• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Big Mistake!
0

6 posts in this topic

After avoiding all the suspect foods for several months I decided to all back soy to my diet. My Chiropracter keeps telling me how good it is to make smoothies with berries, flax, and soy protein. I bought a packet of soy protein and decided to make it, and MAN, I feel awful. My heart started to race, my head hurt, and I felt depressed, like jumping out of my own skin. Its such an uncomfortable feeling. It like no matter what I wear or how I sit, Im uncomfortable.

Has anyone had this kind of reaction to soy? Im not touching it again.

Steph

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi,

Soy can be allergenic for some people. It also has major effects on thyroid function for sensitive people (this would possibly explain the depression, racing heart, etc). You can read up on soy on the Weston A Price website (just type that into your browser).

If you are going to try soy again, stick to the unprocessed traditional foods (like tofu, tempeh), etc and in strict moderation. Soy milk and protein are concentrated. Fermented soy products (like soy sauce - if you can find one without the wheat) are supposed to be ok, cause the fermentation process destroys the harmful components...

I have hypothyroid so try to avoid soy all together (though once in a blue moon I do eat a bit of tofu, which I love.

Sally

After avoiding all the suspect foods for several months I decided to all back soy to my diet. My Chiropracter keeps telling me how good it is to make smoothies with berries, flax, and soy protein. I bought a packet of soy protein and decided to make it, and MAN, I feel awful. My heart started to race, my head hurt, and I felt depressed, like jumping out of my own skin. Its such an uncomfortable feeling. It like no matter what I wear or how I sit, Im uncomfortable.

Has anyone had this kind of reaction to soy? Im not touching it again.

Steph

0

Share this post


Link to post
Share on other sites

I used to eat a lot of soy. Tiger's Milk bars, roasted soy nuts, canned soybeans, vegetarian burgers and even Edamame. I developed a wacky thyroid problem where I'd go from from hyper to hypo and was really suffering. Then I read about the connection of soy to thyroid. I cut back on the soy. And as I did, my thyroid meds were also cut back. Only when I finally decided to eliminate it totally, save for the occasional product with soy lecithin in it, did I finally get off the thyriod meds! And no more symptoms like the racing heartbeat, overheating, brain fog, etc.

Daughter is allergic to soy so I generally try not to buy anything with it in there. But we both have an egg allergy as well, mine severe. Sometimes I have no choice but to buy something with lecithin in there and if I do, it's soy and not egg based.

0

Share this post


Link to post
Share on other sites

Eating soy as a large part of your diet as a celiac is IMHO just asking for another intolerance.

I'm not rabidly anti-soy.... I just think its one of those things where if you start relying on it as a protein source its asking for trouble.

If it were me I'd take it as a warning shot and stay well away :D (I just try and moderate soy,)

0

Share this post


Link to post
Share on other sites

It is true, after we celiac's eliminate the gluten from our diets, usually soy is the next intolerance's to pop up. The only soy I get now is soy lecithin and in margarine--I try to buy butter, yet I do not like it as much. They say that many soy intolerant people can handle some of the oil, something about the heating process making it change--not sure anymore.

0

Share this post


Link to post
Share on other sites
Ads by Google:


It is true, after we celiac's eliminate the gluten from our diets, usually soy is the next intolerance's to pop up. The only soy I get now is soy lecithin and in margarine--I try to buy butter, yet I do not like it as much. They say that many soy intolerant people can handle some of the oil, something about the heating process making it change--not sure anymore.

I tested as soy intolerant (among other things). When I questioned Enterolab, they said they thought that soy lecithin would be OK. I assume this is because it wouldn't have any of the offending proteins. In my research, I've seen some say that soybean oil is OK. But other sites say that it depends on how the oil is derived from the beans. Too complicated -- I just avoid the stuff.

Even before I found I was soy intolerant -- I've read that it can be something with very subtle symptoms -- I cut out isolated soy proteins because I don't think they are healthy.

Since you (rutland) had a reaction -- to the soy or something else in the powder -- you might try eliminating soy for a few weeks (the stuff IS everywhere :blink: ) and see how you feel. I really wondered about my test result. Then, after a few weeks off soy, I found my, uh, body output to be downright normal and a couple other symptoms that I had no idea were food related cleared up. I accidentally challenged by taking a supplement that I had assumed was soy free and wasn't. My first clue was when the symptoms cropped up again. Stopped taking the supplement and everything was OK.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,317
    • Total Posts
      935,450
  • Member Statistics

    • Total Members
      64,973
    • Most Online
      3,093

    Newest Member
    jocuen
    Joined
  • Popular Now

  • Topics

  • Posts

    • Once your tTg is in the normal range, and it's only 1 point away from that, that would be considered excellent results.  tTg just has to be in the normal range to be called a success.  The number you want to be as low as possible within the normal range is the DGP or AGA testing, as that tests for dietary compliance.  This is why it is a good idea to run both tests because it gives a more complete picture.  But with these results I would say you are doing an excellent job with the diet!
    • I started a topic a couple of weeks ago about my type 1 daughter with a ttg iga result of greater than 100 being suspected of having celiac.  She saw the GI and has her biopsy scheduled for this coming Tuesday.  Seems like there is no doubt that it will show celiac but we will know soon.  I have started thinking about some of the symptoms that I have had and before my house goes gluten-free would like to test and make sure that I am not testing positive for celiac as well.  My symptoms are always tired--easy to write off--been really constipated and bloated which is a relatively new phenomenon for me.  Sometimes I get tingling in my legs/feet but that hasn't been too bothersome.   My primary care doctor tested my ttg igg which was 3 (<6 is negative) and ttg iga was <1 (<or =4 positive)  It doesn't look like he ran an immunoglobulin a test to verify that I am not immunoglobulin a deficient   He ran a cbc that showed that my MCH was high (34) indicating that I could be deficient in B12 or folic acid--I rarely drink so I don't think that could have skewed the results.  Could this be indicative of anything?  My doctor just said all my labs are good.  Do you think this rules out celiac for me or would you try to do further clarification/testing? Thanks!
    • Hi all, my TTG/iga came back. It was 4. 0-3 is considered negative and 4-10 is weak positive.  In January it was 12 and before my endoscopy in October it was >100. it plummeted those first 2 months but seems to be taking more time to get lower. Should I feel optimistic? I guess 4 seems ok. 
    • Yes, i was 230 lbs upon diagnosis. My crp had been high for over 10 yrs. The first year i lost 70 lbs of water. Then i started to realize my continued irratic gi problems were more intollernces from processed foods as well as things like dairy and legumes. I went on an elimination diet and lost 20 more lbs. I finally stopped at 135 lbs which was still healthy weight, not that i had seen it until high school. Check your folic acid. Just found i am positive for one of the MTHFR genes meaning i cannot convert folic acid, which i lost stopping processed food, so i take 3000 mcg l-methylfolate daily. This is improtant because the body needs to detox all the gluten and chemicals i stored undiagnosed so when that was blocked i developed terible nerve pain. I am 10 years clear and things are amazingly better. I am finally adding in foods i could not tolerate like avacados and turkey. I had a pill cam and colonoscapy this year and there is no visible damage like there was 10 years ago. I think it was my clean diet and time to heal. I should have had a full vitamin panel when diagnosed but had no follow up advice except stop gluten. Am on d3, k2 as well. L glutamine helped heal my gi and d ribose gave me some blood sugar stability. I get these at amazon, NOW brand. My d3 is blue bonnet since its fish not lanolin. My k2 and l methyfolate is life extension. It is a long journey but it has become normal to live gluten free and my diet is so much healthier i think my longevity is increased because i have to eat this way. Plus the arterial sclerosis i had 10 yrs ago is gone, cleaned by my body and food. Well wishes.
    • Thanks for the well wishes Jmg. It appears that you & cycling lady think the sugar maybe our issue, let me clarify that's not our issue for it is manifesting as one of our additive intolerance exposure symptoms. One both my son and I have discovered over 2016. It's not a sugar crash type or a gi symptom in our case . But excellent info for consideration for others. My concern was about additives not listed on a label which is currently not required by regulations and the havoc it can cause the consumer .It's a clear cut symptom we get when exposed to a corn derived additive. At this juncture we are possibly sensitive to a highly processed flavor or coloring from a source other than corn that would be helpful to know what that source is per label  . That's where transparency in labeling would be helpful to me and others like me. The links I included on my post reflect concerns by others out on the web  to this concept. The food diary is helpful and has been to us in discovering these sensitivity issues, but not ideal when not all additives are labeled. the label says 100 percent juice but my body says otherwise . I am well aware from personal job exposure that the food industry is not required to list every ingredient particularly if it is not a top 8 allergean which is why I went look for the info to share. As you both pointed out and maybe even helped to bring to light the importance of sugar labeling my dream is to see it a step further with additives.      
  • Upcoming Events