• Ads by Google:

    Get email alerts Celiac.com E-Newsletter

    Ads by Google:

       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Just Got My A.l.c.a.t. Test Results Back And I'm Not Happy

7 posts in this topic

Hey everyone -

I did the A.L.C.A.T. Comprehensive V test. Here's what came back (I promise, this is going to be LONG)...

Red foods - severe reaction:


cane sugar





green pepper

honeydew melon





orange foods - moderate reaction:












mung bean






yellow foods - light reaction:




black-eyed pea


brussel sprouts









lentil bean

lima bean






pinto bean


red pepper


string bean





GOOD GRIEF! I have to say I'm most upset about the corn, cane sugar and garlic. I think this is a leaky gut thing - most of what showed up are things I've been eating a lot of lately (although that just could be coincidence and would then explain why I've felt pretty badly...)

Gluten didn't show up at all, unless you count malt and hops. I had no reaction to wheat, rye, barley or oats... but after talking to the nutritionist, she said that because it's been almost a year since I've consistently eaten them, they might not have shown up but still be a problem. I *know* they are a problem, but I'm questioning it now because they didn't show up...

I guess my big question is... what the heck am I going to eat? I can live very happily on veggies, fruits and proteins... but my veggies and proteins are severely limited.

Also, does anyone know of any good resources for corn-free info? Are people as sensitive to corn, or is there a CC issue with corn?

Thanks for your help!


Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:

It's only my opinion, but I've heard a LOT of negative things about that particular test, LOTS of false positives and test reactions to foods that are not reacted to. I think your best bet is an elimination diet to see if you TRULY react to any of these foods.

Lots of luck to you!


Share this post

Link to post
Share on other sites

Thanks for your thoughts. I am definitely planning on doing an elimination diet. I figure if I cut them all out and actually feel better, I'll know that at least one of them is making me sick and can add things back one at a time. I guess I figure that at least this gives me a place to start from and know what to cut out...


Share this post

Link to post
Share on other sites

Hi Elizabeth,

I'm sorry the test didn't give you more specific, concrete information. :(

I remember my allergist telling me that these tests result in many positives because when we eat a food, our bodies make antibodies to it. People usually end up doing an elinination diet anyway to weed out the false positives.


Share this post

Link to post
Share on other sites

Thanks, Patti. I hope I didn't completely waste $500. :blink:


Share this post

Link to post
Share on other sites
Ads by Google:

Thanks for your thoughts. I am definitely planning on doing an elimination diet. I figure if I cut them all out and actually feel better, I'll know that at least one of them is making me sick and can add things back one at a time. I guess I figure that at least this gives me a place to start from and know what to cut out...

I am so sorry that you are frusterated! I do know how you feel though! I eliminated everything they told me to (well, all of the red and orange foods, but not the yellows, just watched out for those), for a month, and then started re-introducing them.

That is actually how I found out about my Celiac Disease, because when I added wheat back in, my intestines shut down and I ended up in the hospital! But I had been eating wheat up to the time of the test, and you have not, so maybe that is why it didn't show up with your test.

I do know that they said that you have to watch what you tend to eat everyday. Like you said about corn, you eat a lot of it. It might do you good to have a more balanced diet, not having the same foods everyday.

I think the elimination diet is pretty much what you will be doing at this point, but at least you have a starting point now! You know what foods to watch when you re-introduce them. I am sorry that you list is so long...do you eat those "red" foods a lot? My list was much shorter. My red foods were only 3 foods. Cantaloupe, caulifour, and sweet potatoes.

PM me if there is anything I can do to help.


Share this post

Link to post
Share on other sites

Yes, almost all of the red, orange and yellow foods are foods I eat all the time, especially in the last few weeks. That makes me think it's a leaky gut thing, so I'm going to do some research on trying to repair that while I cut these foods out. Thanks for the support!


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Popular Now

  • Topics

  • Posts

    • JMG got it down pretty much, the painful and gluten effects from eating it should clear up in a month, damage symptoms you might notice some differences as early as 2-4months but most do not noticed major improvements til about 6 months to a year. I have been gluten-free for over 3 years all my villi have healed according to the doctor on my last scope. It is very important to not cheat and avoid any kind of CC as it can set you back weeks or months. I would suggest a whole foods only diet for the first month or two, no dairy, simple stews, soups, etc. make for easy to digest and simple meals. Check out the 101 thread for some good information. PS a new combo crockpot, steamer, rice cooker combo and liners for a crock pot will be a life saver for making simple meals and easy clean ups. Quick cook microwave ware will also be handy making sure you have gluten-free cooked meals if you can not get new cookware immediately. I normally suggest cleaning out the entire house, scrubbing down knobs, handles, on the drawers, sink, fridge, cubbards etc.  throw out condiment jars, checking ingredients on everything in the house including your hygiene and makeup. Putting in drawer organizers for new utensils, throwing out scratched glass, teflon, plastic, and steel cookware. Throwing out any Tupperware, and cutting boards, some utensils that can not be cleaned well. Some times you can save cast iron and stainless steel cook ware if you can run it in your ovens cleaning cycle over 600F. Gluten is a protein like blood if you can not clean a item where a CSI team will not find it give it up, it is not a germ that can be killed with disinfectant.  I use freezer paper for clean prep surfaces, also makes clean up a breeze, I tend to use gloves alot also when fixing foods,
    • Hi Allie and welcome First off, I know 3 years was a long wait, but at 17 you've figured out celiac way before many people do. That should make a big impact on minimising its effects and helping you with the diet, so, bizarrely enough, congratulations!   A lot of good advice has been brought together in this thread:  Don't worry that your symptoms are bad now. As you follow the diet your body will begin healing itself and you're still very young so hopefully this will go really smoothly. Think in terms of the next 6 months rather than weeks however, recovery will likely take a little time. Eat as healthily as you can, lots of whole foods and try to avoid the gluten free processed substitutes as your digestive system needs all the help it can get at this moment.  You may want to avoid dairy as well for now and think about reintroducing it later. This site has been really helpful to me and others. I hope you find it just as useful. Best of luck!   ps, your increased reaction to gluten during the challenge phase was perfectly normal. Many find that reintroducing it much worse than the initial affects and take some time to get over the challenge. That's why you'll see lots of posts here urging folks to 'stay on gluten' till their testing is complete!
    • Hi! My daughter is 19 was diagnosed at age 16. It took about 12-18 month s for her to fully heal from the damage and feel "normal" again. Also because of the damage done she had reactions to dairy, so you may want to try no or minimum dairy until youre fully healed. Just a suggestion. Hope you start feeling well soon!
    • Hi yall! New to this blog, but really glad it exists because I have lots of questions. First off, I'm Allie! I'm 17 and newly diagnosed Celiac after about 3 years of searching for answers. I initially went gluten-free on the recommendation of a friend, I felt better in about a month and then my pediatric gastroenterologist had me do the gluten challenge, and my symptoms were the worst they have ever been, and ones I barely noticed before became very present. I did the biopsy and was diagnosed, it's been about 2 weeks and my symptoms are still pretty bad, although my diet has no known sources of gluten or cross contamination. Wondering if anyone has any input on healing post gluten challenge, any tips or how long it took for you would be quite helpful! Thanks 
    •   Might want to look into a keto diet, I have UC on top of celiacs and keto is working great Yeah I have major nerve and brain issues with gluten, gluten ataxia with nerve issues and brain issues. Seems to cause my body to attack my brain and nerve system. My brain stumbles fogs, and starts looping, the confusion causes me to become really irritable, I call it going Mr Hyde. Like my mind will start looping constantly on thoughts and not move driving me literally mad, or it used to. Now days it is primary the numbness anger but the gut issues and sometimes random motor loss limit me motionless to the floor now days for the duration of the major anger effects. Used to be a lot more mental then painful gut. I did a mental trauma post on it on while back where I came out about all my mental issues with gluten.  
  • Upcoming Events