• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Feel Like I Was Hit By Truck!
0

5 posts in this topic

:( Aloha,

I was diagnosed last week celiac. I have been gluten free for about 4 days now

I was also diagnosed before with fibromyalgia.

I feel terrible like I have the flu and I hurt all over does this sound like others w/

celiac? and how long till I feel better if it is the celiac? Suzanne

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Well that depends-I guess for some felling better starts as soon as they stop eating Gluten. For others it may take 3 months,6 months,a year, maybe longer.

"I feel terrible like I have the flu and I hurt all over does this sound like others w/

celiac? "

Kinda sounds like me :)

I've been gluten-free for 8-9 months with a few accidents and my stomach feels much better.I use to feel like I HAD the Flu but now I just feel like I'm Getting the Flu.I can function and do my normal thing in life i just feel achy and run down most of the time. I have other problems that may be making this worse for me but, who knows. Comparing where I was a year ago I'm at least 50% better off. I was very sick.

So being gluten-free is worth it but it may take sometime to get the full benefits.

Hope you feel better soon. :D

0

Share this post


Link to post
Share on other sites

Suzanne,

I went gluten free about 3 months ago now. And finally I thinnk my stomach is normal. but at first it still killed even though gluten free.

I was dxed with fibromyalgia, 7 yrs ago. It got horrible, I needed a wheel chair, couldnt work, couldnt do mostly anything but lay there. I was also on 11 different meds a day.

Someone on the web told me to try cutting out all meat..... Finally, when I got so bad, I gave it a try. Within two weeks of, I became vegan, I was off all medicines, now i walk, workout, can hold a job, etc...... I got my life back.

So Im saying if you have fibro give giving up meat a try.....but you have to read everything, which is easy really if your already gluten-free.

Im convinced it is something they inject in animals that really made me sick, and they call it fibromyalgia.

0

Share this post


Link to post
Share on other sites

My mother in law has fibromyalgia and the hurt all over part is probably that. The flu symptoms are probably more celiac disease than Fibromyalgia, but could be both. It'll take a few weeks to get used to the feelings associated with celiac disease, but after a few months of the diet you shouldn't feel flu like anymore, but again with the Fibromyalgia there's gonna be pain and you'll probably still feel lethargic pretty often. Did the same MD diagnose you w/ both conditions? If so he/she can probably give you a gluten free pain med to help w/ the fibro pain. Best of luck, I hope you feel better soon.

0

Share this post


Link to post
Share on other sites

This diet can help with fibro but so can thyroid meds. Go to about.com and type in thyroid and read everything there. thyroid@yahoogroups.com is a good support group. Dr. John Lowe wrote a book about the connection between fibro/chronic fatigue and thyroid. Hope you feel better soon. ;) my muscles are doing better but not 100%. I'm taking several things but MSM in crystal form has helped. I also did guaifenesin at one point for a year and that helped me to start walking again. based on Dr. Paul R. St. Amands "What your doctor may not tell you about fibromyalgai". In fact I saw him in person. Take care

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,463
    • Total Posts
      930,702
  • Member Statistics

    • Total Members
      63,887
    • Most Online
      3,093

    Newest Member
    GenieBelle
    Joined
  • Popular Now

  • Topics

  • Posts

    • All fruit and vegetables contain carbs.  So, you can survive just fine without grains.  You think the Eskimos were dining on rice and fresh salad?  I am not recommending that you go grain free, but consider expanding your list of veggies.  Add sweet potatoes, squashes, white potatoes (if you do not have an issue with nightshades), artichokes, taro, etc.   It is okay to eat rice!  Just not every single day.  People tend to get into ruts consuming  the same 20 foods every week.  No wonder supplements are popular.  Work on expanding your diet.  Eat your toast with peanut butter.  Just not every single day for weeks on end!  I take that back......when foods are in season, we eat a lot of them daily.  Then it's over for another year.  We like to eat local as much as possible.    Nothing like that first watermelon of the season!!!! Waiting for blueberries too.  (Sorry, but imported produce is not the same, in my opinion).   I must say, that living in California is beneficial.  We grow almost 50% of the nation's produce! http://www.latimes.com/food/dailydish/la-dd-calcook-california-its-whats-for-dinner-20140312-story.html
    • And this from Consumer Reports: http://www.consumerreports.org/cro/magazine/2012/11/arsenic-in-your-food/index.htm Rice aside, stop giving your kids apple juice too as it can contain high levels of arsenic too!  Eat real apples -- not juice.  
    • If I am in a bar and it is super busy, I ask for a "to go" cup.  Why?  If a dishwasher is not being used (or demand is overwhelming it), bartenders are cleaning all the glasses the old fashioned way ( sinks, wash and rinse with disinfectant).  Good for killing bacteria I suppose, but maybe not for removing gluten traces.   No bar is going to slow down drink orders ($$$$$)  to wait for clean glasses from the dishwasher!   Is this all true?  I can not say.  I am just speaking from experience when I was barmaid 30 years ago before there were dedicated bar dishwashers.   http://www.servicethatsells.com/blog/how-to-clean-a-beer-glass/ Even if this is "all in my head", I feel better clutching my "to go" cup and can relax.  😊
    • Check out this page and the advice on rice prep: http://www.bbc.co.uk/programmes/articles/2F1MDzyW55pg97Tdpp7gqLN/should-i-be-concerned-about-arsenic-in-my-rice  
    • Hi Rachel and welcome I think you've found the single best site on the web for help and advice. Hope it's of use to you. I tested negative for celiac so no referral. My experience with NHS however suggests it could be worth phoning your Gastro's office and asking the admin staff there to check on this. Things get overlooked... I would avoid anything with those warnings on. It's a pain in the arse because, for example, it recently appeared on a brand of nuts I like. However having some experience of production and marketing environments that warning will only be going on the pack if someone in the company thinks there's a chance of contamination. There's always other products to choose from so I don't take the chance.  Walkers crisps have given me a reaction, yes even the sodding ready salted ones  It's something to do with their production processes. I think Gary Lineker may dance through the factory each week spreading handfuls of flour for good luck. Whatever, I now avoid them.  My energy levels improved over a few months after the diet. It took longer the second time after my challenge. I was still noticing improvements / weird resolutions of odd symptoms up to 9 months to a year later... Lots of good advice here: All the best! Matt  
  • Upcoming Events