• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Guest cassidy

Fresh Air On Npr

Rate this topic

Recommended Posts

Guest cassidy

I was flipping stations today and stopped at Fresh Air on NPR. I never listen to it but there was a doctor who had written a book about misdiagnosis. He was telling a story about a woman who at age 20 stopped liking food. She was having abdominal discomfort and really hated to eat. She was diagnosed with anorexia and after 15 years was down to 82lbs and had been institutionalized 4 times. She had also seen over 30 specialists. She claimed she was eating but her body was deterioriating and she kept losing weight. She eventually got D and went to see a GI doc who believed her and ran some tests. Guess what was wrong with her? She has celiac.

It is a horrible story but I knew as soon as they started describing her story that she probably had celiac. I'm sure many of us have horror stories about how long it took us to get diagnosed and how many doctors told us we were crazy.

Just thought I would share.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Wow. Those years must have been scary and frustrating for her.

Nancy

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0