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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

My First Post- About My Son
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27 posts in this topic

My son always loved oyster crackers -- lived on them. The first months out of the hospital, I couldn't even be in the same aisle in the grocery store as those crackers. When I eventually did, I cried like a lunatic, right there in the store. And it felt good.

The school is legally obligated to accomodate your son. You will find, however, that is simply easier to send his food. But you aren't ready to be dealing with all this right now. I know it is so overwhelming, and depressing to think of all the stuff he's missing. To feel like you are going to "poison" him by accident, or someone else might. But believe me, you are blessed that he isn't suffering from an incurable, untreatable, degenerative illness, or one that requires dangerous medicine or therapy. I kept telling myself that over and over.

There are still lots of things he CAN eat. And what he eats is only a very small part of who he is. We try to tell our son "well, this sucks, but it's what we got, so we aren't going to let it ruin our lives". I learned to make gluten-free pizza. I learned to think creatively. I learned to never apologize for not letting him eat things, and I learned that we can do whatever we want as long as we figure out a new way to do it. (I do so miss spontaneous trips!) I learned to order MCd burgers without the bun (why do they call it a muffin?)!!! YOU WILL GET THERE!

Hang in there, you are doing fine so far. When you are ready, try Miss Roben's ---a multiple-allergy vendor on the web at www.missrobens.com . Some of our new favorite foods come from there.

Joanna

mom to a son with: celiac, egg allergy, and autoimmune enteropathy: rare disease where his body tries to reject his small intestine. Lost 25 pounds in 4 months; weighed 48 pounds at 10 yrs/hospital admission for 7 weeks, recovery for 4 months --- weighs 72 pounds and DOING GREAT!

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The gluten free pantry has a pretty good pizza crust I bought a seperate crust cutter for it. I use it as bread. Tastes pretty good crunchy from the oven.

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