• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac And Bone Pain?
0

12 posts in this topic

I had abdominal surgery in March 2004, after which I developed all kinds of sympoms - bloating way longer than it was supposed to last, dizzy spells, and frequent infections. Then in July I experienced bone pain in my ankles and hands and feet, as well as arthritis-like symptoms in my hands. I was diagonosed with IBS years ago as well, and my mom is gluten intolerant. I've also had rashes on my back on and off. It is all starting to come together now.

Anyone else get bone pain as a symptom (especially at night!)? I qm also slightly anemic.

I had the blood test yesterday, and am waiting for results.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Are you sure it is bone pain or is it in your tissues, muschles and ligaments. If it is, then you could possibly have fibromyalgia which some doctors will diagnose and others will not. Usually you have to see a rhumatologist for this kind of a diagnosis. There is more and more thinking that fibro and gluten intolerance can be linked.....I am at that point right now. I got a negative blood test, but have done a complete testing with Enterolabs which I found out about through this message board. It is really a much more thorough testing. I have sent it back to them and am awaiting the results now. I am eating gluten free. If you continue to have those symptoms, you should ask you doctor about it and suggest maybe he refer you to a rhumatologist. Barbara

0

Share this post


Link to post
Share on other sites

The last year before I was diagnosed, I had excrutiating bone and joint pain all the time. This lasted until about 10 months into my gluten-free diet. In fact, one of the first signs that I had accidently eaten something wrong is that my joints would swell terribly. I haven't had a problem with it in about a year (thank goodness!). I've also heard that people who are sensitive to nightshades (tomatoes and peppers and some other veggies) will experience stiffness, but I don't know enough about that.

Good luck-

Nadia

0

Share this post


Link to post
Share on other sites

I experience a great deal of bone, muscle, ligament, whathave you pain. This is especially true in myhands and feet and right shoulder. Also have burning pain across my upper ab beginning under right center ribcage. The two seem to get worse at the same time. I am eating gluten-free, and have been really faithful, however, I forgot yesterday and opened a freezer container of vegetable soup prepared in pre gluten-free days. It has barley in it. Things are worse today, but there are other possible factors. One may be a change in the kind of glucosamine-chondroitin tabs I take. These new ones have several different additional ingredients that include the word cellulose combined with some other complicated words. I guess I figured cellulose would be okay . Now I wonder. I have not been diagnosed, just have had digestive problems since early childhood . This diet is a healthy one. I have been on about 8 weeks. I do notice an upsurge in energy. and an occasional day when the burning is less. Yesterday was good, today is not good at all , skeletal aching and digestive tract symptoms combined. Ruth

0

Share this post


Link to post
Share on other sites

Hi there, that sounds quite familiar <_< . I had a tooth surgery in 1998. And as soon as the anesthetic died down i experienced all kind of symptoms, too. I also had a pain in my bone in my forehead. First i thought it's a normal headache (maybe from the surgery). But soon i noticed, that it's actually not in the head. It was in my headbone in the forehead on the left side. This pain came about every half hour or so and then just disappeared. And at the same time when i had this bonepain i had a pain in my lower ab. Also on the left side. And like with Ruth they seemed to get worse at the same time. Sometimes i had problems with my hipjoints and with my right shoulder joint. And my lower spine cracked all the time and the x-rays showed, that it's already pretty good outworn for my age. That all got much better with the glutenfree diet. When i began the glutenfree diet some of my joints and bones really hurted at the beginning. I also took vitamins and the doctor said at the beginning there can be bonepain, because your body tries to put calcium back into the bones. That was a critical time, i also broke my toe shortly after i started the diet and i never had broken any bone before. But now it's better. My bone pain is also gone unless i make a diet mistake.

And there's another important thing :o . The celiac disease can come out (when you didn't know it before) after two things. The first is, when you have a lot of stress in you life and the second thing where it can be "triggered" is a surgery. After that the symptoms can start, even though you had it before and didn't know about it. Nobody knows why, but most of the cases that's how it starts. Stress. If you have it, too, it was probably your abdominal surgery then. Which probably also caused a lot of stress, like the tooth surgery for me.

Hope i could help, Stef

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hi everyone,

My symptoms started following a simple thyroidectomy that went bad.

I was in ICU for 4 days. I won't go into detail but after that I started

to have symptoms.

0

Share this post


Link to post
Share on other sites

Thanks everyone - I thought I was going crazy with this bone pain! I have been to an orthopedic dr. and a rheumatolgist, and was x-rayed, tested for ANA, lupus, rheumatoid arthritis, lyme disease, and parvovirus - all negative.

I just started the diet 3 days ago, and hoped for a change this fast, but I guess I'm too impatient. I also started taking a multi-vitamin, so maybe the calcium in that is increasing the pain?

What did you/do you take for the pain int he meantime? Now I'm on Darvocet at night, and Advil during the day (te pain is worse at night - sometimes I can't sleep.)

I took Naproxen for a while, but that stopped working.

0

Share this post


Link to post
Share on other sites

I have bone, joint and muscular pain along with extreme fatigue.

It was worse for 3 months after I went gluten-free. It then went away after 4 months of Prednisone (I have Crohns also) and now its back again.

I

0

Share this post


Link to post
Share on other sites

Hi! About pain for bone , etc. pain: I used to take acetominophen. I decided to stop taking any pain medicine. I have adjusted my footwear situation so the pain in my right foot, while strongly present some of the time, is bearable even whille walking. My other bone, muscle pains in right shoulder, along arms, in hands and to a lesser extent in my right foot are not so strong as to demand medication at present. Maybe I am getting used to them? My upper ab burning is such that Ialso am able to put up with it. I am sleeping reasonably well , but do waken for the bathroom about 3a.m. and am aware of the burning. It is more intense at that time and when I first wake up in the morning. Right now, at noon, it is also intense. I am trying out some unaccustomed foods that are on the celiac diet in order to try to get a more balanced diet and enough calories. I had a beet for breakfast ( Am breaking many rules of custom menu-wise these days) . I also had a beet for lunch yesterday. Will try a smaller portion another day . I tend to change too many variables in my routine at the same time. Cheers, Ruth

0

Share this post


Link to post
Share on other sites

Vany4,

Are you sure Darvocet is gluten-free? I have been avoiding it because one

list said it was not gluten-free.

0

Share this post


Link to post
Share on other sites

Boy - you scared me! I just looked it up - it's gluten free on the list I saved off the internet from the Wheaton Gluten-Free support group. Whew!

It seems to help me sleep better. The burning is bad at night.

0

Share this post


Link to post
Share on other sites

Of course, I forgot to add that I am taking the generic - that may be a whole different story. Nothing's easy, is it?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,433
    • Total Posts
      930,549
  • Member Statistics

    • Total Members
      63,864
    • Most Online
      3,093

    Newest Member
    Shanna
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you ps, it may be better if the thread title was changed as we now have two 'overwhelmed' topics. If it were 'Bile ducts and celiac?' then it may attract more users with direct experience?
    • Hello and welcome Maybe? From reading others accounts there's a big variation in how quickly gluten antibodies respond to the gluten diet. I did similar to you and my doctor said that 1 week back on should be enough to show up in a test, but he didn't know what he was talking about sadly... The 2 week figure refers to the endoscopy, for blood testing 8-12 weeks on gluten is more normal.  Basically if it comes back positive fine you have your answer. If its negative it may be a false negative due to your going gluten free beforehand. If you want to pursue a diagnosis then yes. Don't go off gluten again until you confirm that all testing is complete.  Keep a journal noting any symptoms, that may be useful to you later. More info here: There's some good info in the site faq: https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/ I know how you feel! Partway through my gluten challenge I knew that too results notwithstanding. Fwiw I think you've found your answer. Good luck!
    • Learn more about testing for celiac disease here: http://www.cureceliacdisease.org/screening/ You do have to be on a gluten diet for ANY of the celiac tests (blood and biopsy) to work.  While the endoscopy (with biopsies) can reveal villi damage, many other things besides celiac disease can cause villi damage too: http://www.cureceliacdisease.org/faq/what-else-can-cause-damage-to-the-small-intestine-other-than-celiac-disease/ So, both the blood test and endoscopy are usually ordered.  There are some exceptions, but those are not common.  
    • Exactly what are your allergy symptoms?  Were they IgG or IgE?  Allergy testing as a whole is not super accurate -- especially the IgG.  Were you on any H1 or H2 antihistamines for the last five days  when you were tested?   As far as celiac testing, four days without consuming gluten probably would not impact testing.  
    • I've been seeing my dr for a few weeks now about my stomach issues. We've ruled out the gallbladder and h-pylori and today I had the celiac blood tests done. From the reading I've done the past two days, it seems to me that it's highly likely that I have it. I've had digestive issues for years, but they've gotten progressively worse over the past 6 months or so. Pain and nausea when eating, bloat, eternal constipation, dh rash, at it's worse, tight cramp-like pain in a fist under my sternum, radiating through my back and around my right side keeping me up at night. Also heartburn/reflux and trouble swallowing, etc. 

      Anyway, about 2 months ago, I needed a change. I didn't go to the dr immediately because it seemed pointless. (I've mentioned stomach ache when eating to drs before and been blown off.) So, I started the Whole30 elimination diet (takes out soy, grains, dairy, peanuts, and leaves you basically eating meat & veggies). Figured it would show me what I needed to take out of my diet and hopefully feel better. It worked- I felt great! And it seems that grains and gluten are my biggest offenders. But, now I've been off gluten prior to celiac testing. It's been 7 weeks. After 4 weeks I tested steal cut oats, that I later found out were probably glutened. And then nothing until yesterday. Yesterday I had 2 pieces of bread and a muffin and today I had two pieces of bread and then the blood test. Is this going to be enough to show up on the tests? My dr said that it would probably show up, since I had some yesterday and today and was currently having symptoms. But, google seems to say that I should be glutened for 2 wks straight before testing. Has anyone tested positive after just a little gluten? If it's negative should I insist on doing it again after weeks back on gluten? I feel awful, but do want clear answers. Obviously, gluten's not going to be a part of my life any more either way. 
  • Upcoming Events