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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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loca

Vomiting, Unable To Process Foods

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Hello :) I've been sick since November 2002. Up to that point, I was a somewhat healthy 18 year old girl, active in school and work and whatnot. Anyway, I have always had an intolerance to wheat gluten, and was ok avoiding it until then. In November 2002, however, one of my younger brothers died and since that day, nothing has been staying in me, really. It started out with cereal and milk. I would end up throwing them up. After that, it was basically everything else, but especially processed foods, sugars (except for honey & pure maple syrup) and anything with animal fats in them. I have been to many doctors hundreds of times in the past year plus, with no help. I lost about 20 lbs. in the two weeks following his death. Most doctors brushed it off as grief and told me to see a counselor. I do, and as much as my brother's death saddens me, I've moved on. I've lost a sister, many friends and I've gotten used to death. Other doctors checked for so many other things: lupus (which was the diagnosis based on the ANA levels and some symptoms for quite a while, until my ANA levels were normal again), pancreatitis, gosh I don't even remember most of it!!!

Anyway, my doctor called me a couple days ago after she read an article in some magazine about Celiac and she wanted me to come in to test me again. I really am sick of the tests and my arm looks like a junkie's arm from so many needle pokes. Before I waste the time (and money!!) to go in and be tested, I wanted to come here and see if my symptoms were like anyone else's or if this is just another hope-its-finally-a-diagnosis.

My main symptoms are:

- Vomiting and diarrhea after eating almost anything but fruits, vegetables and unprocessed foods

- Extreme bloating

- My belly looks fat after I eat some things... I go from a size 3 to a size 10 in a matter of minutes, just with my belly, nothing else.

- I don't gain weight no matter what I do

- I'm always tired, to the point where I sleep 12-18 hours a day (and still sleepy after that!)

- Headaches and trouble concentrating

- Feeling stupid because I can never think straight (and I used to be a straight A+ college student). I feel as if I'm in a different world sometimes.

- Trouble driving because I can't always focus correctly

And during the past year, my blood tests have shown (mostly at different times; I've not had a blood test show the same results twice this whole time):

- Extremely low levels of white cells

- Low hemacrit

- Low red cells

- High RDW (whatever that is)

- Low platelet count

- Extremely low Neutrophils and Lymphocytes (whatever they are too)

- High & low ANA levels

- Anemia

Sorry for the long post, but if any of you have the same symptoms or know that these are symptoms for Celiac, please let me know. I don't want more tests, but I don't want to be sick anymore either!

- Bella. :wub:

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Guest aramgard

Bella, Are you eating any foods with gluten in them? If so, your symptoms do sound like Celiac. The blood tests are not difficult so, if there is a possibility of your getting better why not try the blood tests. You also may have developed a problem with dairy products, because of damage to your intestine. So if you test positive for Celiac, you should also eliminate dairy from your diet for at least a couple of months. Your symptoms sound a lot like many of us Celiac's, but don't despair. We all get used to the diet and compensate with other foods that we can eat, which are much healthier anyway.

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Bella, You said you have always had an intolerance to wheat gluten. Were you diagnosed with Celiac before? And have you also been avoiding rye and barley glutens? There are many forms of hidden gluten out there, so maybe you have been having gluten all along and did not know it. The stress of losing your brother could have triggered the disease to go into a more active form. It often take a very stressful event to trigger the disease and from that point on the symptoms are much worse until you can get 100% gluten free. I would highly recommend that you get the blood tests done. Your symptoms are consistent with Celiac Disease.

God bless.

Mariann

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I don't know all what foods have gluten in them... I eat mostly a vegan diet now because I can't have animal products but I was never diagnosed when I was little with Celiac. My mom just noticed that whenever she fed me bread or cereal with wheat gluten in it, I would cry and not be able to digest it right, sometimes it would come back up, sometimes it would hurt my stomach. She figured it was that because my nanny had the same problem with one of her kids. So I haven't been eating wheat gluten, but I wasn't even aware that there was other types of gluten! And does everything that has gluten in it have to be mentioned on the label? Because I have problems with other foods that don't say anything about gluten on the label. :\

Can it be diagnosed with just a blood test? My doctor said she wanted to do some test on my intestine as well as the blood work. If it's just blood work though I guess it's not that bad. :)

Thanks a lot and God Bless :)

- Bella :wub:

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Mine was diagnosed by a blood test, and then the doctor said that they wanted to biopsy my small intestine to absolutely confirm things and assess the damage done.

It sounds like it quite possibly could be Celiac from what you've described. I also read somewhere that a traumatic emotional experience could spark it as well, which could explain why it showed up immediately following your brothers death. Mine showed up immediately after a surgery, to the day almost.

I'd let the doc run the tests, esp since you've been so sick and miserable for so long. If they come back positive, I'd also opt for a biopsy to see whats going on and confirm things.

I hope you find some answers soon, it sounds like its difficult to function and you shouldn't have to live your life like that.

=)

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Bella,

They start with the blood test, and then do a small intestinal biopsy. It is not as bad as it sounds. You are asleep for it, and they put a small tube down your throat, into your stomach and look at the upper part of your small intestine. They take a few small tissue samples. It usually doesn't hurt at all, some people have a little bit of a sore throat afterwards. I've had this done twice, and not had any problems with it. the hardest part for me is not being able to eat or drink for the morning of the test. I always end up with a headache.

As for the foods that do contain gluten, no most do not say gluten on the labels. You have to learn what to avoid. There are some nice lists of what to avoid and what is safe, but if you are not completely off gluten right now, then please do not start yet. You need to be on gluten for the testing. Get your doctor to schedule the testing as soon as possible and get it done. Then you can go completely gluten free.

God bless,

Mariann

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