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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Has Anyone Ever Heard This Before?
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3 posts in this topic

I had a positive blood test for the antibodies a couple weeks ago. I haven't had my biopsy yet.

Anyhow, my father was visiting his gastro (for a regular colonoscopy) and he brought up that his grown daughter (me) might have Celiac's. The doctor asked how he knows and he mentions that I had a positive blood test. The doctor asked if I had the biopsy done and my father said not yet. Then the doctor said something strange.

He said, "your wife (my mother) is from Ireland, right?" My father said yes and the doctor said, well make sure your daughter gets that biopsy because 1 in 5 people of Irish descent will have a fake positive blood test for Celiac's.

Has anyone heard that before?

I was kind of surprised at that.

I would be happy to find that it was a false positive and that I don't have Celiac's. But, on the other hand, then why I'm having these problems (diahrea, pain, conspitation, etc) would still be a mystery then.

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Although I have not heard of that correaltion, I would like to comment on it.

I believe that there is a whole group of people that the medical community is missing the boat on. It is the group that tests positive for a gluten intolerance (presence of 'tons' of anti-bodies to gliadin) but have not yet developed the damage in the small intestines to give a diagnosis of Celiac's disease. These poor folks would be what he describes as the 'false positives.' They have not yet or may never sustain damage to the villi in their small intestines, but could benefit from a gluten-free diet, helping them avoid a whole host of other auto immune disorders.

I believe that gluten intolerance can lead to Celiac's disease 'as well as' many other auto immune disorders afflicting people today. Most of the medical community fails to recognize this and therefore does not encourage a gluten-free diet for anyone other than "gold standard" proven Celiacs.

If your biopsy is inconclusive or negative, I would recommend a trial on a gluten-free diet to see if it helps.Your response to a gluten-free diet along with your bloodwork results, would be sufficient to accept a gluten intolerant/sensitive diagnosis.

These are only my opinions on the matter...

I am NOT a doctor, nor do I play one on t.v.! :) I am just a mother of a gluten intolerant child who has read and chatted with others in the same boat. Please feel free to challenge me or point me towards any research and information, I'm always searching!

Priscilla

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I quite agree. Sure... if you go by the textbook definition of not being celiac until your villi are flat, then you could have a positive blood test without the textbook celiac diagnosis - doesn't mean that you should still eat gluten though.

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