• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Newly Diagnosed
0

12 posts in this topic

Hi, I have recently been diagnosed with celiac disease. I have been treated for various symptoms for years, anemia, GERD, early onset osteoporosis, low thyroid, etc; but finally know the source of these problems. Unfortunately, I have been given very little help for managing a gluten free life. I started with a hospital dietician who knew less than I have learned from forums like this. In addition, I asked my pharmacists about the prescriptions and over the counter medications that I must take, and they had no answers for me. I e-mailed several pharmaceutical companies about their products and have received no replies. Please help!! I am severly anemic and need an iron supplement. Can you recommend a gluten free one? What about a calcium and Vitamin D supplement? Is Viactive ok? What about a multivitamin? Where can I find out information about prescription medicines - Nexium, Levoxyl, Fosomax? Thank you.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I am also new to this forum but do have a few answers. Nexium is gluten-free, not sure about the others. Your pharmacists should be able to give you the drug companys 800# to let you call to see if the others are gluten-free. I looked at Viactive the other day, I don't think that it is but you should be able to call and find out. Also, you probably can take all the iron tablets you want but you will not be able to absorb the mineral. Been there done that. Took 1000 mg a day, no change in my iron levels or anemia. I just recently had a iron infusion. Most people don't have a reaction to the infusion but I did. If your WBC, Hgb, Fe, and other labs are that low... your doctor should recomend an iron ifusion. You do it as an outpatient takes about 8 - 10 hrs.. Its been 7 months since mine and my labs are still good.

The best advice I've ever received is from this group. They've sent me receipes and encouraged me to go buy a gluten-free cookbook, I did.

I'm not sure where I got it but I printed of a list of forbidden ingredients and one of allowed. The forbidden is a lot longer than the allowed.

Try whole food stores, nature's pantry, Hy-Vee if one around. You can get a big book from the Celiac Association that will give you a list of all food products in grocery stores that are gluten-free. (they tell you the grocery stores) My local store (Hy-Vee) bought the book for me to keep me as a customer.

It's very hard as an adult to change your diet. Very depressing at times. But all you can do is try. Read a lot of the other postings here and you'll get more info than you could ever imagine.

Charlotte

0

Share this post


Link to post
Share on other sites

Slow FE slow release iron supplements are on the gluten-free medications list. I was in your exact shoes for so long, I am so sorry that you have to deal with this kschmitz! Fortuantely now that you know what is the problem you can fix it. First thing: try glutensolutions.com they have Gluten free vitamins. Also, on the Celiac.com home page is the Celiac.com Site index print out the Safe & Forbidden Lists for Gluten-Free Diets and make it your "Diet Bible", there's also a list of gluten free medications under mainstream gluten free products, print the entire list and keep it in a 3 ring binder w/ other printouts. Basically just check out the site index and print everything out and keep it close at all times.

0

Share this post


Link to post
Share on other sites

Viactive IS glutn free

0

Share this post


Link to post
Share on other sites

Thank you for all of your kind responses. It is such a comfort to know that someone understands what I am going through. I have a loving, supportive family. However, they do not understand what they call my "obsession" to seek out and eliminate gluten from my life. They roll their eyes when I talk of cross contamination, labeling, and all of the other new vocabulary that I am still learning. So please keep posting, everyone, because this forum is a lifeline.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hi K,

Just wanted to add that Levoxyl is gluten free.I took a calcium

supplement from Freeda vitamins, just do a search and you will

find it, it was gluten free but bothered my stomach so I

quit taking it. If you have anymore questions let us know.

This board has been a godsend for me.

0

Share this post


Link to post
Share on other sites

Does anyone know if the iron supplement, Ferro-Sequels, are gluten free? I called the company and they said it is, but my stomach is always upset. Any other recommendations for getting the iron into me are greatly apprecaited.

Thanks in advance.

0

Share this post


Link to post
Share on other sites

Iron can be very harsh on your stomach to begin with. If the company says it is gluten-free, it most likely is. I would bet it is just the iron giving your problems.

Other ways to get iron are drinking some orange juice or other vitamin C filled drink along with eating a piece of iron filled meat like beef. The vitamin C helps with the absorbtion and breaking down of the iron. You might also give that a try.

Hope it helps!!

-Jessica :rolleyes:

0

Share this post


Link to post
Share on other sites

Hmmm. Maybe that explains my upset stomach. I had severe anemia, which is why I was tested for celiac disease, and told to take these Ferro-Sequels and start a gluten-free diet. I have assumed all this time that my sour stomach was due to the diet change and that I was doing something wrong - maybe not eliminating all glutens.

I'll take your advice about the Vitamin C, because I want to be sure I'm getting enough anyway - especially with cold and flu season around the corner. I'll also check to see if there is a liquid form of iron that might be a little gentler on my tummy.

By the way, I've just had a blood test revealing that I'm not anemic anymore, but my iron stores are still low. So, I have to continue taking the iron at least for 6 months or so.

Thanks for your input, Jessica. Have a great day.

0

Share this post


Link to post
Share on other sites

If you like liver it has tons of iron.

richard

0

Share this post


Link to post
Share on other sites

You know, when I was a kid I was always anemic (I guess I know why, now) and my mom force fed me liver, chicken liver, raisins, spinich, and anything else that contained iron. Being from England, it was all fried - except for the spinich, it was just over cooked and slimy. So, you can imagine how I feel about liver :)

However, raisins have resurfaced in my diet, as has spinich - in the form of salads, not cooked, but I doubt liver will ever pass through these lips again. Curiously, my mom still fries up a mean helping of liver and onions. Yum!

Helen.

0

Share this post


Link to post
Share on other sites

if you fry food in cast iron pans you will also get some amount of iron in your diet just by using that type of pan.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,766
    • Total Posts
      932,290
  • Member Statistics

    • Total Members
      64,237
    • Most Online
      3,093

    Newest Member
    Pinkie
    Joined
  • Popular Now

  • Topics

  • Posts

    • Those cooked eggs are just fine!  If you want to insure that the frig is colder, add a bucket of ice.  Is used to travel without the benefit of a frig.  I just used a couple of ice buckets to chill milk, or whatever.  It worked.  If you want a hot meal, try Udi's frozen meals.   Not the best, but good for hotel cooking.  Several lunch meats are gluten free too at the market.  
    • I clicked it and got re-directed to c.com  but this time I got the article.  I shouldn't copy the whole thing but here is the conclusion - "In conclusion, in the right clinical setting, symptomatic celiac disease is treatable, but we do not recommend population screening. Further data on the clinical impact of a glutenfree diet on the microbiome and the long-term health consequences in those without celiac disease are needed. The entity NCGS closely overlaps with the functional gastrointestinal disorders, and new evidence suggests that at least in some gluten may not be the culprit despite symptom improvement after beginning a gluten-free diet.We do not recommend a lifelong gluten-free diet for individuals without celiac disease."   Celiac Disease and Nonceliac Gluten or Wheat Sensitivity The Risks and Benefits of Diagnosis Nicholas J. Talley, MD (NSW), PhD (Syd), FRACP; Marjorie M. Walker, BMedSci, BMBS, FRCPath, FRCPA
    • Thanks for the responses. As far as genetic testing goes I wasn't offered that as an option. They ran several labs and everything was normal. We were waiting on celiac to come back and when it did the one marker was high. Not sure who I would talk to about having a genetic test. I did a genesight test for medications and it showed folic acid was questionable. But nothing pertaining to this. Endoscopy is scheduled for Friday. 
    • Refractory celiac disease (RCD) is a rare manifestation of celiac disease that is difficult to treat, and often results in death from enteropathy-associated T-cell lymphoma.Doctors looking to treat RCD have found very limited success with a number of immunosuppressive medications (IMs), including azathioprine, systemic corticosteroids, or regular budesonide. A team of researchers at the Mayo Clinic recently set out to assess open-capsule budesonide (OB) treatment on RCD patients, including those who saw no improvement with previous IM treatments. View the full article
    • I'm on my first business trip since being diagnosed. I brought all kinds of food with me, as I'm in a Hilton hotel and I have a fridge and microwave in my room. I brought yogurt, cheese, eggs, fruit, bread, peanut butter, Terra sweet potato chips, Popcorn Indiana popcorn, snow peas. Does anyone have tips for me? Ideas for what I can eat, aside the things I mentioned? I made some hard boiled eggs before I left home but the fridge in my room isn't great and I don't know how cold they've been overnight so I'm not sure I'll eat them. I don't know how cold eggs need to stay. I'm in a small town but there are supermarkets. I'm just limited because I don't have a stove or much cooking space. 
  • Upcoming Events