• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Has Anyone Had Their Tests Come Back This Way?
0

3 posts in this topic

Ok I was just curious if anyone else had only the TTG come back positive and not the other tests? The TTG was what was positive in my son and that is why the doctors are pretty sure he at least is a carrier of celiac disease if he hasn't fully developed it. But I am just curious if anyone else has had this come back like this before?

Also I was wondering when they started to diagnose celiac disease? Cause in talking with my mother she said my father had problems that he was hospitalized for as a teenager and they diagnosed it as something else called Gaisbock's syndrome. "A condition in which the blood thickens because it contains too many red blood cells and too little clear fluid (plasma). It most often develops in middle-age men who smoke, have high blood pressure and take diuretics" This is a definition from the internet. Well his symptomsw were what i have read as common misdiagonses of celiac disease and he had a lot of digestive problems and bleeding ulcers and things like that... The problem is that he died 20 years ago and there isn't anyone alive in his family I could ask about this... I am just wondering if he could have had celiac disease and been misdiagnosed and that is where it came into our family.

I am sure I put this in the wrong area but I didn't know where else to put it since it is our son who has been diagnosed so far...

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


It was identified over a hundred years ago, but it seems that the US is WAY behind the curve in accurately diagnosing people. They tested back then, but almost exclusively in failure-to-thrive infants, and even then patients were never told it was a life long thing. Only in the past 5-10 years, since the advent of blood tests, has there been an improvement in this.

One of the doctors I have, who is well known internationally in his specialty (so other doctors don't actually think he's some sort of quack), has noted that he's talked to other doctors about a dietary link to the condition-spectrum he specializes in. Many of them just shrug it off as him being a Californian, and thinking that many of our health problems can be - at least in part - attributed to diet. Uh.... Yeah... The two of us had a good chuckle at that little anecdote. :-)

0

Share this post


Link to post
Share on other sites

lol about the diet bit...

thanks for the info. I am curious if my father could have had it... he seemed to have a lot of the problems it causes... and i do to...

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,370
    • Total Posts
      935,724
  • Member Statistics

    • Total Members
      65,047
    • Most Online
      3,093

    Newest Member
    pidnit
    Joined
  • Popular Now

  • Topics

  • Posts

    • I have been dealing with pain for thirty some years.  I have been diagnosed with RA (sed rate high) due to joint inflammation and nodules, OA due to xray, mri results, fibromyalgia at one point because they didn't want to tell me it was all in my head and, I have nodules on my thyroid.  Other than my sed rate being high, my blood work comes back "normal" so, other than the Methotrexate for RA, I am on no meds for pain.  I take Ibuprofen when needed.  I do not take "pain meds" because I have a low tolerance to medication and I just cant function even if I take 800mg of Ibuprofen.  Example . .. I get a cold and take children's cold medicine.  I take 1/2 the dose of a six year old and it knocks me out.  Some days the pain is so bad, I can barely walk.  My husband bought me a hot tub a few years back for my birthday and it is my go to on bad days.   I was tested for Celiac's and came back okay.  The only other blood work that comes back out of whack are MCHC, low . . . MCH, low . . . RDW, high, . . . ESR, anywhere from 20 to 85 but normally around 40ish . . . TSH, 2.0 or below.  But, the doctors say the first three are not so far out of range that we should worry about it, the ESR just means there is inflammation and the TSH is within normal range.  I have recently gone gluten, dairy, and sugar free in an effort to combat symptoms, pain and weight.  I have noticed a difference in the inflammation and in my general overall wellbeing.  I seem to be more attentive, have more energy, and not is no much pain.  My questions are:  Does anyone else have similar issues while all blood work is coming back normal?  And, any suggestions on how to introduce items back into my diet to test for reactions?  Should I start with gluten or dairy?  The sugar I can live without.  Any info would be helpful.  I look things up on the internet but end up with a bunch of pop up ads for things that are going to cure me.  Thanks in advance.  
    • There is nothing you can really do about the high antibodies.  If it is any consolation, mine have been as high.    Your TSH is too high.  The acceptable range now is around 1 to 3.  You might benefit by increasing your thyroid replacement (or starting) if you are not taking it now.  I feel best when my TSH is closer to a 1.  
    • Do you have a dental school anywhere close?  Even a couple of hour drive might be worth looking into.  See if you can talk to one of the clinical supervisors/dentists.  This would be a case they would like. Or just show up to an Emergency room at a big hospital - if its serious, they can't turn you away.  Because that is what will happen eventually.   Edit - Call up Texas A & M school of dentistry and get your butt up to Dallas!
    • Simon Levelt Organic Coffee is certified gluten free . 
    • Figured I would update on this, up to 1000mg of amoxicillin (500mg twice a day) it does nothing anymore the infection is constant, white area above the tooth, pressure and issues breathing out my right nostril some days, pressure behind my right eye, and ringing in my right ear.  Checked around as suggested still only 2 places willing to work with me (do to the infection and nature of it most will not) they charge a good amount of money and the upfront fee on payment plans is outside my ability to pay. Xray show a large black area heading up into the jaw and apparently this is the issue that has caused most to shun working on it.... I no longer have medicaid due to paper work issues. Bakery business has gone really bad this past month. I am honestly not been able to even afford fresh veggies this month and been living on canned spinach for my veggies, and eating the same meals over and over (omelettes, shakes, nut based porridge).  I am honestly just trying to ignore it and live my life the best I can with the knowledge it is going to probably kill me in the next year and there is nothing I can do about it. Just hoping some philanthropist offers to cover my medical bills or say screw it and let it kill me. I will keep posting on other topics and avoiding this one while I can and hopefully keep contributing to the community with my knowledge base, suggestions, etc in the mean time.
  • Upcoming Events