors who help out and a chiropractor that will work with me but I can not get blood or labs done.....imagine having to trouble shoot everything and go hit and miss all the time.....

      https://www.celiac.com/gluten-free/topic/120402-gluten-free-food-alternative-list-2018-q1/  
    • I don't think they currently do medically approved Celiac testing ( last I heard). http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
    • Thanks so much for the tips! I told my mom them and she thought they were pretty clever. And I never realized how lucky I was to have medical help. I’ll be much more careful with personal information. I was going to delete the post in case it had too much info but i can’t unless you delete your reply. It’s ok though. Thank you!
  • Upcoming Events