• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Did Something Stupid....
0

18 posts in this topic

Sigh...severe rookie mistake....

I fell for the label on one of those specialized loafs of breads..."spelt, a natural alternative to wheat".

Spelt was one of those grains that I remember being on one of those "safe grain" lists..right?..right!.(these are the voices in my head at the store)

I was so proud of "my find" and I raced home and made a piece of toast to check it out. Damn it tasted good for "gluten free bread".

THEN I decided to look in "Gluten Free for Dummies"(which I was) the author lists spelt as a sneaky "alias for wheat". Crap did I feel foolish.

That sucker shot thru me like a greased pig at the county fair...

Let the chastising begin!! B)

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hey, don't beat yourself up too badly...I had to ask a friend who is a veteran at this gluten free stuff, because I had read mixed things about spelt. I think it's an honest mistake, and you certainly will never forget it!! I figure every mistake we make like this is just one more to put down as a good old fashioned learning experience. :lol:

0

Share this post


Link to post
Share on other sites

Yea, they put on the label that it's an "alternative to wheat" because some people with an allergy to wheat can safely eat it.

It's not safe for us, though :(

You live and learn ;)

0

Share this post


Link to post
Share on other sites
Yea, they put on the label that it's an "alternative to wheat" because some people with an allergy to wheat can safely eat it.

It's not safe for us, though :(

You live and learn ;)

Yah...glad I only ate one slice....it seems like my body is more sensitive to it now....

hits the reject button in a hurry...

0

Share this post


Link to post
Share on other sites

I hope you feel better soon! Anyway, you'll never forget that spelt is wheat, I'm sure.

I went to a health-food store in Florida a year ago, and told the sales lady that I have celiac disease and wanted to buy some flour I could use. She told me that spelt was safe for celiacs! Fortunately, even though I wasn't sure then, I also wasn't convinced it was safe, and didn't buy it. Good thing, too. I wonder how many people are misled by that lady.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I did a stupid thing today too. I know the chickens at Sam's Club are gluten free, and today they had ribs out. No label like the chicken though. The guy who runs the meat dept was right there, so I asked if they were gluten free too.

He asked some other guy to check the package, and he came back and told me it was gluten free and yeast free too.

I believed him.

So my slamming headache and nausea are either from them or the GI bug that is going around.

I am starting to realize that people will say something IS gluten free if they aren't sure, instead of saying that they aren't sure.

Sigh.

0

Share this post


Link to post
Share on other sites
I hope you feel better soon! Anyway, you'll never forget that spelt is wheat, I'm sure.

I went to a health-food store in Florida a year ago, and told the sales lady that I have celiac disease and wanted to buy some flour I could use. She told me that spelt was safe for celiacs! Fortunately, even though I wasn't sure then, I also wasn't convinced it was safe, and didn't buy it. Good thing, too. I wonder how many people are misled by that lady.

You are right..spelt is ingrained in my memory. Funny thing is, I don't get much symptoms...

just whoooomp and it's outta here. My body doesn't even bother with cramps or anything <_<

0

Share this post


Link to post
Share on other sites




Jerry:

Ya sure you ain't a Southern Boy. We sure have alot of greased pigs down here. We catch'em and cook'em.

When I left the city and moved here where my husband grew up, we were invited to a Pig Pick'in.

I asked what was that, and said "I don't think sooo"!! Ever been to a Turkey Shoot? I thought they shot turkeys.

Never-the-less, the learning curve is steep. We'll keep you on track. Hope you feel better by Saturday.

Lisa

0

Share this post


Link to post
Share on other sites

I was also caught with the Spelt bread thing. I just wanted to have a piece of toast and I thought I had made the best find of my life.

Unfortunately for me it was only after the second piece that the folly of my eating really hit me - never again!

Glad to know I'm not the only one.

Ruth

0

Share this post


Link to post
Share on other sites
Jerry:

Ya sure you ain't a Southern Boy. We sure have alot of greased pigs down here. We catch'em and cook'em.

When I left the city and moved here where my husband grew up, we were invited to a Pig Pick'in.

I asked what was that, and said "I don't think sooo"!! Ever been to a Turkey Shoot? I thought they shot turkeys.

Never-the-less, the learning curve is steep. We'll keep you on track. Hope you feel better by Saturday.

Lisa

We have greased pigs here in Oregon (Or EE Gun..not..Or EE Gone). Went Chicken pickin...once...never again. I'm learning to never assume anything...

After all this my tests will probably come out negative and they will tell me there is nothing wrong

with me :P

0

Share this post


Link to post
Share on other sites




After all this my tests will probably come out negative and they will tell me there is nothing wrong

with me

Awwwwwwwww Jerry, I think the spelt already proved you can't have gluten!!!!!

0

Share this post


Link to post
Share on other sites

I have a spelt story:

A couple months ago, I was watching QVC :ph34r: , and the host was presenting a waffle iron. He said that if you were gluten intolerant, you could always use spelt flour instead to make your waffles.

Well, of course I had to email him and politely set him straight! So, I did, and felt much better :P

I had all but forgotten about it when about 3 weeks later, I got an email from the host saying his wife actually had a wheat allergy and that's why he said it. Now that he knew the difference (thanks to me) , he said he wouldn't make the same mistake again.

Just thought I'd share--a lot of people out there get confused about these things. We always have to be on the ball :D

0

Share this post


Link to post
Share on other sites

This was how I (inadvertently) did my gluten challenge :rolleyes: !!! My wheat allergy friend did it to me!

0

Share this post


Link to post
Share on other sites
I asked what was that, and said "I don't think sooo"!! Ever been to a Turkey Shoot? I thought they shot turkeys.

Wait, what am I missing? What's a turkey shoot?

Jerry - you're in good company with the spelt. I thought it was okay for me too after avoiding wheat for about 7 years. It just about killed me.

0

Share this post


Link to post
Share on other sites

And don't forget that kamut is an another ancient form of wheat. I was lucky enough to have come across Jax Peters Lowell's advice to "run, not walk" to a nutritionist who gently informed me of those facts even though I wasn't and haven't been medically diagnosed as celiac...although I've done plenty of other stupid things since, not all related to celiac. ;) I've heard others say in line at the marketplace at work that they're gluten-free and then go on to talk about how they're glad they have their spelt bread. I just don't know what to say to folks like that in a fleeting moment of a lunch half-hour's time.

Sounds like you're feeling better, hope that's the case!

Margaret

0

Share this post


Link to post
Share on other sites

Just today I saw loaves of frozen Ezekiel yeast-free rice bread, but the ingredients on the back of the plastic bag listed wheat as an ingredient. You have to be really careful - even in health-food stores.

0

Share this post


Link to post
Share on other sites

Yup, I was told Ezekiel bread was gluten free and to try it. I read the ingredients and knew there was no way it was gluten-free. Some people just do not understand what gluten free means.

0

Share this post


Link to post
Share on other sites
And don't forget that kamut is an another ancient form of wheat. I was lucky enough to have come across Jax Peters Lowell's advice to "run, not walk" to a nutritionist who gently informed me of those facts even though I wasn't and haven't been medically diagnosed as celiac...although I've done plenty of other stupid things since, not all related to celiac. ;) I've heard others say in line at the marketplace at work that they're gluten-free and then go on to talk about how they're glad they have their spelt bread. I just don't know what to say to folks like that in a fleeting moment of a lunch half-hour's time.

Sounds like you're feeling better, hope that's the case!

Margaret

When I first went gluten-free I went out and bought all the supplies I needed and did hours and hours of research on my newly diagnosed celiac disease. One day I was eating dinner when I looked at my vitamin label and saw spelt! OMG...I had been glutening myself without even knowing. Also, two other sources of hidden gluten is Fu which means wheat in asian cooking and Hing in Indian cooking. Hing is a nautrally gluten free herb and it's quiet expensive. It is diluted with wheat flour after it's processed. More things that we have to keep a look out for.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,332
    • Total Posts
      935,528
  • Member Statistics

    • Total Members
      64,993
    • Most Online
      3,093

    Newest Member
    EmmaLauren
    Joined
  • Popular Now

  • Topics

  • Posts

    • Former lifeguard and competitive swimmer here. There could be some potential issues, but I think it's pretty unlikely. Here's why I think that: 1. The water volume in a standard 25m pool is enormous (hundreds of thousands of liters). Assuming there are people swimming in the pool, any hot spots are likely to get dissipated pretty fast, so you'd have to swallow a lot of water to get a serious gluten hit. 2. By law (at least in Canada), the water inflow and outflow rates must be such that the volume of water that makes up the pool must be replaced every 24 hours in public pools. There are always some dust bunnies, bandaids and whatnot trapped in the corners at the bottom of the pool, but the main volume you're interacting with gets replaced regularly, so no build-up. Public pools are also vacuumed on a regular basis. For cleaning agents, typically on bleach and baking soda are used in my experience. Private pools are another story and there no guarantees. 3. Most public pools prohibit food on deck due to public health regulations and/or wanting to avoid cleaning up messes. This limits potential sources of gluten to personal care products on other people's skin. Considering the volume of a pool, I'm having trouble imagining this resulting in a significant exposure, but I have also swam in packed outdoor pools that taste like sunblock, so who knows. I would definitely worry if people were eating hot dogs or shotgunning beers in the pool though (definitely a thing at backyard pool parties). 4. Pool chlorine can be either tablet based, liquid based or gas based depending on the pool. Either way, it is bleach-based (sometimes literal bleach gets dumped in smaller volume bodies like hot tubs when the chlorine is off). The pool I worked at, which was newer used liquid injection, and I would imagine this is true of most newer facilities (gas is undesirable as it can leak and kill people because it is odourless - some older pools still have this set-up though). Tablets are more common in backyard pools, and it's possible that these might contain gluten in some form (I have no idea and have never checked).  For reference, the concentration of chlorine in a swimming pool should be between 0.5-5 ppm, depending on the pool temperature and your region (lower for colder pools, higher for hot tubs).  So, I guess my opinion would be that a public pool is most likely pretty safe from a gluten perspective. Chlorine (or rather, the volatile gases resulting from the reaction of chlorine with biological waste in the pool) is an irritant though - occupational asthma rates in lifeguards and swimmers is quite high. Some people are more sensitive to this than others. My dad cannot swim anymore because he becomes ill for a week with severe upper respiratory symptoms (open water swimming is ok). I get similar, but less severe symptoms (part of the reason I don't swim anymore, sadly). Not sure what symptoms you experienced, but something to consider. http://www.ncceh.ca/documents/practice-scenario/pool-chlorination-and-closure-guidelines
    • I look back at photos from a few years ago now and can see the inflammation in my face. I spent decades with my body fighting constantly without my really being aware. Freaked me out when I realised! Few things to think about: If up to 1% of pop are celiac, at much as 6% could be NCGS - further reading here: https://www.celiac.com/gluten-free/topic/117969-non-celiac-gluten-sensitivity-a-resource/ NCGS can present in the same varied ways as celiac - Not just or even primarily gastro related. I get back pain, chest pain, skin problems, eyesight problems, anxiety, depression, balance issues, nerve tremors and twitches etc. etc Try to treat these next months as a special case. Dial your diet back and eat really basic and simple. I lived on omelettes filled with veggies, huge green salads with olive oil and cider vinegar as dressing and a very simple evening meal with maybe some meat and rice. I ate as little processed foods as I possibly could. So try and avoid sauces, anything in a box really.  Your aiming to help your body heal and to reduce the amount of ingredients going in to the basic safest foods. Eat clean and healthy and avoid any possible gluten source. Spend a bit of time learning about hidden sources of gluten too. This thread will help:  https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/   Final point. You may like me eventually have to live life without gluten and without the comfort of a diagnosis that says precisely why. This is not always easy, but what you learn about your body in the next 3 months of this trial could help you to do this. Keep the diary, note your reactions and hopefully when you see the Rheum in 3 months you'll have conducted your own science experiment and have the data you need to make a good decision. Best of luck Matt  
    • Newly diagnosed, who do I tell? I'm not talking friends & family. I am normally private about health matters but I feel it seems I need to tell so many people. Does anyone have a list? Some are obvious like doctor and dentist but one came up for me the other day when my massage therapist asked if I'd had any changes in my health and I said no but halfway through the session realized that, "Duh I should have mentioned Celiac! Clearly the lotion used could be an issue." So who is on your list to tell? Here's who I have so far: Doctor(s) Dentist Restaurant Servers Massage Therapists Hair Stylist Babysitters, Petsitters or Housesitters (anyone who might bring or prepare food in my home)      
    • Hey, I am learning also...make sure you are taking a good multi-vitamin...gluten-free of course.  I have had a few "charlie horse" pains in my thighs and am taking an extra B12 tablet...If you have an ALDI grocery store nearby they have lots of gluten-free items snacks and frozen.  Vitamins will help...you are not getting enough nutrients with what you are eating.
    • I feel the same way! Newly diagnosed (gluten-free since July 1) and never had major GI symptoms mostly neurological issues and other very random stuff. So no red flags to tell me, "You just glutened yourself!" Or at least I haven't identified them yet. I'm not sure if I'm feeling better or not yet. I do have more energy but lots of anxiety and random symptoms that might be celiac related... but who knows. I'm just not sure if this is what "feeling better" is yet. I can't imagine what that is like... or will be like. And I keep reading about people "getting sick" when they are glutened but that is so vague. For me, I'm not sure I'll know if I've actually been glutened or not. I feel like I'm extremely careful but I'm not sure if I'm being over the top, or if I'm doing it right, or not enough and need to do more. I'd just like to get to a nice gluten-free baseline and note what that is like so that I can compare how I used to feel and how I might feel if glutened so that I'll know! Sorry, didn't mean to hijack your thread and provide no answers. I can just relate, that's all.
  • Upcoming Events