• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gf Store Brand Formula?
0

9 posts in this topic

Recommended Posts

rattaway    0

We know a couple with a two month old son who has been chronically throwing up his breastmilk since birth. The doctor diagnosed him with reflux, but the meds(zantac syrup and metoclopramide-hcl) the dr. prescribed, have not lessened the vomiting. He vomits after every feeding. His mom recently quit breastfeeding, due to lack of sleep and exhaustion of feeding him herself with only crying fits from the baby as a reward and the vomiting, but the formula has not helped to stop the vomiting either. I told her that our four yr. old daughter did the same thing and I wasn't open to the idea of gluten-free at the time. I explained that we later discovered that she was gluten intolerant and that was why she was always sick as a baby. They reached a point of desparation tonight and called and read the ingredients to me from their formula and one of the ingredients was maltodextrin. They asked me to help them find a gluten-free formula so they could give that a try, but I was wondering if any of you gluten-free parents know of any that I can buy at a regular store like Wal Mart? Please help. Thanks, Rian

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


celiac3270    4

Being a thirteen-year-old boy, I don't know where to buy gluten-free formulas :) , but I did have one thing about the ingredients: maltodextrin doesn't necessarily mean that it isn't gluten-free. Malt is a bad ingredient, obviously, and dextrin can be if it's not made from corn, but the ingredient maltodextrin doesn't necessarily contain gluten...in fact, unless on vitamins, it DOES NOT contain gluten:

From celiac.com:

8) Maltodextrin is prepared as a white powder or concentrated solution by partial hydrolysis of corn starch or potato starch with safe and suitable acids and enzymes. (1) Maltodextrin, when listed on food sold in the USA, must be (per FDA regulation) made from corn or potato. This rule does NOT apply to vitamin or mineral supplements and medications. (2) Donald Kasarda Ph.D., a research chemist specializing on grain proteins, of the United States Department of Agriculture, found that all maltodextrins in the USA are made from corn starch, using enzymes that are NOT derived from wheat, rye, barley, or oats. On that basis he believes that celiacs need not be too concerned about maltodextrins, though he cautions that there is no guarantee that a manufacturer won't change their process to use wheat starch or a gluten-based enzyme in the future.

Share this post


Link to post
Share on other sites
rattaway    0

Hmmm...Could her breastfeeding until a couple of weeks ago caused damage if he is gluten intolerant? Maybe that is why he is still throwing up? There were a couple of hydrogenated things on the label too. I know that that is a process that the celiac community has deemed as ok, but our family has majoy sensitivities to hydrogenated oils. Any info. is helpful. Thanks celiac3270, Rian

Share this post


Link to post
Share on other sites
celiac3270    4

Although the maltodextrin shouldn't be the problem, there could be other ingredients in the forumla that contain gluten (flavors?). I had forgotten about that, but you're correct; he was definitely getting gluten from breastfeeding

Share this post


Link to post
Share on other sites
rattaway    0

Thanks celiac3270, I hadn't really thought about flavors, but the list on the back of her formula container was as long as my arm, and there was a hundred scientific names rather than pronouncable names. I will check again and see if I missed something. I haven't bought formula since my youngest was a baby four yrs. ago. I was twenty then, and a whole lot less informed than I am now about gluten-free products, but still have miles to go on learning. Thanks, Rian

Share this post


Link to post
Share on other sites
Ads by Google:


tarnalberry    314

If she's still producing milk, she can try going gluten-free (and possibly avoiding/reducing the rest of the potential allergens in her diet), and try breastfeeding again.

Share this post


Link to post
Share on other sites
rgeelan    0

I would also suggest that the baby might be allergic to Dairy... I had that problem with my daughter and son. Both reacted strongly to any dairy that I ate... Of course they both reacted to soy also and my son was never diagnosed as a baby, but my daughter had problems like bloody diarhea and apnea and they finally pinpointed it to dairywith a mild allergy to soy. Then when we removed it from her diet and my sons (he is 26 months older) both of them got better at first then my son got sick again and now we are finding out for him it is a wheat allergy also. But I would suggest dairy also might be a problem for the baby. My daughter still reacts to dairy and my son still can't have a lot of dairy even after removing the wheat we dont' give him regular milk, he drinks rice milk and stuff like that.

The ONLY formula my daughter could tollerate was Enfamil Nutramagin... They are gluten free and the dairy is so broken down it doesn't cause a reaction. She however would not take formula except in cereal and I am just finally weening her at almost 14 months. lol! I had to take dairy and soy out of my diet for a long time though because she would have rather starved than taken a bottle! LMAO!!!

Share this post


Link to post
Share on other sites


Ads by Google:


rattaway    0

Thanks rgeelan and everyone else who posted. Can you buy Emfamil Nutramagin in WalMart or Target or similar stores?? Let me know please. I am going shopping with my friend tomorrow to help her find a formula. Thanks, Rian

Share this post


Link to post
Share on other sites
celiac3270    4

As a baby I never breastfed, but I had problems with my first formula, too; projectile vomiting. I had to have some special formula like the one above.....just thought I'd share :D

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,918
    • Total Posts
      938,672
  • Member Statistics

    • Total Members
      65,841
    • Most Online
      3,093

    Newest Member
    Jon baker
    Joined
  • Popular Now

  • Topics

  • Posts

    • I am confused too.  I appears that your blood panel was indeterminate, but that your NP had you on a grain free diet for five weeks prior.  You went back on gluten for two weeks (recommendation is 2 to 4) for the endoscopy.  Maybe it was not enough time for your antibodies to build up and start attacking your small intestine.   Doctors can not say for sure that two weeks is enough.  Probably for most, but maybe not all.  I say this because I never even test positively on the TTG and EMA EVER (but my biopsies proved otherwise and my anemia resolved forever on the gluten free diet).  The number of biopsies taken (6 or more recommended) and the location should be determined.  I would ask for all medical and lab reports.   Your child had a positive DGP IgA like me, yet if I recall, they are dismissing celiac disease.  I think a second GI consult might be prudent.   Your symptoms?  If you have celiac disease it can take a few MONTHS to feel better.  Why?  Most often mistakes are made in the diet.  It happens.  There is a steep learning curve.  It flat out just takes time to heal.  I think most members will tell you that healing does not happen that fast even though science tells us that villi regenerates in just a few days.   There is usually a lot of collateral damage. Finally, something is wrong.  Maybe it is NOT celiac disease.  I though for sure my niece had it, but Crohn's was found instead on a pill camera.  She had consulted with four GIs!!!! So, keep advocating for your health and your child's.  
    • I looked at your past posts, but I’m not sure i know what you were eating then and what you’ve stopped eating now. Also what sort of medical workups you’ve had and what were the results. I understand your biopsy was negative - but I also saw on one post that you were worried they only took one biopsy. Do you have the analyst’s result report there with you? Does it say how many were taken? It’s hard for me to hazard any kind of a guess without a little bit more information, including any medications you are taking. I’m sorry you are feeling so awful. What symptoms are you having? Plumbago
    • I've posted a few different topics, so I thought I would just update in one post. I am seeing my GP later today, but apparently my biopsy results were negative. I have no further information on this. What I do know, is that I have been feeling much worse since giving up gluten after my gluten challenge. Half the days I have barely left the couch. I am so confused and upset. They had warned me this may not give me answers...I'm barely eating anything, I feel so sick. I feel like I felt better eating bread, so maybe that's how I'm supposed to be eating? At this point I just need to eat more than a banana, which is all I can stomach today.
    • It doesn't change DH, but it always makes me smile thinking someone means Dear Husband instead of the rash.
    • It's done this since I started on here, many years ago.  Kind of funny when people type g f meaning girlfriend...... 😄
  • Upcoming Events