• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

What is the general concensus about Enterolabs? I've read through all the promo material and it seems like a far better/more reliable method to determine gluten sensitivity/intolerance/celiac disease/whatever than the biopsy methods of the last half century (and blood work of the last 2 decades??? Not sure how long this has been around...) Anyway, what I wonder about though, is the science behind the claims. Anyone know more than what they say? Also, will ALL people have some level of antibodies in their stool?

I would really like to get this done, but $350 is a bit steep, also, I have 3 kids I would like tested since all blood work was "inconclusive so don't worry about it" :huh: but all of us are feeling MUCH healthier on a gluten-free diet. (For example, my 6 yr old will get diarhea and start vomiting about 15-30 minutes from eating even trace amounts, which I think is something to worry about.)

Anyway, I like validation, though it's not absolutely necessary. :rolleyes:

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


myself and 2 kids were tested thru enterolab. i think it was around 175 a piece. my 2yr old and i came back with celiac disease and my 5yr old w gluten sensitivity. my brother and mom were also tested. he came back with nothing and my mom has gluten sensitivity. it was extremely easy and convenient. i am all for enterolab testing. good luck in your decision

cdobbs

Share this post


Link to post
Share on other sites
Guest jhmom

My daughter and I were both tested through Enterolab and received positive results. I trust Dr. Fine and his way of testing and would highly recommend it.

Good luck to you and your family.

Share this post


Link to post
Share on other sites

Just for a different route, my blood tests were inconclusive, but I did better on the diet, so my doc said "guess you better stick with gluten-free then".

End of story, for me. A positive response to the diet IS a test as well.

Share this post


Link to post
Share on other sites

I agree, Tiffany. Even if I got back test after test saying I'm okay with gluten, I wouldn't eat it again. I get migraines from it. I used to get anywhere from 6-12xs a month (with a generalized headache all day, every day.) Not a good way to live. I've also not eaten any red meat in 15 years, why? Because I get sick whenever I do. I was tested negative for a beef allergy, but this hasn't done a thing to convince my stomach to not vomit everything 1/2 hour after even trace amounts of beef are eaten.

Anyway, fyi, I've been reading through as much literature on the Enterolabs testing as I could find. The University of Rome (Something Something) did a test of it and found the results of this kind of testing are a conclusive means for determining gluten intolerance/sensitivity/celiac disease. I read through the entire article and only felt a little boggled at the end. :blink: I wonder if this is how they manage to test everyone by the time they're 6 years old like I'd read somewhere. Also, if it's only $175 for the test, that's not nearly as bad as $350... :rolleyes: Anyway, I'm going to read up some more and, if it still looks like this is as well researched as it is, I'm going to do it.

Share this post


Link to post
Share on other sites
Ads by Google:


Here's the thing... the work Dr. Fine's doing and the work being done in Italy _sound_ like the same test, but as Dr. Fine has not yet published his methods (which I've heard he's working on), we can't know for sure that the lab methods themselves are similar - if they're not, the conclusion that Enterolab's results are accurate based on the Italian research is not logical. (_This_ is the heart of my beef with Enterolab. This sort of issue.) But, a lot of people have found them helpful, and the "urban legend" that "everyone tests positive" is not true, according to all the message boards I've read!

Share this post


Link to post
Share on other sites

Very interesting, Tiffany. Which, puts me in the exact same spot as before. Lol! How long has Dr. Fine been doing these tests?

And, since I accidentally got into gluten AGAIN this week (that's twice in one week where I've managed to avoid it for weeks and weeks prior!) I have no desire to return to a gluten consuming lifestyle anyway. Migraines suck :(

Share this post


Link to post
Share on other sites

He's been doing them for a while. And I'm really not trying to bad-mouth him in any way - it would not surprise me if, after he publishes his methods and others independently verify it - that his methodology is confirmed. It just has not been independently confirmed yet - that doesn't mean it's wrong. I come from an applied science background, which is why I'm so hung up on it, but they have done a lot of people on this board good, so I can't in good concious discourage anyone from using them. Then again, I'm diagnosed by dietary challenge, so you can see how much "objective" medical tests mean to me at the end of the day. ;-)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,916
    • Total Posts
      943,494
  • Member Statistics

    • Total Members
      67,099
    • Most Online
      3,093

    Newest Member
    Skiscooby
    Joined
  • Popular Now

  • Topics

  • Posts

    • So my tTG-IgA result came back negative. Doc did not do the total IgA so I could be in the 2% false negative. However my ferritin continues to fall (at 25 now so getting borderline to need another iron infusion, 6 months ago it was 50) and reflux was keeping me up at night so after the blood test I went on a gluten free and low FODMAP diet. 6 days later my reflux is gone! I had no idea it could work that quickly. I still feel like there is a lump in my esophagus and have a bit of difficulty swallowing (think I still have irritation in that area) but no more acid and regurgitation! Also have not had a single episode of gas or urgency or days with 8 BMs.  It has only been 6 days so maybe I am just having a good spell but am going to continue gluten free and low FODMAP for a month and then see if there are any FODMAP foods I can eat (but not gluten unless my doc decides I should have a biopsy) (I miss pears and apples). I guess the real test is to see if my ferritin levels start to go up-testing again in 6 months. The diet is very restrictive but worth it if it gets rid of the reflux and other symptoms. BTW post-menopausal (and before that I had an IUD for 10 years TMI) so no periods to blame for chronic microcytic/hypochromic anemia. Doc says "that's normal for you, you just don't absorb iron very well".
    • Did you know that there are so many issues and questions surrounding celiac disease that even doctors who specialize in it find that the scientific data changes every six months, and this includes research data, new diagnostic and testing recommendations, and its connections to other diseases and conditions. In fact, many of us who think we have "arrived" and know it all might actually need a refresher course on the disease. View the full article
    • Apologies for my over-reaction.  As the shampoo exposure was only for a couple week or so, I doubt any lab tests would have indicated exposure. Unfortunately, since I didn't have the antibodies, I can only rely on my symptoms to tell me if I've been exposed. I'm fortunate enough that eliminating gluten (and dairy) from my diet completely fixed my problems. I have had no lingering systems, and now that I have been gluten free for a while, when I do get gluten I have a very clear reaction (and a distinct reaction to dairy) that follows a fairly predictable timeline. This has accidentally been tested a couple of times. For example, early on before I was better at reading labels I grabbed some cookies at the grocery store that I thought were gluten free (the company produces both a normal and gluten-free version, and this was before I learned to avoid shared facilities). I had grabbed the wrong bag but I didn't figure it out until about a week of feeling crappy had passed and I went searching for a culprit. Things like this have happened a couple of times, where I accidentally did a blinded experiment on myself. The symptoms are consistent, and resolve once I remove the offending item. So when I recognized my symptoms as the result of gluten, I went looking for a culprit and I found the shampoo and conditioner. I removed them and then I got better.  My problems are largely systemic. I wouldn't be surprised if I don't actually have celiac but some other immune mediated reaction that hasn't been defined, but calling it celiac is the best way to get people to take my needs seriously (which I'm sure you understand). Unfortunately, my problems don't seem to fit into any particular diagnostic bucket, so I've learned not to rely on the official medical terms and just go with what works. I'm lucky to have had doctors who think the same way, else they might have told me that I didn't need to go gluten free once I failed to show clear-cut celiac. Maybe I'm pre-celiac, maybe it's the much maligned NCGS, or it's all related to leaky gut (I am eagerly awaiting the FDA approval of larazotide so that I can get a doctor to give me some, I think it might do me a lot of good). All I know is that when I went gluten and dairy free it literally changed my life.  In general it seems that gluten exposure causes a generalized inflammatory response. I get some inflammation in my gut that manifests as reflux, acid indigestion (what I call "fake hunger"), and a little bit of urgency and unpredictability with regards to bathroom needs, but if that were the only problem, I think I could live with it. I also get headaches, brain fog, my depression/anxiety gets triggered to a scary degree, arthritis, muscle aches, and then, the clincher, muscles spasms in my upper back and neck that have been known to lay me out for a couple of days while I wait for the muscle relaxants to help me heal. The muscle spasms, arthritis and brain fog are the most recognizable and are usually what cue me in that I got glutened, especially the spasms.  Again, sorry for being oversensitive. I should have known better, since this is such a supportive community.  
    • I appreciate your point. However, constancy of my celiac symptoms indicates that I have had the disease for at least three years - while I have never experienced any food allergies in that time. Although I will keep an eye on any emerging allergies, I believe my current fatigue is due to nutritional deficiency, because the only exogenous change in my life style has been the transition to gluten free diet.   Yes, I certainly need to keep a food diary. Thanks again for the advice.
    • In many cases no.....I consume heavy magnesium foods like pumpkin seeds, cocoa nibs etc....and still need 2-3x the dose of magnesium recommendations. Going on more of what poster boy said. You dose magnesium to tolerance with citrate like Natural Vitality Calm you start off small partial doses and slow ramp up....it can hit you hard causing gas and D if you go to quick into it. You dose citrate to tolerance meaning you slowly up your dose til you get loose stools...then back down a bit. You should have vivid dreams with a good dosing....also if it becomes to harsh or you can not handle citrate there is Doctors Best Glycinate...it does not have the gut effects at all...but the dreams and how much it makes you relax is more more felt.   ...with this disease you can have a food intolerance or allergy crop up out of the blue....like no where. You have a autoimmune disease....celiac it effects your immune system and can make it really wonky. Like it seems to always be on guard like a sleep deprived sentry on stim packs...jumps at everything and shoots it. If you get sick, eat something odd or harsh you system might red flag it as a issue for awhile and go bonkers....keep a food diary and try a food rotation in the mean time...OH as a example to this, I was fine with chia seeds last week...I got a cold over the weekend....same bag, same brand same way....withing 30mins I now puke if I eat them...new intolerance.....I also am finding jalapenos/paprika making it sleepy tired....so I am removing them both for a few months from my diet and changing to other sources for fats/fiber and vitamin A/C til I get over that issue.....these things just happen. https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
  • Upcoming Events